Advocacy

Articles and Websites- Advocating for Your Child
Getting Started- Wrights Law
Advice for Families and caregivers- Care.com
Ten Reasons Why You Should Have An Advocate for Your Child With Special Needs- Friendship Circle
6 Ways To Advocate For Your Special Needs Child-Sheknows.com
Navigating the Storm- by Amie Borst
Toolkit: Advocating For Your Child- I-Parents
Basics About Your Child’s Rights- Understood
Tips On Advocating For Your Child with Special Needs- Take Part

 

Self-Advocacy

 Self-Advocacy- Wikipedia
Self-Advocacy- Wrights Law
Self- Advocacy Association of New York State
Self-Advocacy Online
Autistic Self-Advocacy Network

 

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Hearing Impairment Resources

Facts:

According to the World Health Organization (WHO):

  • 360 million people worldwide have disabling hearing loss.
  • hearing loss may result from genetic causes, complications at birth, certain infectious diseases, chronic ear infections and exposure to excessive noise.
  • Over 5% of the world’s population has disability loss including 32 million children

Resources

Wikipedia Definition
ASHA causes and effects of hearing loss
Basic Facts About Hearing Loss
National Institute on Deafness and other Communication Disorders Statistics
WebMD- Hearing Loss: Causes, Symptoms and Treatment
Article: For Parents with Children with Hearing Loss
Teaching Strategies for Hearing Impaired Children

 

Developmental Disability Awareness Month

March is Developmental Disability Awareness Month.

Facts
  • In 2010, 5.2 percent of school-aged children were reported to have a disability
  • 15.2 million Adults (6.3 percent experience some kind of cognitive disability.
  • According to the CDC, one in six or about 15 percent of children aged 3 through 17 years have one or more developmental disabilities.

 

The Term “developmental disability” means a severe, chronic disability of an individual that:
  1. Is attributable to a mental or physical impairment or combination of mental and physical impairment.
  2. Is manifested before the individual attains age 22
  3. Is likely to continue indefinitely.
  4. Results in substantial functional limitations in 3 or more of the following areas of major life activity:
          1. Self-care
          2. Receptive and expressive language
          3. Learning
          4. Mobility
          5. Self Direction
          6. Capacity for independent living
          7. Economic self-sufficiency
          8. Reflects the individual’s need for a combination and sequence of special, interdisciplinary, or genetic services, individualized supports, or other forms of assistance that are of lifelong or extended duration and are individually planned and coordinated.
Infants and children- An individual from birth to age 9, inclusive who has substantial developmental delay or specific congenital or acquired condition, may be considered to have a developmental disability without meeting 3 or more of the criteria described in clause 4.

CDC- Learn the Signs. Act early

History of the developmental Disabilities Act

Test how much you know about developmental disabilities.

Click on the link below an print out the word search.

developmental disability game pic

disability test

 

 

Social Work Resources

March is National  Professional Social Work Month!

The National Association of Social Workers states that this is “an opportunity to highlight the important contributions they make to society.”

Social Workers work hard to improve the lives of others including people with developmental disabilities. Some of the ways that social workers make a difference and help people with special needs include:

  • Serve as advocates

  • Locate social services and resources for families

  • Provide counseling for individuals with disabilities, families and staff

  • Manage a caseload

  • Conduct assessments

  • Coordinate new admissions and intakes

    In honor of National Professional Social Work Month, I have included some social work resources links

Blogs by Social Workers

Creative Social Worker
Morning Cuppa Coffee
Social Work Blog by the National Association of Social Workers
Social Work Career
The Social Work Podcast

 

Careers in Social Work

Be a Social Worker
Learn How to Become a Social Worker
National Association of Social Workers
Social Workers-Bureau of Labor Statistics

 

Journals and Articles

Life Review with Families who Care for Developmentally Disabled Members: A Model
Linking Models of Disabilities for Children with Developmental Disabilities

 

Social Work and Developmental Disabilities

How do Social Workers Help the Families of Children with Disabilities
Person-Centered Thinking in Developmental Disabilities
Rewards and Opportunities in Developmental Disabilities
Working with the Developmental Disability Population

 

Edwards Syndrome Resources

Edwards Syndrome also known as Trisomy 18 is a rare disorder caused by an extra copy of the 18th chromosome. Edward syndrome occurs in 1 in 6000 births and will affect female more than males. It is also the second most common trisomy after Down Syndrome

Symptoms
  • Clenched hands
  • Crossed legs
  • Low birth weights
  • Developmental delays
  • Microcephaly (small head)

Resources

Medical

emedicinehealth.com

Medscape Reference

WebMD

Genetics Home Reference

Wikipedia

Foundations

Trisomy 18 Foundation

Lucina Foundation

Family Blogs

Loving Life with Full Trisomy 18

Kayli is Loving Life Trisomy Style!!

Our Trisomy 18 Journey