Over 30 Online Resources on Rett Syndrome

 

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So much has been written on the subject of Autism, but how much do you know about Rett Syndrome? This disorder fall under the autism spectrum disorder category due to similar traits and characteristics.

Rett Syndrome is a neuro-developmental rare disorder that affects primarily girls. Discovered by Andreas Rett who described the symptoms as wasting and slow growth. Rett Syndrome is rare and occurs in 1 out of 23,000 births. The disorder consists of four stages:
Stage 1: Generally begins between the ages of 6 and 18 months. Gross motor skills begin to slow down and stagnates
Stage 2: Between the age of 1 and 3 years, will regress and lose any skills that were previous acquired.
Stage 3: During this stage, apaxia becomes apparent. Seizures become common and gross motor skills deteriorate.
Stage 4. Loses all gross motor skills and generally uses a wheelchair.

Symptoms

  • Difficulty in coordination
  • Loss of communication skills
  • Dyspraxia
  • Severe motor disabilities
  • Abnormal hand movement
  • Breathing abnormalities
  • Cold hands and feet
  • Apraxia
Similar in Autism Characteristics include:
  • Screaming
  • Crying
  • Hyperventilation
  • Lack of eye contact
Similarities in cerebral palsy include:
  • Hypotonia
  • Gait difficulties
  • Spasticity
  • Teeth-grinding

Medical Sites

Boston Children’s Hospital
Cleveland Clinic
Mayo Clinic
MedicineNet.com
Medscape
National Institute of Neurological Disorders and Strokes
National Organization for Rare Disorder
Science Daily
WebMD
Wikipedia

Organizations and Foundations

Girl Power 2 Cure
Kate Foundation
New Jersey Rett Syndrome Association
Northwest Rett Syndrome Foundation
Rett Syndrome.org
Southeastern Rett Syndrome Alliance

Twitter

Rett Girl
Rett Syndrome GP2C
Rett Syndrome News
Rett UK

Facebook

Cure Rett
Ontario Rett Syndrome Association
Rett Syndrome of Ireland

Blogs

Grace for Rett
Jessica’s Journey with Rett Syndrome
Living with Rett Syndrome
My Silent Angel’s Fight

Teaching Strategies

ACC for Children Who Have Rett Syndrome
Multi-Model Communication Strategies
Rett Syndrome: Teacher Tools
Some Rett Syndrome Tips

You Tube Video’s

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