Book Review: My Belly Has Two Buttons: A Tubie Story


Book Review: My Belly has Two Buttons: A Tubie Buttons

Author: Meikele Lee
Illustrator: Rebecca Robertson
Pages: 20

Did you know that according to the Feeding Tube Awareness Foundation, there are over 300 conditions that require children to receive a nutritional support through tube-feeding which is expected to continue to rise?  The decision to use a feeding tube can be frightening for parents, children and siblings alike. Meikele Lee, author, mom and pediatric feeding disorder advocate, wrote this book  through the eyes  of 2-year-old Nico who takes the reader through his own journey of using a G-tube describes the meaning of NPO (nothing by mouth) and his MIC-KEY. A MIC-KEY button is used to conceal the tube as well as decrease the risk of snagging and removing the G-Tube. Nico explains his day of using a feeding bag. I enjoyed reading this book. The book does a great job in describing the purpose of a  g-tube and would be an appropriate book for children new to using a feeding tube, family members including siblings, extended family member and teachers interested in expanding disability educational programs in the school.

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Free Asthma and Allergy Training Modules

Before Asthma and Allergy Awareness Month ends, I wanted to post links to free training modules on asthma and allergy. Below you will find a few that are all self-study which you can review on your own time. I included one for teachers and parents that focus on created a lesson plan for children which would be great for child with and without asthma and allergy issues.

Asthma and Nutrition Training Module– Developed by the University of Florida Pediatric Pulmonary Center, this course provides participants information on asthma and nutrition that may be used in assessing and counseling clients. This is a self-study module in a PowerPoint format with audio capture.

Asthma on Wheels Teacher Training Module– Created through the Mecklenburg County Health Department Asthma Education Program. This teacher training module provides a lesson plan to students with discussions of asthma and learning activities and list ways to educate students about asthma being a controllable condition in which students can live actively healthy lives.

Asthma Program- Indiana State Department of Health– Website includes information and resources for healthcare providers including a printable asthma medication poster and an asthma guideline implementation steps and tools.

Continuing Education for Healthcare Professionals– A free online course presented by Cross County University. This course focuses on information on assessment and monitoring, control of environmental factors, medicine management and patient education.

Food Allergy School Staff Training Module– A 30 minute module is designed to assist the school nurse in staff training and increase food allergy awareness for all staff including teachers, administration, aides, specialist and coaches.

AAIDD 2017 Conference

Image result for aaidd conference

The American Association on Intellectual and Developmental Disabilities will be holding its 141st annual meeting on June 26thru June 29th in Hartford, Connecticut. The theme for the conference is “Promoting Health and Wellness.”

Registration fees are the following:

Registration Type
        Early Bird    
 before or on June 1st 
          Regular
Beginning June 2nd 
 Member General Registration*  $355  $375
 Non Member General Registration  $505  $549
 Full Time Student Registration  $220 $235
 Retiree/Self-Advocate/Family Member $220 $235
 Member One-Day Registration  $230  $245
 Non Member One-Day Registration  $260  $280
 Pre and Post Conference Sessions** $45  $45

*The general registration fee entitles you to attend all AAIDD Annual Meeting sessions and events held on Tuesday, 6/27 and Wednesday, 6/28.
** Pre and Post conference sessions are 3 hours sessions held on Monday, 6/26 and Thursday, 6/29 and are optional.

AAIDD Corporate Members- If your organization is a Corporate member, you’ll get 20% discount on registration fees for employees at AAIDD annual meetings.


Sibling Leadership Network Conference

AAIDD is pleased to host the national meeting of our partner organization on June 24-25, 2017 in Hartford.  You’ll be able to register for this meeting through the AAIDD registration link as well.

         Registration Fee $125      

For program information about this conference, please visit: http://siblingleadership.org/2017-sln-conference/

Click here for additional information

Talking About Autism, Listen To Families


Source: The Spectrum News
Author: Shannon Des Roches Rosa

I take a deep breath before reading any article, popular or scientific, about autism. I steel myself because most of these stories paint people like my curly-haired, autistic teenage son as burdens to their families — as changelings or enigmas. I love my son Leo fiercely and consider him none of those things, so these stories hurt. My adult autistic friends are even more pained than I am by these puzzlingly negative portrayals. Click here to read the rest of the story

April Special Needs Article Links

Welcome to the April article links. These are articles that I tweeted and or received from viewers during the month of April on special needs and developmental disability topics. Enjoy!

5 practical ways to help adults with autism gain employment (Autism Parenting Magazine)

10 things I wish the entertainment industry understood about autism (The Mighty)

20 tips on employment for students with disabilities (The Inclusion Lab)

Autism and parent fatigue (Autism Awareness Centre, Inc.)

Grandparents may be first to spot autism in a child (NHS)

How animals can help autistic children  (The Conversation)

Making art galleries autism friendly (A.N)

Moms work to empower children and adults with autism (ABC News)

New guideline tackles sudden unexpected death in epilepsy (Neurology Advisor)

Robots helping to teach students with autism in West Vancouver– (Global News)

Stop telling me I don’t look autistic (Metro)

Teaching Important life skills to kids with autism (Nurse Barb’s Daily Dose)

The innovating creative superpower of ADHD (Yes Magazine)

What teachers should know about ADHD and ASD (Edutopia)

When a child with autism gets lost (HuffPost)