Going Back-to-School Presents Unique Challenges for Children with Autism

Published by: 9 & 10 News
Written by: Chloe KipleJosh Monroe

Every parent is concerned and anxious to hear what’s going to happen when the new school year rolls around.

The 2020-2021 year will be unlike any other because of coronavirus concerns. While every student will be impacted by changes, it will be an especially unique situation for children with autism.

Parents like Ashley Bursian are curious to see how any changes after her son.

7-year-old Ari has autism and is nonverbal. Bursian says he thrives off his daily routine: going to school, then to behavioral therapy. The stay-at-home orders disrupted his schedule.

“After the first month, I noticed his behavior changing a little bit, he seemed a little more nervous, a little unsure, why we were stuck at home all the time,” she said. “That led to a lot more tantrums, and meltdowns, and interfering behavior.” Click here to read the rest of the story

Intellectual Disability Resource Page

Definition:

Developmental disability is a diverse group of chronic conditions that are due to mental or physical impairments before the age of 22. A developmental disability can occur before, during or after birth. Common well-known developmental disabilities include autism, Down syndrome, cerebral palsy and Fragile X syndrome. Here are some facts and statistics on developmental disabilities.

Awareness Day: None

Awareness Month: March

Ribbon: Blue/Silver

Prevalence:

  • Developmental Disability is a severe, long-term disability that affect cognitive ability, physical functioning or both.
  • 1 in 6 or about 15% of children aged 3 through 17 have one or more developmental disabilities.
  • Between 2014 and 2016 the prevalence of developmental disability among kids ages 3 to 17 increased from 5.76 percent to 6.99 percent.
  • Prevalence of autism increased 289.5%
  • Prevalence of ADHD increased 33.0 %
  • Males have a higher prevalence of ADHD, autism, learning disabilities, stuttering and other developmental disabilities.
  • Children from families with incomes below the federal poverty level had a higher prevalence of developmental disabilities.
  • 10% of Americans have a family member with an intellectual disability.
  • Intellectual disabilities are 25 times more common than blindness.
  • Every year 125,000 children are born with an intellectual disability
  • Approximately 85% of the intellectual disability is in the mild category.
  • About 10% of the intellectual disability is considered moderate
  • About 3-4% of the intellectual disability population is severe.
  • Only 1-2% is classified as profound.

Article

15 Facts About Cri Du Chat Syndrome

20 Facts You Should Know About Down Syndrome

Dementia and Intellectual Disabilities

Early Signs of Rett Syndrome

Intellectual Disability and Epilepsy

What is Lowe Syndrome?

What is Prader Willi Syndrome?

What is Turner Syndrome?

What is Childhood Disintegrative Disorder?

Did you know that Childhood Disintegrative Disorder is  considered part of Autism Spectrum?

Childhood Disintegrative Disorder (CDD) is a condition where a child develops normally and achieves appropriate milestones up to the age of 4 and then begins to regress in both developmental and behavioral milestones and lose the skills they already learned. with a loss o skills plateauing around the age of 10.

Childhood Disintegrative Disorder is rare. It affects 1.7 in 100,000 and affects males at a higher rate than females. It is also known as Heller’s Syndrome and Disintegrative psychosis. The causes are unknown but may be linked to issues with the brain and nervous systems with some researchers suggesting it is some form of childhood dementia.

First discovered by Dr. Theodor Heller in 1908, Dr. Heller began publishing articles on his observation of children’s medical history in which he reported that in certain cases, children who were developing normally began to reverse at a certain age.

Signs and Symptoms

Children begin to show significant losses of earlier acquired skills in at least two of the following areas:

  • Lack of play
  • Loss of language or communication skills
  • Loss of social skills
  • Loss of bladder control
  • Lack of motor skills

The following characteristics also appear:

  • Social interaction
  • Communication
  • Repetitive interests or behaviors

Due to the small number of reported cases, it is included in the broad grouping of autism spectrum disorder in DSM-V under pervasive developmental disorder (PDD).  Although grouped with the autism spectrum disorder diagnosis, there are distinct differences. For example, children with CDD were more likely to be diagnosed with severe intellectual disability, epilepsy and long term impairment of behavior and cognitive functioning.

Resources

NCBI

Summit Medical Group

What is a Visual Impairment?

According to the Centers for Disease Control and Prevention (CDC), approximately 6.8% of children younger than 18 years in the United States have a diagnosed eye and vision condition and 3% of children younger than 18 years are blind and visually impaired. Visual disability is one of the most prevalent disabilities disabilities among children.

According to IDEA’s definition, visual impairment is defined s including blindness means an impairment in vision that even with correction, adversely affects a child’s educational performance. The World Health Organization (WHO), classifies visual impairment as occurring when an eye condition affects the visual system and one or more of its vision includes both partial sight and blindness

Classifications

The World Health Organization uses the following classification based on visual acuity in the better eye:

  • 20/30 to 20/60- mild vision impairment
  • 20/70 to 20/160- moderate visual impairment
  • 20/200 to 20/400- severe visual impairment
  • 20/500 to 20/1,000- profound visual impairment
  • More than 20/1,000- considered near-total visual impairment
  • No light perception- considered total visual impairment or total blindness
Types of Visual Impairment
  • Strabismus– a condition when the eyes do not align with each other (crossed eyes)
  • Congenital cataracts– a clouding of the eyes natural lens present a birth.
  • Retinopathy of prematurity– a blinding disorder that affects prenatal infants that are born before 31 week of gestation.
  • Coloboma- a condition where normal tissue in or around the eye is missing at birth.
  • Cortical visual impairment– a visual impairment that occurs due to brain injury.
Signs of Visual Impairments
  • Appears “clumsy” in new situation
  • Shows signs of fatigue or inattentiveness
  • Does not pay attention when information is on the chalkboard or reading material
  • Is unable to see distant things clearly
  • Squints
  • Eyes may appear crossed
  • Complains of dizziness.
Causes

The causes of childhood blindness or visual impairment is often caused by Vitamin A deficiency which is the leading cause of preventable blindness in children. Other causes include genetics, diabetes, injury and infections such as congenital rubella syndrome and chickenpox before birth.

Cortical Visual Impairment (CVI)

Cortical Visual Impairment in children is attributed to brain dysfunction rather than issues with the eyes. Causes included hypoxia, traumatic brain injury, neonatal hypoglycemia, infections and cardiac arrest.

 

 

References

World Health Organization (WHO)

www.cdc.org

As schools reopen, pandemic forces hard choices for special needs students

Published by: Tampa Bay Times
Written by: Rebecca Torrence

Tommy Steele’s first two virtual school lessons in the spring went great. His mom felt optimistic. Then Friday rolled around.

Tommy, a rising third-grader with Down syndrome, opened his brother’s Macbook on the kitchen table at 9 a.m. Peggy Steele sat beside her son to coax him through the day’s lesson: 45 minutes of reading and math, taught over Zoom.

Within minutes, Tommy slumped over the table. Forearms folded in front of him, he buried his head and fixed his gaze on the floor.

When he finally lifted his head, he refused to speak, but the message was clear.

No more learning for today.

Children with special needs face many roadblocks in their education, like trouble focusing on a task or communicating their thoughts. Special education programs are created to address those hurdles. But their solutions, which often rely on face-to-face interaction with teachers, may be lost during the coronavirus crisis as more families and school systems turn to virtual learning. Click here to read the rest of the story

Teaching Strategies for Dysgraphia

Dysgraphia is  learning disability that affects handwritng, spelling and the ability to put thoughts on paper. It affects fine motors skills leading to illegible handwriting, inconsistent spacing between letters and poor spelling ability. It is possible for dysgraphia to be part of the diagnosis of ADHD, autism, and dyslexia. Signs often include an awkward pencil grip, becoming quickly tired from writing and lack of punctuation and capitalization. The following links provide teaching strategies which will help to improve writing skills.

5 helpful strategies for dysgraphia

9 strategies for dysgraphia

Creating a dysgraphia- friendly classroom

Dyslexia and dysgraphia: Teaching strategies to help your students

How can teachers and schools help kids with dysgraphia?

Intervention for dysgraphia

Strategies for Dealing with Dysgraphia

Strategies for students with dysgraphia

What is dysgraphia? Support and strategies for your classroom

What teachers need to know about dysgraphia

36 Epilepsy Facts You Should Know

Epilepsy is a disorder of the central nervous system often caused by abnormal electrical discharges that develop into seizures. The following are additional facts on epilepsy and seizures:

  1. More people live with epilepsy than autism, spectrum disorders, Parkinson’s disease, multiple sclerosis and cerebral palsy combined.
  2. You can’t swallow your tongue during a seizure. It is physically impossible.
  3. You should never force something into the mouth of someone having a seizure.
  4. Don’t restrain someone having a seizure.
  5. Epilepsy is not contagious .
  6. Anyone can develop epilepsy.
  7. Epilepsy is not rare.
  8. 1 in 26 Americans will develop epilepsy in their lifetime.
  9. An estimated 3 million Americans and 65 million people worldwide live with epilepsy.
  10. In 2/3 of patients diagnosed with epilepsy, the cause is unknown.
  11. Up to 50,000 deaths occur annually in the U.S. from status epilepticus (prolonged seizures). (SUDEP) and other seizure-related causes such as drowning and other accidents.
  12. Between 4 and 10 out of 1,000 people on earth live with active seizures.
  13. 3.4 million people in the United States have epilepsy.
  14. Epilepsy is not contagious
  15. 1/3 of people diagnosed with epilepsy have uncontrolled seizures because the available treatment does not work.
  16. SUDEP accounts for 34% of all sudden deaths in children.
  17. Epilepsy costs the U.S. approximately 15.5 billion each year.
  18. A seizure is a transient disruption of brain function due to abnormal and excessive electrical discharges in brain cells.
  19. Epilepsy is a disease of the brain that predisposes a person to excessive electrical discharges in the brain cell.
  20. It is diagnosed when 2 or more unprovoked seizures have occurred.
  21. It must be at least 2 unprovoked seizures more than 24 hours apart.
  22. About 14% have simple partial seizures.
  23. 36% have complex partial seizures.
  24. 5% have tonic-clonic seizures.
  25. Seizures can be caused by head trauma, stokes, brain tumor and a brain infection.
  26. Causes are unknown in 60 to 70% of cases.
  27. The prevalence is 1% of the U.S. population.
  28. Approximately 2.2 to 3 million in the U.S. have seizures.
  29. It affects all ages, socioeconomic and racial groups.
  30. Incidents are higher in children and older adults.
  31. Seizures can range from momentarily blanks to loss of awareness
  32. Almost 150,000 people in the U.S. develop epilepsy every year.
  33. No gender is likely to develop than others.
  34. 1/3 of individuals with autism spectrum disorders also have epilepsy.
  35. The prevalence of epilepsy in people with an intellectual disability is higher than the general population.
  36. It takes up to 5 times more energy for a person with epilepsy to complete even the most simple task.

Mom equips ambulances with ‘sensory kits’ to help children with autism like her son

Published by: MLive
Written by:  Melissa Frick

MUSKEGON, MI – As the mother of a child with severe autism, Amber Horton sees firsthand the challenges that kids with sensory issues face in their everyday lives.

Everywhere the Muskegon mom goes – from the mall, to the grocery store, to the hospital – she sees ways that her son, Max, could potentially get overstimulated by the sights and sounds, leading to a sensory meltdown.

“You start seeing a need for awareness and the education about the autism spectrum everywhere in the public,” Horton told MLive. Click here to read the rest of the story.

Accommodating Visually Impaired Students

 

Accommodations and modifications at a glance: Educational accommodations for students who are blind or visually impaired

Accommodations for students who are visually impaired

Basic classroom modifications and assistive technology for students with visual impairments

Classroom accommodations for students with visual impairments

Classroom adaptations for students with low vision

College guided for students with visual impairments

Effective classroom adaptations for students with visual impairments

Material adaptations for individuals who are blind or visually impaired

Section 504 for educators and parents of children with visual impairments

Students who are blind or have visually impairments

University Centers on Disabilities Resources

Are you familiar with the Association of University Centers on Disabilities? It is a program The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. Network members consist of:

  • 67 University Centers for Excellence in Developmental Disabilities (UCEDD), funded by the Office on Intellectual Developmental Disabilities (OIDD)
  • 52 Leadership Education in Neurodevelopmental Disabilities (LEND) Programs funded by the Maternal and Child Health Bureau (MCHB)
  • 14 Intellectual and Developmental Disability Research Centers (IDDRC), most of which are funded by the National Institute for Child Health and Development (NICHD)

These programs serve and are located in every U.S. state and territory and are all part of universities or medical centers. They serve as a bridge between the university and the community, bringing together the resources of both to achieve meaningful change.

AUCD supports this national network through:

  • Leadership on major social problems affecting all people living with developmental or other disabilities or special health needs
  • Advocacy with Congress and executive branch agencies that fund and regulate programs used by people with disabilities
  • Networking and partnering with other national organizations to advance the network’s national agendas
  • Promoting communication within the network and with other groups by collecting, organizing, and disseminating data on network activities and accomplishments
  • Technical assistance provision on a broad range of topics

The following are Networks located in each State:

Alabama

The University of Alabama at Birmingham
933 19th Street South, CH19 Room 307(Location)
1720 2nd Avenue South, CH19 Room 307 (Mailing)
Birmingham, AL 35294-0021
Main Phone:  205-934-5471
Toll Free Number:  800-822-2472
Main Fax:  205-975-2380
Main Email:  fbiasini@uab.edu
Website:  www.uab.edu/civitansparks

Alaska

UCEDD,LEND Program:
Center for Human Development
University of Alaska Anchorage
2702 Gambell Street
Suite 103
Anchorage, AK 99503
Main Phone:  907-272-8270
Main Fax:  907-274-4802
Website:  http://www.alaskachd.org

Arizona

Arizona UCEDD
Northern Arizona University
Institute for Human Development
912 Riordan Ranch Road
PO Box 5630
Flagstaff, AZ 86011-5630
Main Phone:  928-523-7921
Main Fax:  928-523-9127
TTY:  928-523-1695
Website:  http://www.nau.edu/ihd/

Arkansas 

Partners for Inclusive Communities
University of Arkansas at Fayetteville
322 Main. Suite 501
Little Rock, AR 72201
Main Phone:  501-301-1100
Toll Free Number:  800-342-2923
Main Fax:  501-682-5423
TTY:  800-342-2923
Main Email:  partners@uark.edu
Website:  http://UofAPartners.uark.edu

California

UCEDD Program:
USC UCEDD at the Children’s Hospital Los Angeles
Children’s Hospital Los Angeles
University of Southern California
4650 Sunset Boulevard
Mailstop #53
Los Angeles, CA 90027-6062
Main Phone:  323-361-2300
Main Fax:  323-361-8305
Main Email:  uscucedd@chla.usc.edu
Website:  http://www.uscucedd.org
AUCD State Profile: AUCD CA State Profile

Colorado 

JFK Partners
University of Colorado Denver
School of Medicine
13121 E. 17th Ave, C234
Aurora, CO 80045
Main Phone:  303-724-5266
Main Fax:  303-724-7664
Website:  http://www.jfkpartners.org

Connecticut

UConn Center for Excellence in Developmental Disabilities
University of Connecticut A.J. Pappanikou Center for Excellence in Developmental Disabilities
263 Farmington Ave., MC 6222
Farmington, CT 06030-6222
Main Phone:  860-679-1500
Toll Free Number:  866-623-1315
Main Fax:  860-679-1571
TTY:  860-679-1502
Main Email:  bruder@uchc.edu
Website:  http://www.uconnucedd.org

Delaware

Center for Disabilities Studies
College of Education and Human Development
University of Delaware
461 Wyoming Road
Newark, DE 19716
Main Phone:  302-831-6974
Main Fax:  302-831-4690
TTY:  302-831-4689
Main Email:  mineo@udel.edu
Website:  http://www.udel.edu/cds

District of Columbia 

Georgetown UCEDD
Georgetown University
Center for Child and Human Development
3300 Whitehaven Street, NW, Suite 3300
Mailing address Box 571485
Washington, DC 20057-1485
Main Phone:  202-687-8807
Main Fax:  202-687-8899
TTY:  202-687-5503
Website:  https://ucedd.georgetown.edu/
Website 2:  https://gucchd.georgetown.edu/
Twitter:  https://twitter.com/GUUCEDD
Facebook:  https://www.facebook.com/GUUCEDD/

Florida

UCEDD,LEND Program:
Mailman Center for Child Development
University of Miami Miller School of Medicine
Department of Pediatrics
Department of Pediatrics (D-820)
P.O. Box 016820
Miami, FL 33101
Main Phone:  305-243-6801
Main Fax:  305-243-5978
Main Email:  darmstrong@med.miami.edu
Website:  http://mailmancenter.org
AUCD State Profile: AUCD FL State Profile.pdf

Georgia

Institute on Human Development and Disability
A University Center for Excellence in Developmental Disabilities Education, Research, and Service
College of Family and Consumer Sciences
River’s Crossing Building, The University of Georgia
850 College Station Road
Athens, GA 30602-4806
Main Phone:  706-542-3457
Main Fax:  706-542-4815
Main Email:  contact@ihdd.uga.edu
Website:  http://www.ihdd.uga.edu

Hawaii

Pacific Basin Program
University of Hawaii, Center on Disability Studies
1410 Lower Campus Road, #171F
Honolulu, HI 96822
Main Phone:  808-956-2303
Main Fax:  808-956-7878
Main Email:  kiriko@hawaii.edu
Website:  www.hawaii.edu/cds

Idaho 

Idaho Center on Disabilities and Human Development
College of Education, Health and Human Sciences
1187 Alturas Drive
Moscow, ID 83843
Main Phone:  208-885-6000
Main Fax:  208-885-6145
TTY:  800-432-8324
Main Email:  idahocdhd@uidaho.edu
Website:  http://www.idahocdhd.org
Facebook:  https://www.facebook.com/Idahocdhd/

Illinois 

University of Illinois UCE
Institute on Disability and Human Development (M/C 626)
Department of Disability and Human Development
The University of Illinois at Chicago
1640 West Roosevelt Road
Chicago, IL 60608-6904
Main Phone:  312-413-1647
Main Fax:  312-413-4098
TTY:  312-413-0453
Website:  http://ahs.uic.edu/disability-human-development/
Website 2:  http://go.uic.edu/DHD
Twitter:  https://twitter.com/idhd_uic
Facebook:  https://www.facebook.com/UICDHD/

Indiana 

Indiana Institute on Disability and Community
Indiana University
2810 East Discovery Parkway
Bloomington, IN 47408
Main Phone:  812-855-6508
Main Fax:  812-855-9630
Main Email:  iidc@indiana.edu
Website:  http://www.iidc.indiana.edu
Twitter:  https://twitter.com/IIDCIU
Facebook:  https://www.facebook.com/pages/Indiana-Institute-on-Disability-and-Community-at-Indiana-University/71615188471

Iowa

UCEDD,LEND Program:
Iowa’s University Center for Excellence in Disabilities
Center for Disabilities and Development
100 Hawkins Drive
Iowa City, IA 52242-1011
Main Phone:  319-384-5656
Main Fax:  319-356-8284
Main Email:  meredith-field@uiowa.edu
Website:  https://uihc.org/ucedd/
Website 2:  https://uihc.org/ucedd/iowa-leadership-education-neurodevelopmental-and-related-disabilities-project

Kansas 

Kansas University Center on Developmental Disabilities
University of Kansas
Schiefelbusch Institute for Life Span Studies
1200 Sunnyside Avenue
3111 Haworth
Lawrence, KS 66045-7534
Main Phone:  785-864-7600
Main Fax:  785-864-7605
Main Email:  kucdd@ku.edu
Website:  http://www.kucdd.org
Facebook:  https://www.facebook.com/ksucdd/?ref=aymt_homepage_panel

Kentucky

University of Kentucky Human Development Institute
University Center on Disability
University of Kentucky
126 Mineral Industries Building
Lexington, KY 40506-0051
Main Phone:  859-257-1714
Main Fax:  859-323-1901
TTY:  859-257-2903
Website:  http://www.hdi.uky.edu
Facebook:  https://www.facebook.com/ukhdi/

Louisiana

LSUHSC – Human Development Center
LSUHSC – Human Development Center
School of Allied Health Professions
411 So. Prieur Street – 4th Floor Room 472
New Orleans, LA 70112-2262
Main Phone:  504-556-7585
Main Fax:  504-556-7574
Website:  http://www.hdc.lsuhsc.edu

Maine

University Center for Excellence in Developmental Disabilities
The University of Maine
Center for Community Inclusion and Disability Studies
5717 Corbett Hall
Orono, ME 04469-5717
Main Phone:  207-581-1084
Toll Free Number:  800-203-6957
Main Fax:  207-581-1231
TTY:  800-203-6957
Main Email:  CCIDSMAIL@maine.edu
Website:  http://www.ccids.umaine.edu

Maryland

Maryland Center for Developmental Disabilities
Kennedy Krieger Institute
7000 Tudsbury Road
Gwynn Oak, MD 21244
Main Phone:  443-923-9555
Toll Free Number:  888-554-2080
Main Fax:  443-923-9570
TTY:  443-923-2645
Website:  http://www.kennedykrieger.org/community/maryland-center-developmental-disabilities

Massachusetts 

Institute for Community Inclusion/ UCEDD
University of Massachusetts Boston
100 Morrissey Blvd.
Boston, MA 02125
Main Phone:  617-287-4300
Main Fax:  617-287-4352
TTY:  617-287-4350
Main Email:  ici@umb.edu
Website:  http://www.communityinclusion.org

Michigan 

Michigan Developmental Disabilities Institute (MI-DDI)
Wayne State University
4809 Woodward Avenue
268 Leonard N. Simons Building
Detroit, MI 48202
Main Phone:  313-577-2654
Toll Free Number:  888-978-4334
Main Fax:  313-577-3770
TTY:  313-577-2654
Main Email:  middi@wayne.edu
Website:  http://ddi.wayne.edu
Twitter:  https://twitter.com/DDIatWSU
Facebook:  https://www.facebook.com/MIDDIatWSU/

Minnesota 

Institute on Community Integration
University of Minnesota
College of Education and Human Development
102 Pattee Hall
150 Pillsbury Drive SE
Minneapolis, MN 55455-0223
Main Phone:  612-624-6300
Main Fax:  612-624-9344
Main Email:  ici@umn.edu
Website:  http://ici.umn.edu
Website 2:  http://lend.umn.edu
Facebook:  https://www.facebook.com/InstituteonCommunityIntegration/

Mississippi 

Institute for Disability Studies: Mississippi’s UCEDD
The University of Southern Mississippi
118 College Drive #5163
Hattiesburg, MS 39406-0001
Main Phone:  601-266-5163
Toll Free Number:  888-671-0051
Main Fax:  601-266-5114
TTY:  888-671-0051
Main Email:  Rebekah.Young@usm.edu
Website:  https://www.usm.edu/ids/
AUCD State Profile: Institute for Disability Studies FY 2019 Report Card

Missouri 

UMKC Institute for Human Development (UCE)
215 W. Pershing
6th Floor
Kansas City, MO 64108
Main Phone:  816-235-1770
Main Fax:  816-235-1762
TTY:  800-452-1185
Main Email:  reigharda@umkc.edu
Website:  http://www.ihd.umkc.edu

Montana

The Rural Institute for Inclusive Communities
University of Montana
Corbin Hall
Missoula, MT 59812-7056
Main Phone:  406-243-5467
Toll Free Number:  800-732-0323
Main Fax:  406-243-4730
Main Email:  rural@ruralinstitute.umt.edu
Website:  http://ruralinstitute.umt.edu/
Twitter:  https://twitter.com/riic_ed
Facebook:  https://www.facebook.com/RuralInstitute
AUCD State Profile: AUCD MT State Profile.pdf

Nebraska 

Nebraska UCEDD
Munroe-Meyer Institute for Genetics and Rehabilitation
University of Nebraska Medical Center
985450 Nebraska Medical Center
Omaha, NE 68198-5450
Main Phone:  402-559-6483
Toll Free Number:  800-656-3937
Main Fax:  402-559-5737 (UCEDD)
Main Email:  mshriver@unmc.edu
Website:  http://www.unmc.edu/mmi
Twitter:  Unmc_mmi
Facebook:  https://www.facebook.com/MunroeMeyerInstitute
AUCD State Profile: HORNETS 2018 (1).pdf

Nevada 

Nevada Center for Excellence in Disabilities
University of Nevada, Reno
Mail Stop 285
Reno, NV 89557
Main Phone:  775-784-4921
Toll Free Number:  1-800-216-7988
Main Fax:  775-784-4997
TTY:  775-327-5234
Website:  http://nced.info/

New Hampshire

Institute on Disability / UCED
University of New Hampshire
Institute on Disability
10 West Edge Drive, Suite 101
Durham, NH 03824-3595
Main Phone:  603-862-4320
Toll Free Number:  800-238-2048
Main Fax:  603-862-0555
Main Email:  Contact.IOD@unh.edu
Website:  http://www.iod.unh.edu
Twitter:  http://twitter.com/unhiod
Facebook:  http://www.facebook.com/instituteondisability
AUCD State Profile: AUCD NH Profile

New Jersey

The Boggs Center on Developmental Disabilities
Department of Pediatrics
Rutgers Robert Wood Johnson Medical School
335 George Street
Suite 3500
New Brunswick, NJ 08901
Main Phone:  732-235-9300
Main Fax:  732-235-9330
Website:  http://rwjms.rutgers.edu/boggscenter

New Mexico 

University of New Mexico
Center for Development and Disability
Pediatrics
2300 Menaul Blvd NE
Albuquerque, NM 87107
Main Phone:  505-272-3000
Main Fax:  505-272-2014 (UCEDD)
Website:  http://cdd.unm.edu

New York

Rose F. Kennedy Center LEND
The Teaching Hospital of Albert Einstein College of Medicine
Montefiore Medical Center
1225 Morris Park Avenue
Bronx, NY 10461
Main Phone:  718-839-7162
Main Fax:  718-904-1162
Website:  http://www.einstein.yu.edu

North Carolina

Carolina Institute for Developmental Disabilities
The University of North Carolina at Chapel Hill
Campus Box 7255
Chapel Hill, NC 27599-7255
Main Phone:  919-966-5171
Main Fax:  919-966-2230
Website:  http://www.cidd.unc.edu/

North Dakota

North Dakota Center for Persons with Disabilities
Minot State University
Memorial Hall 203
500 University Avenue West
Minot, ND 58707
Main Phone:  701-858-3580
Toll Free Number:  800-233-1737
Main Fax:  701-858-3483
TTY:  701-858-3580
Main Email:  ndcpd@minotstateu.edu
Website:  http://www.ndcpd.org
Facebook:  https://www.facebook.com/North-Dakota-Center-for-Persons-with-Disabilities-NDCPD-118515191583313/
AUCD State Profile: AUCD in North Dakota

Ohio

University of Cincinnati Center for Excellence in Developmental Disabilities
Cincinnati Children’s Hospital Medical Center
Division of Developmental and Behavioral Pediatrics
3333 Burnet Avenue
MLC 4002
Cincinnati, OH 45229-3039
Main Phone:  513-803-0653
Main Fax:  513-803-0072
TTY:  513-636-4900
Main Email:  ucucedd@cchmc.org
Website:  https://www.ucucedd.org
Facebook:  www.facebook.com/ucucedd

Oklahoma

Center for Interdisciplinary Learning and Leadership
University of Oklahoma Health Sciences Center
College of Medicine
PO Box 26901, ROB 342
Oklahoma City, OK 73190-3042
Main Phone:  405-271-4500
Toll Free Number:  800-627-6827
Main Fax:  405-271-1459
TTY:  405-271-1464
Website:  http://www.ouhsc.edu/thecenter/

Oregon

Oregon Health & Science University UCEDD
Oregon Health & Science University
Institute on Development & Disability
707 SW Gaines St.
Portland, OR 97239
Main Phone:  503-494-8364
Main Fax:  503-494-6868
Main Email:  idd@ohsu.edu
Website:  http://www.ohsu.edu/ucedd
Twitter:  https://twitter.com/OHSUUCEDD
Facebook:  https://www.facebook.com/OHSU.UCEDDCPC/

Pennsylvania 

Institute on Disabilities/UCEDD
Temple University
1755 N 13th Street, Suite 411
Howard Gittis Student Center – South
Philadelphia, PA 19122
Main Phone:  215-204-1356
Main Fax:  215-204-6336
TTY:  215-204-1356
Main Email:  iod@temple.edu
Website:  http://disabilities.temple.edu

Puerto Rico 

Puerto Rico University Center for Excellence on Developmental Disabilities/IDD
Graduate School of Public Health
Medical Sciences Campus
University of Puerto Rico
P.O. Box 365067
San Juan, PR 00936-5067
Main Phone:  787-754-4377
Toll Free Number:  866-754-4300
Main Fax:  787-764-5424
Website:  http://iddpr.rcm.upr.edu/

Rhode Island

UCEDD Program:
Paul V. Sherlock Center on Disabilities
Rhode Island College
600 Mount Pleasant Avenue
Providence, RI 02908
Main Phone:  401-456-8072
Main Fax:  401-456-8150
Website:  http://www.sherlockcenter.org

South Carolina

Center for Disability Resources
University of South Carolina
Department of Pediatrics
School of Medicine
Columbia, SC 29208
Main Phone:  803-935-5231
Main Fax:  803-935-5059
Website:  http://uscm.med.sc.edu/cdrhome/

South Dakota 

Center for Disabilities
Sanford School of Medicine of The University of South Dakota
Department of Pediatrics
1400 West 22nd Street
Sioux Falls, SD 57105-1570
Main Phone:  605-357-1439
Toll Free Number:  800-658-3080
Main Fax:  605-357-1438
TTY:  800-658-3080
Main Email:  cd@usd.edu
Website:  http://www.usd.edu/cd
Twitter:  https://twitter.com/CD_SouthDakota
Facebook:  https://www.facebook.com/CDSouthDakota/

Tennessee 

Boling Center for Developmental Disabilities
University of Tennessee Health Science Center
711 Jefferson Avenue
Memphis, TN 38105
Main Phone:  901-448-6511
Toll Free Number:  888-572-2249
Main Fax:  901-448-7097
TTY:  901-448-4677
Website:  http://www.uthsc.edu/bcdd/

Texas

Texas Center for Disability Studies
The University of Texas at Austin
Commons Learning Center
10100 Burnet Road
Austin, TX 78758-4445
Main Phone:  512-232-0740
Toll Free Number:  800-828-7839
Main Fax:  512-232-0761
TTY:  512-232-0762
Website:  https://disabilitystudies.utexas.edu/
Twitter:  https://twitter.com/TCDS_UT
Facebook:  https://www.facebook.com/TexasCenterforDisabilityStudies

Utah

Center for Persons with Disabilities
Utah State University
University Center for Excellence in Disabilities
6800 Old Main Hill
Logan, UT 84322-6800
Main Phone:  435-797-1981
Toll Free Number:  866-284-2821
Main Fax:  435-797-3944
TTY:  435-797-1981
Website:  http://www.cpd.usu.edu
Twitter:  https://twitter.com/@cpdusu
Facebook:  https://www.facebook.com/cpdusu/

Vermont

Center on Disability and Community Inclusion
The UCEDD of Vermont/University of Vermont
College of Education and Social Services
Mann Hall – 3rd Floor
208 Colchester Avenue
Burlington, VT 05405-1757
Main Phone:  802-656-4031
Main Fax:  802-656-1357
Main Email:  Jeanne.Nauheimer@uvm.edu
Website:  http://www.uvm.edu/cdci/
Twitter:  @CDCIatUVM
Facebook:  https://www.facebook.com/CDCIatUVM/

Virginia

Partnership for People with Disabilities
Virginia University Center for Excellence
Virginia Commonwealth University
PO Box 843020
700 E. Franklin Street
Richmond, VA 23284-3020
Main Phone:  804-828-3876
Main Fax:  804-828-0042
TTY:  800-828-1120
Website:  http://www.vcu.edu/partnership

Washington

Center on Human Development and Disabilities
University of Washington
Center on Human Development and Disability
PO Box 357920
Seattle, WA 98195-7920
Main Phone:  206-543-2832
Main Fax:  206-543-5771
Main Email:  Chdd@u.washington.edu
Website:  http://www.depts.washington.edu/chdd/ucedd.html

West Virginia

Center for Excellence in Disabilities (CED)
West Virginia University
959 Hartman Run Road, Research Park
Morgantown, WV 26505
Main Phone:  304-293-4692
Toll Free Number:  888-829-9426
Main Fax:  304-293-7294
TTY:  800-518-1448
Main Email:  contact@cedwvu.org
Website:  http://www.cedwvu.org/
Facebook:  https://www.facebook.com/wvuced/?fref=ts

Wisconsin

Waisman Center
University of Wisconsin-Madison
1500 Highland Ave
Madison, WI 53705-2280
Main Phone:  608-263-1656
Main Fax:  608-263-0529
Website:  http://www.waisman.wisc.edu/
Website 2:  https://wilend.waisman.wisc.edu/

Wyoming

Wyoming Institute for Disabilities (WIND)
University of Wyoming
Department 4298
1000 E. University Avenue
Laramie, WY 82071
Main Phone:  307-766-2761
Main Fax:  307-766-2763
TTY:  307-766-2720
Main Email:  uw.wind@uwyo.edu
Website:  http://www.uwyo.edu/wind
Twitter:  https://twitter.com/wind_wyo
Facebook:  https://www.facebook.com/Wyominginstitutefordisabilities/?ref=aymt_homepage_panel