Published by: TODAY
Written by: Meghan Holohan
Students today are taught to “run, hide, fight” during a school shooting — but what if you can’t do any of those? Many parents fear that school lockdown plans are forgetting about kids with disabilities.
Seth Chessman can’t move his legs below his knees. The 10-year-old navigates life pretty well with a wheelchair, or sometimes a skateboard he uses to get around school. But his mom, Contessa Chessman, worries he would struggle to escape during a fire or an active shooter situation.
“If there is an emergency situation, he can’t get up and run out,” Contessa Chessman, 46, of Anaheim Hills, California, told TODAY. “It paralyzes me to think about it to be honest.” Click here to read the rest of the story
Published by: Our Crazy Adventure in Autismland
Written by: Teresa Cooper
Ever wondered whether to have a second or third child after having a child diagnosed with autism? It can be difficult to think about it when you have the challenges in front of you, but many parents have had other children and found out just how rewarding it is to have siblings for children with autism. Here are some of the thoughts they’ve shared on the topic. Click here to read the rest of the story.
Published by: The Autism Site
When I was a teenager arguing with my mom about curfew, she said, “Of course I’m always going to worry. I’m your mother, it’s my job.”
Moms can be real-life superheroes sometimes, but they’re human, too. They worry, they plan ahead, and they do what they can to keep us safe while knowing full well that scary and dangerous situations still may find us anyway.
For children with special needs or medical conditions, that worry takes on a sharper edge. Click here to read the rest of the story.
Published by: The Autism Site
Written by: Elizabeth Nelson
If you’ve been in the autism community for long, you’ve surely heard the term “high-functioning” applied to people on the autism spectrum who don’t also have an intellectual disability or don’t require much extra assistance navigating the world. It’s common to hear this phrasing not only in everyday life but also in higher-quality resources like medical journals. But many people have already identified problems with the common use of the term “high-functioning,” and recent research further reiterates why the word shouldn’t be used. Click here to read the rest of the story.
Published by: Someone’s Mum Blog
To most parents, the words tantrum and meltdown are interchangeable – a way to describe a frustrated and uncontrollable child – the name for those moments when strangers stare and you wish you could shrink into yourself. Every parent knows them.
To the parents of autistic children, and parents of children with sensory processing issues, those words will always mean very different things.
It is hard to make others understand. The difference between those two words is central to my life. I wish I could explain; I wish I could show you…
But a child in meltdown is confidential. I cannot show my gorgeous boy in full meltdown mode because it is, should be, taboo. It lays him bare, at his most vulnerable. He is pure emotion, pure anguish. There are no photos, no record of our bleakest times but these words.
There are those who will witness such moments; they will see. But they will not KNOW. No one, not even his grandparents, cousins, aunts, uncles – the hundreds of people who love him – they do not KNOW.
I can give you the definitions – Click here to read the rest of the story
CDKL5 is a neurodevelopmental disorder that includes signs of early-onset epilepsy. In fact 90% of children diagnosed with CDKL5 disorder are more likely to develop epilepsy. CDKL5 is derived from a gene and one of the most common causes of genetic epilepsy. Children diagnosed with CDKL5 also face many other developmental challenges as well.
Image by PublicDomainPictures from Pixabay
It is a neurodevelopment disease caused by the CDKL5 gene.
It impacts cognitive, motor, speech and visual function
It affects 1 in 40,000-60,000 children each year.
CDKL5 was previously called STK9
The disorder mainly affects females
The cause of CDKL5 deficiency disorder is unknown
Signs of CDKL5 deficiency includes epileptic seizures
Starting within hours of birth to 2 years of life, some children often go for 24 hours or more without sleeping.
Signs and Symptoms of CDKL5
The following are teaching strategies that can used when teaching children with the CDKL5 disorder:
- Provide frequent breaks
- Use assistive technology
- Provide extra time
- Repeat directions
- Use concrete items when possible
- Break task into smaller steps
- Teach in sequence
- Use a multisensory approach
- Use hand-on material
Genetic Home Reference
International Foundation for CDKL5 Research
Dysfunctional sensory system is a common Symptom of Autism as well as other developmental disabilities. In this, sometimes one or more senses can either be hypo or hyper sensitive to stimulation and can lead to behaviors like rocking, spinning, and hand- flapping, irritability and hyperactivity.
There are three basic senses that are critical for our survival- tactile, vestibular, and proprioceptive. Sensory Integration techniques or therapies of these senses can facilitate attention and awareness, and reduce overall arousal.
In this article, each of these sensory systems will be covered. There also will be a Do-it-yourself (DIY) activity mentioned to overcome dysfunction and improve functioning of these sensory systems. Click here to read the rest of the story.
Published by: Speaking of Autism
I want you to imagine that you are a kid once again, maybe ten or eleven years old. You are sitting down in the evening with your family for dinner. The table is set, and your parents bring out what will be tonight’s entree: a cut of cold, raw chicken breast. It’s slimy pink mass slides onto the plate in front of you, and soon after your whole family is chowing down on the raw cuts of meat. You can’t stand to even watch anyone else eat the raw chicken, let alone fathom yourself choking it down. Yet, despite the very real disgust and aversion you feel towards the raw chicken breast, somehow it’s you who are strange for not wanting to eat it. Maybe you’re called “picky” or told that you simply need to and just learn to enjoy raw chicken like everyone else. Maybe you go hungry every night at dinner because the only thing being served are items as aversive as the cuts of raw chicken. Click here to read the rest of the story.
June 14th is the designated day to celebrate the American flag. The purpose of Flag Day is to reflect on the foundations of the Nation’s freedom. The following activities can be used to improve fine motor skills for both children and adults with disabilities. From cutting to coloring , the activities also use a multi-sensory approach to learning.
Arts and Crafts
DLTK Flag Day– Flag day crafts including coloring pages and tracing.
Education World– Flag day lesson plan activities
Enchanted Learning– Allows you to click on any of the crafts to get to the instructions.
Flag Day Crafts– Includes creating a togetherness flag, star cookie cutter and a craft stick American Flag
No Time for Flash Cards- Create an American flag sticky window collage
Flag Day Inspired Recipes
Food Network– 6 Star spangled red, white, and blue recipes made for flag day.
Saralee Bread- Flag day food art recipe
Taste of Home- Top 12 flag-shaped recipes
Tasty Kitchen– Recipe for cakes and cupcakes in the shape of the American flag.
Flag Day Coloring
Color me good
Doodle Art Alley
Get Coloring Pages
Train operator GWR is now working for their second year in providing bespoke autism awareness raising sessions for their front line staff, allowing them to be better prepared to help people living with the condition use public transport.
Looking to provide the best possible experience for all passengers, GWR is working in collaboration for a second year with UK Autism charity Anna Kennedy Online increasing autism awareness to help its staff improve in meeting the needs of those travelling with autism.
For many with an Autism spectrum condition, some of the more commonly experienced issues is increased anxiety and sometimes overwhelming sensory processing information as well as the need for structure and reassurance. Click here to read the rest of the story.