Fragile X Syndrome is a genetic disorder and is the most common form of inherited intellectual and developmental disability. It is estimated to affect 1 in 4,000 males and 1 in 8,000 females. Characteristics include learning disorders, sensory issues, speech and language and attention disorders.
Learning challenges include, difficulty in processing information, understanding concepts, poor abstract thinking and cognitive delays. The following sites provide information on teaching students with Fragile X Syndrome.
Best Practice in Educational, Strategies and Curricula (National Fragile X Foundation)
Education Planning for Fragile X Syndrome for Patients (UPMC Children’s Hospital of Pittsburg)
Fragile X in the Classroom (TeAchnology)
Fragile X Syndrome Teaching Strategies and Resources (Teacher’s Gateway to Special Education)
General Educational Guidelines for Students with Fragile X Syndrome (National Fragile X Foundation)
Student Teaching Tips: Helping your students with Fragile X (Magoosh)
Strategies for Learning and Teaching (National Council for Special Education)
Many adult responsibilities require focus, organisation and composure, as a person is expected to juggle different tasks to effectively manage their career, family and home.
An adult with undiagnosed attention deficit hyperactivity disorder (ADHD) can struggle with some of these responsibilities. For example, they may underperform academically and professionally or have trouble maintaining relationships. These issues can then leave a person battling with low self-esteem as they question why they encounter such difficulties when other people don’t seem to.
If you think that someone you’re close to has undiagnosed ADHD, or if you are looking to get information for yourself, we have listed the common symptoms of ADHD in adults, and outlined the steps a person needs to take to receive a diagnosis and any necessary support. Click here to read the rest of the story.
Source: Dr. Dina
I work in a multidisciplinary office, meaning that there are always kiddos running around who are working with other therapists – occupational therapists, speech therapists, behavior therapists, and preschool teachers. In such a busy environment, I’ll often get pulled aside by another therapist to take a look at a child who is walking on their toes. This is always an interesting scenario, since toe walking can range from a totally normal developmental phase to a larger issue.
What is toe walking?
Toe walking is a very common developmental phase that most children go through as they learn to walk. From when your child learns to walk until around 2 years old, it is not out of the ordinary to see your toddler up on their tip toes, and taking steps with their heels not touching the ground. Concerns may arise when the child continues to walk on their toes beyond that age range. In these cases, it can simply be a habit that the child has developed, a sensory seeking behavior, or a sign of a larger issue. Click here to read the rest of the story.
Source: Adelphi University
Adelphi students with autism or nonverbal learning disorders will have even more resources at the University this year, thanks to a $50,000 grant awarded to the Bridges to Adelphi program.
The Bridges to Adelphi program has helped students on the autism spectrum and those with nonverbal learning disabilities navigate the college experience since 2007. The new funds, from The Disability Opportunity Fund (DOF) of Rockville Centre, New York, will be used to expand the program’s vocational services and better prepare students for their postcollege careers.
The grant allows the program to hire a transition coordinator who will work with seniors and alumni looking for job placements and a community partnership developer who will help recruit organizations interested in making jobs or internships available to Bridges students.
“We need to be out in the community looking to build new partnerships because our graduating classes are growing,” said Mitch Nagler, MA ’06, director of the program. “This May, we’ll graduate 22 students, and this is a huge challenge for us to put them out there and get them into the right place.” Click here to read the rest of the story
Source: Lifestyle Yahoo
Written by: Molly D. Dann-Pipinias
Which came first? The anxiety or the autism? For me, anxiety and autism have always gone hand in hand. I have heard from multiple people, including past agoraphobics, that my anxiety is the worst they’ve ever experienced. My anxiety manifests in many different ways. My panic attacks can range from a five-minute crying spree to not being able to breathe correctly for a week. I also have a relatively new type of panic attack that feels like an actual heart attack. I have a lot of trouble with highway driving anxiety as well, especially when I’m going through a difficult time. It can cause me to become disassociated and make me feel unsafe.
When I get anxious, I can get really fixated on things. I need to complete the task or find the object before my anxiety can go away. This can lead me to do the same things over and over again, even when I know it won’t work. I can usually tell when something actually needs to be worried about vs. my irrational anxiety, but I don’t have the capacity to stop the irrational anxiety. Click here to read the rest of the story
Written by: Charlotte Vowles
Growing up, Heidi Slatter always felt she was different from other children.
Heidi, who lives in Paignton, grew up and went to school in Totnes. Unfortunately for Heidi, school was a traumatic experience, a place where she said she experienced bullying from teachers as well as other pupils. Click here for the rest of the story.
She said: ”I was highly sensitive, intelligent and doing life differently.’
”I had a horrendous time at school. Which has now left me with childhood trauma. I left with no GCSES or qualifications. The school system completely failed me and I suffered intense bullying. I was not being listened to, or got told I was a naughty child.”
Published By: Spectrum of Wellness
Written By: Anna Laurab
Do you have a child with both food allergies and autism? If so, it can be doubly challenging and overwhelming at times. However, it is possible to manage both without going nuts. Here are some tips to help you accomplish this:
1. Take inventory of what kind of help and resources you need. I recommend hiring a health coach, or nutritionist to help you with the nutrition and meal planning part. You can of course hire me as a health coach. Check out what I offer on my coaching page. Otherwise I can provide you with referrals for a nutritionist or pretty much anyone or anything you might need. Click here to read the rest of the story.
Source: Living Autism
Written by: Geoff Evans
One definition of a foundation refers to it being an anchor and providing a solid surface upon which to build.
In a world of quick fixes and instant solutions when supporting individuals with autism we are all at risk of being drawn in to trying interventions and approaches that offer a quick fix or an easy solution without having to do all the hard work of laying the foundations that will help ensure success.
Over many years of working with children and adults with autism I have learnt that what often works is taking time to lay the foundations, that is to ensure we have both the values and best practice in place to support what we do. In this article I explore some of the basics that help provide a firm foundation upon which we can build successful interventions and approaches.
The person with autism has a right to be consulted with and involved in all aspects of living their lives including what approaches and interventions are used
Underpinning all we do should be a commitment to seeking the views and opinions of the person with autism irrespective of their abilities and how autism impacts upon them. Whilst we may take this for granted in the past we might have often put approaches and strategies in place without consulting and actively involving the person with autism and then wondered why they were not successful. I will cover this area in more detail in a future article; however, for now it is worth considering and asking yourself the following:
1. What support and methods can we put in place to enable the person with autism to be fully involved, make comments and make real choices regarding their lives and the support they receive? This can include the use of photographs, symbols, video clips or one of the many Apps that are now available for smart devices. Click here to read the rest of the story.
Written by: Nicholas Fearn
An 18-year-old software developer has created an iOS app to help those on the autistic spectrum in their day-to-day lives.
Ethan Shallcross, who has a form of autism and lives in the English town of Torquay, developed Aumi to enable people to manage their anxiety, monitor their mental health and reduce burnout.
“The app has been built with people on the autism spectrum in mind, and his has influenced the design and functionality of the entire app,” he says. “However, it is not just for people on the autism spectrum. People who have high anxiety, are frequently burnt out, or struggle with their mental health may also find it useful.” Click here to read the rest of the story.
Source: Disability Scoop
Fewer than half of states are meeting their obligations to properly serve students with disabilities, the U.S. Department of Education says.
In an annual review of performance under the Individuals with Disabilities Education Act, federal officials found that just 21 states deserved the designation of “meets requirements” for the 2017-2018 school year.
The remaining states were classified as “needs assistance.” Click here to read the rest of the story.