Factsheet: Cornelia de Lange Syndrome

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Developmental Disability Factsheet

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Cerebral Palsy- Facts and Statistics

According to the Centers for Disease Control and Prevention (CDC), Cerebral Palsy (CP) is a group of disorders that affect a person’s ability to move and maintain balance and posture. It is the most common motor disability in childhood. It is estimated that an average of 1 in 345 children in the U.S. have cerebral palsy

The following are facts and statistics worldwide on cerebral palsy:

  • Around 764,000 people in the United states have at least one symptom of cerebral palsy
  • Around 10,000 babies are born each year with cerebral palsy
  • Boys are diagnosed more often than girls
  • Cerebral palsy is the mot commonly diagnosed childhood motor disability in the United States
  • Over 77% of children with cerebral palsy have the spastic form
  • More than 50% of all children with cerebral palsy can walk independently
  • African American children with cerebral palsy are 1.7 times more likely to need assistance with walking or be unable to walk at all
  • Around 41% of babies and children with cerebral palsy will have limited abilities in crawling, walking and running.
  • Around 41% children with cerebral palsy in the United states have some form of a cognitive disorder
  • Behavior problems are common in children with cerebral palsy including social skills and anger issues.
  • Seizures are a common associate disorder of cerebral palsy and can range from mild to extreme severe.
  • There is no known cure
Australia Facts and Statistics
  • 1 in 700 Australian babies is diagnosed each year
  • 1 in 2 is in chronic pain
  • 1 in 2 has an intellectual disability
  • 1 in 3 cannot walk
  • 1 in 4 also has epilepsy
  • 1 in 3 has hip displacement
  • 1 in 4 cannot talk
  • 1 in 4 has a behavior disorder
  • 1 in 5 is tube fed
  • 1 in 5 has a sleep disorder
  • 1 in 10 has a severe vision impairment
  • 1 in 25 has a severe hearing impairment
United Kingdom- Facts and Statistics
  • The current United Kingdom incidence rate is around 1 in 400 births
  • Approximately 1800 children are diagnosed with cerebral palsy each year
  • There are an estimated 30,000 children with cerebral palsy in the United Kingdom
  • For every 100 girls with cerebral palsy, there are 135 boys with cerebral palsy
  • just under half of children with cerebral palsy were born prematurely
  • One in three children with cerebral palsy is unable to walk
  • One in four children with cerebral palsy cannot feed or dress themselves
  • one in four children with cerebral palsy has a learning disability
  • one in fifty children with cerebral palsy has a hearing impairment

 

Resources

Cerebral Palsy Alliance-Australia

Cerebral Palsy Guidance

The Pace Centre Organization

Free Printable Angleman Syndrome Factsheet

English pediatrician, Dr. Harry Angleman first described Angelman syndrome in 1965 when he observed 3 children who had similar features including unusual happiness, developmental delays and similar facial disorders. He originally called it the “Happy Puppet Syndrome” based in a 17th century Italian painting by Gian Francesco Coroto. In most cases, a gene located on chromosome 15 is generally missing or damaged, in some cases, the individual may have 2 copies of the paternal chromosome 15. It is considered a developmental disability where children and adults will require ongoing services. Click the link below to download the factsheet.

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Developmental Disability Facts and Statistics

Developmental disability is a diverse group of chronic conditions that are due to mental or physical impairments before the age of 22. A developmental disability can occur before, during or after birth. Common well-known developmental disabilities include autism, Down syndrome, cerebral palsy and Fragile X syndrome. Here are some facts and statistics on developmental disabilities.

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  • Developmental Disability is a severe, long-term disability that affect cognitive ability, physical functioning or both.
  • 1 in 6 or about 15% of children aged 3 through 17 have one or more developmental disabilities.
  • Between 2014 and 2016 the prevalence of developmental disability among kids ages 3 to 17 increased from 5.76 percent to 6.99 percent.
  • Prevalence of autism increased 289.5%
  • Prevalence of ADHD increased 33.0 %
  • Males have a higher prevalence of ADHD, autism, learning disabilities, stuttering and other developmental disabilities.
  • Children from families with incomes below the federal poverty level had a higher prevalence of developmental disabilities.
  • 10% of Americans have a family member with an intellectual disability.
  • Intellectual disabilities are 25 times more common than blindness.
  • Every year 125,000 children are born with an intellectual disability
  • Approximately 85% of the intellectual disability is in the mild category.
  • About 10% of the intellectual disability is considered moderate
  • About 3-4% of the intellectual disability population is severe.
  • Only 1-2% is classified as profound.

 

Resources

National Institute of Health