30 Resources for World Down Syndrome Day

Today is World Down Syndrome Day. A campaign designed to create a single voice for advocating for the rights, inclusion and well-being of people with Down Syndrome. Resources on this page include information on inspiring articles and facts on people with Down Syndrome.

Post From Special Needs Resource Blog:

20 Facts You Should Know About Down Syndrome

Down Syndrome Characteristics

Facts About Down Syndrome (Infographic)

Mosaic Down Syndrome Resources

Signs of Autism and Down Syndrome

Top Books On Down Syndrome For Parents and Professionals

Down Syndrome Organizations
Band of Angels: http://www.bandofangels.com/-

Established in 1994, Band of Angels provides support for individuals with Down Syndrome and their families. The website offers links on Down Syndrome support groups and a litany of topics including, adoption, autism and education.

Down Syndrome International https://www.ds-int.org/

A U.K. based international organization comprising a membership of individuals and organizations from all over the world. Disseminates information on Down Syndrome including prenatal diagnosis, early intervention, education, medical, health, employment, aging and human rights. Down Syndrome International also promoted World Down Syndrome Day (March 21) as a day dedicated to people with Down Syndrome.

Global Down Syndrome http://www.globaldownsyndrome.org/

Provides fundraising, education and governmental advocacy for the Linda Crnic Institute for Down Syndrome. Resources available on the website include, information on research, medical care and facts on Down Syndrome.

International Down Syndrome Coalition: http://theidsc.org/

Dedicated to helping and advocating for individuals with Down syndrome from conception and throughout life. Offers support to parents who are new to the Down syndrome diagnosis by connecting parents to each other.

National Association for Down Syndrome http://www.nads.org/

NADS is the oldest organization in the United States serving individuals with Down syndrome and their families. Also provides families with information and resources that will enable them to access appropriate services and educates the public about Down syndrome.

National Down Syndrome Congress http://www.ndsccenter.org/

The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.

National Down Syndrome Society http://www.ndss.org/

NDSS provides resources to new and expectant parents and offers a toll-free helpline and email services. NDSS also focuses on transitions , wellness and education

 

The following are articles highlighting stories around the country on Down syndrome:

Clemson Student With Down Syndrome To Compete In Pageant

Couple with Down Syndrome Celebrate 22 Years of Marriage

Displaying The Myths of Down’s Syndrome

First Person With Down Syndrome Finishes Local Half-Marathon

Funny Down Syndrome Ad Will Change The Way You Feel about “Special Needs”

Gerber Baby 2018: Lucas Warren is the company’s first spokesbaby with Down Syndrome

Get To Know Madeline Stuart, The World’s First Supermodel With Down Syndrome

Swimmers with Down Syndrome Find Empowerment in the Pool

Walgreens Features Model With Down Syndrome

Woman With Down Syndrome Starts Her Own Bakery

Inspiring Video’s

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25 Must-Read Resources for Siblings of Children and Adults With Disabilities

This is an article that I have wanted to write for a long time as it is personal to me. I watch my youngest nephew growing up with the responsibility of caring for his older brother with a disability. From helping him get dressed in the morning to looking out for him while in school. As my nephew without disabilities grew, he would ask me why his brother was treated so special by others around him which is a difficult question to answer. Now an adult with a family of his own, he still is protective of his brother and continues to love him and look out for him.

Children who have siblings with disabilities often carry an added weight. They are protective of their siblings and from this added experience, it has taught them to be compassionate towards others. the following resources are useful for siblings, parents and providers looking for information to help families with disabilities.  Please email me at specialneedsresourceblog@gmail.com if you have additional information that you would like to share.

Sibling Organizations and Support Groups

Sibling LeadershipThe mission of the Sibling Leadership Network is to provide siblings of individuals with disabilities the information, support and tools to advocate with their brothers and sisters and to promote the issues important to them

Siblings of Autism-Siblings of Autism is dedicated to supporting the siblings of individuals on the autism spectrum through educational scholarships, respite funds and outreach programs.

The Sibling Support Project– National program dedicated to the life-long and ever-changing concerns of brother and sisters of people with special health, developmental, and mental health concerns

Sibling Resources– A growing network of adult siblings of people with intellectual disabilities and developmental disabilities. Provides up-to-date information, resources and training opportunities.

Sibling  Support Resources

I Am A Sibling- The ARC

Sibling Support- Family Drug Help

There with Care

SOCIAL MEDIA

Facebook Group

Sibling of Children with Disabilities

Instagram

Special_Needs_Siblings

Siblings of Autistic Kids

Sibling of Special Needs

Twitter

Sibs

Special Needs Siblings

Article Links

5 ways to support siblings in special needs families (Child Mind Institute)

8 things siblings of children with special needs struggle with (Washington Post)

10 great books if you have a sibling with special needs (Friendship Circle)

12 ways to support siblings (Brooks Publishing Company)

Caring for siblings of children with special needs (Kids Health)

Dear sibling to a child with special needs (The Mighty)

Emotional problems facing siblings of children with disabilities (Psychiatry Advisor)

Having an autistic sibling (National Autistic Society)

Helping siblings of children with autism spectrum disorder (Raising Children)

Siblings and Cerebral Palsy (Cerebral Palsy Guidance)

Sibling Issues (Center for Parent Information and Resources)

Sibling of children with disabilities (Psychology Today)

Supporting siblings of children with disabilities in the school setting (ERIC.ed)

Ways a child care providers can support siblings of children with special needs (Extension)

Dyslexia Resources

 

Statistics

Dyslexia Center of Utah
Dyslexia Facts and Statistics- Austin Learning Solutions
Dyslexia Statistics- Learning Inside-Out
Dyslexia Statistics and Myth Busting

Medical Sites

Kids Health
Mayo Clinic
Medicine Net
National Institute of Neurological Disorders and Stroke (NINDS)
WebMD
Wikipedia

 

Organizations

American Dyslexia Association
Davis Dyslexia Association International
International Dyslexia Association
Learning Disabilities Association of America
National Center for Learning Disabilities
The Dyslexia Foundation

Books

The Dyslexic Advantage: Unlocking the Hidden Potential of the Dyslexic Brain
Dyslexia: Tine for Talent
Secret Life of a Dyslexic Child
The Gift of a Dyslexic Child
Dyslexia at College

 

Sibling Resources

What Siblings Would Like parents and Service Providers to Know
Sibs-non-profit organization for brothers and sisters in the UK
What about me?
Siblings of Kids with Special Needs
Parenting Siblings of Children with Disabilities
Caring for a Sibling with Special Needs
Sibling Leadership Network
Do Siblings of Children with Disabilities Need Help?
Study: Siblings Impacted by Disabilities
Involvement of Adult Siblings of People with Developmental Disabilities in Future Planning