Dravet Awareness Month

Date: June1, 2022-June 30, 2022

Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI) is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime.

Dravet syndrome has an estimated incidence rate of 1:15,700 comorbidities include developmental delays. Common signs and symptoms include:

  • prolonged seizures
  • frequent seizures
  • behavioral and developmental delays
  • movement and balance issues
  • delayed language and speech issues.

Children with Dravet syndrome face a 15-20% mortality rate due to SUDEP (Sudden Unexpected death in Epilepsy), prolonged seizures, seizures-related accidents such as drowing and infections

Ways to get Involved:

help through fundraising

purchase merchandise

change your social media profile to bring awareness to Dravet syndrome

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