Date: June1, 2022-June 30, 2022
Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI) is a rare form of intractable epilepsy that begins in infancy and proceeds with accumulating morbidity that significantly impacts individuals throughout their lifetime.
Dravet syndrome has an estimated incidence rate of 1:15,700 comorbidities include developmental delays. Common signs and symptoms include:
- prolonged seizures
- frequent seizures
- behavioral and developmental delays
- movement and balance issues
- delayed language and speech issues.
Children with Dravet syndrome face a 15-20% mortality rate due to SUDEP (Sudden Unexpected death in Epilepsy), prolonged seizures, seizures-related accidents such as drowing and infections
Ways to get Involved:
help through fundraising
change your social media profile to bring awareness to Dravet syndrome