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Today is Global Developmental Delay Awareness Day. It is recognized the year on the first Friday during the month of May.
What is Global Developmental Delay (GDD)?
Global Developmental Delay is an umbrella term used when children are significantly delayed in their cognitive and physical development and do not meet their developmental milestones in one or more of the development categories. the diagnoses is often used for children under the age of 5 years who are unable to meet benchmarks in intellectual functioning. It is also used when children are not diagnosed with a specific disorder of disability. There are some cased where children may be identified to have a disability however, the type of disability may not be known during the early onset of the disability.
Parents are typically the first to notice their child is not reaching milestones. as professionals, we should equally pay attention when children appear to be delayed in the area of motor, cognitive, speech and social and emotional development and bring it to the attention of parents so the child can be evaluated.
Click below to receive a free copy of the Global Developmental Delay Fact Sheet
February is Turner Syndrome Awareness Month. It is a rare disease that occurs in between one and 2,000 birth only affecting females. Turner Syndrome has several names including Ullrich-Turner Syndrome, Bonnevie-Ullrich-Turner Syndrome. gonadal dysgenesis and 45X. This rare disease is the result of the absence of one set of genes from the short arm of one X chromosome.
Special Needs Challenges
While girls and women with Turner Syndrome usually have normal intelligence, there is a risk of learning disabilities involving spatial concepts including math and memory and ADHD
Young girls diagnosed with Turner Syndrome during their early development may have delays in learning the alphabet, speech, difficulty in following one command at a time and conceptual difficulties such as up and down. Signs and symptoms of math or dyscalculia challenges include difficulty with counting money, estimating time, losing track when counting and remembering phone numbers or zip codes. The following strategies should be used when teaching students diagnosed with Turner Syndrome:
- Use flashcards to aid in memory as well as workbooks, games and video’s.
- Break learning into smaller steps by using a task analysis framework.
- Administer probing and feedback as a check in
- Model instructional practices
- Provide prompts
- Use visuals such as diagrams, graphics and pictures.
- Give clear directions
- Use multiple models including visual and auditory learning models
- Make sure directions are clear
- Allow time to process and take notes
Awareness ribbons in recent history began when Penney Laingen used the ribbon as a symbol of vigilance ( from the song, Tie a Ribbon Around the Ole Oak Tree) when she tied a yellow ribbon around the oak tree in her front yard when her husband, Bruce Laingen. a top-ranking U.S. diplomat was a hostage during the Iran hostage crisis in 1979. This was followed by the red ribbon during the AIDS epidemic and the pink ribbon bringing awareness to breast cancer.
Ribbons have long been used as a way to bring awareness and raise consciousness for a cause. Ribbons and disability awareness has evolved from brining awareness to various disability topics such as sensitivity, core information, inclusion and advocacy to including information in various formats including resources, activities and print information. People are using social media as a means to promote awareness including using hashtags and setting up Facebook pages specifically for disability awareness.
The Ribbons below in staying consistent with the Special Needs Resource Blog, focus on ribbons that bring awareness to developmental disability and special needs issues. Awareness is only a part of educating and training people on disability awareness. Any training activities should also include acceptance.
Autism Spectrum Disorder- The Autism ribbon continues to evolve overtime. The puzzle piece was first used in 1963 by a parent and board member of the National Autistic Society in London indicating the puzzling, confusing nature of autism. In 1999, the puzzle piece ribbon was adopted as the universal sign of autism awareness by the Autism Society reflecting the complexity of the autism spectrum. Overtime, the both the puzzle and ribbon have become a symbol for seeing autism as something that is puzzling an needs to be fixed rather than acceptance. A more positive symbol includes the infinity loop used as a symbol for acceptance rather than awareness.
Attention Deficit Hyperactivity Disorder (ADHD)
Purple Awareness Ribbon
Lime Green Ribbon
Spinal Cord Injuries
Orange Awareness Ribbon
Blue Awareness Ribbon
Light Blue Awareness Ribbon
Observance Awareness Months
Turner Syndrome Awareness
The calendar includes major special needs awareness months, weeks, and days. Most websites include awareness toolkits, promotional materials and fact sheets. This page focus is on awareness activities that impact people with intellectual and developmental disabilities only.
January 19-25- Special Education Week
National Early Intervention Awareness Month
April 1- Paraprofessional Appreciation Day
September 13-19- Direct Support Professional Week
May Observances, Celebrations, Events and Holidays To Use As Ideas For Your Day Habilitation Program.
You can download the PDF format here: May Day Habilitation Activities
Williams Syndrome also known as Williams-Beuren syndrome was discovered in 1961 by J.C.P. Williams, a Cardiologist from New Zealand. Williams Syndrome is a rare disorder with a prevalence of in 7,500 to 20,000 caused by the deletion of genetic material from chromosome 7. Williams syndrome symptoms include heart problems, low birth weight, l problems and developmental delays. 75 are diagnosed with mile to moderate intellectual disabilities or a learning disability.
Physical characteristics include:
Almond shape eyes
Longer upper lip
Puffiness around the eyes
Small upturned nose
- Enjoys music
- Developmental delay
- Excellent long-term memory
- Learning disability
- Poor fine motor skills
- Tactile defensiveness
Students with Mild intellectual disabilities will have difficulty with abstract thinking, executive functioning including planning, prioritizing, and cognitive flexibility. According to the Williams Syndrome Association Website, Children with Williams Syndrome face challenges with processing non-verbal information and displays difficulty with attention to detail.
Strategies should include:
- Using short sentences
- Repeat directions
- Break task into small steps
- Use concrete examples when introducing new words or concepts.
- Teach one concept at a time
- Use a multisensory approach which will help to stimulate learning
- Utilize visual learning style including the use of flash cars, pictures, images, handouts and colors.
Published By: Runners World
Written By: Alison Wade
Tommy Des Brisay had an insatiable need to move when he was a child.
He began walking at 8 months old. He would bounce on his backyard trampoline for hours and climb heights fearlessly. He slept only three hours a night until he was 7. As he grew older, he would go on long tandem bike rides, cross-country ski, and lead his father on walks that would leave them stranded miles from their home in Ottawa, Ontario.
And when he was stressed or upset, Des Brisay—who was diagnosed with autism when he was 2 and a half—would run. This posed a danger, because he didn’t understand what could harm him: traffic, exposure to weather, strangers. Click here to read the rest of the story