World Cerebral Palsy Day

Today is World Cerebral Palsy Day, not just a way to bring awareness, but to create a movement among people with cerebral palsy, their families and the organizations that support them.

Held in over 50 countries, World Cerebral Palsy (CP) Day is an opportunity for people to take action by creating a global movement for change.

What can you do?

The goal of World CP Day is to encourage people to take action in six-key areas:

  1. Public awareness- putting an end to ignorance and the stigma it can create.
  2. Civil rights- ensuring that government officials at the local, regional, and national level will take concrete action
  3. Medical/Therapeutic- ensuring the best information for diagnoses, prevention and treatment is available.
  4. Quality of Life- ensuring that people with cerebral palsy find enjoyment and fulfillment in life.
  5. Education- helping all educators provide an education to members of the cerebral palsy community
  6. Contribution- making sure each person has the ability to contribute to society.

Oh, and don’t forget to tweet using the hashtag #WorldCPDay

Resources

cp-poster-what-is
What is cerebral palsy?- Infographic

cp-poster-diagnosis
Cerebral Palsy Diagnosis and Treatment Infographic

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Autism Facts and Statistics

April is Autism Awareness Month

autismlogo

1 percent of the world population is diagnosed with autism spectrum disorder

Prevalence in the United States is estimated at 1 in 68 births

1 in 42 boys are diagnosed with autism

1 in 189 girls are diagnosed with autism

100 individuals are diagnosed everyday

More than 3.3 million Americans live with autism spectrum disorder

Autism is the fastest growing developmental disability

Autism services cost the United States citizens 236-262 billion annually

Autism costs a family $60,000 a year on an average

Boys are nearly five times more likely than girls to have autism

Autism generally appears before the age of 3

40% of children with autism do not speak

25-30% of children with autism have some words at 12 to 18 months, and then lose them.

Almost half (44%) of children with autism have average to above average intellectual ability.

Autism is reported to occur in all racial, ethnic and socioeconomic groups.

The UK estimate is 1 in 100 are diagnosed with autism

30-50% of individuals with autism also have seizures.

Autism Spectrum Disorders refers to a group of complex neurodevelopment disorders which includes repetitive patterns of behavior and difficulties with social communication, interaction, sensory processing and motor issues.

Eugene Bleuler, a Swiss psychiatrist first termed autism to adult schizophrenia.

In 1943, Leo Kanner dissociated autism from schizophrenia.

Autism is more common than childhood cancer, diabetes and AIDS combined.

Accidental drowning accounted for 91% total U.s. deaths reported in children with autism due to wandering.

 

Angelman Syndrome

ANGLEMAN SYNDROME

Angelman Syndrome is a genetic disorder that affects the nervous system.
Symptoms
  • developmental delay
  • intellectual disability
  • epilepsy
  • microcephaly
  • short attention span
  • happy demeanor
  • hyperactivity
  • hand-flapping
Associated Behaviors
  • tongue thrusting
  • feeding problems during infancy
  • sensitivity to heat
  • frequent drooling
  • attraction to water
Prevalence

Angelman Syndrome  is  a rare disorder and affects 1 in 12,000 to 20,000 a year. Equally to less than 200,000 case a year. Affects all ethnicities and sexes equally.

History

English pediatrician, Dr. Harry Angleman first described Angelman syndrome when he observed 3 children who had similar features including unusual happiness, developmental delays and similar facial disorders. He originally called it the “Happy Puppet Syndrome” based in a 17th century Italian painting by Gian Francesco Coroto.

Causes

In most cases, a gene located on chromosome 15 is generally missing or damaged, in some cases, the individual may have 2 copies of the paternal chromosome 15.

Diagnosis

Diagnosis may include the following:

  • blood test
  • parental DNA pattern
  • missing chromosome testing
  • gene mutation
Treatment

Treatment for Angel Syndrome may include:

  • anti-seizure medication
  • physical therapy
  • communication therapy
  • behavior therapy
Medical Sites

Boston Children’s Hospital

Genetics Home Reference

Mayo Clinic

Medicine Net

Wikipedia

Organizations

Angelman Syndrome Foundation– The mission is to advance the awareness and treatment of Angelman Syndrome through education, information and research.

Foundation for Angelman Syndrome Therapeutics– FAST is an all volunteer organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders.

 

Developmental Disability Awareness Ribbons

awareness.header

Ribbons have long been used as a way to bring awareness and raise consciousness for a cause. Ribbons and disability awareness has evolved from brining awareness to various disability topics such as sensitivity, core information, inclusion and advocacy to including information in various formats including resources, activities and print information.

Below, you will find awareness ribbons for specific disabilities and the months they are recognized including the links. If you noticed that I missed any, please let me know.

Awareness Ribbons

Autism Awareness Ribbon

Autism

Burgundy  Awareness Ribbon

burgundy-awareness-ribbon Sickle Cell Anemia , Williams Syndrome

Purple Awareness Ribbon

epilepsy ribbonEpilepsy

Down Syndrome

down syndrome ribbonDown Syndrome

Lime Green Ribbon

lime awarenss ribbon Muscular Dystrophy and Spinal Cord Injuries

 

Orange Awareness Ribbon

adhd.ribbonADHD, Multiple Sclerosis, and Sensory Processing Disorder

Lavender Awareness Ribbon
Rett Syndrome

Blue Awareness Ribbon

hydrapany.ribbonApraxia, Cri Du Chat, Hydrocephalus

Light Blue Awareness Ribbon

tuberous.scherous.ribbonTrisomy 18, DiGeorge Syndrome

 Observance  Awareness Months

March

 Trisomy18

Multiple Sclerosis

Cerebral Palsy

Developmental Disabilities

April

Autism

Auditory Processing Disorder

May

Apraxia

Cri Du Chat

Cystic Fibrosis

Williams Syndrome

June

Dravet Syndrome Day

July

Fragile X Syndrome

National Craniofacial Awareness and Prevention Month

September

Duchenne Muscular Dystrophy Day

Hydrocephalus

Sickle Cell Anemia

Spinal Cord Injuries

October

ADD/ADHD

Down Syndrome

Rett Syndrome

Sensory Processing Disorder

November

DiGeorge Syndrome

Epilepsy

Updated: October 2, 2018

 

 

 

 

 

 

 

 

 

 

 

 

Happy Holidays!

 

HAPPY HOLIDAYS2015

Special Needs Resource Blog will take a break during the holidays and will return Monday, January 4, 2016 with new information, tools and resources to post including more downloadable free tools and templates Monday thru Thursday. I am excited and look forward to sharing more resources with you in the new year.
Thanks to all of you for following my blog this year. Wishing you and your families joy and peace all through the holidays and throughout the new year. May the spirit of the holidays be with you throughout the new year.  🙂   🙂

 

HAPPY THANKSGIVING!

thanksgiving

October is National Disability Employment Awareness Month

national disability monthNational Disability Employment Awareness is recognized each October to highlight the workforce contributions of people with disabilities.

Facts:

  • Only 20 percent of the labor force with disabilities are employed.
  • 59% of the people with hearing impairments were employed.
  • 41% of people with visual disabilities were employed.

16% of people with severe disabilities work full-time.

Check out this infographic!

disability employemnt

What can you do in your organization to recognize National Disability Employment Awareness Month?

Train frontline staff on the facts

Reach out to local media

Proactively recruit people with disabilities

Review company policies and procedures

Conduct training for supervisors on understanding their role in fostering an inclusive workplace culture

Participate in a disability mentoring day

Conduct a training on disability history.

 

World Cerebral Palsy Day

world CP Day 2015

Today is World Cerebral Palsy Day, not just a way to bring awareness, but to create a movement among people with cerebral palsy, their families and the organizations that support them.

Held in over 50 countries, World Cerebral Palsy (CP) Day is an opportunity for people to take action by creating a global movement for change.

What can you do?

The goal of World CP Day is to encourage people to take action in six-key areas:

  1. Public awareness- putting an end to ignorance and the stigma it can create.
  2. Civil rights- ensuring that government officials at the local, regional, and national level will take concrete action
  3. Medical/Therapeutic- ensuring the best information for diagnoses, prevention and treatment is available.
  4. Quality of Life- ensuring that people with cerebral palsy find enjoyment and fulfillment in life.
  5. Education- helping all educators provide an education to members of the cerebral palsy community
  6. Contribution- making sure each person has the ability to contribute to society.

Oh, and don’t forget to tweet using the hashtag #WorldCPDay