Emergency Plans Need to Be in Effect for Students with Disabilities

Published by: Cerebral Palsy News Today

Written by: Jessica Grono

School violence, unfortunately, is on the minds of thousands of people. Protection of our children is extremely important, and it is imperative to find the right plan to keep everyone safe. As more schools implement drills and plans to protect children and staff, children with disabilities aren’t included in the planning. How can we, as a nation, fix this huge safety dilemma for students with disabilities? Click here to read the rest of the story

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25 Facts About Cerebral Palsy That You Did Not Know

How much do you really know about cerebral palsy? Here are 25 interesting facts about cerebral palsy:

Is a group of neurological disorders that affects body movement and muscle coordination.

Is caused by damage to the brain which controls movement and balance

Affects the motor area of the brain that directs muscle movement.

The symptoms of cerebral palsy differ in type and severity in each person.

Is the leading cause of childhood disabilities.

Cerebral Palsy is not progressive meaning it does not get worse overtime.

Cerebral Palsy prevalence is 3.3 children per 1000.

There is no cure for cerebral palsy

Cerebral Palsy is not contagious

Risk factors for cerebral palsy include pre-mature birth, infections during pregnancy, exposure to toxic substances and mothers with excess protein in the urine or a history of having seizures.

Cerebral Palsy can also be caused by complicated labor and delivery due to disruption of blood and oxygen to the brain(hypoxia) and babies in a breech position (feet first).Spastic cerebral palsy is the most common type affecting 80% of people with cerebral palsy.

Ataxic cerebral palsy affects balance and depth perception

There are more boys born with cerebral palsy than girls.

Stroke in a baby or child less than the age of 3 results in cerebral palsy.

One in nine with cerebral palsy have features of autism

One in three children with cerebral palsy cannot walk

One in four children with cerebral palsy cannot feed themselves

There are 17 million people with cerebral palsy worldwide.

58.2% of children with cerebral palsy can walk independently, 11.3 walk using a hand-held mobility device and 30.6% have limited or no walking ability

Speech and language disorders are common in people with cerebral palsy

Pain is common among children with cerebral palsy

Harry Jennings, an engineer built the first modern folding wheelchair

Sir William Osler write the first book on cerebral palsy

Dr. Sigmund Freud was the first to state that cerebral palsy might be caused by abnormal development before birth.

Cerebral palsy doesn’t necessary mean learning difficulties.

References

www.cdc.gov/ncbddd/cp

http://www.cerebralpalsy.org/

https://www.ninds.nih.gov/Disorders/

Cerebral Palsy Organizations You Should Know About

Cerebral Palsy describes a group of permanent disorders of the development of movement and posture. The motor disorders of cerebral palsy are often accompanied by disturbances of sensation, perception, cognition, communication and behavior, epilepsy, and by secondary musculoskeletal problems.

According to the Centers for Disease Control and Prevention (CDC), cerebral palsy is the most common motor disability in childhood caused by damage to the developing brain that affects a person’s ability to control his or her muscles. CDC estimates that about 1 in 323 children are diagnosed with cerebral palsy annual.

The following organizations provide resources on their websites including fact sheets, resources and information:

Cerebral Palsy Foundation

Funds cerebral palsy research in the United States, (CPF) promotes the delivery of current research, best practices and technology to people with cerebral palsy and their support system. The mission includes transforming lives through research, innovation and collaboration.

Children’s Hemiplegia and Stroke Association

Helps children who have survived an early brain injury that results in hemiplegia (weakness on one side of the body).

Make LemonAide Foundation

The Make Lemon Aide Foundation is a non-profit organization designed to improve the lives of people with cerebral palsy by raising awareness, funding research and training therapist.

Reaching For The Stars

Founded in 2005, RFTS is the largest pediatric cerebral palsy non-profit foundation in the world led by parents with a focus on the prevention, treatment and cure of cerebral palsy

United Cerebral Palsy

UCP educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. UCP provides services and support to more than 176,000 children and adults through its 68 affiliates around the country.

CP Daily Living

An educational resource website and Facebook page designed to give families and caregivers a central place for practical information and resources.

Cerebral Palsy Alliance

A non-profit organization based in Australia. Provides services to help children and adults living with neurological and physical disabilities.

National Institute of Neurological Disorders and Stroke

NIDS mission is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disorder. The website provides patient and caregiver education on cerebral palsy including an informational page.

Technology Has Opened Doors For Those With Disabilities

Technology Has Opened Doors for Those with Disabilities
Written by: Jessica Grono
Published By: Cerebral Palsy News Today

No matter what type of cerebral palsy a person has, it limits their independence to a certain extent. Independence is amazing, especially when you have such a limited range of freedom. Technology has improved the quality life of thousands of people who have significant disabilities. I know that each time I can do an action for myself, the feeling is indescribable. This week online, I learned of two children who have experienced the unexpected, thanks to advances in technology. Click here to read the rest of the story

Assistive Technology Switches for Children and Adults With Physical Disabilities

Assistive technology devices are identified in the IDEA 2004 as, any item, piece of equipment or product system, whether acquired commercially off the shelf, modified or customized, that is used to increase, maintain or improve the functional capabilities of children with disabilities.

Switches fall under this category which allows people with physical disabilities such as cerebral palsy to manipulate their environment by controlling various types of adaptive and assistive switches used for environmental control and communication devices.

The following are resources for assistive technology switches:

Ablenet- Helps people with disabilities through the creation of assistive technology. Ablenet provides switches for both children and adults.

Adaptive Tech Solutions– A therapist-owned and operated company which provides adaptive equipment for individuals with disabilities

eSpecial Needs– Provides adaptive switches to children and adults with physical disabilities which allows them to manipulate their environment.

Enabling Devices– Creates customized one-of-a-kind assistive technology devices for communication, education and playing.

Rehabmart– sells inclusive learning devices which help children with impairments including augmentative communication and adaptive toys

Assistive Technology Websites

Glenda Assistive Technology Information and More– A website containing information on various types of assistive technology including visual supports, AAC, switches and tablets

Teaching Learners With Multiple Special Needs- Created by Kate Ahern, an assistive technology specialist. This website serves as a resource for teachers or learners with severe, profound, or multiple special needs. There is a great article on 60 things to do with a single switch 

Articles 

Assistiveware- How to Support a Student Who Uses a Switch Device

Breezy Special Ed- How to use your iPAD as a switch device

Perkins School for the Blind: Favorite Cause and Affect Switch Apps

Understood- Checklist: What to consider when looking at assistive technology

For more ideas and resources, visit my Pinterest Site:  Assistive Technology

 

Smithsonian Exhibit Puts Focus On Accessible Design

Publisher: Disability Scoop
Written by: Shaun Heasley

From clothing to utensils and computers, a new exhibit is showcasing the varied and increasing ways that today’s world is adapting to accommodate the needs of people with disabilities.

The display at the Cooper Hewitt, Smithsonian Design Museum dubbed “Access+Ability” includes over 70 works that highlight how design is making a broad range of experiences more inclusive.

Divided into three sections — moving, connecting and living — the exhibit features the latest in cane technology, clothing with magnets and other accessibility modifications, eye-controlled speech-generating devices and more innovations.

Click here for the rest of the story

20 Task Box Resources To Use In Your Classroom or Home

Task boxes (also known as work boxes) are structured work systems created by Division TEACCH t the University of North Carolina Chapel Hill. This system allows the student to work independently on a task for a specific time in a supportive environment.  Task boxes are now used for students with a variety of disabilities including students required pervasive levels of support.

 

There are 3 types of task boxes: stacking- Helps with eye-hand coordination and fine motor skills; sorting- may break activities by size, color, texture, shape and flavor and fine motor- strengthens the smaller movement in the wrists, hands and fingers.

The following sites include information on how to set up a task box system in your classroom or in your home.

How I Set Up My Task Box System ( Delightfully Dedicated)

How to Set Up An Independent Workbox (Breezy Special Ed)

How to Start a Task Box System (Autism Adventures)

Task Box Set Up- (Autism Adventures)

Websites that will give you ideas on creating task boxes, and the material needed.

Autism Classroom Workbox System (Teaching Special Thinkers)

Fine Motor Morning Work Bins (Differentiated Kindergarten)

Assembly Work Task (Autism Classroom News and Resources)

Free Math Printable Task Box for Special Education ( My Creative Inclusion)

Higher Level Academics in Task Boxes (Mrs. P’s Specialties)

How I Use Workboxes in My Classroom (Creating and Teaching)

Pre-Vocational Work Boxes (SPED Adventures)

Quick and Easy Task Box Ideas (Little Miss Kim’s Class)

Task Boxes: A Hands On Approach to Life Skills (Therablog)

Task Boxes for Autistic Children (Love to Know)

Structured Work Boxes (University of Mary Washington)

Ways to Up the Ante in Your Work Task System (The Autism Vault)

Winter Task Boxes (You Aut-aKnow)

Work Boxes in Autism Classrooms (Noodle Nook)

Work Box Task Ideas (The Autism Helper)

Work Task (Breezy Special Ed)

 

Anyone With A Disability Should Relate To Finding Dory

Anyone with a Disability Should Relate to Finding Dory
Source (Cerebral Palsy News Today)
Author: Jessica Grono

Movies are usually liked because they are relatable. Seeing many movies that portray a character with cerebral palsy isn’t very common. There are some, but the character is either sick, dying or wants to die. Either way, they’re unrealistic. However, I felt very positive about the movie Finding Dory.

As a child in the late seventies and early eighties, movies about people with disabilities were scarce. I remember seeing one on television that showed a man falling for a woman in a wheelchair, but she ended up dying in the end anyway. Not very positive. More recently, there is a movie about a man who, despite being well-loved, educated and having a great life, commits suicide because he’s in a wheelchair. Again, it was a terrible representation of people with disabilities. Please click here to read the rest of the story.

Helping Children Understand Person First Language


Pubished by: ASD
Written By: Nicole Dezarn

Person first language is an important ethical matter often discussed in the field of special education and disability advocacy. The idea that the important descriptor for a person is not their disability but that the disability is something that the person has is fundamental in framing the mindset that having a disability doesn’t mean that a person is less or incapable of success. It can be challenging enough to broach this subject with adults but how do we help children to understand what person first language means and why it is so important? I felt it might be helpful to share an approach with which I have had success. Click here to read the rest of the story

Choking Prevention for People with Developmental Disabilities

Children and adults with developmental disabilities have a higher risk of choking compared to the general population.

Risk Factors Include:

Some medical conditions that increase a person’s risk of choking are:

  • Cerebral Palsy
  • Seizure disorders
  • Neurological and muscular disorders
  • Down Syndrome
  • Brain Injury
  • Muscular Dystrophy
  • Inability to swallow certain food textures and liquids
  • Medication side effects which decrease voluntary muscles
  • Dysphasia (difficulty swallowing)

Other contributing factors include:

Eat or drink too fast

Have poor posture when eating

Swallow non-edible objects (PICA)

The following foods put people at greater risk:

  • Hotdogs served whole
  • Hard candy
  • Popcorn
  • Sandwiches
  • Broccoli
  • Raw carrots
  • Nuts

Teaching Material on Choking

Arizona Department of Economic Security

Eunice Kennedy Shriver-Dysphasia, Aspiration and Choking

Ohio Department of Developmental Disabilities

New York State Choking Prevention Resources

Washington State Department of Social and Health Services

State Agencies Choking Alerts

Georgia Department of Behavioral Health and Developmental Disabilities

Minnesota Mental Health and Developmental Disabilities 

New Jersey Health and Safety Alert Choking