Printable Autism Fact Sheet

 

Today is World Autism Awareness Day. It is a recognized day sponsored through the United Nations to bring awareness about people with Autism Spectrum Disorder (ASD).

The day serves to bring individual autism organizations together around the world to aid in research diagnoses, treatment and acceptance. More than ever in these challenging times we face, tolerance, compassion and acceptance is needed to provide people with autism with necessary support.

The following fact sheet provides information on facts, prevalence, timeline, co-occurring disorders and the definition.

 

Download Fact Sheet Here

 

 

Free Printable Angleman Syndrome Factsheet

English pediatrician, Dr. Harry Angleman first described Angelman syndrome in 1965 when he observed 3 children who had similar features including unusual happiness, developmental delays and similar facial disorders. He originally called it the “Happy Puppet Syndrome” based in a 17th century Italian painting by Gian Francesco Coroto. In most cases, a gene located on chromosome 15 is generally missing or damaged, in some cases, the individual may have 2 copies of the paternal chromosome 15. It is considered a developmental disability where children and adults will require ongoing services. Click the link below to download the factsheet.

Download factsheet here

Executive Dysfunctions of ADHD Persist Into Adulthood: 25-Year Study

Published by: ADDitude
Written by: Nathaly Pesantez

Executive functioning deficits persist well into adulthood for individuals with ADHD, according to a new study1 in the Journal of Attention Disorders that affirms the clinical theory that executive dysfunction is a core symptom of attention deficit hyperactivity disorder.

The small Norwegian study looked at attentional processing capacities — namely pre-attentive and executive functioning — in a group of people with and without ADHD over a 23- to 25-year period. Pre-attentive processing — the basic, preliminary stage in the brain whereby auditive and visual stimuli is analyzed — is not as well understood in relation to ADHD as is executive functioning — the controlled brain processes (like working memory) that allow us to integrate information and select optimal actions — the researchers said.

These two processes, according to the researchers, exist on “contrasting ends of [the] ‘attentional processing continuum.’”  Because pre-attentive processing deficits may be precursors for brain function deficits of a higher order (like executive functioning), the study aimed to “gain insight into the long-term changes in attentional capacity” for “a clearer conception of attention dysfunction in ADHD.” Click here to read the rest of the story.

2020 Disability Awareness Month and Observance Calendar

 

The calendar includes major special needs awareness months, weeks, and days. Most websites include awareness toolkits, promotional materials and fact sheets.  This page focus is on awareness activities that impact people with intellectual and developmental disabilities only.

January

January (Month)

National Birth  Defects Month

January (Week)

January 19-25- Special Education Week

January (Day)

January 4- World Braille Day

January 20- International Day of Acceptance

January 24- Moebius Syndrome Awareness Day

February

February (Month)

Turner Syndrome Awareness Month

February (Day)

February 15- International Angelman Day

February 28- Rare Disease Day

March

March (Month)

Brain Injury Awareness Month

Cerebral Palsy Awareness Month

Developmental Disabilities Awareness Month

National Early Intervention Awareness Month

Kidney Awareness Month

Multiple Sclerosis Month

Social Work Awareness Month

Trisomy Awareness Month

March (Day)

March 1- Self-Injury Day

March 1- International Wheelchair Day

March 3- World Hearing Day

March 21- World Down Syndrome Day

March 26- Purple Day for Epilepsy

April

April (Day)

April 1- Paraprofessional Appreciation Day

April 2- World Autism Awareness Day 

May

May (Month)

Better Hearing and Speech Month

Early Intervention Awareness Month

Ehlers-Danlos Awareness Month

Mental Health Awareness Month

National Asthma and Allergy Awareness Month

Prader Willi Syndrome Awareness Month

Williams Syndrome Awareness Month

May (Day)

May 1- Global Developmental Delay Day

May (Week)

May 4-6 Children Mental Health Awareness Week

May 15- Tuberous Sclerosis Global Awareness Day

May 5-12- Cri du Chat Awareness Week

June

June (Month)

Aphasia Awareness Month

June (Week)

Helen Keller Deaf-Blind Awareness Week (Last Sunday in June)

Scoliosis Awareness Month

June (Day)

June 17- CDKL5 Awareness Day 

June 23- Dravet Syndrome Awareness Day (Canada)

Tourette Syndrome Awareness Month

July

July (Day)

July 14- Disability Pride Parade (NY)

July 14- Disability Awareness Day (UK)

July 22- National Fragile X Syndrome Awareness Day

July 26- American Disabilities Act Day (30 Year Anniversary) 

September

September (Month)

Chiari Awareness Month

Craniofacial Acceptance Month

Duchenne Muscular Dystrophy Awareness

Fetal Alcohol Spectrum Syndrome Awareness Month

Hydrocephalus Awareness Month

National Spinal Cord Awareness Month

Sickle Cell Awareness Month

Sepsis Awareness Month

September (Week)

September 13-19- Direct Support Professional Week

September 7- World Duchenne Awareness Day

September 9- Fetal Alcohol Awareness Day

October

October (Month)

ADHD Awareness Month

Disability History Month

Down Syndrome Awareness Month

Dysautonomia Awareness

National Disability Employment Awareness Month

National Dyslexia Awareness Month

Occupational Therapy Awareness Month

October (Day)

October 5- World Teacher’s Day

October 6- World Cerebral Palsy Day

October 10- National Depression Screening Day

October 15- White Cane Awareness Day

October (Week)

October 4-10- Mental Illness Awareness Week 

October 13-19 Invisible Disabilities Week

October 13-19 International OCD Awareness Week

October 19-23- National School Bus Safety Week

National Physical Therapy Month

Rett Syndrome Awareness Month

Special Needs Law Month

Spinal Bifida Awareness Month

November

November (Month)

22q Awareness Month

Epilepsy Awareness Month

November (Day)

November 1- LGS Awareness Day

November 4- National Stress Awareness Day

November 15- World Ohtahara Syndrome Awareness Day

December

December (Day)

December 2- National Special Education Day

December 3- International Day of Persons with Disabilities

December (Week)

December 1-7- Infantile Spasm

Facts and Statistics- Ataxia

Ataxia is a rare disorder that affects both children and adults. I was quite surprise to find that very little statistics have been conducted on ataxia. this may be due to the understanding that Ataxia is not a specific disorder, rather, a condition can cause ataxia including multiple sclerosis, head trauma, cerebral palsy and infections.

Ataxia affects a child’s coordination, balance and speech while some children are born with ataxia as a result of genetics, others develop it in a progressive matter. Signs and symptoms of Acute Cerebellar Ataxia include:

  • Frequent stumbling
  • Impaired coordination affecting arms or legs
  • Unsteady gait
  • Uncontrolled eye movement
  • Difficulty performing fine motor task
  • headaches

The following are facts and statistics on the Ataxia disorder:

  • It is a degenerative disease of the nervous system
  • Symptoms, often mimic being drunk in adults such as slurred speech
  • Age of symptom can vary from childhood to late adulthood
  • rare recessive genetic disorder
  • occurs between 1 out of 40,000 and 1 out of 100,000
  • The word ataxia refers to clumsiness or a loss of balance and coordination
  • The ataxia gene was first identified in 1993
  • Ataxia is inherited
  • Ataxia is a sign of an underlying disorder
  • It is caused by damage to different areas of the central nervous system
  • The most common symptom in children is an unsteady gait
  • In some cases, ataxia can present itself rapid while in others, it is progressive.
  • The most common cause of acute ataxia in children are excessive drug ingestion and drug intoxications
  • There are from 50 to 100 different types of Ataxia.

Data and Statistics- Fetal Alcohol Spectrum Disorders (FASD)

  • Fetal alcohol disorders range from mild intellectual and behavioral problems to extreme disorders that lead to profound disabilities or premature death.
  • FAS are not heredity: they are 100 percent preventable the sole cause is prenatal alcohol exposure.
  • Of the children heavily exposed to alcohol before birth, about 40 percent are estimated to exhibit fetal alcohol disorders, with 4 percent affected by full blown fetal alcohol syndrome.
  • Women who give birth to a child with FAS are 800 times more likely to give birth to subsequent children with the syndrome than are women who have never given birth to a child with the syndrome.
  • Each year, there are four times as many infants born with fetal alcohol disorders as there are infants born with muscular dystrophy, spina bifida and Down syndrome combined.
  • 15 out of 100 women of childbearing age do not know that drinking alcohol during pregnancy is dangerous.
  • FASD affects about 40,000 newborns each year
  • A survey of pediatrician reported in the journal Pediatrics revealed that only 13 percent routinely discussed the risk of drinking during pregnancy with their adolescent patients.

  • According to the Center for Substance Abuse Prevention, 1 in 9 pregnant women binge drink during the first trimester.
  • FASD are 100% incurable
  • 60% of individuals with FASD find themselves in legal trouble at some point in their lives.
  • There is a high prevalence of epilepsy (5.9%) in individuals with FASD compared with individuals who did not have the disorder.
  • 94% of individuals heavily exposed to alcohol in the womb are diagnosed with ADHD
  • It is estimated a lifetime cost for one individual with FASD is 2 million
  • 50% of adults with FASD were clinically depressed

SEPTEMBER IS FETAL ALCOHOL SPECTRUM DISORDER AWARENESS MONTH

Is ‘high-functioning autism’ a misleading term?

High-functioning autism is a term used for people with autism spectrum disorder without an intellectual disability, but Australian researchers say it should be abandoned because of the misleading and potentially harmful expectations it creates around the abilities of children on the autism spectrum.

Coined in the ’80s, it is now part of everyday language and has come to imply that people can function adequately, whether at school or at work, without much in the way of challenges.

For many individuals with autism spectrum disorder, this couldn’t be further from the truth, according to lead author Gail Alvares.

Alveres and her team from the Telethon Kids Institute and the University of Western Australia reviewed data for 2225 children and young people (aged 1-18) diagnosed with autism, about half of whom had intellectual disability, and half of whom did not.

They found those with an intellectual disability had functional skills which closely matched their IQ. However, those typically deemed to be high functioning due to having an average or higher IQ, had functional abilities well below what would be expected, given their IQ. Click here to read the rest of the story.

How Autism And Visual Perception Affect Train Travel

Train operator GWR is now working for their second year in providing bespoke autism awareness raising sessions for their front line staff, allowing them to be better prepared to help people living with the condition use public transport.

Looking to provide the best possible experience for all passengers, GWR is working in collaboration for a second year with UK Autism charity Anna Kennedy Online increasing autism awareness to help its staff improve in meeting the needs of those travelling with autism.

For many with an Autism spectrum condition, some of the more commonly experienced issues is increased anxiety and sometimes overwhelming sensory processing information as well as the need for structure and reassurance. Click here to read the rest of the story.