World Cerebral Palsy Day

Today is World Cerebral Palsy Day, not just a way to bring awareness, but to create a movement among people with cerebral palsy, their families and the organizations that support them.

Held in over 50 countries, World Cerebral Palsy (CP) Day is an opportunity for people to take action by creating a global movement for change.

What can you do?

The goal of World CP Day is to encourage people to take action in six-key areas:

  1. Public awareness- putting an end to ignorance and the stigma it can create.
  2. Civil rights- ensuring that government officials at the local, regional, and national level will take concrete action
  3. Medical/Therapeutic- ensuring the best information for diagnoses, prevention and treatment is available.
  4. Quality of Life- ensuring that people with cerebral palsy find enjoyment and fulfillment in life.
  5. Education- helping all educators provide an education to members of the cerebral palsy community
  6. Contribution- making sure each person has the ability to contribute to society.

Oh, and don’t forget to tweet using the hashtag #WorldCPDay

Resources

cp-poster-what-is
What is cerebral palsy?- Infographic

cp-poster-diagnosis
Cerebral Palsy Diagnosis and Treatment Infographic

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20 Great Resources on Cystic Fibrosis

Infographic by IVS Solutions

Infographic by IVS Solutions

 

October is Cystic Fibrosis Awareness Month. According to the Center for Control Diseases (CDC), Cystic Fibrosis (CF) is a chronic, progressive and frequently fatal disease of the body’s mucus glands. CF primary affects the respiratory and digestive systems in children and young adults. In the United States, approximately 30,000  people are diagnosed with CF. 1 out of 3,200 Caucasian births and 1 out of 15,000 African American births.

Below are a number of resources on Cystic Fibrosis.

Medical Sites- The following sites contain information on symptoms, definition, causes, risk factors, test, diagnosis and treatment:

Kids Health
Mayo Clinic
Medicine Net
Medline Plus
Medscape
NIH (National Heart, Lungs and Blood Institute)
PubMed Health
Wikipedia

 

Organizations

Boomer Esiason Foundation-group of passionate, dedicated individuals who work every day to raise money, awareness, and support for the cystic fibrosis community.
Cystic Fibrosis Foundation-The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment and ensuring access to high-quality, specialized care.

 

Twitter Accounts to Follow

twitter

 

 

 

 

 

Cure Cystic Fibrosis
Cystic Fibrosis Kids
Cystic Fibrosis News
Cystic Fibrosis Teen
Cystic Fibrosis Trust
Cystic Fibrosis_ South Australia
Cystic Fibrosis_Western Australia
Medical News Today_ Cystic Fibrosis
Team Cystic Fibrosis

 

Obsessive Compulsive Disorder Resources

 

General Medical Definition

Mayo Clinic
Medline Plus
National Alliance on Mental Illness
National Institute of Mental Health
Wikipedia

Obsessive Compulsive Disorders in Children and Teens

International OCD Foundation- Children and Youth
Kids Health
DrugRehab.com
Massachusetts General Hospital
Medscape
Psych Center

Obsessive Compulsive Disorder and Autism

Autism Speak Blog
Pathfinders for Autism
Seattle Children’s

Organizations

Anxiety and Depression Association of America
International OCD Foundation

Down Syndrome Organizations

 The internet offers a number of website that provide resources on Down syndrome. Topics including family support groups, education, medical and advocacy. For additional information, click on the links below:

down syndrome ribbon

 

 

 

Band of Angels: http://www.bandofangels.com/-

Established in 1994, Band of Angels provides support for individuals with Down Syndrome and their families. The website offers links on Down Syndrome support groups and a litany of topics including, adoption, autism and education.

Down Syndrome International https://www.ds-int.org/

A U.K. based international organization comprising a membership of individuals and organizations from all over the world. Disseminates information on Down Syndrome including prenatal diagnosis, early intervention, education, medical, health, employment, aging and human rights. Down Syndrome International also promoted World Down Syndrome Day (March 21) as a day dedicated to people with Down Syndrome.

 

Global Down Syndrome http://www.globaldownsyndrome.org/

Provides fundraising, education and governmental advocacy for the Linda Crnic Institute for Down Syndrome. Resources available on the website include, information on research, medical care and facts on Down Syndrome.

 

 

International Down Syndrome Coalition: http://theidsc.org/

Dedicated to helping and advocating for individuals with Down syndrome from conception and throughout life. Offers support to parents who are new to the Down syndrome diagnosis by connecting parents to each other.

 

National Association for Down Syndrome http://www.nads.org/

NADS is the oldest organization in the United States serving individuals with Down syndrome and their families. Also provides families with information and resources that will enable them to access appropriate services and educates the public about Down syndrome.

 

National Down Syndrome Congress http://www.ndsccenter.org/

The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.

National Down Syndrome Society http://www.ndss.org/

NDSS provides resources to new and expectant parents and offers a toll-free helpline and email services. NDSS also focuses on transitions , wellness and education