Articles and Websites- Advocating for Your Child
According the the Centers for Disease Control and Prevention (CDC), Disability affects approximate 61 million, or nearly 1 in 4 (26%) people in the United States living in communities. Disability affects more than one billion people worldwide.1,2 According to the United Nations Convention on the Rights of Persons with Disabilities, people “. . . with disabilities include those who have long-term physical, mental, intellectual or sensory [such as hearing or vision] impairments which in interaction with various barriers may hinder their full and effective participation in society on an equal basis with others.”
While the road has made great strives in community integration, we still have a long way to go until full inclusion is met worldwide. For some people with disabilities, participation may be only defined as being physically present in a community but without any connection such as going to a shopping store or attending an event. The next level includes encounters at a nail salon, bowling, shopping, etc and full integration includes connecting with others in the community such as hanging out with people at a sports bar with and without disabilities or attending religious services including becoming a part of the choir or serving as an usher.
The following questions created by the Council on Quality and Leaderships serves as a great barometer in measuring the quality of community inclusion:
5 ways to make community inclusion work– White Hawk Advocacy
A sharing of ideas on community inclusion for people with disabilities– University of Connecticut Center for Developmental Disabilities.
Community barrier to participation experienced by people with disabilities (Centers for Disease Control and Prevention ) CDC
Community Inclusion– newfdn.org
What does community inclusion look like? – National Disability Insurance Scheme
What is community inclusion all about and why does it matter?– Pioneer Center for Human Services
What Is Community Inclusion & Why Is It a Win-Win Scenario?– Community Mainstreaming
What We Mean When We Talk About Inclusion– Institute for Community Inclusion
The following are community inclusion ideas and suggestions.
11 Ways to Promote Community Support for Students with Disabilities– Brooks Publishing
13 ideas for making your community more inclusive – Union for Reform Judaism
Community Inclusion Module– Illinois Department of Human Services
National Barrier Awareness Day brings awareness to dissolving stigma’s that keep people with disabilities from advancing in education, barriers in physical access, bridging technology gaps and any type of barriers that prevent people with disabilities to reach their full potential. While there have been many achievements, financial, cultural education and physical barriers still exist.
The History of National Barrier Awareness Day
On May 7 1986, President Ronald Reagan signed Proclamation 5472 as National Barrier Awareness Day. President Reagan stated that “Eighty percent of Americans will experience some disability in their lifetime that makes it necessary they must surmount and the contributions that they can make to our society.”
Ways to Remove Barriers
While there are still physical barriers that exists, there is very few information on the mental barriers, meaning people that still hold misconceptions, stereotypes and myths regarding individuals with disabilities. what do I mean by mental barriers?
Finally, we all have to take the role of advocates. It comes as part of the job. Sometimes it is advocating for both parent and child and using our voice to help others live quality lives.
When an individual with a developmental disability becomes an adult, Guardianship is something you should consider. In many States, the law will see the individual as an adult able to make decisions on their own. If you have a child with a disability who many never have the ability to make legal decisions on their own, the following information are links on guardianship and what you need to know about them.
Does my child need a guardianship?– Special Needs Alliance
Guardianship– Cincinnati Children’s
Guardianship: A basic understanding for parents– Parenting Special Needs
Legal guardianship and your adult child with disabilities– A day in our shoes
My child with a disability is an adult- Now what? – Parenting NH
Special needs children turning 18 years old– Today’s Caregiver
Understanding guardianship for adults with special needs– Protected Tomorrows
When your child turns 18: A guide to special needs guardianship– Friendship Circle
Each State has it own requirements for Guardianship, click on your State below to find more information:
The special education and IEP process can be stressful and confusing. Many parents turn to a special needs advocate to guide them as they seek services for their child. But how can you find the right advocate?
Unlike attorneys, anyone can call themselves a special education advocate. And while there are training programs for advocates, there’s no formal licensing or certification. That’s why it’s important to do your research before hiring someone. Click here to read the rest of the story