University Centers on Disabilities Resources

Are you familiar with the Association of University Centers on Disabilities? It is a program The Association of University Centers on Disabilities (AUCD) is a membership organization that supports and promotes a national network of university-based interdisciplinary programs. Network members consist of:

  • 67 University Centers for Excellence in Developmental Disabilities (UCEDD), funded by the Office on Intellectual Developmental Disabilities (OIDD)
  • 52 Leadership Education in Neurodevelopmental Disabilities (LEND) Programs funded by the Maternal and Child Health Bureau (MCHB)
  • 14 Intellectual and Developmental Disability Research Centers (IDDRC), most of which are funded by the National Institute for Child Health and Development (NICHD)

These programs serve and are located in every U.S. state and territory and are all part of universities or medical centers. They serve as a bridge between the university and the community, bringing together the resources of both to achieve meaningful change.

AUCD supports this national network through:

  • Leadership on major social problems affecting all people living with developmental or other disabilities or special health needs
  • Advocacy with Congress and executive branch agencies that fund and regulate programs used by people with disabilities
  • Networking and partnering with other national organizations to advance the network’s national agendas
  • Promoting communication within the network and with other groups by collecting, organizing, and disseminating data on network activities and accomplishments
  • Technical assistance provision on a broad range of topics

The following are Networks located in each State:

Alabama

The University of Alabama at Birmingham
933 19th Street South, CH19 Room 307(Location)
1720 2nd Avenue South, CH19 Room 307 (Mailing)
Birmingham, AL 35294-0021
Main Phone:  205-934-5471
Toll Free Number:  800-822-2472
Main Fax:  205-975-2380
Main Email:  fbiasini@uab.edu
Website:  www.uab.edu/civitansparks

Alaska

UCEDD,LEND Program:
Center for Human Development
University of Alaska Anchorage
2702 Gambell Street
Suite 103
Anchorage, AK 99503
Main Phone:  907-272-8270
Main Fax:  907-274-4802
Website:  http://www.alaskachd.org

Arizona

Arizona UCEDD
Northern Arizona University
Institute for Human Development
912 Riordan Ranch Road
PO Box 5630
Flagstaff, AZ 86011-5630
Main Phone:  928-523-7921
Main Fax:  928-523-9127
TTY:  928-523-1695
Website:  http://www.nau.edu/ihd/

Arkansas 

Partners for Inclusive Communities
University of Arkansas at Fayetteville
322 Main. Suite 501
Little Rock, AR 72201
Main Phone:  501-301-1100
Toll Free Number:  800-342-2923
Main Fax:  501-682-5423
TTY:  800-342-2923
Main Email:  partners@uark.edu
Website:  http://UofAPartners.uark.edu

California

UCEDD Program:
USC UCEDD at the Children’s Hospital Los Angeles
Children’s Hospital Los Angeles
University of Southern California
4650 Sunset Boulevard
Mailstop #53
Los Angeles, CA 90027-6062
Main Phone:  323-361-2300
Main Fax:  323-361-8305
Main Email:  uscucedd@chla.usc.edu
Website:  http://www.uscucedd.org
AUCD State Profile: AUCD CA State Profile

Colorado 

JFK Partners
University of Colorado Denver
School of Medicine
13121 E. 17th Ave, C234
Aurora, CO 80045
Main Phone:  303-724-5266
Main Fax:  303-724-7664
Website:  http://www.jfkpartners.org

Connecticut

UConn Center for Excellence in Developmental Disabilities
University of Connecticut A.J. Pappanikou Center for Excellence in Developmental Disabilities
263 Farmington Ave., MC 6222
Farmington, CT 06030-6222
Main Phone:  860-679-1500
Toll Free Number:  866-623-1315
Main Fax:  860-679-1571
TTY:  860-679-1502
Main Email:  bruder@uchc.edu
Website:  http://www.uconnucedd.org

Delaware

Center for Disabilities Studies
College of Education and Human Development
University of Delaware
461 Wyoming Road
Newark, DE 19716
Main Phone:  302-831-6974
Main Fax:  302-831-4690
TTY:  302-831-4689
Main Email:  mineo@udel.edu
Website:  http://www.udel.edu/cds

District of Columbia 

Georgetown UCEDD
Georgetown University
Center for Child and Human Development
3300 Whitehaven Street, NW, Suite 3300
Mailing address Box 571485
Washington, DC 20057-1485
Main Phone:  202-687-8807
Main Fax:  202-687-8899
TTY:  202-687-5503
Website:  https://ucedd.georgetown.edu/
Website 2:  https://gucchd.georgetown.edu/
Twitter:  https://twitter.com/GUUCEDD
Facebook:  https://www.facebook.com/GUUCEDD/

Florida

UCEDD,LEND Program:
Mailman Center for Child Development
University of Miami Miller School of Medicine
Department of Pediatrics
Department of Pediatrics (D-820)
P.O. Box 016820
Miami, FL 33101
Main Phone:  305-243-6801
Main Fax:  305-243-5978
Main Email:  darmstrong@med.miami.edu
Website:  http://mailmancenter.org
AUCD State Profile: AUCD FL State Profile.pdf

Georgia

Institute on Human Development and Disability
A University Center for Excellence in Developmental Disabilities Education, Research, and Service
College of Family and Consumer Sciences
River’s Crossing Building, The University of Georgia
850 College Station Road
Athens, GA 30602-4806
Main Phone:  706-542-3457
Main Fax:  706-542-4815
Main Email:  contact@ihdd.uga.edu
Website:  http://www.ihdd.uga.edu

Hawaii

Pacific Basin Program
University of Hawaii, Center on Disability Studies
1410 Lower Campus Road, #171F
Honolulu, HI 96822
Main Phone:  808-956-2303
Main Fax:  808-956-7878
Main Email:  kiriko@hawaii.edu
Website:  www.hawaii.edu/cds

Idaho 

Idaho Center on Disabilities and Human Development
College of Education, Health and Human Sciences
1187 Alturas Drive
Moscow, ID 83843
Main Phone:  208-885-6000
Main Fax:  208-885-6145
TTY:  800-432-8324
Main Email:  idahocdhd@uidaho.edu
Website:  http://www.idahocdhd.org
Facebook:  https://www.facebook.com/Idahocdhd/

Illinois 

University of Illinois UCE
Institute on Disability and Human Development (M/C 626)
Department of Disability and Human Development
The University of Illinois at Chicago
1640 West Roosevelt Road
Chicago, IL 60608-6904
Main Phone:  312-413-1647
Main Fax:  312-413-4098
TTY:  312-413-0453
Website:  http://ahs.uic.edu/disability-human-development/
Website 2:  http://go.uic.edu/DHD
Twitter:  https://twitter.com/idhd_uic
Facebook:  https://www.facebook.com/UICDHD/

Indiana 

Indiana Institute on Disability and Community
Indiana University
2810 East Discovery Parkway
Bloomington, IN 47408
Main Phone:  812-855-6508
Main Fax:  812-855-9630
Main Email:  iidc@indiana.edu
Website:  http://www.iidc.indiana.edu
Twitter:  https://twitter.com/IIDCIU
Facebook:  https://www.facebook.com/pages/Indiana-Institute-on-Disability-and-Community-at-Indiana-University/71615188471

Iowa

UCEDD,LEND Program:
Iowa’s University Center for Excellence in Disabilities
Center for Disabilities and Development
100 Hawkins Drive
Iowa City, IA 52242-1011
Main Phone:  319-384-5656
Main Fax:  319-356-8284
Main Email:  meredith-field@uiowa.edu
Website:  https://uihc.org/ucedd/
Website 2:  https://uihc.org/ucedd/iowa-leadership-education-neurodevelopmental-and-related-disabilities-project

Kansas 

Kansas University Center on Developmental Disabilities
University of Kansas
Schiefelbusch Institute for Life Span Studies
1200 Sunnyside Avenue
3111 Haworth
Lawrence, KS 66045-7534
Main Phone:  785-864-7600
Main Fax:  785-864-7605
Main Email:  kucdd@ku.edu
Website:  http://www.kucdd.org
Facebook:  https://www.facebook.com/ksucdd/?ref=aymt_homepage_panel

Kentucky

University of Kentucky Human Development Institute
University Center on Disability
University of Kentucky
126 Mineral Industries Building
Lexington, KY 40506-0051
Main Phone:  859-257-1714
Main Fax:  859-323-1901
TTY:  859-257-2903
Website:  http://www.hdi.uky.edu
Facebook:  https://www.facebook.com/ukhdi/

Louisiana

LSUHSC – Human Development Center
LSUHSC – Human Development Center
School of Allied Health Professions
411 So. Prieur Street – 4th Floor Room 472
New Orleans, LA 70112-2262
Main Phone:  504-556-7585
Main Fax:  504-556-7574
Website:  http://www.hdc.lsuhsc.edu

Maine

University Center for Excellence in Developmental Disabilities
The University of Maine
Center for Community Inclusion and Disability Studies
5717 Corbett Hall
Orono, ME 04469-5717
Main Phone:  207-581-1084
Toll Free Number:  800-203-6957
Main Fax:  207-581-1231
TTY:  800-203-6957
Main Email:  CCIDSMAIL@maine.edu
Website:  http://www.ccids.umaine.edu

Maryland

Maryland Center for Developmental Disabilities
Kennedy Krieger Institute
7000 Tudsbury Road
Gwynn Oak, MD 21244
Main Phone:  443-923-9555
Toll Free Number:  888-554-2080
Main Fax:  443-923-9570
TTY:  443-923-2645
Website:  http://www.kennedykrieger.org/community/maryland-center-developmental-disabilities

Massachusetts 

Institute for Community Inclusion/ UCEDD
University of Massachusetts Boston
100 Morrissey Blvd.
Boston, MA 02125
Main Phone:  617-287-4300
Main Fax:  617-287-4352
TTY:  617-287-4350
Main Email:  ici@umb.edu
Website:  http://www.communityinclusion.org

Michigan 

Michigan Developmental Disabilities Institute (MI-DDI)
Wayne State University
4809 Woodward Avenue
268 Leonard N. Simons Building
Detroit, MI 48202
Main Phone:  313-577-2654
Toll Free Number:  888-978-4334
Main Fax:  313-577-3770
TTY:  313-577-2654
Main Email:  middi@wayne.edu
Website:  http://ddi.wayne.edu
Twitter:  https://twitter.com/DDIatWSU
Facebook:  https://www.facebook.com/MIDDIatWSU/

Minnesota 

Institute on Community Integration
University of Minnesota
College of Education and Human Development
102 Pattee Hall
150 Pillsbury Drive SE
Minneapolis, MN 55455-0223
Main Phone:  612-624-6300
Main Fax:  612-624-9344
Main Email:  ici@umn.edu
Website:  http://ici.umn.edu
Website 2:  http://lend.umn.edu
Facebook:  https://www.facebook.com/InstituteonCommunityIntegration/

Mississippi 

Institute for Disability Studies: Mississippi’s UCEDD
The University of Southern Mississippi
118 College Drive #5163
Hattiesburg, MS 39406-0001
Main Phone:  601-266-5163
Toll Free Number:  888-671-0051
Main Fax:  601-266-5114
TTY:  888-671-0051
Main Email:  Rebekah.Young@usm.edu
Website:  https://www.usm.edu/ids/
AUCD State Profile: Institute for Disability Studies FY 2019 Report Card

Missouri 

UMKC Institute for Human Development (UCE)
215 W. Pershing
6th Floor
Kansas City, MO 64108
Main Phone:  816-235-1770
Main Fax:  816-235-1762
TTY:  800-452-1185
Main Email:  reigharda@umkc.edu
Website:  http://www.ihd.umkc.edu

Montana

The Rural Institute for Inclusive Communities
University of Montana
Corbin Hall
Missoula, MT 59812-7056
Main Phone:  406-243-5467
Toll Free Number:  800-732-0323
Main Fax:  406-243-4730
Main Email:  rural@ruralinstitute.umt.edu
Website:  http://ruralinstitute.umt.edu/
Twitter:  https://twitter.com/riic_ed
Facebook:  https://www.facebook.com/RuralInstitute
AUCD State Profile: AUCD MT State Profile.pdf

Nebraska 

Nebraska UCEDD
Munroe-Meyer Institute for Genetics and Rehabilitation
University of Nebraska Medical Center
985450 Nebraska Medical Center
Omaha, NE 68198-5450
Main Phone:  402-559-6483
Toll Free Number:  800-656-3937
Main Fax:  402-559-5737 (UCEDD)
Main Email:  mshriver@unmc.edu
Website:  http://www.unmc.edu/mmi
Twitter:  Unmc_mmi
Facebook:  https://www.facebook.com/MunroeMeyerInstitute
AUCD State Profile: HORNETS 2018 (1).pdf

Nevada 

Nevada Center for Excellence in Disabilities
University of Nevada, Reno
Mail Stop 285
Reno, NV 89557
Main Phone:  775-784-4921
Toll Free Number:  1-800-216-7988
Main Fax:  775-784-4997
TTY:  775-327-5234
Website:  http://nced.info/

New Hampshire

Institute on Disability / UCED
University of New Hampshire
Institute on Disability
10 West Edge Drive, Suite 101
Durham, NH 03824-3595
Main Phone:  603-862-4320
Toll Free Number:  800-238-2048
Main Fax:  603-862-0555
Main Email:  Contact.IOD@unh.edu
Website:  http://www.iod.unh.edu
Twitter:  http://twitter.com/unhiod
Facebook:  http://www.facebook.com/instituteondisability
AUCD State Profile: AUCD NH Profile

New Jersey

The Boggs Center on Developmental Disabilities
Department of Pediatrics
Rutgers Robert Wood Johnson Medical School
335 George Street
Suite 3500
New Brunswick, NJ 08901
Main Phone:  732-235-9300
Main Fax:  732-235-9330
Website:  http://rwjms.rutgers.edu/boggscenter

New Mexico 

University of New Mexico
Center for Development and Disability
Pediatrics
2300 Menaul Blvd NE
Albuquerque, NM 87107
Main Phone:  505-272-3000
Main Fax:  505-272-2014 (UCEDD)
Website:  http://cdd.unm.edu

New York

Rose F. Kennedy Center LEND
The Teaching Hospital of Albert Einstein College of Medicine
Montefiore Medical Center
1225 Morris Park Avenue
Bronx, NY 10461
Main Phone:  718-839-7162
Main Fax:  718-904-1162
Website:  http://www.einstein.yu.edu

North Carolina

Carolina Institute for Developmental Disabilities
The University of North Carolina at Chapel Hill
Campus Box 7255
Chapel Hill, NC 27599-7255
Main Phone:  919-966-5171
Main Fax:  919-966-2230
Website:  http://www.cidd.unc.edu/

North Dakota

North Dakota Center for Persons with Disabilities
Minot State University
Memorial Hall 203
500 University Avenue West
Minot, ND 58707
Main Phone:  701-858-3580
Toll Free Number:  800-233-1737
Main Fax:  701-858-3483
TTY:  701-858-3580
Main Email:  ndcpd@minotstateu.edu
Website:  http://www.ndcpd.org
Facebook:  https://www.facebook.com/North-Dakota-Center-for-Persons-with-Disabilities-NDCPD-118515191583313/
AUCD State Profile: AUCD in North Dakota

Ohio

University of Cincinnati Center for Excellence in Developmental Disabilities
Cincinnati Children’s Hospital Medical Center
Division of Developmental and Behavioral Pediatrics
3333 Burnet Avenue
MLC 4002
Cincinnati, OH 45229-3039
Main Phone:  513-803-0653
Main Fax:  513-803-0072
TTY:  513-636-4900
Main Email:  ucucedd@cchmc.org
Website:  https://www.ucucedd.org
Facebook:  www.facebook.com/ucucedd

Oklahoma

Center for Interdisciplinary Learning and Leadership
University of Oklahoma Health Sciences Center
College of Medicine
PO Box 26901, ROB 342
Oklahoma City, OK 73190-3042
Main Phone:  405-271-4500
Toll Free Number:  800-627-6827
Main Fax:  405-271-1459
TTY:  405-271-1464
Website:  http://www.ouhsc.edu/thecenter/

Oregon

Oregon Health & Science University UCEDD
Oregon Health & Science University
Institute on Development & Disability
707 SW Gaines St.
Portland, OR 97239
Main Phone:  503-494-8364
Main Fax:  503-494-6868
Main Email:  idd@ohsu.edu
Website:  http://www.ohsu.edu/ucedd
Twitter:  https://twitter.com/OHSUUCEDD
Facebook:  https://www.facebook.com/OHSU.UCEDDCPC/

Pennsylvania 

Institute on Disabilities/UCEDD
Temple University
1755 N 13th Street, Suite 411
Howard Gittis Student Center – South
Philadelphia, PA 19122
Main Phone:  215-204-1356
Main Fax:  215-204-6336
TTY:  215-204-1356
Main Email:  iod@temple.edu
Website:  http://disabilities.temple.edu

Puerto Rico 

Puerto Rico University Center for Excellence on Developmental Disabilities/IDD
Graduate School of Public Health
Medical Sciences Campus
University of Puerto Rico
P.O. Box 365067
San Juan, PR 00936-5067
Main Phone:  787-754-4377
Toll Free Number:  866-754-4300
Main Fax:  787-764-5424
Website:  http://iddpr.rcm.upr.edu/

Rhode Island

UCEDD Program:
Paul V. Sherlock Center on Disabilities
Rhode Island College
600 Mount Pleasant Avenue
Providence, RI 02908
Main Phone:  401-456-8072
Main Fax:  401-456-8150
Website:  http://www.sherlockcenter.org

South Carolina

Center for Disability Resources
University of South Carolina
Department of Pediatrics
School of Medicine
Columbia, SC 29208
Main Phone:  803-935-5231
Main Fax:  803-935-5059
Website:  http://uscm.med.sc.edu/cdrhome/

South Dakota 

Center for Disabilities
Sanford School of Medicine of The University of South Dakota
Department of Pediatrics
1400 West 22nd Street
Sioux Falls, SD 57105-1570
Main Phone:  605-357-1439
Toll Free Number:  800-658-3080
Main Fax:  605-357-1438
TTY:  800-658-3080
Main Email:  cd@usd.edu
Website:  http://www.usd.edu/cd
Twitter:  https://twitter.com/CD_SouthDakota
Facebook:  https://www.facebook.com/CDSouthDakota/

Tennessee 

Boling Center for Developmental Disabilities
University of Tennessee Health Science Center
711 Jefferson Avenue
Memphis, TN 38105
Main Phone:  901-448-6511
Toll Free Number:  888-572-2249
Main Fax:  901-448-7097
TTY:  901-448-4677
Website:  http://www.uthsc.edu/bcdd/

Texas

Texas Center for Disability Studies
The University of Texas at Austin
Commons Learning Center
10100 Burnet Road
Austin, TX 78758-4445
Main Phone:  512-232-0740
Toll Free Number:  800-828-7839
Main Fax:  512-232-0761
TTY:  512-232-0762
Website:  https://disabilitystudies.utexas.edu/
Twitter:  https://twitter.com/TCDS_UT
Facebook:  https://www.facebook.com/TexasCenterforDisabilityStudies

Utah

Center for Persons with Disabilities
Utah State University
University Center for Excellence in Disabilities
6800 Old Main Hill
Logan, UT 84322-6800
Main Phone:  435-797-1981
Toll Free Number:  866-284-2821
Main Fax:  435-797-3944
TTY:  435-797-1981
Website:  http://www.cpd.usu.edu
Twitter:  https://twitter.com/@cpdusu
Facebook:  https://www.facebook.com/cpdusu/

Vermont

Center on Disability and Community Inclusion
The UCEDD of Vermont/University of Vermont
College of Education and Social Services
Mann Hall – 3rd Floor
208 Colchester Avenue
Burlington, VT 05405-1757
Main Phone:  802-656-4031
Main Fax:  802-656-1357
Main Email:  Jeanne.Nauheimer@uvm.edu
Website:  http://www.uvm.edu/cdci/
Twitter:  @CDCIatUVM
Facebook:  https://www.facebook.com/CDCIatUVM/

Virginia

Partnership for People with Disabilities
Virginia University Center for Excellence
Virginia Commonwealth University
PO Box 843020
700 E. Franklin Street
Richmond, VA 23284-3020
Main Phone:  804-828-3876
Main Fax:  804-828-0042
TTY:  800-828-1120
Website:  http://www.vcu.edu/partnership

Washington

Center on Human Development and Disabilities
University of Washington
Center on Human Development and Disability
PO Box 357920
Seattle, WA 98195-7920
Main Phone:  206-543-2832
Main Fax:  206-543-5771
Main Email:  Chdd@u.washington.edu
Website:  http://www.depts.washington.edu/chdd/ucedd.html

West Virginia

Center for Excellence in Disabilities (CED)
West Virginia University
959 Hartman Run Road, Research Park
Morgantown, WV 26505
Main Phone:  304-293-4692
Toll Free Number:  888-829-9426
Main Fax:  304-293-7294
TTY:  800-518-1448
Main Email:  contact@cedwvu.org
Website:  http://www.cedwvu.org/
Facebook:  https://www.facebook.com/wvuced/?fref=ts

Wisconsin

Waisman Center
University of Wisconsin-Madison
1500 Highland Ave
Madison, WI 53705-2280
Main Phone:  608-263-1656
Main Fax:  608-263-0529
Website:  http://www.waisman.wisc.edu/
Website 2:  https://wilend.waisman.wisc.edu/

Wyoming

Wyoming Institute for Disabilities (WIND)
University of Wyoming
Department 4298
1000 E. University Avenue
Laramie, WY 82071
Main Phone:  307-766-2761
Main Fax:  307-766-2763
TTY:  307-766-2720
Main Email:  uw.wind@uwyo.edu
Website:  http://www.uwyo.edu/wind
Twitter:  https://twitter.com/wind_wyo
Facebook:  https://www.facebook.com/Wyominginstitutefordisabilities/?ref=aymt_homepage_panel

 

It’s hard to imagine a time when children with disabilities did not have access or the rights to an equal education as those students without disabilities. Prior to 1975, many children with disabilities were living in large institutions or went to private schools.

President Gerald Ford signed into the Education For All Handicapped Children Act (Pubic Law-94-142) now knowns as the Individuals with Disabilities Education Act (IDEA). The purpose of IDEA is to protect the rights of infants, toddlers, children and youth with disabilities and to provide equal access to children for children with disabilities. The following list describes the 13 categories of IDEA eligibility including the definition below:

A child with a disability is defined as a child evaluated as having an intellectual disability, hearing impairment (including deafness), a speech or language impairment, visual impairment (including blindness), a serious emotional disturbance, an orthopedic impairment, autism, traumatic brain injury, an other health impairment, a specific learning disability, deaf-blindness, or multiple disabilities who need special education and related services.

  1. Autism means developmental disability significantly affecting verbal and nonverbal communication and social integration, generally evident before age 3, that adversely affect a child’s educational performance. Other characteristics often associated with autism are engagement in repetitive activities and stereotyped movements, resistance to environmental change or change in daily routines, and unusual responses to sensory experiences.
  2. Deaf-blindness- defined as having both visual and hearing impairments. The combination of which causes such severe communication and other developmental and education needs that they cannot be accommodated in special education programs.
  3. Deafness- a hearing impairment that is so severe that the child is impaired in processing linguistic information through hearing, or with or without amplification, that adversely affects a child educational performance.
  4. Emotional disturbance- a condition exhibiting one or more of the following characteristics over a long period of time
  5. Hearing impairment- an impairment in hearing, whether permanent or fluctuating that adversely affects a child’s performance but that is not included under the definition of deafness.
  6. Intellectual disability- significantly lower general intellectual functioning, existing concurrently with deficits in adaptive behavior and manifested during the developmental period, that adversely affect a child’s educational performance.
  7. Multiple disabilities- A combination of impairments (such as intellectual disability-blindness or intellectual disability-orthopedic impairment). The combination causes severe educational needs that they cannot be accomplished in special education program solely for one of the impairments.
  8. Orthopedic impairment- a severe orthopedic impairment that adversely affects a child’s educational performance. The term includes impairments caused by a congenital anomaly, impairments caused by diseases (e.g. Poliomyelitis) and impairment causes (e.g. cerebral palsy, amputations, and fractures or burns that cause contractures)
  9. Other health impairments- having limited strength, vitality, or alertness including a heightened alertness to environmental stimuli that results in limited alertness with respect to the educational environment that is due to chronic or acute health problems such as asthma, ADHD, diabetes, epilepsy, heart condition, sickle cell anemia and Tourette syndrome which adversely affects a child’s education performance.
  10. Specific learning  disability- a disorder in  one or more of the basic psychological processes involved in understanding or in using language spoken or written that may manifest itself in the imperfect ability to listen, think, speak, read, write, spell or to do mathematical calculations including conditions such as perceptual disabilities, brain injury, dyslexia and developmental aphasia.
  11. Speech or language impairment- a communication disorder such as stuttering impaired articulation, a language impairment, or a voice impairment that adversely affects a child’s educational performance.
  12. Traumatic brain injury- An acquired injury to the brain caused by an external physical force, resulting in total or partial functional disability or psychosocial impairment or both. Traumatic brain injury applies to open or closed head injuries resulting in impairments in one or more areas, such as cognition, language, memory, attention, reasoning, abstract thinking, judgement, problem-solving, sensory, perceptual motor abilities and information processing and speech.
  13. Visual impairment including blindness- an impairment in vision that, even with correction, adversely affects a child’s educational performance. The term includes both partial sight and blindness.

Most States Failing To Meet Requirements Under IDEA

Source: Disability Scoop

Fewer than half of states are meeting their obligations to properly serve students with disabilities, the U.S. Department of Education says.

In an annual review of performance under the Individuals with Disabilities Education Act, federal officials found that just 21 states deserved the designation of “meets requirements” for the 2017-2018 school year.

The remaining states were classified as “needs assistance.” Click here to read the rest of the story.

Disability Integration Act

 

The Disability Integration Act (DIA) of 2017 is a bill introduced by Charles “Chuck” Schumer (D-NY) in the health, Education, Labor and Pensions Committee. The purpose of the bill is to prohibit states or local government that provide institutional placements for people with disabilities who require long term assistance prohibits insurance services from denying community-based services which would allow people to live independently in the community.

Community-based services must be offered to individuals prior to placement in institutions. People that are living in institutions must be notified regularly of community-based alternatives.

This bill was introduced May 16, 2017.

National Association of Councils on Developmental Disabilities

Click to download a printed version

Through the Developmental Disabilities Assistance and Bill of Rights Act of 2000, created the State Councils on Developmental Disabilities which serves to coordinate and provide services for individuals with developmental disabilities. In the United States, there are 56 councils focusing on advocacy, systems change, and capacity building.

Alabama
Executive Director: Elmyra Jones-Banks
Phone: 334-242-3973
www.acdd.org

Alaska
Executive Director: Patrick Reinhart
Phone: 907-269-8990
www.dhss.alaska.gov

American Samoa
Executive Director: Norma Smith
Phone: 684-633-2696

Arizona
Executive Director: Erica McFadden
Phone: 602-542-8977
www.azdes.gov/addpc

Arkansas
Executive Director: Eric Munson
Phone/TDD: 501-682-2897
www.ddcouncil.org 

California
Executive Director: Aaron Carruthers
Phone: 916-322-8481
www.scdd.ca.gov

Colorado
Executive Director: Marcia Tewell
Phone/TDD: 720-941-0176
www.coddc.org

Commonwealth of the
Northern Mariana Islands
Executive Director: Pamela Sablan
Phone: 670-664-7000/1
www.cnmicdd.org

Connecticut
Executive Director: Melissa Marshall
Phone: 860-418-6160
www.ct.gov/ctcdd

Delaware
Executive Director: Pat Maichle
Phone: 302-739-3333
www.ddc.delaware.gov

District of Columbia
Executive Director: Mat McCollough
Phone: 202-724-8612
http://ddc.dc.gov

Florida
Executive Director:Valerie Breen
Phone: 850-488-4180
www.fddc.org

Georgia
Executive Director: Eric Jacobson
Phone: 888-275-4233
www.gcdd.org

Guam
Executive Director: Roseanna Ada
Phone: 671-735-9127
www.gddc.guam.gov

Hawaii
Executive Director: Waynette Cabral
Phone: 808-586-8100
www.hiddc.org

Idaho
Executive Director: Christine Pisani
Phone: 208-334-2178 or
1-800-544-2433
www.icdd.idaho.gov

Illinois
Executive Director: Kim Mercer
Phone: 312-814-2080
www.state.il.us/agency/icdd

Indiana
Executive Director: Christine Dahlberg
Phone: 317-232-7770
www.in.gov/gpcpd

Iowa
Executive Director: Becky Harker
Phone: 800-452-1936
http://iddcouncil.idaction.org

Kansas
Executive Director: Steve Gieber
Phone: 785-296-2608
www.kcdd.org

Kentucky
Executive Director: MaryLee Underwood
Phone: 502-564-7841
www.kyccdd.com

Louisiana
Executive Director: Sandee Winchell
Phone: 225-342-6804
www.laddc.org

Maine
Executive Director: Nancy Cronin
Phone: 207-287-4213
www.maineddc.org

Maryland
Executive Director: Brian Cox
Phone: 410-767-3670
www.md-council.org

Massachusetts
Executive Director: Dan Shannon
Phone: 617-770-7676
www.mass.gov/mddc

Michigan
Executive Director: Vendella Collins
Phone: 517-335-3158
www.michigan.gov/mdch

Minnesota
Executive Director: Colleen Wieck
Phone: 651-296-4018
www.mncdd.org

Mississippi
Executive Director: Charles Hughes
Phone: 601-359-6238
www.mscdd.org

Missouri
Executive Director: Vicky Davidson
Phone: 573-751-8611
www.moddcouncil.org

Montana
Executive Director: Deborah Swingley
Phone: 406-443-4332
Fax: 406-443-4192
www.mtcdd.org

Nebraska
Executive Director: Kristen Larson
Phone: 402-471-2330
www.dhhs.ne.gov/ddplanning

Nevada
Executive Director: Sherry Manning
Phone: 775-684-8619
www.nevadaddcouncil.org

New Hampshire
Executive Director: Isadora Rodriguez-Legendre
Phone: 603-271-3236
www.nhddc.org

New Jersey
Executive Director: Kevin Casey
Phone: 609-292-3745
www.njcdd.org

New Mexico
Executive Director: John Block III
Phone: 505-841-4519
www.nmddpc.com

New York
Executive Director: Sheila Carey
Phone: 518-486-7505
www.ddpc.ny.gov

North Carolina
Executive Director: Chris Egan
Phone/TDD: 919-850-2901
www.nccdd.org

North Dakota
Executive Director: Julie Horntvedt
Phone: 701-328-4847
www.ndscdd.org

Ohio
Executive Director: Carolyn Knight
Phone: 614-466-5205
www.ddc.ohio.gov

Oklahoma
Executive Director: Ann Trudgeon
Phone:  405-521-4984
www.okddc.ok.gov

Oregon
Executive Director: Jaime Daignault
Phone: 503-945-9941
www.ocdd.org

Pennsylvania
Executive Director: Graham Mulholland
Phone: 717-787-6057
www.paddc.org

Puerto Rico
Executive Director: Myrainne Roa
Phone: 787-722-0590
www.cedd.pr.gov/cedd

Rhode Island
Executive Director: Kevin Nerney
Phone: 401-737-1238
www.riddc.org

South Carolina
Executive Director: Valarie Bishop
Phone: 803-734-0465
www.scddc.state.sc.us

South Dakota
Executive Director: Arlene Poncelet
Phone: 605-773-6369
www.dhs.sd.gov/ddc

Tennessee
Executive Director: Wanda Willis
Phone: 615-532-6615
www.tn.gov/cdd

Texas
Executive Director: Beth Stalvey
Phone: 512-437-5432
www.tcdd.texas.gov

Utah
Executive Director: Claire Mantonya
Phone/TDD: 801-533-3965
www.utahddcouncil.org

Vermont
Executive Director: Kirsten Murphy
Phone: 802-828-1310
www.ddc.vermont.gov

Virgin Islands
Executive Director: Yvonne Peterson
Phone: 340-773-2323 Ext. 2137
www.dhs.gov.vi/disabilities

Virginia
Executive Director: Heidi Lawyer
Phone: 804-786-0016
www.vaboard.org

Washington
Executive Director: Ed Holen
Phone: 360-586-3560
www.ddc.wa.gov

West Virginia
Executive Director: Steve Wiseman
Phone: 304-558-0416
www.ddc.wv.gov

Wisconsin
Executive Director: Beth Swedeen
Phone: 608-266-7826
www.wi-bpdd.org

Wyoming
Executive Director: Shannon Buller
Phone: 307-777-7230
www.wgcdd.wyo.gov

 

Transition Planning

IDEA Regulations and Transition Services

The term “transition services” means a coordinated set of activities for a child with a disability that:

  • Is designed to be within a results-oriented process, that is focused on improving the academic and functional achievement of the child with the disability to facilitate the child’s movement from school to post-school activities, including postsecondary education, vocational education, integrated employment (including supported employment), continuing and adult education, adult services, independent living, or community participation
  • Is based on the individual child’s needs, taking into account the child’s strengths, preferences, and interest.
  • Includes instruction , related services, community experiences, the development of employment and other post-school adult living objectives, and if appropriate, acquisition of daily living skills and functional vocational evaluations.
What is the Transition Process?

The transition process is designed to help students with disabilities move smoothly from school to adult life.

Resources on Transition Planning

Center for Parent Information and Resources– Webpage includes information on IDEA’s requirement on transition and how to include the student in the transition process.

Disability’s.gov’s Guide to Student Transition Planning– Topical links on secondary education and transition, transitioning to adult health care and options for life after high school.

National Association of Special Education Teachers– Great webpage on a variety of topics relating to transition planning including, overview of transition services, types of services covered, recordkeeping, employment planning, travel training, assistive technology and residential placement options.

National Parent Center on Transition and Employment– Website includes information on middle and high school transitioning planning including, IDEA, IEP, college planning and several worksheets on preparing for employment and transition planning.

Understood– article on understanding the transition process.

WrightsLaw– This page contains loads of information on transitioning planning including articles on IEP and transition planning, legal requirement for transition components of the IEP and IDEA 2004.

Developmental Disability Awareness Month

March is Developmental Disability Awareness Month.

Facts
  • In 2010, 5.2 percent of school-aged children were reported to have a disability
  • 15.2 million Adults (6.3 percent experience some kind of cognitive disability.
  • According to the CDC, one in six or about 15 percent of children aged 3 through 17 years have one or more developmental disabilities.

 

The Term “developmental disability” means a severe, chronic disability of an individual that:
  1. Is attributable to a mental or physical impairment or combination of mental and physical impairment.
  2. Is manifested before the individual attains age 22
  3. Is likely to continue indefinitely.
  4. Results in substantial functional limitations in 3 or more of the following areas of major life activity:
          1. Self-care
          2. Receptive and expressive language
          3. Learning
          4. Mobility
          5. Self Direction
          6. Capacity for independent living
          7. Economic self-sufficiency
          8. Reflects the individual’s need for a combination and sequence of special, interdisciplinary, or genetic services, individualized supports, or other forms of assistance that are of lifelong or extended duration and are individually planned and coordinated.
Infants and children- An individual from birth to age 9, inclusive who has substantial developmental delay or specific congenital or acquired condition, may be considered to have a developmental disability without meeting 3 or more of the criteria described in clause 4.

CDC- Learn the Signs. Act early

History of the developmental Disabilities Act

Test how much you know about developmental disabilities.

Click on the link below an print out the word search.

developmental disability game pic

disability test

 

 

FERPA Resources

Family Education Rights and Privacy Act. (FERPA)

What is FERPA?

FERPA is a Federal law that protects the privacy of students education records. Under FERPA law, parents have certain rights. The purpose of this regulation is protect the privacy of parents and students under section 444 of the General Provision Act.

Resources

FERPA General Guidance for Parents– U.S. Department of Education

Wikipedia Definition

FERPA and HIPAA

FERPA overview American Psychological Association

Legislative History of Major FERPA Provisions

Parents Guide to FERPA

FERPA– Wrightslaw.com