August Special Needs Article Links

Welcome to the August article links. These are articles that I tweeted and or received from viewers during the month of August on special needs and developmental disability topics.

9 best toys for toddlers with autism (The Mom Kind)

10 best sports for kids with sensory processing disorders (Health Basics)

ADHD and Dyslexia (News Medical Life Science)

ADHD symptoms in children vs. adults (Medical Daily)

Autism and difficulty in gauging time (Autism Speaks)

Forget stereotypes… How to recruit talented, neurodiverse employees (The Guardian)

Getting your child on the spectrum ready for the school year (Livanis Behavioral Consulting)

How embracing my ADHD makes me a better entrepreneur (Entrepreneur)

How one Texas parent is trying to solve a growing problem in the adult autistic community (Dallas News)

How my husband and son are teaching strangers about autism (Autism Speaks)

Preparing an autism friendly primary classroom (ASC)

Program teaches people with autism how to swim (Autism Speaks)

Recognizing the signs of learning disabilities (Komo News)

Ten things I’ve learned in my ten years as an autism mom (Autism Speaks)

Top ways a gluten free diet can help kids with autism (Autism Parenting Magazine)

Ultimate guide to weighted blankets for kids and adults (Growing Hands on Kids)

Using public transportation when you have autism (I News)

 

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April Special Needs Article Links

Welcome to the April article links. These are articles that I tweeted and or received from viewers during the month of April on special needs and developmental disability topics. Enjoy!

5 practical ways to help adults with autism gain employment (Autism Parenting Magazine)

10 things I wish the entertainment industry understood about autism (The Mighty)

20 tips on employment for students with disabilities (The Inclusion Lab)

Autism and parent fatigue (Autism Awareness Centre, Inc.)

Grandparents may be first to spot autism in a child (NHS)

How animals can help autistic children  (The Conversation)

Making art galleries autism friendly (A.N)

Moms work to empower children and adults with autism (ABC News)

New guideline tackles sudden unexpected death in epilepsy (Neurology Advisor)

Robots helping to teach students with autism in West Vancouver– (Global News)

Stop telling me I don’t look autistic (Metro)

Teaching Important life skills to kids with autism (Nurse Barb’s Daily Dose)

The innovating creative superpower of ADHD (Yes Magazine)

What teachers should know about ADHD and ASD (Edutopia)

When a child with autism gets lost (HuffPost)

National Association of Councils on Developmental Disabilities

 

NACDD

Through the Developmental Disabilities Assistance and Bill of Rights Act of 2000, created the State Councils on Developmental Disabilities which serves to coordinate and provide services for individuals with developmental disabilities. In the United States, there are 56 councils focusing on advocacy, systems change, and capacity building.

Alabama
Executive Director: Elmyra Jones-Banks
Phone: 334-242-3973
www.acdd.org

Alaska
Executive Director: Patrick Reinhart
Phone: 907-269-8990
www.dhss.alaska.gov

American Samoa
Executive Director: Norma Smith
Phone: 684-633-2696

Arizona
Executive Director: Erica McFadden
Phone: 602-542-8977
www.azdes.gov/addpc

Arkansas
Executive Director: Eric Munson
Phone/TDD: 501-682-2897
www.ddcouncil.org 

California
Executive Director: Aaron Carruthers
Phone: 916-322-8481
www.scdd.ca.gov

Colorado
Executive Director: Marcia Tewell
Phone/TDD: 720-941-0176
www.coddc.org

Commonwealth of the
Northern Mariana Islands
Executive Director: Pamela Sablan
Phone: 670-664-7000/1
www.cnmicdd.org

Connecticut
Executive Director: Melissa Marshall
Phone: 860-418-6160
www.ct.gov/ctcdd

Delaware
Executive Director: Pat Maichle
Phone: 302-739-3333
www.ddc.delaware.gov

District of Columbia
Executive Director: Mat McCollough
Phone: 202-724-8612
http://ddc.dc.gov

Florida
Executive Director:Valerie Breen
Phone: 850-488-4180
www.fddc.org

Georgia
Executive Director: Eric Jacobson
Phone: 888-275-4233
www.gcdd.org

Guam
Executive Director: Roseanna Ada
Phone: 671-735-9127
www.gddc.guam.gov

Hawaii
Executive Director: Waynette Cabral
Phone: 808-586-8100
www.hiddc.org

Idaho
Executive Director: Christine Pisani
Phone: 208-334-2178 or
1-800-544-2433
www.icdd.idaho.gov

Illinois
Executive Director: Kim Mercer
Phone: 312-814-2080
www.state.il.us/agency/icdd

Indiana
Executive Director: Christine Dahlberg
Phone: 317-232-7770
www.in.gov/gpcpd

Iowa
Executive Director: Becky Harker
Phone: 800-452-1936
http://iddcouncil.idaction.org

Kansas
Executive Director: Steve Gieber
Phone: 785-296-2608
www.kcdd.org

Kentucky
Executive Director: MaryLee Underwood
Phone: 502-564-7841
www.kyccdd.com

Louisiana
Executive Director: Sandee Winchell
Phone: 225-342-6804
www.laddc.org

Maine
Executive Director: Nancy Cronin
Phone: 207-287-4213
www.maineddc.org

Maryland
Executive Director: Brian Cox
Phone: 410-767-3670
www.md-council.org

Massachusetts
Executive Director: Dan Shannon
Phone: 617-770-7676
www.mass.gov/mddc

Michigan
Executive Director: Vendella Collins
Phone: 517-335-3158
www.michigan.gov/mdch

Minnesota
Executive Director: Colleen Wieck
Phone: 651-296-4018
www.mncdd.org

Mississippi
Executive Director: Charles Hughes
Phone: 601-359-6238
www.mscdd.org

Missouri
Executive Director: Vicky Davidson
Phone: 573-751-8611
www.moddcouncil.org

Montana
Executive Director: Deborah Swingley
Phone: 406-443-4332
Fax: 406-443-4192
www.mtcdd.org

Nebraska
Executive Director: Kristen Larson
Phone: 402-471-2330
www.dhhs.ne.gov/ddplanning

Nevada
Executive Director: Sherry Manning
Phone: 775-684-8619
www.nevadaddcouncil.org

New Hampshire
Executive Director: Isadora Rodriguez-Legendre
Phone: 603-271-3236
www.nhddc.org

New Jersey
Executive Director: Kevin Casey
Phone: 609-292-3745
www.njcdd.org

New Mexico
Executive Director: John Block III
Phone: 505-841-4519
www.nmddpc.com

New York
Executive Director: Sheila Carey
Phone: 518-486-7505
www.ddpc.ny.gov

North Carolina
Executive Director: Chris Egan
Phone/TDD: 919-850-2901
www.nccdd.org

North Dakota
Executive Director: Julie Horntvedt
Phone: 701-328-4847
www.ndscdd.org

Ohio
Executive Director: Carolyn Knight
Phone: 614-466-5205
www.ddc.ohio.gov

Oklahoma
Executive Director: Ann Trudgeon
Phone:  405-521-4984
www.okddc.ok.gov

Oregon
Executive Director: Jaime Daignault
Phone: 503-945-9941
www.ocdd.org

Pennsylvania
Executive Director: Graham Mulholland
Phone: 717-787-6057
www.paddc.org

Puerto Rico
Executive Director: Myrainne Roa
Phone: 787-722-0590
www.cedd.pr.gov/cedd

Rhode Island
Executive Director: Kevin Nerney
Phone: 401-737-1238
www.riddc.org

South Carolina
Executive Director: Valarie Bishop
Phone: 803-734-0465
www.scddc.state.sc.us

South Dakota
Executive Director: Arlene Poncelet
Phone: 605-773-6369
www.dhs.sd.gov/ddc

Tennessee
Executive Director: Wanda Willis
Phone: 615-532-6615
www.tn.gov/cdd

Texas
Executive Director: Beth Stalvey
Phone: 512-437-5432
www.tcdd.texas.gov

Utah
Executive Director: Claire Mantonya
Phone/TDD: 801-533-3965
www.utahddcouncil.org

Vermont
Executive Director: Kirsten Murphy
Phone: 802-828-1310
www.ddc.vermont.gov

Virgin Islands
Executive Director: Yvonne Peterson
Phone: 340-773-2323 Ext. 2137
www.dhs.gov.vi/disabilities

Virginia
Executive Director: Heidi Lawyer
Phone: 804-786-0016
www.vaboard.org

Washington
Executive Director: Ed Holen
Phone: 360-586-3560
www.ddc.wa.gov

West Virginia
Executive Director: Steve Wiseman
Phone: 304-558-0416
www.ddc.wv.gov

Wisconsin
Executive Director: Beth Swedeen
Phone: 608-266-7826
www.wi-bpdd.org

Wyoming
Executive Director: Shannon Buller
Phone: 307-777-7230
www.wgcdd.wyo.gov

 

For Those With Autism, Fixations Can Be Beneficial

Consuelo Martinez watches her daughter Chelsea, who has autism, play the violin
Source: (Disability Scoop)
Author: Shaun Heasley

Parents and teachers should do more to embrace the preferred interests of those with autism, researchers say, pointing out that such aptitudes can be calming and form the basis for careers.

Individuals on the spectrum often display intense interests in topics like computers, animals or trains. Traditionally, many experts thought that such preferences might inhibit social development. Click here to read the rest of the story.

Should I Push My Activities Child To Take Part In Typical Activities?

Baseball kids
Source: Very Well
Author: Lisa Jo Rudy

You enroll your autistic in a preschool soccer program and watch as your child wanders off while the other children happily kick the ball and run toward the goal.

You carefully dress your child up for Halloween to look like his favorite TV character, only to find that he can’t stay in the costume for more than two minutes without having a sensory Meltdown. Click here for the rest of the story.

January Special Needs Article Links

Welcome to the January links. These are articles that I tweeted and or received from viewers during the month of January on special needs and developmental disability topics. Enjoy!

specialneedslinks

10 alarm clocks for children with sensory challenges (Friendship Circle)

65+ ways to help students with sensory challenges at school (Mama OT)

ABL Denim creates sensory-friendly jeans for kids with autism (The Mighty)

ADHD: Younger children may be diagnosed (Medical News Today)

Boy with Down syndrome inspires mom to open Fairfield dance studio (Journal News)

Britain’s criminal justice system doesn’t know what to do about autism (Independent)

How to recognize sensory issues in your child (Integrated Learning Strategies)

Oral motor games for children young and old (Special-ism)

Organization and attention challenges related to sensory processing disorder (Sugar Aunts)

New technology aims to give unique voices to people who can’t speak (WHOTV)

The aging of the population with Down syndrome is a positive sign (STATNews)

The best tech jobs for individuals with autism (Forbes)

The truth about autism and sleep (The Huffington Post)

Top autism tips for professionals  (Network Autism)

Understanding the battle of an aggressive autistic child (iTech Post)

November Special Needs Article Links

specialneedslinks

Welcome to the November links. These are articles that I tweeted and or received from viewers during the month of November on special needs and developmental disability topics. Enjoy!

5 simple but important ways to help include kids with autism

14-Year Old with Asperger’s syndrome makes debut as an author

Activism and Advocacy- The Road from here to now

Autism: Parents face challenges too

Autism is seen as a male thing- but girls just implode emotionally

Children with autism may be over-diagnosed with ADHD: Study

Concussions are more prevalent in teens with ADHD

Dealing with sensory overload during the holidays

Employers are letting down people with autism

Mother and daughter share their struggles with dyslexia

Not letting ADHD get in the way of managing a business

Supreme Court hears service dog case

Utah adolescents with autism get own ‘high school,’ prevocational education

Woman with Down syndrome becomes the first teacher in Latin America

Developmental Disability Acronyms You Should Know

Similar to special education, adult programs are full of acronyms that are used during meetings and in general conversation. Whether you are new to the field or a parent or caregiver with a child entering adult services, you will find this page useful as you navigate your way through adult services and programs.

acronyms

 

Active Treatment (AT). A continuous, aggressive, and consistent implementation of a program of specialized training, treatment and related services that helps people function as independent as possible.

American Disabilities Act (ADA)- A civil rights law that prohibits discrimination against individuals with disabilities in all areas of public life.

Assessment– A way of diagnosing and planning treatment for individuals with disabilities as part of their individual plan of service.

Autism Spectrum Disorder (ASD)- A group of development disorders that can cause significant social, communication and behavioral challenges.

Cerebral Palsy– A disorder that affects muscle tone, movement and motor skills.

Commission on the Accreditation of Rehabilitation Facilities (CARF)- An independent, non-profit accreditor of health and human service organizations.

Council on Developmental Disabilities-State Councils on Developmental Disabilities (Councils) are federally funded, self-governing organizations charged with identifying the most pressing needs of people with developmental disabilities in their state or territory. Councils are committed to advancing public policy and systems change that help these individuals gain more control over their lives.

Day Program– A day program to assist individuals in acquiring, retaining, and improving skills necessary to successfully reside in a community setting. Services may include assistance with acquisition, retention, or improvement in self-help, socialization, and adaptive skills; provision of social, recreational, and therapeutic activities to maintain physical, recreational, personal care, and community integration skills; and development of non-job task-oriented prevocational skills such as compliance, attendance, task completion, problem solving, and safety; and supervision for health and safety.

Developmental Disability– A group of conditions due to an impairment in physical, learning, language or behavior areas.

Developmental Center– residential facility serving individuals with developmental disabilities owned and operated by the State.

Habilitation– Service that help you keep, learn, or improve skills and functioning for daily living.

Human and Community Based Services (HCBS Waive)- Provides opportunities beneficiaries  for Medicaid beneficiaries to receive services  in their own home or community.

Health Insurance Portability and Accountability Act (HIPPA) – Protects individuals records and other personal information.

Intermediate Care Facilities (ICF/ID)- Medicaid benefit that enables states to provide comprehensive and individualized healthcare and rehabilitation services to individuals to promote their independence.

Independent Living Center (ILC)- Community-based resource, advocacy and training center dedicated to improving the quality of life for people with disabilities.

Individualized Service Plan (ISP)- Written details of the supports, activities and resources required for the individual to achieve personal goals.

Individual supported employment-  Competitive employment in the community in integrated business settings for comparable wages.  Paid support staff provides training on the job site as well as follow along services and supports to the individual and business as needed.
Job Coach– An individual employed to help people with disabilities learn, accommodate and perform their work duties including interpersonal skills.

Individualized Supported Living Arrangement (ISLA) – This residential service is provided to people with developmental disabilities and/or intellectual disabilities in their own homes or apartments.  The level of support provided is individualized to the person’s need for training and assistance with personal care, laundry, money management, etc.  Individuals who receive ISLA typically need a higher level of support than people in a Supported Living Arrangement (SLA).

Intellectual Disability–  a disability characterized by significant limitations both in intellectual functioning (reasoning, learning, problem solving) and in adaptive behavior, which covers a range of everyday social and practical skills. This disability originates before the age of 18.

Least Restrictive Environment (LRE)- Individuals with disabilities should live in the community of their choice and receive the necessary services that will help them maintain their independence.

Level of Care- ICF eligibility determination

Person Centered Planning (PCP)- A set of approaches designed to assist someone to plan their life and supports. Used as an ongoing problem-solving process uses to help people with disabilities plan for their future.

Plan of Care– A document developed after the assessment that identifies the nursing diagnoses to be addressed in the hospital or clinic. The plan of care includes the objectives, nursing interventions and time frame for accomplishments and evaluation.

Provider-Typically private non-profit community organizations that provide vocational (and other types) of services to adults with disabilities.  These services are usually paid by state agencies.

Qualified Intellectual Disability Professional (QIDP) -Ensures individuals with Developmental and Intellectual disabilities receive continuous active treatment in accordance with Individual Support Plans (ISPs). Provide counseling, case management, and structured behavior programming to people with disabilities receiving Residential Services.  Responsible for the implementation of rules and regulations as required by licensing entities. Qualified Developmental Disability Professional (QDDP): Individual qualified to work as an expert with persons with developmental disabilities. The QDDP has a four-year college degree in an area related to developmental disabilities and a minimum of one-year experience working in that field.

Quality Assurance/Improvement (QA/QI)- Facilitate quality improvement activities to ensure compliance with accreditation standards regulations, funding source requirements, agency standards and assurance that all required manuals and procedures are maintained and implemented

Residential Care – Services provided in a facility in which at least five unrelated adults reside, and in which personal care, therapeutic, social, and recreational programming are provided in conjunction with shelter.  This service includes 24-hour on-site response staff to meet scheduled and unpredictable needs and to provide supervision, safety, and security.

Respite Care – Temporary relief to a primary caregiver for a specified period of time.  The  caregiver is relieved of the stress and demands associated with continuous daily care.
Self-Advocacy: an individual with disabilities speaking up and making their own decisions.

Self-Determination- Individuals have control over those aspects of life that are important to them, such as the services they receive, their career choices and goals, where they live, and which community activities they are involved in.

Service Coordination- Assists individuals with developmental disabilities and their families in gaining access to services and supports appropriate to their needs.

Supported Employment- Community based employment for individuals with disabilities in integrated work settings with ongoing training and support typically provided by paid job coaches.
Supported

Transition Services – Services provided to assist students with disabilities as they move from school to adult services and/or employment.

Study: Moms Face Greater Risk of Heart Disease

Raising a child with autism may take a deeper toll than previously thought with new research suggesting that such moms face a heightened risk of heart disease.

Mothers of kids on the spectrum who have chronic stress were more likely than less-stressed moms of neurotypical children to experience cardiovascular risk factors. Click here to read the rest of the story

June Monthly Article Links

specialneedslinks

Welcome to the June article links and resources. These are articles that I tweeted and received during the month of June on special needs and developmental disability topics.

10 ways to help autistic children and adults  (The Art of Autism)

20 things I have learned since my son was diagnosed with autism (Huffington Post)

Autistic people are not failed versions of “normal.” They are different, not less (Ideas.TED.com)

Benefits of therapy dogs for autistic children (dogville.com)

Differences between tantrums and sensory meltdowns (Understood)

Exercise can help adults better cope with ADHD symptoms (Science Daily)

Girls with ADHD: How it’s missed (ADDitude)

How a dip in a pool can help open up a new world for children with autism (The Journal.ie)

How well does early intervention work for children with autism? (verywell.com)

Man with Cerebral Palsy goes surfing (New York Daily News)

Raising a daughter with Down syndrome makes me dream of a more inclusive society (Huffington Post)

Resources scarce for adults with autism (The Gazette)

Robot designed to help children with autism (Fast Company. Coexists)

Teen with Down syndrome becomes a police officer for a day (CTV News)

Teen with Down syndrome launches her own dog treat business (TMJ4)

Treating ADHD without medication (ADDitude)

Using poetry to give young adults with disabilities a voice (Washington Post)

What sensory processing disorder has to say about autism (Spectrum)

What it’s like to have ADHD (The Wireless)

Why I’m teaching my child with autism how to swim (Autism Speaks)

Do you know of any interesting articles on special needs and developmental disability topics you would like to see included in the monthly article links? please feel free to contact me at: specialneedsresourceblog@gmail.com