Prevalence of Autism Spectrum Disorders Among Children with Intellectual Disability

Introduction

The study examined the prevalence, stability and characteristics pf ASD in children diagnosed with an intellectual disability.

Methodology

The methodology used to assess the prevalence of ASD in children diagnoses with an intellectual disability identified 2,208 children through the South Carolina Autism and Developmental Disabilities Network. The data reviewed was done in threes phases including screening, extraction and case evaluation. The process included screening each child’s clinical  records, and public school information. Records were abstracted that included information on diagnoses, behavior descriptors and characteristics. The records were then evaluated for both an intellectual disability and autism status.

Findings

  • Rates of ASD in intellectual disabilities were substantially higher than ASD rates reported in the general U.S. population
  • Rates demonstrated elevated and increasing rates of ASD within diagnosis of an intellectual disability.
  • These efforts are warranted to reduce public health costs and support individual well-being for the approximately 24% of people with an intellectual disability who also meet the ASD criteria.

Reference

Tonnsen, B.L.; Boan, A.D.; Bradley, CC.; Charles, J.; Cohen, A.; Carpenter, L.A (2016). Prevalence of Autism Spectrum Disorders Among Children with Intellectual Disability. American Journal of Intellectual and Developmental Disabilities. 121 (6). 487-500

Free Download Autism and Epilepsy Factsheet

A person diagnosed with Autism Spectrum Disorder, is more than likely to have several co-occurring disorders including seizures. Studies show that an severally autistic person tends to  have a higher percentage of seizures.

Epilepsy is more common in autistic people than the general public.

Download the fact sheet here

You can make copies of the factsheet to share with others or as part of a training course you are developing.

Developmental Disability Awareness Ribbons

Awareness ribbons in recent history began when Penney Laingen used the ribbon as a symbol of vigilance ( from the song, Tie a Ribbon Around the Ole Oak Tree) when she tied a yellow ribbon around the oak tree in her front yard when her husband, Bruce Laingen. a top-ranking U.S. diplomat was a hostage during the Iran hostage crisis in 1979. This was followed by the red ribbon during the AIDS epidemic and the pink ribbon bringing awareness to breast cancer.

Ribbons have long been used as a way to bring awareness and raise consciousness for a cause. Ribbons and disability awareness have evolved from bringing awareness to various disability topics such as sensitivity, inclusion and advocacy to including various formats. People are using social media as a means to promote awareness including using hashtags and setting up Facebook pages specifically for disability awareness.

Disability awareness and acceptance is being done through the use of awareness ribbons.

The Ribbons below focus on ribbons that bring awareness to developmental disability and special needs issues.  including individuals with neurodevelopmental and intellectual disabilities. Awareness is only a part of educating and training people on disability awareness. Training activities should also include acceptance and understanding.

Awareness Ribbons

Autism Spectrum Disorder- The Autism ribbon continues to evolve overtime. The puzzle piece was first used in 1963 by a parent and board member of the National Autistic Society in London indicating the puzzling, confusing nature of autism. In 1999, the puzzle piece ribbon was adopted as the universal sign of autism awareness by the Autism Society reflecting the complexity of the autism spectrum. Overtime, the both the puzzle and ribbon have become a symbol for seeing autism as something that is puzzling an needs to be fixed rather than acceptance. A more positive symbol includes the infinity loop used as a symbol for acceptance rather than awareness.

Angelman Syndrome- Blue

Apraxia- Light Blue

Attention Deficit Hyperactivity (ADHD)- Orange

Cerebral Palsy- Green

Cri Du Chat- Blue

Developmental Disabilities- Silver or light blue

Di George Syndrome- Teal

Down Syndrome- Blue and Yellow

Dravet Syndrome- Purple

Duchenne Muscular Dystrophy- Light Green

Epilepsy- Purple

Fetal Alcohol Syndrome Disorder- Silver and Blue

Fragile X Syndrome- Teal

Hydrocephalus- Light Blue

Prader Willi- Orange

Rare Disease- Zebra Stripe

Rett Syndrome- Purple

Sensory Processing Disorder- Blue or Orange

Sickle Cell Anemia- Burgundy

Spina Bifida- Yellow

Spinal Cord Injuries- Green

Tourette Syndrome- Teal

Trisomy 18- Light Blue

Turner Syndrome Purple Butterfly

Williams Syndrome- Burgundy

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Burgundy Awareness Ribbon

  • Sickle Cell Anemia
  • Williams Syndrome

 

Blue Awareness Ribbon

  • Angelman Syndrome
  • Cri Du Chat

Green Awareness Ribbon

  • Cerebral Palsy
  • Spinal Cord Injuries

Light Blue Awareness Ribbon

  • Apraxia
  • Developmental Disabilities
  • Hydrocephalus
  • Intellectual Disabilities
  • Trisomy 18

Orange Awareness Ribbon

  • Attention Deficit Hyperactivity Disorder (ADHD)
  • Prader Willi Syndrome
  • Sensory Processing Disorder

Teal Awareness Ribbon

  • Fragile X Syndrome
  • DiGeorge Syndrome
  • Tourettte Syndrome

 

 

 

Purple Awareness Ribbon

  • Dravet Syndrome
  • Epilepsy
  • Rett Syndrome
  • Turner Syndrome

Blue and Yellow Awareness Ribbon

  • Down Syndrome

Light Green Awareness Ribbon

  • Duchenne Muscular Dystrophy

 

Silver and Blue Awareness Ribbon

  • Fetal Alcohol Syndrome Disorder

Yellow Awareness Ribbon

  • Spina Bifida

Observance and Awareness Month

February

Turner Syndrome Awareness

March

Trisomy18

Kidney Awareness

Multiple Sclerosis

Cerebral Palsy

Developmental Disabilities

April

Autism

Auditory Processing Disorder

May

Apraxia

Cri Du Chat

Cystic Fibrosis

Williams Syndrome

June

Dravet Syndrome Day

July

Fragile X Syndrome

National Craniofacial Awareness and Prevention Month

September

Duchenne Muscular Dystrophy Day

Hydrocephalus

Sickle Cell Anemia

Spinal Cord Injuries

October

ADD/ADHD

Down Syndrome

Rett Syndrome

Sensory Processing Disorder

November

DiGeorge Syndrome

Epilepsy

 

Updated 1/2/2021

The Most Supportive States for Raising a Child With Autism

Published by: Autism Parenting Magazine

Being a parent is challenging in its own right, and parenting a child with autism spectrum disorder (ASD) brings its own unique challenges. All parents want what’s best for their children, and it takes time, effort, and money to develop the whole child.

However, navigating systems of support for families in the US can be complex, to say the least. From deciding which daycare is best for your child and then finding a school that suits his/her needs, to securing a job with a salary that pays enough to support a family and also provides adequate healthcare, it is a real struggle for many parents in the US to make ends meet. Click here to read the rest of the article.

Emergency Room and Special Needs

 

Autism-friendly emergency department provides comfort and familiarity for individuals with autism

Children and youth with special healthcare needs in emergencies

Creating an autism-friendly emergency room department

Emergency department management of children with cerebral palsy

Improving emergency care for adults with developmental disabilities

Hospital initiative strives for an autism-friendly patient experience

Slowing down emergency rooms to improve autism care

The hospital emergency room and autism spectrum disorder

Things to consider when bringing your child with special needs to the emergency room

Treating children with special needs in the emergency room