Tag Archives: tonic-clonic

37 Helpful Epilepsy Resources

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November is Epilepsy Awareness Month!

Epilepsy Facts

  • It is the 3rd most common neurological disorder in the United States
  • 2.7 million Americans have epilepsy
  • 468,000 are children 0-17
  • 50 million people have epilepsy worldwide
  • 1 in 26 people have epilepsy in their lifetime
  • 200,000 people in the United States will be diagnosed with epilepsy this year

The following links include information on symptoms, causes, complications, definition, types of seizures, and treatment:

Medical

Boston Children’s Hospital- Epilepsy Center
Cleveland Clinic-Epilepsy Center
e-medicine health
Everyday Health
FamilyDoctor.org
Healthline
Kids Health
Live Science
Mayo Clinic
Medline Plus
Neuroscience for Kids
WebMD
World Heath Organization (WHO)

Organizations and Foundations

 American Epilepsy Society

Promotes research and education for professionals dedicated to the prevention, treatment and cure of epilepsy.

 Citizens United for Research in Epilepsy (CURE)

Cure’s mission is to cure epilepsy, transforming and saving millions of lives. Also identifies and funds research.

 Dravet Syndrome Foundation

Raises funds for research and increase awareness and provides support to individuals and families.

 Epilepsy Canada

Mission is to enhance the quality of life for persons affected by epilepsy through promotion and support of research and facilitation of education and awareness.

Image result for epilepsy foundation Epilepsy Foundation

National Voluntary agency dedicated solely to the welfare of more than 2 million people with epilepsy in the United States and their families.

 Epilepsy Research UK
A charity funding research into epilepsy, provides information about the condition and therapies, and their activities.
 Hope for Hypothalamic Hamartomas

A volunteer-based organization. The goal is to create information about the diagnosis, treatment, and support of individuals with HH.

 Intractable Childhood Epilepsy Alliance

Dedicated to improving lives of children affected by intractable epilepsy through evidence-based information and advocacy.

 Lennox-Gastaut Syndrome Foundation

Non-profit organization dedicated to improving the lives of individuals with Lennox-Gastaut Syndrome through research, programs and education.

  National Association of Epilepsy Centers

Strives to make high quality care available and affordable for epilepsy patients

Twitter -Keep up with the latest twitter feed or follow organizations that provide current information on epilepsy:

EPIC Long Island– Our very own non-profit organization of the month. Provides services for individuals with epilepsy and other disorders
Epilepsy Action– Leading member-led epilepsy charity providing information for people with epilepsy
Epilepsy Awareness– provides epilepsy training services to help raise standards and promote best practices.
My Epilepsy Team– Social network for people living with Epilepsy
Young Epilepsy– National charity working exclusively with children and young people in the UK

YouTube Video’s

Books on Epilepsy

Epilepsy: A patient and family guide

Epilepsy in Children: What every parent needs to know

Epilepsy 101: The ultimate guide for patients and families

Living well with epilepsy and other seizure disorders

Mommy, I feel funny! A child’s experience with epilepsy

 

 

 

 

36 Epilepsy Facts You Should Know

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Epilepsy is a disorder of the central nervous system often caused by abnormal electrical discharges that develop into seizures. The following are additional facts on epilepsy and seizures:

  1. More people live with epilepsy than autism, spectrum disorders, Parkinson’s disease, multiple sclerosis and cerebral palsy combined.
  2. You can’t swallow your tongue during a seizure. It is physically impossible.
  3. You should never force something into the mouth of someone having a seizure.
  4. Don’t restrain someone having a seizure.
  5. Epilepsy is not contagious .
  6. Anyone can develop epilepsy.
  7. Epilepsy is not rare.
  8. 1 in 26 Americans will develop epilepsy in their lifetime.
  9. An estimated 3 million Americans and 65 million people worldwide live with epilepsy.
  10. In 2/3 of patients diagnosed with epilepsy, the cause is unknown.
  11. Up to 50,000 deaths occur annually in the U.S. from status epilepticus (prolonged seizures). (SUDEP) and other seizure-related causes such as drowning and other accidents.
  12. Between 4 and 10 out of 1,000 people on earth live with active seizures.
  13. 3.4 million people in the United States have epilepsy.
  14. Epilepsy is not contagious
  15. 1/3 of people diagnosed with epilepsy have uncontrolled seizures because the available treatment does not work.
  16. SUDEP accounts for 34% of all sudden deaths in children.
  17. Epilepsy costs the U.S. approximately 15.5 billion each year.
  18. A seizure is a transient disruption of brain function due to abnormal and excessive electrical discharges in brain cells.
  19. Epilepsy is a disease of the brain that predisposes a person to excessive electrical discharges in the brain cell.
  20. It is diagnosed when 2 or more unprovoked seizures have occurred.
  21. It must be at least 2 unprovoked seizures more than 24 hours apart.
  22. About 14% have simple partial seizures.
  23. 36% have complex partial seizures.
  24. 5% have tonic-clonic seizures.
  25. Seizures can be caused by head trauma, stokes, brain tumor and a brain infection.
  26. Causes are unknown in 60 to 70% of cases.
  27. The prevalence is 1% of the U.S. population.
  28. Approximately 2.2 to 3 million in the U.S. have seizures.
  29. It affects all ages, socioeconomic and racial groups.
  30. Incidents are higher in children and older adults.
  31. Seizures can range from momentarily blanks to loss of awareness
  32. Almost 150,000 people in the U.S. develop epilepsy every year.
  33. No gender is likely to develop than others.
  34. 1/3 of individuals with autism spectrum disorders also have epilepsy.
  35. The prevalence of epilepsy in people with an intellectual disability is higher than the general population.
  36. It takes up to 5 times more energy for a person with epilepsy to complete even the most simple task.