Book Review: My Belly has Two Buttons: A Tubie Buttons
Author: Meikele Lee
Illustrator: Rebecca Robertson
Did you know that according to the Feeding Tube Awareness Foundation, there are over 300 conditions that require children to receive a nutritional support through tube-feeding which is expected to continue to rise? The decision to use a feeding tube can be frightening for parents, children and siblings alike. Meikele Lee, author, mom and pediatric feeding disorder advocate, wrote this book through the eyes of 2-year-old Nico who takes the reader through his own journey of using a G-tube describes the meaning of NPO (nothing by mouth) and his MIC-KEY. A MIC-KEY button is used to conceal the tube as well as decrease the risk of snagging and removing the G-Tube. Nico explains his day of using a feeding bag. I enjoyed reading this book. The book does a great job in describing the purpose of a g-tube and would be an appropriate book for children new to using a feeding tube, family members including siblings, extended family member and teachers interested in expanding disability educational programs in the school.
Before Asthma and Allergy Awareness Month ends, I wanted to post links to free training modules on asthma and allergy. Below you will find a few that are all self-study which you can review on your own time. I included one for teachers and parents that focus on created a lesson plan for children which would be great for child with and without asthma and allergy issues.
Asthma and Nutrition Training Module– Developed by the University of Florida Pediatric Pulmonary Center, this course provides participants information on asthma and nutrition that may be used in assessing and counseling clients. This is a self-study module in a PowerPoint format with audio capture.
Asthma on Wheels Teacher Training Module– Created through the Mecklenburg County Health Department Asthma Education Program. This teacher training module provides a lesson plan to students with discussions of asthma and learning activities and list ways to educate students about asthma being a controllable condition in which students can live actively healthy lives.
Asthma Program- Indiana State Department of Health– Website includes information and resources for healthcare providers including a printable asthma medication poster and an asthma guideline implementation steps and tools.
Continuing Education for Healthcare Professionals– A free online course presented by Cross County University. This course focuses on information on assessment and monitoring, control of environmental factors, medicine management and patient education.
Food Allergy School Staff Training Module– A 30 minute module is designed to assist the school nurse in staff training and increase food allergy awareness for all staff including teachers, administration, aides, specialist and coaches.
The American Association on Intellectual and Developmental Disabilities will be holding its 141st annual meeting on June 26thru June 29th in Hartford, Connecticut. The theme for the conference is “Promoting Health and Wellness.”
Registration fees are the following:
| Early Bird
before or on June 1st
Beginning June 2nd
| Member General Registration*
| Non Member General Registration
| Full Time Student Registration
| Retiree/Self-Advocate/Family Member
| Member One-Day Registration
| Non Member One-Day Registration
| Pre and Post Conference Sessions**
*The general registration fee entitles you to attend all AAIDD Annual Meeting sessions and events held on Tuesday, 6/27 and Wednesday, 6/28.
** Pre and Post conference sessions are 3 hours sessions held on Monday, 6/26 and Thursday, 6/29 and are optional.
AAIDD Corporate Members- If your organization is a Corporate member, you’ll get 20% discount on registration fees for employees at AAIDD annual meetings.
Sibling Leadership Network Conference
AAIDD is pleased to host the national meeting of our partner organization on June 24-25, 2017 in Hartford. You’ll be able to register for this meeting through the AAIDD registration link as well.
For program information about this conference, please visit: http://siblingleadership.org/2017-sln-conference/
Click here for additional information
Source: The Spectrum News
Author: Shannon Des Roches Rosa
I take a deep breath before reading any article, popular or scientific, about autism. I steel myself because most of these stories paint people like my curly-haired, autistic teenage son as burdens to their families — as changelings or enigmas. I love my son Leo fiercely and consider him none of those things, so these stories hurt. My adult autistic friends are even more pained than I am by these puzzlingly negative portrayals. Click here to read the rest of the story
Source: Cerebral Palsy News Today
A new study suggests that maternal anxiety and depression may affect the quality of life of children with cerebral palsy (CP).
The study, “Impact of Symptoms of Maternal Anxiety and Depression on Quality of Life of children with Cerebral Palsy,” was recently published in the journal Archives of Neuropsychiatry.
CP is a leading cause of physical disability. A heterogenous condition, it causes motor and sensory impairment, negatively affecting quality of life (QOL). However, that QOL in CP patients is multidimensional, and can be affected by other variables, including the person’s specific type of CP, cognitive function, and other medical disorders. Click here to read the rest of the story.
Writer: Liz Zabel
Leah Parker wasn’t diagnosed with autism until she was 18.
Despite recognizing the symptoms in her behavior, the 19-year-old University of Iowa English major said her parents had trouble believing her.
Maybe it’s because she got “good at pretending and blending in” by studying others, even though it didn’t feel natural. Or perhaps it’s because her special interest in dogs is socially acceptable enough to “slip by without people noticing,” she said.
But when the doctors delivered the news that she is, in fact, autistic, her parents were shocked.
“A lot of people seem to think it’s much more rare than it actually is,” Parker said. “They have a picture in their head that everybody who is autistic is Rain Man or something … People just know a lot more autistic people than they realize.” Click here to read the rest of the story
Source: (Huffington Post)
Writer: Mary Bailey
There are studies and articles that explore the mysteries of multi-tasking and memory in the life of individuals with autism, but there are still huge question marks which have yet to be answered. In my own search for the keys to Chase’s brain, I learned that researchers have discovered that the brains of children with autism are inflexible at rest-to-task performance. This basically means that specific brain connections do not change or function as they should, when switching from a resting-state to a task-state. There can also be impairments in the parts of the brain responsible for prospective memory (remembering things that need to be done in the future) and retrospective memory (remembering things that occurred in the past). Click here to read the rest of the story