What is Hydrocephalus?

Some people refer to hydrocelphus as ‘water on the brain.” The name is taken from the greek words “hydro” meaning water and “cephalus” referring to the head. Hydrocephalus is actually a build up of cerebrospinal fluid (CSF) within the cavities in the brain inside the ventricles. The purpose of the Cerebrospinal fluid is to serve as a protective cushion surrounding the brain and the spinal cord.

The fluid moves in constant circulation and is then absorbed into the blood stream. Hydrocephaly occurs when the fluid begins to build up in the cavities causing excess fluid to increase in the ventricles adding pressure on the brain which can cause damage to the brain tissues.

Types

There are two major types of hydrocephalus:

Congenital. In this case, a child was born with it. The cause could be due to both genetic or environmental factors during the early stages of fetal development such as an infection or a birth defect or rubella.Through advanced technology, hydrocephaly can now be diagnosed through ultra sound testing

 

Acquired.  Occurs when it is developed after birth. It may be due to a brain tumor, stroke, head injury or meningitis

Communicating.  (Obstructive) Occurs when the CSF becomes blocked after leaving the ventricles

Non Communicating. (Non-Obstructive) occurs when the craniospinal fluid becomes blocked after leaving the ventricles.

Data and Statistics- Fetal Alcohol Spectrum Disorders (FASD)

  • Fetal alcohol disorders range from mild intellectual and behavioral problems to extreme disorders that lead to profound disabilities or premature death.
  • FAS are not heredity: they are 100 percent preventable the sole cause is prenatal alcohol exposure.
  • Of the children heavily exposed to alcohol before birth, about 40 percent are estimated to exhibit fetal alcohol disorders, with 4 percent affected by full blown fetal alcohol syndrome.
  • Women who give birth to a child with FAS are 800 times more likely to give birth to subsequent children with the syndrome than are women who have never given birth to a child with the syndrome.
  • Each year, there are four times as many infants born with fetal alcohol disorders as there are infants born with muscular dystrophy, spina bifida and Down syndrome combined.
  • 15 out of 100 women of childbearing age do not know that drinking alcohol during pregnancy is dangerous.
  • FASD affects about 40,000 newborns each year
  • A survey of pediatrician reported in the journal Pediatrics revealed that only 13 percent routinely discussed the risk of drinking during pregnancy with their adolescent patients.

  • According to the Center for Substance Abuse Prevention, 1 in 9 pregnant women binge drink during the first trimester.
  • FASD are 100% incurable
  • 60% of individuals with FASD find themselves in legal trouble at some point in their lives.
  • There is a high prevalence of epilepsy (5.9%) in individuals with FASD compared with individuals who did not have the disorder.
  • 94% of individuals heavily exposed to alcohol in the womb are diagnosed with ADHD
  • It is estimated a lifetime cost for one individual with FASD is 2 million
  • 50% of adults with FASD were clinically depressed

SEPTEMBER IS FETAL ALCOHOL SPECTRUM DISORDER AWARENESS MONTH

School Accomodations for Students Diagnosed with Fetal Alcohol Spectrum Disorders

The Centers for Disease Control and Prevention (CDC) describes Fetal Alcohol Spectrum Disorders as a group of conditions that can occur in a person whose mother drank during pregnancy. The effects of the fetal alcohol disorders includes many learning challenges including hyperactivity, poor attention span, memory issues, coordination challenges, anxiety, speech and language delays, problem-solving issues, difficulty staying on task, behavioral challenges and social interaction.

Some children with FASD have co-occurring disorders or are often mis-diagnosed.

The following are the most common disorders:

  • Oppositional Defiant Disorders (ODD)
  • Attention Deficit Hyperactive/Inattentive Disorder (ADHD)
  • Learning Disabilities
  • Speech and language delays
  • Anti-Social Personality Disorder

The following are Accommodations that will help students succeed:

  • Use a multi-sensory approach to learning
  • Allow extra time for testing assessments
  • Chunk the test into parts
  • Reduce distractions by using preferential seating
  • Allow the student to take breaks
  • Use oral test
  • Provide oral instructions
  • Use a checklist for the student to use
  • Allow the student to use a timer
  • Use repetition
  • Check in with the students for understanding and provide feedback
  • Teach calming strategies
  • Use assistive technology
  • Use social stories
  • Teach social skills

CDKL5 and Teaching Strategies

CDKL5 is a neurodevelopmental disorder that includes signs of early-onset epilepsy. In fact 90% of children diagnosed with CDKL5 disorder are more likely to develop epilepsy. CDKL5 is derived from a gene and one of the most common causes of genetic epilepsy. Children diagnosed with CDKL5 also face many other developmental challenges as well.

Image by PublicDomainPictures from Pixabay

Click here to download PDF version

Facts

It is a neurodevelopment disease caused by the CDKL5 gene.

It impacts cognitive, motor, speech and visual function

It affects 1 in 40,000-60,000 children each year.

CDKL5 was previously called STK9

The disorder mainly affects females

The cause of CDKL5 deficiency disorder is unknown

Signs of CDKL5 deficiency includes epileptic seizures

Starting within hours of birth to 2 years of life, some children often go for 24 hours or more without sleeping.

Signs and Symptoms of CDKL5
Teaching Strategies

The following are teaching strategies that can used when teaching children with the CDKL5 disorder:

  • Provide frequent breaks
  • Use assistive technology
  • Provide extra time
  • Repeat directions
  • Use concrete items when possible
  • Break task into smaller steps
  • Teach in sequence
  • Use a multisensory approach
  • Use hand-on material

 

Children's Hospital.org
Genetic Home Reference
International Foundation for CDKL5 Research
Rare Diseases.org

 

 

DIY Sensory Activities for your Child With Autism

Dysfunctional sensory system is a common Symptom of Autism as well as other developmental disabilities. In this, sometimes one or more senses can either be hypo or hyper sensitive to stimulation and can lead to behaviors like rocking, spinning, and hand- flapping, irritability and hyperactivity.

There are three basic senses that are critical for our survival- tactile, vestibular, and proprioceptive. Sensory Integration techniques or therapies of these senses can facilitate attention and awareness, and reduce overall arousal.

In this article, each of these sensory systems will be covered. There also will be a Do-it-yourself (DIY) activity mentioned to overcome dysfunction and improve functioning of these sensory systems. Click here to read the rest of the story.

Fine Motor-Flag Day Activities

June 14th is the designated day to celebrate the American flag. The purpose of Flag Day is to reflect on the foundations of the Nation’s freedom. The following activities can be used to improve fine motor skills for both children and adults with disabilities. From cutting to coloring , the activities also use a multi-sensory approach to learning.

Arts and Crafts

DLTK Flag Day– Flag day crafts including coloring pages and tracing.

Education World– Flag day lesson plan activities

Enchanted Learning– Allows you to click on any of the crafts to get to the instructions.

Flag Day Crafts– Includes creating a togetherness flag, star cookie cutter and a craft stick American Flag

No Time for Flash Cards- Create an American flag sticky window collage

Flag Day Inspired Recipes

Food Network– 6 Star spangled red, white, and blue recipes made for flag day.

Saralee Bread- Flag day food art recipe

Taste of Home- Top 12 flag-shaped recipes

Tasty Kitchen– Recipe for cakes and cupcakes in the shape of the American flag.

Flag Day Coloring

Color me good

Crayola

DLTK

Doodle Art Alley

Get Coloring Pages

Supercoloring

The color.com

Thoughtco

USA Printables

Woojr.

Free Printable Money WorkSheets

Summer will be here before you know it. If you want your student/ child or individual to continue practicing math skills, I have provided below 4 money sheets that you can printout and make several copies. The money sheets allows the child to work on both IEP and ISP goals including:

  1. Identifying coins
  2. Matching coins
  3. Visual discrimination
  4. Counting
  5. Transition skills
  6. Visual learners

 

Burger King.Worksheet. This is a fun activity especially for children, students and adults that enjoy going to Burger King. The individual will choose the picture and subject the cost of the item from $10.00.  This activity people with dysgraphia, increase money skills, attention skills, task initiation skills and works well as a pre-trip to Burger King. focusing on transition skills.

Matching Dimes Worksheet– The matching dime activity is great for goals on counting and identifying a time. it is useful for children adults that are visual learners and provides hands on materials. The students learning ability will increase with the use of actual dimes.

Circle Nickle Worksheet – This worksheet give the individual an opportunity to work on counting, identify various coins as well as explaining the value of the coin. The worksheet also provides additional support and increases visual discrimination skills.

Dime Counting – helps the child, student or adult with special needs practice counting skills and visual memory.

My plan for the rest of the year is to provide you with more resources that are more functional and allows you to download information.

 

Memorial Day Sensory Activities

Memorial Day is an American holiday observed to honor the men and women who died while serving in the U.S. Military. It originated following the Civil War and became an official holiday in 1971.

Memorial Day is also an opportunity to work on fun Memorial Day activities. Children and adults with special needs lean best when using a multi-sensory approach. This helps to stimulate learning and engage individuals on various levels of learning.

The activities and lessons that I have chosen focus on visual and tactile stimulation and includes both math and reading activities. The craft activities work to improve fine motor skills.

 

American flag on a pencil craft- Printable templates

Craft stick flag– U.S. flag made from craft sticks

Free Memorial Day packs- packets includes clip cards, word problems, fill in and missing numbers

Patriotic Pinwheel– Craft easy to make pinwheel

USA Wreath– Simple red, white and blue wreath made out of construction paper.

 

 

Cystic Fibrosis Awareness Month

According to the Cystic Fibrosis Foundation, cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe overtime. It is a life-threatening disorder that damages the lungs and digestive system. A thick mucus can block the lungs and the pancreas.

In the United States, about 30,000 people are affected by the disease. It is estimated that more than 70,000 people worldwide are living with cystic fibrosis. 1 in every 20 Americans is an unaffected carrier of an abnormal CE gene.

Wikipedia

Common symptoms of cystic fibrosis include:

  • Salty-tasting skin
  • Persistent coughing
  • Shortness of breath
  • Wheezing
  • Poor weight gain in spite of excessive appetite
  • Greasy, bulky stools
  • Repeated lung infections
  • Muscle and joint pain
  • Sinus infections.

Cystic Fibrosis does not affect any cognitive or learning abilities. However, the student may need modifications and supports due to the disease. Teachers with students with cystic fibrosis should be knowledgeable about the disease.

Williams Syndrome and Teaching Strategies

Williams Syndrome also known as Williams-Beuren syndrome was discovered in 1961 by J.C.P. Williams, a Cardiologist from New Zealand. Williams Syndrome is a rare disorder with a prevalence of in 7,500 to 20,000 caused by the deletion of genetic material from chromosome 7. Williams syndrome symptoms include heart problems, low birth weight, l problems and developmental delays. 75 are diagnosed with mile to moderate intellectual disabilities or a learning disability.

Click here to download PDF article

Physical characteristics include:

Musculoskeletal

Almond shape eyes

Broad forehead

long neck

Longer upper lip

Puffiness around the eyes

sloping shoulders

Small chin

Small upturned nose

Wide mouth

Learning Characteristics

  • ADHD
  • Enjoys music
  • Developmental delay
  • Excellent long-term memory
  • Learning disability
  • Poor fine motor skills
  • Seizures
  • Tactile defensiveness

Teaching Strategies

Students with Mild intellectual disabilities will have difficulty with abstract thinking, executive functioning including planning, prioritizing, and cognitive flexibility. According to the Williams Syndrome Association Website, Children with Williams Syndrome face challenges with processing non-verbal information and displays difficulty with attention to detail.

Strategies should include:

  • Using short sentences
  • Repeat directions
  • Break task into small steps
  • Use concrete examples when introducing new words or concepts.
  • Teach one concept at a time
  • Use a multisensory approach which will help to stimulate learning
  • Utilize visual learning style including the use of flash cars, pictures, images, handouts and colors.

Reference

Williams Syndrome Association