Understanding The Individualized Family Service (IFSP)

The individualized Family Service Plan (IFSP) is a written plan that is developed for infant and toddlers up to the age of 3. It is Part C of the Individuals with Disabilities Act responsible for developing and implementing statewide early intervention services for infants and toddlers with disabilities and their families.

The difference between IFSP and an IEP, is that ISFP is written plan designed for the family while the IEP focus is the student. ISFP should include the following information:

  • Your child’s level of functioning and needs
  • Outcomes expected
  • Family information Natural environment
  • Where your child receives services
  • Number of sessions your child will receive for the service
  • Who will pay for the service

Services provided through early intervention based on your child’s needs include:

  • Audiological services
  • Vision services
  • Occupational and physical therapy
  • Special education service
  • Speech and language therapy
  • Medical and nursing service
  • Nutritional services
  • Psychological and social work services
  • Health services necessary for your child to benefit from other early intervention services
  • Family training, counseling, and home visits
  • Transportation to enable your child and family to receive early intervention services
  • Respite care and other family support services
Team Members

Individualized family service plan team members include:

  • Evaluator
  • Therapist
  • Service Coordinator
  • Parent or caregiver
  • Other family members
  • An advocate if requested by the parents

A service coordinator is provided to assist and enable an infant or a toddler with a disability and the family to receive services. The service coordinator also:

  • Coordinates early intervention services and other services
  • Facilitates and participates in the development, and evaluation of the plan
  • Ensures services are provided in a timely manner
  • Facilitate the development of a transition plan to preschool, or to other services.
Resources

Center for Parent Information and Resources

Family Connect

Pacer Center

Understood

25 Must-Read Resources for Siblings of Children and Adults With Disabilities

This is an article that I have wanted to write for a long time as it is personal to me. I watch my youngest nephew growing up with the responsibility of caring for his older brother with a disability. From helping him get dressed in the morning to looking out for him while in school. As my nephew without disabilities grew, he would ask me why his brother was treated so special by others around him which is a difficult question to answer. Now an adult with a family of his own, he still is protective of his brother and continues to love him and look out for him.

Children who have siblings with disabilities often carry an added weight. They are protective of their siblings and from this added experience, it has taught them to be compassionate towards others. the following resources are useful for siblings, parents and providers looking for information to help families with disabilities.  Please email me at specialneedsresourceblog@gmail.com if you have additional information that you would like to share.

Sibling Organizations and Support Groups

Sibling LeadershipThe mission of the Sibling Leadership Network is to provide siblings of individuals with disabilities the information, support and tools to advocate with their brothers and sisters and to promote the issues important to them

Siblings of Autism-Siblings of Autism is dedicated to supporting the siblings of individuals on the autism spectrum through educational scholarships, respite funds and outreach programs.

The Sibling Support Project– National program dedicated to the life-long and ever-changing concerns of brother and sisters of people with special health, developmental, and mental health concerns

Sibling Resources– A growing network of adult siblings of people with intellectual disabilities and developmental disabilities. Provides up-to-date information, resources and training opportunities.

Sibling  Support Resources

I Am A Sibling- The ARC

Sibling Support- Family Drug Help

There with Care

SOCIAL MEDIA

Facebook Group

Sibling of Children with Disabilities

Instagram

Special_Needs_Siblings

Siblings of Autistic Kids

Sibling of Special Needs

Twitter

Sibs

Special Needs Siblings

Article Links

5 ways to support siblings in special needs families (Child Mind Institute)

8 things siblings of children with special needs struggle with (Washington Post)

10 great books if you have a sibling with special needs (Friendship Circle)

12 ways to support siblings (Brooks Publishing Company)

Caring for siblings of children with special needs (Kids Health)

Dear sibling to a child with special needs (The Mighty)

Emotional problems facing siblings of children with disabilities (Psychiatry Advisor)

Having an autistic sibling (National Autistic Society)

Helping siblings of children with autism spectrum disorder (Raising Children)

Siblings and Cerebral Palsy (Cerebral Palsy Guidance)

Sibling Issues (Center for Parent Information and Resources)

Sibling of children with disabilities (Psychology Today)

Supporting siblings of children with disabilities in the school setting (ERIC.ed)

Ways a child care providers can support siblings of children with special needs (Extension)

Early Intervention-Resources and Information

Early intervention services are provided through the IDEA Act-  a law that makes available a free appropriate public education to eligible children with disabilities throughout the nation and ensures special education and related services.

Early interventions are covered under the IDEA Act and is defined to meet the developmental needs of an infant or toddler with a disability and the needs of the family to assist appropriately in the infants or toddler’s development as identified by the IFSP team in any one or more of the following areas:

  1. Physical Development
  2. Cognitive Development
  3. Communication Development
  4. Social or Emotional Development
  5. Adaptive Development 

IDEA Part C regulations also include intervention services that fall  under the law including:

  1. Assistive technology
  2. Audiology service
  3. Family Training
  4. Health services
  5. Medical Services
  6. Nursing Services
  7. Nutritional
  8. Occupational Therapy
  9. Physical therapy
  10. Psychological Services
  11. Service Coordinator
  12. Sign Language
  13. Social Work
  14. Special Instructions
  15. Speech-language pathology
  16. Transportation and related costs
  17. Vision services

The Early Childhood Technical Assistance Center (ECTA) provides information on family rights, procedural safeguards and complaint resolution

For Military families with children with disabilities, click here to locate the Parent Training Information Center in Your state. There is also a Military Parent Technical Assistance Center

Additional Resources for Military Personnel

National Military Family Association

Resources Especially for Military Families

Resources for Military Families of Children with Disabilities

Locating Early Intervention Centers In Your Area

ECTA maintains a list of websites here.

For more information including resources, worksheets, and activities, please visit my Pinterest Board

My ADHD Story and What You Can Do


Source: The Bender Bunch

Attention Deficit Hyperactivity Disorder, known as ADHD is a behavioral condition that affects nearly 11% of our student population. These children are typically very impulsive, hyper, and struggle to pay attention and remain on task.

You may say, “Well that’s me.” Many of us have difficulties paying attention when something doesn’t interest us, or sometimes we may feel hyper. I do! But children with ADHD struggle so much with these behaviors that it often takes over and affects every aspect of their life; home, school, and their social life. Click here for the rest of the story.

Transition Planning Timeline

Click here for a printed version

One of the goals of the Individuals with Disabilities Education Act is to include transition planning services for all special education students at age 16. Transition planning is mandated through IDEA 2004 which serves to help students begin the process of preparing for post-school activities including, postsecondary education, vocational education, integrated employment and adult services. A timeline will help you stay focused on achieving each step.

The law states transition planning should begin no later than 16 years old or before. It is recommended transition planning should begin by age 14 since services are different in the adult services world including long waiting list depending on where you live and what services are available.

14 Years Old
  • Transition planning should begin no later than when your child is 14.4- It is the law in most states.
  • Begin to research agencies who provide services for individuals with disabilities
  • IEP meeting should focus on the student’s needs, interest in preparation for adulthood
  • Research various aspects of transition services
  • Begin to explore recreation activities
15 Years Old
  • Develop a vision statement
  • Transition goals should be part of the IEP
  • Begin to discuss home services
  • Attend information fairs that offer information on future planning including residential, guardianship and employment
  • Start planning an independence plan at home where possible
16 Years Old
  • Transition goals at the IEP meetings should be updated.
  • Confirm how long students will attend high school- 4 years or until age 21
  • Start the process of getting referrals to your state agency
  • Begin researching adult services and programs. Some waitlist can last for years
  • Initiate application to adult service agencies
17 Years Old
  • Confirm a graduation date
  • Update transition goals in the IEP
  • Begin to invite adult service providers to IEP
  • Begin to investigate guardianship information and the process
18 Years Old
  • Adult eligibility should be completed
  • Apply for SSI (Supplemental Security Income) and Medicaid.
  • Visit adult providers programs
  • Attend job fairs if appropriate
  • Establish legal guardianship if necessary
  • Explore future planning
18-21 Years Old
  • Refine vision statement
  • Revise and update IEP goals
  • Invite transition coordinator your child’s IEP meeting
  • Explore and obtain necessary funding for adult programs
  • Ensure there is a plan for medical/health coverage
  • Confirm all support services are in place.

Below is a free transition printable planning checklist. Feel free to download the PDF.

transition-planning

transition-planning-checklist

Developmental Disability Acronyms You Should Know

Similar to special education, adult programs are full of acronyms that are used during meetings and in general conversation. Whether you are new to the field or a parent or caregiver with a child entering adult services, you will find this page useful as you navigate your way through adult services and programs.

Click here for a printed version

acronyms

 

Active Treatment (AT). A continuous, aggressive, and consistent implementation of a program of specialized training, treatment and related services that helps people function as independent as possible.

American Disabilities Act (ADA)- A civil rights law that prohibits discrimination against individuals with disabilities in all areas of public life.

Assessment– A way of diagnosing and planning treatment for individuals with disabilities as part of their individual plan of service.

Autism Spectrum Disorder (ASD)- A group of development disorders that can cause significant social, communication and behavioral challenges.

Cerebral Palsy– A disorder that affects muscle tone, movement and motor skills.

Commission on the Accreditation of Rehabilitation Facilities (CARF)- An independent, non-profit accreditor of health and human service organizations.

Council on Developmental Disabilities-State Councils on Developmental Disabilities (Councils) are federally funded, self-governing organizations charged with identifying the most pressing needs of people with developmental disabilities in their state or territory. Councils are committed to advancing public policy and systems change that help these individuals gain more control over their lives.

Day Program– A day program to assist individuals in acquiring, retaining, and improving skills necessary to successfully reside in a community setting. Services may include assistance with acquisition, retention, or improvement in self-help, socialization, and adaptive skills; provision of social, recreational, and therapeutic activities to maintain physical, recreational, personal care, and community integration skills; and development of non-job task-oriented prevocational skills such as compliance, attendance, task completion, problem solving, and safety; and supervision for health and safety.

Developmental Disability– A group of conditions due to an impairment in physical, learning, language or behavior areas.

Developmental Center– residential facility serving individuals with developmental disabilities owned and operated by the State.

Habilitation– Service that help you keep, learn, or improve skills and functioning for daily living.

Human and Community Based Services (HCBS Waive)- Provides opportunities beneficiaries  for Medicaid beneficiaries to receive services  in their own home or community.

Health Insurance Portability and Accountability Act (HIPPA) – Protects individuals records and other personal information.

Intermediate Care Facilities (ICF/ID)- Medicaid benefit that enables states to provide comprehensive and individualized healthcare and rehabilitation services to individuals to promote their independence.

Independent Living Center (ILC)- Community-based resource, advocacy and training center dedicated to improving the quality of life for people with disabilities.

Individualized Service Plan (ISP)- Written details of the supports, activities and resources required for the individual to achieve personal goals.

Individual supported employment-  Competitive employment in the community in integrated business settings for comparable wages.  Paid support staff provides training on the job site as well as follow along services and supports to the individual and business as needed.
Job Coach– An individual employed to help people with disabilities learn, accommodate and perform their work duties including interpersonal skills.

Individualized Supported Living Arrangement (ISLA) – This residential service is provided to people with developmental disabilities and/or intellectual disabilities in their own homes or apartments.  The level of support provided is individualized to the person’s need for training and assistance with personal care, laundry, money management, etc.  Individuals who receive ISLA typically need a higher level of support than people in a Supported Living Arrangement (SLA).

Intellectual Disability–  a disability characterized by significant limitations both in intellectual functioning (reasoning, learning, problem solving) and in adaptive behavior, which covers a range of everyday social and practical skills. This disability originates before the age of 18.

Least Restrictive Environment (LRE)- Individuals with disabilities should live in the community of their choice and receive the necessary services that will help them maintain their independence.

Level of Care- ICF eligibility determination

Person Centered Planning (PCP)- A set of approaches designed to assist someone to plan their life and supports. Used as an ongoing problem-solving process uses to help people with disabilities plan for their future.

Plan of Care– A document developed after the assessment that identifies the nursing diagnoses to be addressed in the hospital or clinic. The plan of care includes the objectives, nursing interventions and time frame for accomplishments and evaluation.

Provider-Typically private non-profit community organizations that provide vocational (and other types) of services to adults with disabilities.  These services are usually paid by state agencies.

Qualified Intellectual Disability Professional (QIDP) -Ensures individuals with Developmental and Intellectual disabilities receive continuous active treatment in accordance with Individual Support Plans (ISPs). Provide counseling, case management, and structured behavior programming to people with disabilities receiving Residential Services.  Responsible for the implementation of rules and regulations as required by licensing entities. Qualified Developmental Disability Professional (QDDP): Individual qualified to work as an expert with persons with developmental disabilities. The QDDP has a four-year college degree in an area related to developmental disabilities and a minimum of one-year experience working in that field.

Quality Assurance/Improvement (QA/QI)- Facilitate quality improvement activities to ensure compliance with accreditation standards regulations, funding source requirements, agency standards and assurance that all required manuals and procedures are maintained and implemented

Residential Care – Services provided in a facility in which at least five unrelated adults reside, and in which personal care, therapeutic, social, and recreational programming are provided in conjunction with shelter.  This service includes 24-hour on-site response staff to meet scheduled and unpredictable needs and to provide supervision, safety, and security.

Respite Care – Temporary relief to a primary caregiver for a specified period of time.  The  caregiver is relieved of the stress and demands associated with continuous daily care.
Self-Advocacy: an individual with disabilities speaking up and making their own decisions.

Self-Determination- Individuals have control over those aspects of life that are important to them, such as the services they receive, their career choices and goals, where they live, and which community activities they are involved in.

Service Coordination- Assists individuals with developmental disabilities and their families in gaining access to services and supports appropriate to their needs.

Supported Employment- Community based employment for individuals with disabilities in integrated work settings with ongoing training and support typically provided by paid job coaches.
Supported

Transition Services – Services provided to assist students with disabilities as they move from school to adult services and/or employment.

10 Speech Therapy Blogs You Should Be Reading

Speech therapy is a key component in the life of a child with a disability. When it comes to speech therapy, there are so many blogs that provide an abundance of resources for other speech therapist, teachers and parents. Finding the right ones however can be a challenge.

speechblog2

The following blogs provide tons of information, resources and tips on speech language topics. Here are 10 speech therapy blogs worth checking out (in no particular order).

Beautiful Speech Life– Creates and develops therapy materials for fellow SLP’s and teachers. This website provides freebies, language materials and quick therapy tips.

Nicole Allison Speech Peeps– This website offers speech language resources on a variety of topics and an evidence-based intervention series.

PediaStaff– A resourceful blog providing informative news information and article blogs from speech language websites.

Simply Speech– A site with freebies and great blog ideas and activities

Speech 2 U- Provides resources, freebies and therapy topics on communication, social language, social language, organization, plus more!

Speechy Musing– Provides speech therapy resources on a variety of topics. Age range includes, birth to 3, elementary school and middle school on the subject of articulation, language and AAC; The site also includes a blog for fellow speech therapist.

Sublime Speech– Provides therapy to children with severe and profound disabilities. Website includes information on apps, articulation, language, materials and social skills

Teach Speech 365. Includes freebies, giveaways and therapy topics.

The Dabbling Speechie– A website for speech and language pathologist and parents offering a variety of resources on articulation, language and social skills.

The Speech Room News– Specializing in pediatric speech and language therapy, Jenna’s site provides resources for speech language pathologists and educators. The website includes free resources, and treatment topics on articulation, social language, preschool and more.

 

Autism Moms and Chronic Stress

No huge surprise that mothers of children with autism experience stress similar to combat soldiers. Combat stress is defines as mental, emotional or physical distress, resulting from exposure to combat-related conditions including a heighten awareness of potential threats.

autism.mom.4ways

Researchers followed a group of mothers of children diagnosed with autism and found the moms displayed higher levels of chronic stress. And no wonder, a 2011 study conducted by the Interactive Autism Network found that nearly half of the children with autism attempted to bolt from a safe, supervised place with more than half wandering into dangerous situations. Also, more than a third of the children with autism who wandered/elope are rarely able to communicate their personal information and two out of three parents reported a close call with a possible drowning.
Signs similar to combat soldiers include, re-experiencing events or flashbacks, memory loss, unusual or excessive fear or worry, unexplained sadness, feeling overwhelmed, feeling isolated and withdrawal and avoiding others.
Signs and symptoms may include physical signs including trembling, jumpiness, cold sweats, heart palpitations, unable to sleep, fatigue and a “thousand yard” stare. Emotional signs may include, re-experiencing events of flashbacks, memory loss, unusual excessive fear, unexplained sadness, feeling overwhelmed, and feeling isolated. Chronic stress is often caused by hypervigilance, a feeling of always being on guard and anticipating any types of threat.  This type of stress can lead to chronic stress. Ongoing chronic stress could lead to possible health problems including, heart disease, weakening of the immune system, ulcers, respiratory issues and depression.
This all occurs when our bodies perceive a threat and moves into action. When a stressful event occurs, the body prepares to meet the stress by increasing the heart rate, respiration, and blood pressure. Once the perceived threat is over, our bodies return to a relaxed state. But what happens when you are always in a state of preparing for a stressful event?  The body reacts by staying in this preparedness state thus weakening the heart and the immune system.
While it is almost impossible to allow yourself to relax completely, here are five ways that will help relieve symptoms of chronic stress:
  1. Deep Breathing. Breathing techniques will put you in a relax state which helps to reduce the stress levels. This will help to change the physical and emotional responses to stress including helping to decrease any muscle tension and the heart rate. Deep breathing also increases the oxygen supply to your brain and will help to reduce anxiety and stress.
  2. Meditation. This also helps to reduce worry anxiety and impulsivity. Meditation also helps to improve your mood and lower your heart rate. It helps to start small. Even if you are able to sit still for five minutes, you will begin to see a difference.
  3. Support System. Countless of studies show that having a support group make a huge difference. It helps to talk to someone with a shared experience. Family members mean well, but may not understand.  The truth is that we need layers of support.There are countless of support groups online you can join through social media, community forums, organizations and blogs. Know that you are not alone. Building a support group may also include spiritual mentors, parents from school and mentors.
  4. Self-Compassion. I love this one. the word compassion itself means “sympathy and concern for the suffering of others”. But how much compassion do you give to yourself? Self-compassion helps to lower symptoms of depression and paying close attention to what you say to yourself. Replace the negative self-talk with positive words of encouragement. Other steps you may take include writing a letter to yourself and making a daily gratitude list. Remind yourself that you are doing the best that you can at this moment. Below is  free printable self-compassion checklist.

    self-compassion checklist

self.compassion checklist

What ways have you found useful in combating stress?

 

 

 

 

Zika Virus and Microcephaly

zikaheading

Media coverage surrounding the Zika virus outbreak and its link to microcephaly in newborns continue as the number of cases continue to grow including a recent article on the discovery of infected mosquitos found in the state of Florida.

What exactly are the facts?

Zika virus disease is a virus which is primarily transmitted by Aedes mosquitoes that were first identified in Uganda in 1947 in monkeys. The rates of human infections were reported across Africa and Asia from the 1960’s to the 1980’s. It wasn’t until 2015 however when Brazil reported a direct association between the Zika virus and microcephaly. Since then, the number of people infected has grown in alarming rates including the number of children born with microcephaly.

Transmission

Typically, the Zika virus is transmitted through the bite of an infected mosquito. These types of mosquitos are generally found in tropical environments. The virus can also be transmitted through sexual activity and can be detected in body fluids including blood, urine, amniotic fluids, semen, saliva and spinal cord fluids.

Signs and Symptoms

Symptoms may include a slight fever which may appear a few days after a person is bitten by an infected mosquito. Other signs may include conjunctivitis, and muscle and joint pain. The symptoms typically last between 2-7 days. There is currently no cure for the virus.

What is the relationship between the Zika virus and Microcephaly?

The Center for Disease Prevention and Control (CDC) confirmed the Zika virus infection during pregnancy does cause microcephaly and other severe fetal brain defects.

What is Microcephaly?

Microcephaly is defined as a medical condition where the brain does not grow properly resulting in a smaller than normal size head.

microcephaly-comparison

Diagnosis

Often, microcephaly can be diagnosed during pregnancy using an ultrasound test. This is generally done late in the 2nd trimester or early in the third trimester. After a baby is born, a health practitioner will measure the distance around the baby’s head and compare the measurements to the general population standards. Severe microcephaly occurs when the baby’s brain has not developed during pregnancy.

Incidence

Microcephaly is considered rare. In the United States, microcephaly occurs from 2 babies per 10,000 live births to 12 per 10,000 live births. An estimated 25,000 births per year. However, the rates in Brazil have jumped from 0.04 percent to 1.9 percent within the last year.

Causes

Besides the Zika virus, microcephaly may be caused by:

  • German measles
  • Chicken pox
  • Exposure to drugs or alcohol in the womb
  • Chromosomal  abnormalities
  • Decreased oxygen to the fetal brain
  • Severe malnutrition
  • Gene deletion i.e. DiGeorge syndrome

Associated Conditions

Children born with microcephaly may not show any signs or symptoms initially, but may develop the following later:

  • cerebral palsy
  • seizures
  • intellectual disabilities
  • learning disabilities
  • hearing impairments
  • visual impairments

Treatment

There is currently no treatment for microcephaly. Early intervention is vital for the growth and development of the child.

Resources

CDC- Build a Prevention Kit-Provides information on reducing the risk of Zika by creating a prevention kit.

Centers for Disease Control and Prevention – This site provides information on Zika travel notices and countries with the endemic including guidelines for traveler’s visiting family and friends in the affected area.

Live Coverage– complete coverage of the outbreak

U.S. Department of State– Maintains an updated status notice on the virus.

The following medical sites provide additional information on microcephaly including causes, symptoms, test and diagnosis:

Organizations

Cortical Foundation– Dedicated to providing services to educate, advocate, support and improve awareness of cortical malformations

Foundation for Children with Microcephaly– A website created to help and inform parents and families of children who have been diagnosed with microcephaly

Selected News Articles

The following are selected articles on the Zika Virus and Microcephaly:

A mothers battle: Surviving microcephaly in Brazil.

Microcephaly: “It’s not the end of the world.”

Protecting pregnant women in the U.S. from Zika is a top priority, Official says.

Sesame Street’s Elmo and Raya warn kids about Zika

Scientists determine how Zika virus causes brain defects and microcephaly

Zika Revealed: Here’s what a brain-cell killing virus looks like

 

 

5 Resources to Support Parents of Children with Autism

autismlogo

I received these great resource articles for families with child with autism from Angela Tollerson, a blogger from familyhealthnet. Her site provides resources on family health and wellness. Please share these links with others who may benefit and don’t forget to stop by and visit Angela’s blog at: forfamilyhealth.net

  1. Anxiety and Autism Spectrum Disorders
    http://www.iidc.indiana.edu/pages/anxiety-and-autism-spectrum-disorders
  2. The Moment I Got My Son with Autism’s Need for Routine
    https://www.autismspeaks.org/blog/2014/09/16/moment-i-got-my-son-autisms-need-routine
  3. The Well Travel Guide for Parents of Autism Spectrum Children
    https://travelblog.expedia.ca/autism-travel-guide/
  4. Nutrition for Children with Autism Spectrum Disorder
    http://www.eatright.org/resource/health/diseases-and-conditions/autism/nutrition-for-your-child-with-autism-spectrum-disorder-asd
  5. 10 Fun Activities for Children with Autism
    http://www.education.com/magazine/article/10-activities-children-autism/