DIY Sensory Activities for your Child With Autism

Dysfunctional sensory system is a common Symptom of Autism as well as other developmental disabilities. In this, sometimes one or more senses can either be hypo or hyper sensitive to stimulation and can lead to behaviors like rocking, spinning, and hand- flapping, irritability and hyperactivity.

There are three basic senses that are critical for our survival- tactile, vestibular, and proprioceptive. Sensory Integration techniques or therapies of these senses can facilitate attention and awareness, and reduce overall arousal.

In this article, each of these sensory systems will be covered. There also will be a Do-it-yourself (DIY) activity mentioned to overcome dysfunction and improve functioning of these sensory systems. Click here to read the rest of the story.

Sensory Eating is not Picky Eating

Published by: Speaking of Autism

I want you to imagine that you are a kid once again, maybe ten or eleven years old. You are sitting down in the evening with your family for dinner. The table is set, and your parents bring out what will be tonight’s entree: a cut of cold, raw chicken breast. It’s slimy pink mass slides onto the plate in front of you, and soon after your whole family is chowing down on the raw cuts of meat. You can’t stand to even watch anyone else eat the raw chicken, let alone fathom yourself choking it down. Yet, despite the very real disgust and aversion you feel towards the raw chicken breast, somehow it’s you who are strange for not wanting to eat it. Maybe you’re called “picky” or told that you simply need to and just learn to enjoy raw chicken like everyone else. Maybe you go hungry every night at dinner because the only thing being served are items as aversive as the cuts of raw chicken. Click here to read the rest of the story.

Fine Motor-Flag Day Activities

June 14th is the designated day to celebrate the American flag. The purpose of Flag Day is to reflect on the foundations of the Nation’s freedom. The following activities can be used to improve fine motor skills for both children and adults with disabilities. From cutting to coloring , the activities also use a multi-sensory approach to learning.

Arts and Crafts

DLTK Flag Day– Flag day crafts including coloring pages and tracing.

Education World– Flag day lesson plan activities

Enchanted Learning– Allows you to click on any of the crafts to get to the instructions.

Flag Day Crafts– Includes creating a togetherness flag, star cookie cutter and a craft stick American Flag

No Time for Flash Cards- Create an American flag sticky window collage

Flag Day Inspired Recipes

Food Network– 6 Star spangled red, white, and blue recipes made for flag day.

Saralee Bread- Flag day food art recipe

Taste of Home- Top 12 flag-shaped recipes

Tasty Kitchen– Recipe for cakes and cupcakes in the shape of the American flag.

Flag Day Coloring

Color me good

Crayola

DLTK

Doodle Art Alley

Get Coloring Pages

Supercoloring

The color.com

Thoughtco

USA Printables

Woojr.

How Autism And Visual Perception Affect Train Travel

Train operator GWR is now working for their second year in providing bespoke autism awareness raising sessions for their front line staff, allowing them to be better prepared to help people living with the condition use public transport.

Looking to provide the best possible experience for all passengers, GWR is working in collaboration for a second year with UK Autism charity Anna Kennedy Online increasing autism awareness to help its staff improve in meeting the needs of those travelling with autism.

For many with an Autism spectrum condition, some of the more commonly experienced issues is increased anxiety and sometimes overwhelming sensory processing information as well as the need for structure and reassurance. Click here to read the rest of the story.

Free Printable Money WorkSheets

Summer will be here before you know it. If you want your student/ child or individual to continue practicing math skills, I have provided below 4 money sheets that you can printout and make several copies. The money sheets allows the child to work on both IEP and ISP goals including:

  1. Identifying coins
  2. Matching coins
  3. Visual discrimination
  4. Counting
  5. Transition skills
  6. Visual learners

 

Burger King.Worksheet. This is a fun activity especially for children, students and adults that enjoy going to Burger King. The individual will choose the picture and subject the cost of the item from $10.00.  This activity people with dysgraphia, increase money skills, attention skills, task initiation skills and works well as a pre-trip to Burger King. focusing on transition skills.

Matching Dimes Worksheet– The matching dime activity is great for goals on counting and identifying a time. it is useful for children adults that are visual learners and provides hands on materials. The students learning ability will increase with the use of actual dimes.

Circle Nickle Worksheet – This worksheet give the individual an opportunity to work on counting, identify various coins as well as explaining the value of the coin. The worksheet also provides additional support and increases visual discrimination skills.

Dime Counting – helps the child, student or adult with special needs practice counting skills and visual memory.

My plan for the rest of the year is to provide you with more resources that are more functional and allows you to download information.

 

Why Autism Goes Unseen in Girls – And How You Can Spot It

When you look at Beth, autism is not the first thing that you would think of. She is bright, open, smiley, makes great eye contact and comes alive when you start talking about Harry Potter.

Before long, you start to realise that your entire lesson could be hijacked by her in depth characterisation of Hermione.

She knows the likes and dislikes of all of the characters in the book, what house they belong to at Hogwarts, their family histories and their motivations, yet in the playground, she is completely at sea. Click here to read the rest of the story.

7 People With Less Visible Disabilities Talk Misconceptions and Stigma

Source: Teen Vogue
Written By: Paula Akpan

Some disabilities are more immediately apparent than others, particularly if the person uses an aid such as a wheelchair. Others, however, aren’t as obvious. The Invisible Disabilities Association defines invisible disability as “a physical, mental, or neurological condition that limits a person’s movements, sense, or activities that is invisible to the onlooker.” As a result, not only do people with invisible or less visible disabilities have to make day-to-day adjustments to exist in the world around them, but they must also navigate misconceptions about their condition —including the idea that they aren’t disabled “enough.” Click here to read the rest of the story.

Memorial Day Sensory Activities

Memorial Day is an American holiday observed to honor the men and women who died while serving in the U.S. Military. It originated following the Civil War and became an official holiday in 1971.

Memorial Day is also an opportunity to work on fun Memorial Day activities. Children and adults with special needs lean best when using a multi-sensory approach. This helps to stimulate learning and engage individuals on various levels of learning.

The activities and lessons that I have chosen focus on visual and tactile stimulation and includes both math and reading activities. The craft activities work to improve fine motor skills.

 

American flag on a pencil craft- Printable templates

Craft stick flag– U.S. flag made from craft sticks

Free Memorial Day packs- packets includes clip cards, word problems, fill in and missing numbers

Patriotic Pinwheel– Craft easy to make pinwheel

USA Wreath– Simple red, white and blue wreath made out of construction paper.

 

 

Nowhere to go: Young people with severe autism languish weeks or longer in hospitals

Source: Washington Post
Written By: Christina Jewett | Kaiser Health News

Teenagers and young adults with severe autism are spending weeks or even months in emergency rooms and acute-care hospitals because of a lack of community treatment programs able to deal with their outbursts, according to interviews with parents, advocates and physicians from Maine to California as well as federal and state data.

These young people — who may shout for hours, bang their heads on walls or lash out violently at home — are taken to the hospital after community social services and programs fall short and families call 911 for help. Once there, they sometimes are sedated or restrained for long periods as they wait for beds in specialized facilities or return home once families recover from the crisis or find additional support. Click here to read the rest of the story.

Cystic Fibrosis Awareness Month

According to the Cystic Fibrosis Foundation, cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe overtime. It is a life-threatening disorder that damages the lungs and digestive system. A thick mucus can block the lungs and the pancreas.

In the United States, about 30,000 people are affected by the disease. It is estimated that more than 70,000 people worldwide are living with cystic fibrosis. 1 in every 20 Americans is an unaffected carrier of an abnormal CE gene.

Wikipedia

Common symptoms of cystic fibrosis include:

  • Salty-tasting skin
  • Persistent coughing
  • Shortness of breath
  • Wheezing
  • Poor weight gain in spite of excessive appetite
  • Greasy, bulky stools
  • Repeated lung infections
  • Muscle and joint pain
  • Sinus infections.

Cystic Fibrosis does not affect any cognitive or learning abilities. However, the student may need modifications and supports due to the disease. Teachers with students with cystic fibrosis should be knowledgeable about the disease.

15 Facts About Cri Du Chat Syndrome

Cri-Du Chat (cat’s cry) is a rare genetic disorder that results when a piece of the 5p chromosome is deleted. The name is French for “cry of the cat,” referring to the high-pitched cat-life cry. Other characteristics include intellectual disability, hyperactivity, and delay development. below are some more facts on this rare disease.

Click here to download PDF article

  • Cri du Chat is French for cat’s cry or crying cat
  • The syndrome gets its name from the infant cry which is similar to a meowing kitten
  • The cry is due to issues with the larynx and nervous system
  • About one third of children lose the cry by the age of 2 years.
  • It is also known as 5p- (5p minus)
  • The size of the deletion varies among affected individuals
  • Cri du chat syndrome is not inherited.
  • About 10 percent of people with cri du chat syndrome inherit it from an unaffected parent.
  • Is a chromosomal condition that results when a piece of chromosome 5 is missing
  • People diagnosed with cri du chat tend to have distinctive facial features
  • Occurs in an estimated 1 in 20,000 to 50,000 newborns
  • Cri du chat is found in  people of all ethnic backgrounds
  • It was first described by Jerome Lejeune in 1963
  • It is more common in females by a 4.3 ratio
  • It is a rare genetic disorder
  • In some cases, cri du chat syndrome may go undiagnosed
  • Children born with cri du chat syndrome are more likely to have developmental delays
  • The symptoms of cri du chat vary from person to person
  • Both children and adults with cri du chat are often seen as cheerful and friendly.

 

References

Genetic and Rare Diseases Information Center

National Organizations of Rare Diseases

Day Habilitation May Activities

May Observances, Celebrations, Events and Holidays To Use As Ideas For Your Day Habilitation Program.

You can download the PDF format here: May Day Habilitation Activities

Williams Syndrome and Teaching Strategies

Williams Syndrome also known as Williams-Beuren syndrome was discovered in 1961 by J.C.P. Williams, a Cardiologist from New Zealand. Williams Syndrome is a rare disorder with a prevalence of in 7,500 to 20,000 caused by the deletion of genetic material from chromosome 7. Williams syndrome symptoms include heart problems, low birth weight, l problems and developmental delays. 75 are diagnosed with mile to moderate intellectual disabilities or a learning disability.

Click here to download PDF article

Physical characteristics include:

Musculoskeletal

Almond shape eyes

Broad forehead

long neck

Longer upper lip

Puffiness around the eyes

sloping shoulders

Small chin

Small upturned nose

Wide mouth

Learning Characteristics

  • ADHD
  • Enjoys music
  • Developmental delay
  • Excellent long-term memory
  • Learning disability
  • Poor fine motor skills
  • Seizures
  • Tactile defensiveness

Teaching Strategies

Students with Mild intellectual disabilities will have difficulty with abstract thinking, executive functioning including planning, prioritizing, and cognitive flexibility. According to the Williams Syndrome Association Website, Children with Williams Syndrome face challenges with processing non-verbal information and displays difficulty with attention to detail.

Strategies should include:

  • Using short sentences
  • Repeat directions
  • Break task into small steps
  • Use concrete examples when introducing new words or concepts.
  • Teach one concept at a time
  • Use a multisensory approach which will help to stimulate learning
  • Utilize visual learning style including the use of flash cars, pictures, images, handouts and colors.

Reference

Williams Syndrome Association

Williams Syndrome- Facts and Statistics

Click here to download PDF article

May is Williams Syndrome Awareness Month. It is a rare genetic condition that affects over 1 in 10,000 people worldwide. If you teach in a special needs classroom or work in an adult day habilitation program, it is likely you have experienced working and teaching a student or individual diagnosed with Williams Syndrome. Below you will find some interesting facts and statistics on the disorder:

  • It is a genetic condition that is present a birth.
  • It is a developmental disorder
  • Tend to have a mild or moderate intellectual disability.
  • It is also known as Beuren Syndrome and Williams-Beuren Syndrome.
  • The symptoms were first described by John C.P. Williams in 1961.
  • A year later, German Physician, A.J. Beuren described three new incidents of patients with similar facial features.
  • It is caused by the spontaneous deletion of 26-28 genes on Chromosome #7
  • The deletion is caused by either the sperm or the egg.
  • The deletion is present at the time of conception
  • The most common symptoms of Williams Syndrome includes unusual facial features and heart defects.
  • The diagnosis is typically confirmed after identifying facial features and genetic testing.
  • An individual with Williams Syndrome has a 50% chance of passing the disorder on to their children.
  • Williams Syndrome affects 1 in 10,000 people worldwide.
  • An estimated 20,000 to 30,000 people in the United States are affected.
  • It occurs in both males and females equally
  • It is found in every culture
  • Individuals with Williams Syndrome tend to be overly friendly.
  • People with Williams Syndrome often have difficulty with visual-spatial tasks
  • Congenital heart defects (CHD) occur in approximately 75 percent of children
  • By the age of 30, the majority of individuals with Williams Syndrome have pre-diabetes or diabetes.

 

 

References

Genetics Home Reference

National Organizations for Rare Diseases

William Syndrome Association

Spring Fine Motor Activities

Spring has finally arrived! birds are signing, trees are budding and flowers are blooming. There is no better tome to strengthen fine motor skills for children and adults with developmental disabilities. Fine motor activities improve independent living skills including feeding, dressing and writing. The links below provide spring-themed activities providing opportunities to improve the child or adult’s pincer grasp by using scissors and pencils.

5 Spring inspired fine motor activities– Brain Balance

10 fine motor activities for spring- You Aut- Aknow

10 flower fine motor skills activities- Harry Brown House

40 fine motor skills activities– The Imagination Tree

Fine motor and color matching Flowers– The Kindergarten Connection

Fine motor and sensory play for spring using a sand-tray– Buggy and Buddy

Spring crafts for preschool fine motor skills– Lalymom

Spring fine motor and executive function skills freebie- Your Therapy Source

Spring fine motor activity tray– Little Bins Little Hands

Spring themed fine motor sensory activity– Hands On As We Grow

Spring-themed fine motor activities– Pink Oatmeal

For Many With Autism, Running Is A Sport That Fits

Published By: Runners World
Written By: Alison Wade

Tommy Des Brisay had an insatiable need to move when he was a child.

He began walking at 8 months old. He would bounce on his backyard trampoline for hours and climb heights fearlessly. He slept only three hours a night until he was 7. As he grew older, he would go on long tandem bike rides, cross-country ski, and lead his father on walks that would leave them stranded miles from their home in Ottawa, Ontario.

And when he was stressed or upset, Des Brisay—who was diagnosed with autism when he was 2 and a half—would run. This posed a danger, because he didn’t understand what could harm him: traffic, exposure to weather, strangers. Click here to read the rest of the story

Autism Facts and Statistics

Autism Spectrum Disorder (ASD) is a complex neurodevelopmental disorder that impacts social, speech, behavioral and motor skills. It is a spectrum disorder meaning it varies from person to person. No two people have the same symptoms. It is estimated that 1% of the population is diagnosed with autism.

Click Here to download PDF article

Prevalence

About 1 in 40 children has been identified with autism spectrum disorder (ASD).

1 in 42 boys are diagnosed with autism

1 in 189 girls are diagnosed with autism

100 individuals are diagnosed everyday

ASD is reported to occur in all racial, ethnic and socioeconomic groups.

ASD is 4 times more common among boys than girls.

Studies in Asia, Europe, and North American have idendified individuals with ASD  with an average prevalence of between 1% and 2%.

About 1 in 6 children diagnosed with autism also have a developmental disability.

Parents who have a child with ASD have a 2%-18% chance of having a second child diagnosed with autism

Almost half (44%) of children diagnosed with ASD has average to above average intellectual ability.

ASD commonly co-occurs with other developmental, psychiatric, neurological, chromosomal and genetic diagnoses.


Source: Centers for Disease Control and Prevention

Facts

Children and adults with Autism have significant problems in socializing with others, emotions, intense preoccupation with one or two topics, repetitive routines and motor skills.

Tend to be sensitive to sensations of sound, light or touch.

It is a common myth that autistic children can perform amazing skills such as memorizing birthdays and telephone numbers.

30% of autistic children have a seizure disorder

40% of children with autism do not speak

25-30% of children with autism have some words at 12 to 18 months, and then lose them.

Between 60% and 80% of children with ASD have a sleep-related disorder

Females tend to be more likely to show accompany intellectual disabilities.

Studies show that parents notice a developmental problem before the child’s first birthday

Lorna Wing, a psychiatrist and mother of a child with autism termed the word Autism Spectrum to describe a concept of complexities rather than a straight line from severe to mild.

Victor Lotter was the first person to  measure the prevalence of autism in a population.

Autistic Women and Girls

Stimming

  • It is also prevalent among people on the autism spectrum.
  • In fact in many cases, it is part of the diagnosis due to the repetition of stimming.
  • Stimming is often used as a means to self-regulate, self-calm and for self-expression.
  • The movements are repetitive and are used to self-stimulate the 7 senses.
  • It is often described as a repetitive motor behavior that can disrupt academic and social and other activities.
  • One of the theories behind stimming is that beta-endorphrins are released in the brain casuing an euphoric feeling which is generally a response to pain.
  • Stimming behavior. based for self-soothing and to help a child or an adult regain emotional balance.
  • Sensory Overload. Too much sensory information can lead to stress, anxiety and eventually a meltdown.

Wandering Statistics

  • Nearly half of children with autism engage in wandering behavior
  • Increased risks are associated with autism severity
  • More than one third of children with autism who wander/elope are never or rarely able to communicate their name, address, or phone number
  • Half of families report they have never received advice or guidance about elopement from a professional
  • Accidental drowning accounts for 71% of lethal outcomes, followed by traffic injuries at 18%
  • Other dangers include dehydration; heat stroke; hypothermia; falls; physical restraint; encounters with strangers
  • Accidental drowning accounted for 91% total U.S. deaths reported in children with autism due to wandering.

Image result for wandering autism

 

Reference

Centers for Disease Control and Prevention (CDC)

National Autism Association

Spectrum News

Autism and Visual Impairments

Studies show that a small subgroup of individuals with visual impairments are also diagnosed with autism. The following articles are a great read in understanding visual impairments and autism.

A cross disability: Visual impairments and autism

Autism assessment in children with optic nerve hypoplasia and other vision impairments

Autism and sight or hearing loss

Autism and visual impairments

Could my visual impaired client be on the autism spectrum?

Is my blind child autistic?

Literacy ideas for students who are visually impaired with autism spectrum disorder

Visual impairments: Its effect on cognitive development and behavior

Visual impairment and autism

Visual impairment and autism spectrum disorder

500,000 teens with autism will become adults in next 10 years. Where will they work?

Published By: Houston Chronicle
Written By: Suzanne Garofalo

When Olivia Shanks landed in the hospital, it changed her life.

She didn’t arrive as a patient, though — she came to work. The 21-year-old, who has high-functioning autism, has struggled to get places on time. Some basic workplace tasks stressed her out. Dependence on others dinged her self-confidence.

Her work in Memorial Hermann Southwest Hospital’s food-services department came via one of Houston’s nonprofit groups providing job training and support for a population that’s exploding but finds few opportunities to live as fully as possible. Click here to read the rest of the story.

Developmental Disability Facts and Statistics

Developmental disability is a diverse group of chronic conditions that are due to mental or physical impairments before the age of 22. A developmental disability can occur before, during or after birth. Common well-known developmental disabilities include autism, Down syndrome, cerebral palsy and Fragile X syndrome. Here are some facts and statistics on developmental disabilities.

Click here to download PDF Format

  • Developmental Disability is a severe, long-term disability that affect cognitive ability, physical functioning or both.
  • 1 in 6 or about 15% of children aged 3 through 17 have one or more developmental disabilities.
  • Between 2014 and 2016 the prevalence of developmental disability among kids ages 3 to 17 increased from 5.76 percent to 6.99 percent.
  • Prevalence of autism increased 289.5%
  • Prevalence of ADHD increased 33.0 %
  • Males have a higher prevalence of ADHD, autism, learning disabilities, stuttering and other developmental disabilities.
  • Children from families with incomes below the federal poverty level had a higher prevalence of developmental disabilities.
  • 10% of Americans have a family member with an intellectual disability.
  • Intellectual disabilities are 25 times more common than blindness.
  • Every year 125,000 children are born with an intellectual disability
  • Approximately 85% of the intellectual disability is in the mild category.
  • About 10% of the intellectual disability is considered moderate
  • About 3-4% of the intellectual disability population is severe.
  • Only 1-2% is classified as profound.

 

Resources

National Institute of Health

15 Teaching Strategy Resources for Students With Hearing Impairments

 

Accommodations for students with hearing loss

Five tips for teachers of students with hearing impairments

How to teach hearing impaired students: Strategies for success

Inclusive teaching: deaf and hearing impaired

Instructional strategies for students who are deaf or hard of hearing

Modern teaching techniques for deaf and hard of hearing students

Strategies for hearing impaired students

Suggested teaching strategies

Teaching a child with hearing loss

Teaching hearing impaired children

Teaching strategies for deaf and hearing impaired

Teaching strategies for hearing impaired students

Tips for teachers

Tips for teaching a preschooler with hearing loss

Visual teaching strategies for students who are deaf or hard of hearing

25 Resources on 504 Accommodations and Modifications

Section 504 is a federal law designed to protect the rights of individuals with disabilities in programs and activities that receive Federal financial assistance from the U.S. Department of Education (Edefines a physical or mental impairment as any physiological disorder or condition, cosmetic disfigurement, or anatomical loss affecting one or more of the following body systems: neurological; musculoskeletal; special sense organs; respiratory, including speech organs; cardiovascular; reproductive; digestive; genito-urinary; hemic and lymphatic; skin; and endocrine; or any mental or psychological disorder, such as mental retardation, organic brain syndrome, emotional or mental illness, and specific learning disabilities.  

5 important classroom accommodations for children with autism

12 accommodations and modifications for dyslexic children in public school

20 modifications for students with autism

21 school accommodations available for children with special needs

504 accommodation checklist

504 plan: ADHD accommodations to manage ADHD symptoms at school

504 plan templates

A 504 plan for those with dyslexia

A parents guide to section 504

504 Education Plans

504 Plan: What is it?

Accommodations and supports for school-age students with autism

Accommodations for ADHD students K-12 in the classroom

Accommodations for students with learning disabilities

Classroom accommodations for ADHD

Classroom accommodations for dyslexic students

Classroom accommodations for students with epilepsy

Developing 504 Classroom accommodation plans

Dyslexia accommodations: How to know what your child needs

Dyslexia and accommodations- ADA guidelines for school and work

Examples of accommodations and modifications

Modification for students with Down syndrome

Section 504 and Discrimination

Section 504: sample accommodations and modifications

What are school accommodations and modifications for students with Asperger’s?

10 Important Facts On Trisomy 18

Today is National Trisomy Awareness Day. Below are 10 important facts on Trisomy 18.

  • It is also known as Edwards Syndrome
  • It is a condition caused by an error in cell division
  • An extra chromosome in 18 develops
  • Occurs in 1 out of every 2500 pregnancies in the United States
  • It is 1 in 6000 live births
  • Only 50% of babies who are carried to term will be born alive
  • Children are often born with heart defects
  • Features include a small head, small jaw, clenched fists and severe intellectual disabilities
  • It is named after John Hilton Edwards, who first described the syndrome in 1960
  • It affects different organ systems

 

15 Resources on Cerebral Palsy and Adulthood

Cerebral palsy is a condition caused by damage to the specific areas of the brain. Cerebral palsy refers to the brain and palsy to muscle weakness. Cerebral palsy is a syndrome of motor impairment with posture and movement disorder. It is a non-progressive disorder, however, as a person begins to age, muscle and skeletal problems begin to worsen resulting in more pain, discomfort and limited mobility. Due to muscle flexibility, strength and endurance issues, there is a greater risk of falls and injuries. The following articles includes information on understanding how aging and adulthood affect people with cerebral palsy.

5 common challenges for adults with cerebral palsy- Made For Movement Blog

Adults and cerebral palsy– Cerebral Palsy Organization

Adults with Cerebral Palsy- Cerebral Palsy Foundation

Aging with Cerebral Palsy and Chronic Pain– The Mighty

Care of adults with cerebral palsy-American Academy for Cerebral Palsy and Developmental Medicine

Cerebral Palsy and aging– Developmental Medicine and Child Neurology

Cerebral palsy and transitioning to adulthood-Cerebral Palsy Alliance

Cerebral Palsy effects through lifespan-Physiopedia

Cerebral Palsy in Adulthood– Everyday Health

Cerebral Palsy patients provide rare insight into aging– Cerebral Palsy News Today

Cerebral palsy symptoms in Adulthood- Healthfully

Living as an adult with cerebral palsy– Healthline

Living with cerebral palsy as an adult– WebMD

Progression and Correction of Deformities in Adult with Cerebral Palsy-ACNR

The good, the bad, and the ugly facts about adult cerebral palsy-Karen Pape

25 Developmental Disability Links and Resources You Should Know About

March is Developmental Disabilities Awareness month! Although I blogged  the definition of developmental disabilities here, I wanted to give you more information besides the Federal regulation. Quite often, people are confused between the definition of an intellectual disability and a developmental disability.

A developmental disability is described as an assortment of chronic conditions that are due to mental or physical impairments or both. For example, you may have a child or an adult with an intellectual disability or perhaps a person diagnosed with cerebral palsy and an intellectual disability. It is also considered a severe and chronic disability that can occur up to the age of 22, hence the word developmental. A developmental disability can occur before birth such as genetic disorders (i.e. cri du chat, fragile x syndrome,) or chromosomes ( i.e. Down syndrome, Edwards syndrome); during birth (lack of oxygen) or after birth up to the age of 22 (i.e. head injuries, child abuse or accidents).

The disability is likely to occur indefinitely meaning the person will require some type of ongoing service throughout their lives. Finally, the person must show limitations in 3 or more of the following areas of major life activities:

  1. Self-care– brushing teeth, hand-washing and combing hair independently
  2. Receptive and expressive language-ability to understand someone talking and to also be understood
  3. Learning– ability to read and write with understanding
  4. Mobility-ability to move around without any assistance
  5. Self-direction– time management, organization
  6. Capacity for independent living– requiring no supervision
  7. Economic self-sufficiency – having a job  and purchasing what one needs

The following are links to articles on various types of developmental disabilities including resources with facts and statistics, organizations, and sign and symptoms.

22q11.2 Deletion Syndrome

27 things to know about Fragile X Syndrome

ADHD- facts and statistics

Angelman Syndrome

Angelman syndrome resources

Cri Du Chat Resources

Developmental disability acronyms you should know 

Developmental disability awareness ribbons

Down syndrome-facts and statistics

Down syndrome timeline

Duchenne Muscular Dystrophy

Early Intervention- Resources and Information

Edward Syndrome Resources

Global developmental delays

Intellectual Disability Resources

Over 30 online resources on Rett syndrome

Pervasive DD-NOS

Prader Willi Syndrome Resources

Resources for teaching students with Down syndrome

Ring Chromosome 22 Resources

Teaching self-regulation and autism spectrum disorder

Things to know about Angelman Syndrome

Turner Syndrome Characteristics

What is Prader Willi Syndrome?

William-Beuren Syndrome Resources

Intellectual Disabilities And Epilepsy

According to the Epilepsy Foundation, epilepsy is the fourth most common neurological disorder and affects people of all ages. In fact, 1 in 26 people have seizures and while people who are diagnosed with epilepsy may have no other problems, this is not the case for children and adults with an intellectual and developmental disability where the rates are much higher.

Click here to download PDF format

It is estimated that 30% of children with epilepsy also have another type of disability. Some studies show that children with an intellectual disability and cerebral palsy, had a 35% chance of developing epilepsy, children with an intellectual disability alone had an 8% chance and children with a brain injury occurring after birth stood a 75% chance of developing epilepsy. Statistically, the risky of a child with a developmental disability experiencing an unprovoked seizure by age 5 is 4 times likely than the general population. It is estimated 1.8% of U.S. adults have epilepsy compared to 22% among people with intellectual disabilities.

People with intellectual disabilities tend to also have worse prognosis with adults having a higher rate of death including Sudden Unexplained Death In Epilepsy (SUDEP).

Epilepsy

Epilepsy is a chronic disorder with recurrent unprovoked seizures. According tot he National Institute of Neurological Disorders and Stroke (NINDS), epilepsys are a spectrum of brain disorders ranging from severe, life-threatening to ones that are more benign. The International League Against Epilepsy created a new definition of epilepsy. A person is considered to have epilepsy if they meet any of the following conditions:

  1. At least two provoked (or reflex) seizures occurring greater than 24 hours apart.
  2. One Unprovoked (or reflex) seizure and a probability of further seizures similar to the general recurrence risk (at least 60%) after two unprovoked seizures, occurring over the next 10 years.
  3. Diagnosis of an epilepsy syndrome

A seizure is defined as an event and epilepsy is the disease involving recurrent unprovoked seizures.

Intellectual Disability

According to DSM-5, an intellectual disability is a disorder with onset during the developmental period that includes both intellectual and adaptive functioning deficits in conceptual social, and practical domains including deficits in intellectual functions such as reasoning, problem-solving, planning, abstract thinking, judgment, academic learning and learning from experiences.  The severity levels range from mild to profound.

Although there is a high relationship between epilepsy and an intellectual disability, little research has been conducted on safe prescribing practices of an antiepileptic drugs for people with intellectual disabilities. What is known about epilepsy and an intellectual disability is that more severe disabilities are typically caused by damage to the brain

Why is it important to discuss?

Given the large number of people with an intellectual disability and epilepsy, treatment may be more complicated due to multiple impairments including people with a diagnosis of autism, intellectual disability and epilepsy. More research needs to occur which will help to reduce morbidity rates and help to develop accurate guidelines.

Cerebral Palsy and Co-occuring Disorders

Cerebral Palsy is defined as a group of disorders of movement and posture causing limitations due to abnormal development in the brain. According to the Centers for Disease Control and Prevention (CDC), many children and adults with cerebral palsy also had at least one co-occurring condition and in some cases more than one. for example, it is not unusual for and individual to have a diagnoses of cerebral palsy with a co-occurring condition of epilepsy and an intellectual disability and associative  issues with an eating disorder.

Understanding both co-occurring conditions and associative disorders is essential in order to develop an effective teaching strategy.

associative issues include aspiration, dysphagia, digestive issues, seizures, intellectual disability, sleep disorder, and speech impairments.

The following links and articles includes information that contain research studies, articles and practical information.

 

Cerebral Palsy and Epilepsy– Cerebral Palsy Guidance

Cerebral Palsy and Seizures– Cerebral Palsy Guidance

Cerebral Palsy and Speech Therapy– Cerebral Palsy Group

Children with spastic cerebral palsy experience lower leg fatigue when walking study shows- Cerebral Palsy News Today

Common health problems associated with cerebral palsy- My Child Without Limits

Communication and swallowing issues for adults with cerebral palsy-EPI

Difficulties in swallowing and coughing in spastic cerebral palsy focus of study– Cerebral Palsy News Today

Digestive health tips for kids with cerebral palsy-Sarah Halstead

Gastrointestinal and nutritional issues in cerebral palsy-practicalgastro.ocom

How does cerebral palsy affect people?-Cerebral Palsy Alliance

Prevalence of cerebral palsy and intellectual disability among children- NCBI

Sleep disorders in kids with cerebral palsy often remain untreated study suggest– Cerebral Palsy News today

Sleep issues among children with cerebral palsy-CP-NET

Seizures in children with cerebral palsy and white matter injuries-Pediatrics

Understanding more about cerebral palsy and seizures– Murdoch Children’s Research Institute

Resources

Centers for Disease Control and Prevention

National Institute of Neurological Disorders and Stroke

New Study Links Hyperfocus and ADHD

Published By: ADDitude Magazine
Written By: Neil Petersen

A newly published study has pried the lid off the mysterious phenomenon of “hyperfocus,” tying it inextricably to symptoms of attention deficit disorder (ADHD or ADD) in adults.

Though not included in the official DSM-5 diagnostic criteria for ADHD, hyperfocus is a condition familiar to many individuals with ADHD who report becoming intensely focused on activities they find rewarding or interesting.

Anecdotally, we have known that, when a person with ADHD experiences hyperfocus, his or her attention becomes laser-like. They lose track of time, and distractions fade away. Switching to other tasks becomes difficult. But from a scientific standpoint, we’ve known very little about hyperfocus, most notably whether it is truly more prevalent among people with ADHD. To read the rest of the story, click here

ISP Terms To Know

Click here to download a copy to print

You are probably familiar with IEP’s if your child or family member attend a public school here in the United States. For some people with a developmental disability, the next step may be attending a day habilitation program where adults with developmental disabilities receive Medicaid Waiver Services and has what is called an Individualized Service Plan (ISP).  If you are new the ISP process, the following terms that you will hear often before, during and after meetings.

Assessments. Serves to develop a body of information about an individual’s desires and goals his/her capabilities in areas in need of learning and skill development and the experiences or supports that will promote achievement of those goals.

Background/History. Provides an overview of the life experiences of the person and family.

Goals/Service. includes person-centered supports to enhance opportunities for individuals to make choices that increase their quality of life. An example would be a goal of increasing money or budgeting skills.

Interest and Activities. Describes personal preferences, gifts and interests, as well as conditions to avoid.

ISP Plan. A living document that provides details about what is important to an individual with developmental disabilities. It reflects a person-centered planning process.

Natural Supports. Personal associations and relationships developed in the community that enhance the quality and security of the life for people including family and friends.

Provider Program. The name of the voluntary agency delivering direct care to individuals with developmental disabilities. Providers may offer a variety of services and supports.

Habilitation Service. Services that help you keep, learn or improve skills and functioning for daily living skills

Individual Service Environment. Provides self-directed, individualized assistance and support to individuals living on their own, either alone or with roommates in their own home or apartment.

ISP Meeting

ISP Revision. Revisions and changes to the ISP can occur when an individual experiences a change in need throughout the year and must be reflected in the ISP. It is not necessary to wait annually to make the revisions. The date of the revisions should be reflected in the ISP.

HCBS Waiver Services.  A Home and Community-Based Service (HCBS) Waiver is a Medicaid program designed to meet the needs of children and adults who prefer to get long-term care services in their home or community, rather than in an institutional setting.

Medicaid. is a jointly funded, Federal-State health insurance program for low-income and people in need including children and adults with disabilities. It is a government insurance for people whose income and resources are insufficient to pay for healthcare. A Medicaid number is needed for an ISP and is used to bill services.

Person-Centered Planning (PCP). An ongoing problem-solving process used to help people with disabilities plan for their future. It allows individuals to be engaged in the decision making process about their options, preferences and values.

Protective Oversight. is a documented and approved plan used for the sole purpose of enhancing individual safety. It list the key activities that affect health and wellness of an individual.

Safeguards. a measure taken to protect the individual from harm by providing information on how it will be addressed. An example is fire evacuation. If a person is not able to evacuate independently from a fire emergency, protections are put in place to ensure his or her safety.

Service Provider. The name of the voluntary agency delivering direct care to individuals with developmental disabilities. The provider may offer a variety of services and supports.

Value Outcome. Statements that represent what is important to the person. It may include what the individual needs, wants to change or would like to maintain in his/her life. Outcomes are developed through the ISP process.

 

Increased resources, support needed for individuals with autism as they age: report

Published By: Global News
Written By: Michelle McQuigge

A think tank formed to understand the challenges faced by autistic seniors says there are few resources in place to address their specific needs.

A new report from the Aging and Autism Think Tank says the vast majority of research and programming geared toward autism focuses on children, leaving adults almost entirely out of the conversation. The study – compiled by academics, clinicians and autistic adults from five different countries and released by Autism Canada – says autistic people lose access to key resources once they age out of childhood and contends the problem intensifies the older they get. Click here to read the rest of the story.

 

Identifying Street Signs Worksheet

This is an introduction to identifying street signs for children and young adults learning how to cross the street safely. The worksheet includes signs needed in teaching street crossing safety.

Learning Objectives:

  • Will match the traffic sign correctly
  • Will identify the traffic sign correctly
  • Will name the traffic sign correctly

Material Needed:

Traffic sign worksheet
laminated (optional)
laminator paper(optional)
Scissors

Instructions:

  1. Once you have printed the worksheet, cut the individual traffic signs and laminate.
  2. Explain each traffic sign and have the individual repeat.
  3. Once the signs are separated, mix them up and have the individual point to the correct ones.
  4. Have the individual state the traffic signs correctly and match

Traffic Signs Worksheet_ID Signs

 

Indepedence In The Morning

Published By: Rainbows Are Too Beautiful

Mornings in our home are a sort of regimented chaos.  Three kids who all require some form of supervision, two schools to get to and all their gear. Although my kids may seem old enough to be doing a lot of the morning routine themselves, they have a few challenges

Anthony is 10 with autism and ADHD and although he goes to a mainstream school, he needs a lot more support than his peers to focus on and do things.  David is seven, and he attends a specialist autism unit.  His communication is extremely limited which can make doing anything challenging. Jane is five years old – she’s just entered Year 1.

In the past year I’ve learned more and more although the responsibility of getting all my kids out of the house and to school lies with me – I don’t have to do everything.  And the best way of doing this is to help each of my kids be more independent in their morning routine, helping each where they need it most.  Doing this means thinking about ways to help them develop their own skills.  Here’s some of the ideas we have used. Click here to read the rest of the story.

Adults with Special Needs and Housing Options

Click here to download PDF article

For many years, most people with developmental disability had only the option of living at home with family or become institutionalized. Today, people are given many more housing options. Although there is still a challenge in finding the right fit, home opportunities are more available. The following are housing options for adults with special needs.

Living with parents or family

Adults with special needs may choose to live at home with their families as long as they can. In some cases, adults with developmental disabilities continue to live at home after their parent’s death by hiring a Personal care Attendant (PCA). A PCA is hired by a person with a disability to assist with his or her personal care routine. People are eligible for this service is they qualify for Medicaid if they have a severe, chronic disability and requires physical assistance for personal care.

Section 811

The Section 811 program allows persons with disabilities to live as independently as possible in the community by subsidizing rental housing opportunities which provide access to appropriate supportive services. Serves extremely low-income individuals with serious and long-term disabilities, including physical or developmental disabilities as well as mental illness.

  • Is designed to accommodate the special needs of such persons;
  • Makes available supportive services that address the individual health, mental health and other needs of such persons; and
  • Promotes and facilitates community integration for people with significant and long-term disabilities.”

Group Homes

Residential home which provides 24-hour support services in a group setting. Oversight, training and supervision are provided by staff employed by a provider agency. This type of facility is provided to those with significant health and/or safety needs.

Individual Supports

Are limited to 3 or fewer individuals and provide need-based support and services for those living in their own homes or apartments, but do not require 24-hour staff support and supervision.

Assisted living communities,

  • also referred to as supported care facilities, provide care to older adults who are unable to live independently, often needing assistance with ADLs. Most offer private and semi-private apartment-style living often containing a living area and kitchenette.

 

Guardianship

When an individual with a developmental disability becomes an adult, Guardianship is something you should consider. In many States, the law will see the individual as an adult able to make decisions on their own. If you have a child with a disability who many never have the ability to make legal decisions on their own, the following information are links on guardianship and what you need to know about them.

Does my child need a guardianship?– Special Needs Alliance

Guardianship– Cincinnati Children’s

Guardianship: A basic understanding for parents– Parenting Special Needs

Guardianship and adult children with developmental disabilities-ICHE

Legal guardianship and your adult child with disabilities– A day in our shoes

My child with a disability is an adult- Now what? – Parenting NH

Special needs children turning 18 years old– Today’s Caregiver

Understanding guardianship for adults with special needs– Protected Tomorrows

When your child turns 18: A guide to special needs guardianship– Friendship Circle

Guardianship- State Specific Requirements

Each State has it own requirements for Guardianship, click on your State below to find more information:

Alabama

Alaska

Arkansas

Arizona

California

Colorado

Connecticut

Delaware

District of Columbia

Florida

Georgia

Hawaii

Idaho

Illinois

Indiana

Iowa

Kansas

Louisiana

Maine

Maryland

Massachusetts

Michigan

Minnesota

Mississippi

Montana

Nebraska

Nevada

New Hampshire

New Jersey

New Mexico

New York

North Carolina

North Dakota

Ohio

Oklahoma

Oregon

Pennsylvania 

Rhode Island

South Carolina

South Dakota

Tennessee 

Texas

Utah

Vermont

Virginia

Washington

West Virginia

Wisconsin

Wyoming

What is a Generalized Seizure?

Click here to download PDF article

A generalized seizure, formally known as a gran mal seizure affects both sides of the brain, and starts in all parts of the brain at the same time. About 25 percent of people with epilepsy have generalized seizures. It affects all ages, socioeconomic and racial groups.

There are 4 phases of a generalized seizure:

  1. Prodromal. This is the first phase where an early sign may include a group of symptoms hours or days before the seizure including depression, difficulty concentrating, headaches, insomnia and mood changes.
  2. Aura. Typically, an aura occurs from a few seconds to a few minutes before the arrival of the seizure. Signs may include blurry vision, buzzing, ringing or an abdominal sensation.
  3. Tonic-Clonic. This is the phase where the whole body is affected. The body begins to stiffen and the person loses consciousness and falls. This is followed by a violent uncontrollable shaking. During this phase, the person may have difficulty breathing, an inability to swallow, may drool and begin to sweat.
  4. Postictal. Occurs at the end of the seizure, common signs include confusion, anxiety, depression, embarrassment, fear, memory loss, upset stomach and sleepiness.
There are 6 types of generalized seizures:
  1. Absence (Petit Mal). It occurs throughout the entire brain beginning and ending very quickly. The person becomes unconscious with a blank stare. It may appear the person is day dreaming.
  2. Tonic-Clonic. When the body stiffens and shakes. usually last 1 to 3 minutes.
  3. Clonic. When a person has a muscle spasm in the face, neck and arms may last several minutes.
  4. Tonic. The muscles in the arms, legs and trunk are affected. Usually last less than 20 seconds.
  5. Atonic. the muscles go limp and can cause a person to fall or head his or her head if they are standing.
  6. Myoclonic. Muscles suddenly jerk. The electrical impulses are strong enough to throw a person to the ground.
What Causes Epilepsy with Generalized Seizures?
Possible causes of epilepsy and seizures include:
  • genetics
  • a change in the structure of your brain
  • autism
  • an infections of the brain, such as meningitis or encephalitis
  • head trauma
  • a brain tumor
  • Alzheimer’s disease
  • a stroke, or a loss of blood flow to the brain resulting in brain cell death
  • congenital conditions, including Down syndrome or tuberous sclerosis

First Aid For Tonic Clonic Seizures:

Call 911 if:
  • The person has never had a seizure before.
  • the person has difficulty breathing or waking after the seizure.
  • The seizure lasts longer than 5 minutes.
  • The person has a seizure back-to back.
  • The person is injured during the seizure.
  • The person has an additional condition like diabetes, or heart disease.
Steps
  • Ease the person to the floor.
  • Turn the person gently onto the side (this will help the person breathe).
  • Clear the area around the person of anything hard or sharp
  • Put something soft and flat, like a folded jacket, under his or her head.
  • Loosen ties or anything around the neck including button on a shirt.
  • Time the seizure.
Familiarize Yourself With The Warning Signs 

Each person is different. Typically warning signs of a seizure may include:

  • Loss of consciousness
  • Stiffening of the body
  • Jerking of limbs
  • Slight twitching
  • A loss of awareness
Do Not:
  • Do not hold the person down or try to stop his or her movements.
  • Do not put anything in the person’s mouth. This can injure teeth or the jaw. A person having a seizure cannot swallow his or her tongue.
  • Do not try to give mouth-to-mouth breaths (CPR). People usually start breathing again on their own after a seizure.
  • Do not offer the person water or food until he or she is fully alert.

After the seizure:

After the seizure ends, the person will probably be groggy and tired. He or she also may have a headache and be confused or embarrassed. Try to help the person find a place to rest. If necessary, offer to call a taxi, a friend, or a relative to help the person get home safely.

Don’t try to stop the person from wandering unless he or she is in danger.

Don’t shake the person or shout.

Stay with the person until he or she is completely alert.

 

Resources

Epilepsy Ontario

Epilepsy Talk

Healthline

University of Chicago Medicine

WebMD

What are the biggest misconceptions about employing autistic people?

Published By: Sheffield Hallen University
Written By: Dr. Luke Beardon

Some employers assume that because a person is autistic they will also have some kind of learning disability. This is absolutely not true for the majority. Autistic adults display a range of intellectual abilities – as do the predominant neurotype (PNT) (non-autistic) population – from low IQ to members of Mensa.

Here are five more misconceptions about autistic people in the workplace – and why they’re not true. Click here to read the rest of the story

Bathing Training Curriculum For Direct Support Professionals

Click here to print PDF version of article
Studies show that most accidents occur in the home. There are a number of factors that increases this number in a residential setting. For example, Staff are responsible for providing care to more than one person and the may also be responsible for a number of other duties including, preparing dinner, giving out medication and working on performance goals. Given these factors, it is vital that attention and skill is given during bathing time. One minute away, could lead to a disastrous event.

The following is a training curriculum that serves to train staff (Direct care Professionals) on bath safety. I have included the lesson plan also in a PDF format and a demonstrative checklist. Once completed, staff should be able to show their competency level in bathing an individual safely. This training also satisfies and supports Core Competency 5 (safety) and Core Competency 6(Having a home).

Title:  Bath Safety Training

Description Training:

This module is intended to provide direct support professionals with principles and strategies which will assist them in the preparation, supervision and assistance necessary to ensure the safety of people with developmental disabilities. The first section focuses on identifying and evaluating required staff supervision. Section 2 includes the responsibilities of staff during bathing time.

Learning Objective(s):

  • Demonstrates steps to ensure all necessary bathing items are in the bathroom before preparing for bathing time.
  • Evaluate the level of supervision needed
  • Define the characteristics of a burn
  • Distinguish temperature for bathing vs. showering
  • Identifying the process of bathing residents to ensure the process is safely carried out.
  • Explain the risk for people with disabilities

Maximum Group Size:

Training segment 10- competency portion should be conducted one person at a time.

Blooms Taxonomy:

  • Remember
  • Understand
  • Apply

Required Employees: Direct Support Professionals

Materials:

  • Handout
  • Handout
  • Competency test
  • Competency
Training:  1 Hour
Objective 1: The participants will be able to explain bathing risk for people with disabilities

Lecture:

The trainer will begin this session with a brief introduction on the magnitude of the problem regarding accidental deaths, bathing injuries including scalding. In your own words, please say the following:

Studies show that after the swimming pool, the bathtub is the second major site of drowning in the home including residential settings with seizures accounting for most of the common causes of bathtub drowning.

The National Safety Council reported that one person dies everyday from using bathtub in the United States. That more people have died from bathtub accidents than all forms of road vehicle accidents.

Injuries from the bathroom included slipping and falling when entering or exiting the bathtub or shower.

A study concluded by the State University of New York State found bathing difficulties included maintaining balance when bathing and making transfers.

Inform participants the following:

Near-drowning happens very quickly. Within three minutes of submersion, most people are unconscious, and within five minutes the brain begins to suffer from lack of oxygen. Abnormal heart rhythms (cardiac dysrhythmias) often occur in near-drowning cases, and the heart may stop pumping (cardiac arrest). The blood may increase in acidity (acidosis) and, under some circumstances, near drowning can cause a substantial increase or decrease in the volume of circulating blood. If not rapidly reversed, these events cause permanent damage to the brain

Ask – How much water does it take to drown?

Answer- inches of water in the bathtub. Any amount of water that covers the mouth and nose.

Who is at -risk?

Tell the participants the following people are considered high risk for accidents and drowning in the bathtub or shower:

  • Older people
  • Residence with a history of seizures
  • Residents diagnosed with dementia or Alzheimer
  • Residents who require assistance or supervision for mobility, transfer or ambulation.
  • Lack of understanding of one’s own physical and cognitive limitations.

Scalding

The trainer will introduce the segment on scald burns. Tell participants that individuals with physical, cognitive and emotional challenges are at high risk for burn injuries due to mobility impairments, muscle weakness and slower reflexes.  Further explain that, sensory impairments can result in decrease sensation in the hands and feet with the resident not realizing the water is too hot.

The instructor will discuss the following handout:

Time and Temperature relationship to Severe Burns

Water Temperature Time for a third degree burn to occur
155° F 1 second
148° F 2 seconds
140° F 5 seconds
133° F 15 seconds
127° F 1 minute
124° F 3 minute
120° F 5 minutes
100° F Safe temperature for bathing

 

Objective 2: Define the Characteristics of a Burn

In this section, the trainer will give the definition of a burn, Explain to participants that a burn is damage to the skin and underlying tissue caused by heat chemicals or electricity.

Further explain, Burns range is severity from minor injuries that require no medical treatment to serious, life-threatening and fatal injuries. Further explain that burns are categorized by degrees. Have participants turn to the handout on burns.

Superficial (first degree burns)

  • Causes : sunburn, minor scalds
  • Generally heal in 3-5 days with no scarring

Characteristics;

  • Minor damage to the skin
  • Color- pink to red
  • Painful
  • Skin is dry without blisters

Partial thickness (second degree) burns

  • Damages, but does not destroy top two layers of the skin
  • Generally heal in 10-21 days
  • Does not require skin graft*
  • Skin is moist, wet and weepy
  • Blisters are present • Color – bright pink to cherry red
  • Lots of edema (swelling)
  • Very painful

Full thickness (third degree) burns

  • Destroys all layers of the skin
  • May involve fat, muscle and bone
  • Will require skin graft for healing*
  • Skin may be very bright red or dry and leathery, charred, waxy white, tan or brown
  • Charred veins may be visible
  • Area is insensate – the person is unable to feel touch in areas of full thickness injury

*Except for very small (about the size of a quarter) full thickness burns will require a skin graft to heal.  The patient is taken to the operating room where all the dead tissue is surgically removed. Skin is taken or harvested off an unburned or healed part of that person’s body and grafted or transplanted to the clean burn area. In seven to 14 days, this grafted skin “takes” or adheres to the area and becomes the person’s permanent skin. The donor site (where the skin was harvested from) is treated like a partial thickness burn and heals within 1- to 14 days.

Objective 3: Identify the process of bathing residents to ensure the process is safely carried out

The trainer will discuss the importance of following the appropriate steps when giving a resident a shower:

When escorting a resident to the bathroom, the following items should be gathered and taken to the bathroom:

  • Washcloth/bath sponge
  • Towel
  • Body wash/soap
  • Body lotion
  • Toothbrush
  • Toothpaste
  • Mouthwash
  • Hair shampoo
  • Hair conditioner

The trainer will remind participants not to leave the participants in the bathroom alone under any circumstances for those requiring supervision.

Ask- What circumstance might a person leave the person alone.

The participant should respond- none.

Click on the link below to download the competency checklist:

COMPETENCY DEMONSTRATION CHECKLIST

Click on the link below to download the training in Word format

bathing module

 

 

2019 Disability Awareness Month and Observance Calendar

Annual awareness observances are sponsored by federal, health and non-profit organizations. Awareness campaigns serve the purpose of informing and educating people on a certain causes. Each year, the number of special needs organizations bringing awareness to specific disabilities and disorders seem to grow. Awareness activities range from one day to a month.
Here is a calendar of major special needs awareness months, weeks, and days. Most websites include awareness toolkits, promotional materials and fact sheets. Since it is still early in the year, some of the campaigns still have 2018 campaigns on their websites. I will add new information once the changes are up on the websites.

January

National Birth  Defects Month

January 4- World Braille Day

January 20- International Day of Acceptance

January 24- Moebius Syndrome Awareness Day

February

Turner Syndrome Awareness Month

February 15- International Angelman Day

February 28- Rare Disease Day

March

Cerebral Palsy Awareness Month

Developmental Disabilities Awareness Month

Kidney Awareness Month

Multiple Sclerosis Month

Social Work Awareness Month

Trisomy Awareness Month

March 1- Self-Injury Day

March 1- International Wheelchair Day

March 21- World Down Syndrome Day

March 26- Purple Day for Epilepsy

April

April 2- World Autism Awareness Day 

May

Better Hearing and Speech Month

Ehlers-Danlos Awareness Month

Mental Health Awareness Month

National Asthma and Allergy Awareness Month

Prader Willi Awareness Month

Williams Syndrome Awareness Month

May 1- Global Developmental Delay Day

May 15- Tuberous Sclerosis Global Awareness Day

May 5-12- Cri du Chat Awareness Week

May 8-14- Brain Injury Awareness Week

June

Aphasia Awareness Month

June 17- CDKL5 Awareness Day 

June 23- Dravet Syndrome Awareness Day (Canada)

Tourette Syndrome Awareness Month

July

July 14- Disability Pride Parade (NY)

July 14- Disability Awareness Day (UK)

July 22- National Fragile X Awareness Day

September

Chiari Awareness Month

Craniofacial Acceptance Month

Duchenne Muscular Dystrophy Awareness

Fetal Alcohol Spectrum Syndrome Awareness Month

Hydrocephalus Awareness Month

National Spinal Cord Awareness Month

Sickle Cell Awareness Month

Sepsis Awareness Month

September 7- World Duchenne Awareness Day

September 9- Fetal Alcohol Awareness Day

October

ADHD Awareness Month

Disability History Awareness Month

Down Syndrome Awareness Month

Dysautonomia Awareness

National Disability Employment Awareness Month

National Dyslexia Awareness Month

Occupational Therapy Awareness Month

October 6- World Cerebral Palsy Day

October 15- White Cane Awareness Day

October 13-19 Invisible Disabilities Week

October 13-19 International OCD Awareness Week

National Physical Therapy Month

Rett Syndrome Awareness Month

Special Needs Law Month

Spinal Bifida Awareness Month

November

22q Awareness Month

Epilepsy Awareness Month

November 1- LGS Awareness Day

November 7- National Stress Awareness Day

November 15- World Ohtahara Syndrome Awareness Day

December

December 3- International Day of Persons with Disabilities

December 1-7 Infantile Spasm Awareness Week

Happy Holidays From:

logo

Special Needs Resource Blog will take a break during the holidays and will return Thursday, January 3, 2019 with new resources, teaching and training tools to post including more downloadable free tools and templates Monday, Tuesday and Wednesday. I am excited and look forward to sharing more resources with you in the new year.
Thanks to all of you for following my blog this year. Wishing you and your families joy and peace all through the holidays and throughout the new year. May the spirit of the holidays be with you throughout the new year.  🙂  🙂

10 Easy Steps of Audit and Survey Readiness

Annual audits and surveys can be very intimidating. A group of state surveyors showing up at the residence or day program to review services given to individuals with developmental disabilities.

What is the purpose of the audit?

In each state, Immediate Care Facilities (ICF), Immediate Residential Alternatives (IRAs), Waiver services or privately operated programs are funded through Medicaid Assistance Annually State agencies. Annual surveys serve the purpose of recertifying facilities and to make any further recommendations. Overall, the goal is to ensure the quality of for the individuals receiving services.

What are surveyors looking for?

In recent years, the focus is more on ensuring facilities that provide services and supports to individuals with intellectual and developmental disabilities are providing opportunities for individual choices including person-centered planning, community inclusion and choice-making. Typically, State auditors will review the Individualized service Plan (ISP) document to determine it the ISP is both current and accurate.

Audit Preparation

State Auditors generally spend some time talking to staff. They may ask you questions relating to the person’s plan. The questions are often generated after they have read the individual’s ISP plan. The questions that are asked are more than likely things that you do well everyday. here are 10 easy steps as you prepare for the auditing process:

  1. Knowledge of Individuals. know each person’s plan including person-centered planning plan, medical needs, preferences and habilitation plan.
  2. Cleanliness. Make sure the environment is neat and orderly.
  3. Privacy. Remember to give the person privacy when needed.
  4. Choice. Offer choices throughout activities whenever possible. The auditors may ask you how do you teach choice-making.
  5. Tone. Always speak in a positive and appropriate tone of voice.
  6. Small groups. Work in small groups whenever possible. Incorporate variety  of choice during activities.
  7. Community activities. Ensure individuals are able to make choices in activities in the community and community inclusion opportunities are available.
  8. Universal Precaution Guidelines. Know the precautions and follow them. Remember to change gloves when moving from one individual to the next.
  9. Active Programming. The auditors may ask questions related to what they have read in the individuals ISP or CFA (Comprehensive Functional Assessment).
  10. Safeguards. make sure you are able to describe the individual’s supervision needs.

Remember: Demonstrate your self-confidence, because you are good at what you do!

Understanding The Individualized Family Service (IFSP)

The individualized Family Service Plan (IFSP) is a written plan that is developed for infant and toddlers up to the age of 3. It is Part C of the Individuals with Disabilities Act responsible for developing and implementing statewide early intervention services for infants and toddlers with disabilities and their families.

The difference between IFSP and an IEP, is that ISFP is written plan designed for the family while the IEP focus is the student. ISFP should include the following information:

  • Your child’s level of functioning and needs
  • Outcomes expected
  • Family information Natural environment
  • Where your child receives services
  • Number of sessions your child will receive for the service
  • Who will pay for the service

Services provided through early intervention based on your child’s needs include:

  • Audiological services
  • Vision services
  • Occupational and physical therapy
  • Special education service
  • Speech and language therapy
  • Medical and nursing service
  • Nutritional services
  • Psychological and social work services
  • Health services necessary for your child to benefit from other early intervention services
  • Family training, counseling, and home visits
  • Transportation to enable your child and family to receive early intervention services
  • Respite care and other family support services
Team Members

Individualized family service plan team members include:

  • Evaluator
  • Therapist
  • Service Coordinator
  • Parent or caregiver
  • Other family members
  • An advocate if requested by the parents

A service coordinator is provided to assist and enable an infant or a toddler with a disability and the family to receive services. The service coordinator also:

  • Coordinates early intervention services and other services
  • Facilitates and participates in the development, and evaluation of the plan
  • Ensures services are provided in a timely manner
  • Facilitate the development of a transition plan to preschool, or to other services.
Resources

Center for Parent Information and Resources

Family Connect

Pacer Center

Understood

What is Lowe Syndrome?

Lowe Syndrome also known as Oculocerebrorenal Syndrome is a rare genetic disorder that affects the eyes, brain and kidneys. It has a prevalence of 1 in 500,000 and mainly affects males.

Click here to download PDF version

Signs and Symptoms
  • Congenital cataracts
  • eye abnormalities and eye disease
  • glaucoma
  • kidney abnormalities (Renal Fanconi Syndrome)
  • dehydration
  • abnormal acidic blood
  • progressive kidney problems
  • feeding problems
  • bone abnormalities
  • scoliosis
  • weak or low muscle tone (hypotonia)
  • joint problems
  • developmental delays including motor skills
  • short stature
  • intellectual disability
  • seizure
  • behavioral issues

Children and adults diagnosed with children and adults may also show the following signs and symptoms due to an intellectual disability:

  • decrease learning ability
  • delays in crawling
  • delays in sitting up
  • difficulty solving problems
  • lack of curiosity
  • language and speech delays
  • poor memory
  • behavior problems
Teaching Strategies

The following strategies will help when teaching a child or an adult diagnosed with Lowe Syndrome:

  • Use short and simple sentences to ensure understanding
  • Repeat directions
  • Teach specific skills when possible
  • Use strategies such as chunking, backwards shaping, forward shaping and role modeling.
  • Use concrete information
  • Provide immediate feedback

Image thanks to Robert Thomson on Flickr.com (creative commons)

Resources

National Organization for Rare Disorders

Genetics Home Reference

Dove Med

Wikipedia

Teaching Strategies For Students With A Nonverbal Learning Disorder

Nonverbal Learning Disorder is a disorder you may or nay not heard of. It shares similar characteristics to autism such as the challenge in reading body language but is also quite different. By learning the signs and symptoms of nonverbal learning disorder, the better chance you have in using effective teaching strategies.

Nonverbal learning disorder is defines as a person who has difficulty in interpreting and understanding non verbal cues in the environment If 93% of how we communicate is nonverbal, a person with nonverbal learning disorder is only getting 7% of daily communication.

Dr. Byron P. Rouke of the University of Windsor developed the following criteria to assess nonverbal learning disorder:

  1. Perceptual deficits usually on the left side of the body. The child has difficulty understanding or perceiving information through the skin of both hands but the left hand has more difficulty than the right.
  2. Tends to be clumsy
  3. Difficulty with visual-spatial organizational skills. Finds it difficult to organize notes.
  4. Difficulty when encountering new information.
  5. Difficulty in knowing what is expected of you and hard to see the bigger picture
  6. Distort sense of time. Time is abstract and non-linear
  7. Well-developed, rote and verbal capacity
  8. Repetitive way of speaking
Signs and Symptoms
  • Excellent vocabulary and verbal expression
  • Excellent memory skills
  • unable to see the bigger picture
  • Poor motor and coordination skills
  • Difficulty with reading
  • Difficulty with math reading problems
  • Fear of new situations
  • May have symptoms of anxiety, depression
  • Misreads body language
  • Well-developed vocabulary
  • Better auditory processing skills than visual processing skills
  • Focus on details

Teaching Strategies For Parents and Teachers
  • Give assignments in chunks
  • Give constructive feedback
  • Create a daily class routine and stick to them
  • Write the class schedule on the board
  • Provide several verbal cues before transition
  • Give the student time to preview and prepare for new activities such as group projects
  • Minimize transitions
  • Offer added verbal explanations when the student or child seems confused
  • Teach in sequential steps
References

Rondalyn Varney Whitney/OTR, Nonverbal learning disorder: Understanding and coping with NLD and Aspergers: What parents and teachers need to know (2008)

Woliver, Robbie (2008) Alphabet Kids: From ADD to Zellwer Syndrome.

Learning Disabilities of America

Understood

Common Signs In Tactile Difficulties

Tactile difficulties occur when the nervous system dysfunctions and the brain is unable to process information through the senses. Some children and adults with this form of sensory processing disorder will be over sensitive to touch. Between 5 to 13 percent of the population is diagnosed with sensory processing disorder.

Common Signs of Tactile Difficulties
  • Difficulty with having nails cut or teeth brushed
  • Becomes upset when hair is washed
  • Dislikes any clothing with tags including clothes, hats, shoes, and complains about the type of fabric and the style
  • Dislikes getting their hands dirty or messy
  • Overreacts when they are touched by other people
  • Oversensitive to temperature change
  • Over or under reacts to pain
  • Prefers deep pressure touch rather than light touch
  • Avoids messy textures
  • Prefers pants and long sleeves in hot weather
  • Picky eater
  • Eyes may be sensitive to cold wind
  • Avoids walking barefoot
  • Avoids standing close to other people
  • May be anxious when physically close to other people
Strategies for Handling Tactile Defensiveness
  • Use deep pressure
  • use weighted items including blankets, vest and backpacks
  • Seek out an OT
  • Utilize a sensory diet
  • Minimize time expected to stand and wait in line by having the child go first or last in line
  • Allow the child to wear a jacket indoors
  • Encourage the child to brush his or her body with a natural brush during bath time
  • Create activities using play doh or silly putty
References

Autism Parenting Magazine

Kids Companion

Sensory Processing Disorder.com

Chu, Sidney (1999), Tactile Defensiveness: Information for parents and professionals

Epilepsy and Autism: What You Need To Know

Studies show that epilepsy are more common in individuals with autism than the general population. Studies show that in some cases, 20% of people diagnosed with autism also have an epilepsy disorder. Other studies indicate epilepsy prevalence estimates between 5% to 46%.

Autism Spectrum Disorder (ASD) is a complex neurodevelopmental disorder that impacts social, speech, behavioral and motor skills. It is a spectrum disorder meaning it varies from person to person. No two people have the same symptoms. It is estimated that 1% of the population is diagnosed with autism.

Epilepsy is a brain disorder which occurs when neurons in the brain experience a brief interruption causing a seizure to occur. Seizures vary from mild to severe and affects over 3 million Americans. There are different types of seizures:

  • Generalized Tonic/Clonic- A seizures where the whole brain is affected.
  • Absence Seizures- Generally start without any warnings. It affects children and last only for a few seconds.
  • Myoclonic Seizures- Are abrupt jerks of the muscle groups which originate from the spine.
  • Partial Seizures- The person may look as though he or she is in a trance.

There are many unanswered questions as to why epilepsy is more common in people with autism. There is some evidence the common underlying cause may be both are related to genetic and environmental causes and are both related to some type of brain disorder. Evidence does shoe however individuals with autism and epilepsy have worse behavioral and social outcomes than individuals diagnosed with autism only including issues with motor and daily living skills.

Signs for parents to look out for
  • May be difficult to determine especially in children diagnosed with severe autism spectrum disorder. Red flags include, staring episodes, stiffening of the body and shaking movements.
  • A medical evaluation will include brain imaging and an electroencephalogram (EEG).
Teaching Strategies

If you are an educator, be aware that after a seizure, the student will become tired. Allow the student an opportunity to rest.

Reference

Epilepsy Foundation

Medical News Today: Epilepsy and autism: Is there a link?

Neurologist Disorder Treatment. Epilepsy in patients with autism: Links, risks and treatment challenges. Frank McBesag- Published online 2017 Dec 18

Synapse- Autistic Spectrum Disorder Factsheet

 

Epilepsy Links and Resources

Epilepsy is a neurological disorder which causes seizures through electrical impulses occurring in the brain. It is the fourth most common neurological disorder. Epilepsy affects 50 million people worldwide. In the U.S., 1 out of 26 people are affected. Want to learn more? click on the articles below.

37 helpful epilepsy resources

Apps for tracking seizure

Benign Roladric Epilepsy

Epilepsy Facts

Epilepsy driving and state regulations

Epilepsy-General Information

Lennox-Gastaut Syndrome

Ohtahara Syndrome

November is epilepsy month

West Syndrome

What you need to know about Dravet Syndrome

When an employee has a seizure

What to do when someone has a seizure

 

 

 

Overlap in traits of autism, attention deficit persists into adulthood

Published by: Spectrum
Written by: Nicholette Zeliadt

Traits linked to autism and attention deficit hyperactivity disorder (ADHD) tend to co-occur even in adulthood, according to one of the first studies of the traits in that age group1.

The results extend support for the idea that autism and ADHD are intrinsically linked — a notion that is largely based on studies of children.

“Not much is known about the transition from later adolescence into adulthood with regard to autism and ADHD,” says lead investigator Ralf Kuja-Halkola, a statistician at the Karolinska Institute in Stockholm, Sweden. Click here to read the rest of the story.

What is a Non-Epileptic Seizure?

Did you know that there are seizures that are not due to epilepsy? Since November is Epilepsy Awareness Month, I thought this would be a great opportunity to share information on non-epileptic seizures. It is especially important to know about non-epileptic seizures since 1 in 5 people diagnosed are later found to have non-epileptic seizures.

What is a Non-Epileptic Seizure?

A non-epileptic seizure displays characteristics similar to epilepsy seizures by mimicking similar signs and symptoms including control over their body through shaking movements, blacking out and falling. From the outside, the signs look similar however, the causes are quite different. Non-epileptic seizures, also known as non-epileptic attack disorders (NEAD) tend to resemble a seizure however, they are not caused by electrical impulses in the brain, rather it may be due to an overload of stress including a death in the family, abuse and past painful experiences, causing some to have difficulty handling thoughts and memories in the brain.

What are the Signs and Symptoms?

While the signs differ for each person, a common sign mirrors tonic-clonic seizures involving similar movement including the shaking of the arms, legs and head. Small differences include the person tends to have their eyes closed during the attack which generally last longer than an epileptic seizure.

Who is likely to have a non-epileptic seizure?

Although non-epilepsy seizures can occur to anyone, at any age, studies found people with non-epileptic seizures are:

  • More common in women
  • More common in people experiencing depression and anxiety
  • Likely to occur to people who experience an emotional, stressful event
  • More likely to start in young adults.
Diagnosing Non-Epileptic Seizures

The most effective way for neurologist to diagnose a non-epileptic seizure is through a series of test including personal history, medical history and an electroencephalogram (EEG) used to detect abnormal electrical discharges (would not show up in a person diagnosed with non-epileptic seizures).

Treatment

Treatment is based on the cause of the seizures. Options may include:

  • Medication (antidepressants)
  • psychotherapy
  • Cognitive Behavior Therapy (CBT)
  • Counseling
References

Cleveland Clinic

Epilepsy.org.uk

Non-Epileptic Attacks.Info

Wikipedia

 

Children and Ring Chromosome 20 Syndrome

What is Ring Chromosome 20 Syndrome?

Ring Chromosome 20 Syndrome is a chromosomal disorder that is the result of a ring that develops when a chromosome breaks in two places and the short arm of a chromosome has merged with the tip of the long arm.

This anomaly causes recurrent seizures during childhood. It is reported that the seizure can occur at anytime from during the day time to sleeping at night, it is very rare. In fact only 50 cases have been reported in research journals. However, this form of epilepsy can occur from birth to 17 years old.

What makes this rare form of seizures unique is that it does not respond to anti-epileptic medication. Vagus Nerve Stimulation (VNS) tends to be successful as well as the Ketogenic diet in reducing the number of seizures.

Children diagnosed with Ring Chromosome 20 Syndrome typically experience several types of seizures including:

  • Focal seizure
  • Non-convulsive status epilepticus
  • Frontal lobe seizures
  • Tonic seizures
  • Generalized tonic-clonic seizures
Signs and Symptoms

Children with Ring Chromosome 20 Syndrome generally face challenges in the area of behavioral, learning disabilities and intellectual disabilities. In some instances, children may display physical characteristics including slow growth, short stature and a small size head.

Signs and Symptoms of Intellectual Disability
  • Decrease learning ability
  • Delays in crawling
  • Difficulty solving problems
  • Lack of curiosity
  • Language and speech delays
  • Poor motor skills
  • Short attention span
Teaching Strategies
  • Use short and simple sentences
  • Repeat directions
  • use strategies for remembering such as clustering information together
  • Provide immediate feedback
Signs and Symptoms of learning disabilities
  • Difficulty recognizing non-verbal cues such as facial expression
  • Fine motor skills difficulty
  • Weak visual discrimination abilities.
Teaching Strategies
  • Use a multi-sensory approach
  • Break into small steps
  • use probing techniques
  • use diagrams and pictures.
References

Genetics Home Reference

Rare Chromosome Organization

Wikipedia

Election Lesson Plan and Activities for Day Hab

Since President Trump’s, election, there has been a vigorous interest in politics not only in the United States but also in other countries as well. The upcoming mid-term elections provides an opportunity for adults with developmental disabilities to participate through a lesson plan created not only on the upcoming election, but also ways to get individuals more involved on topics and platforms that impact their lives.

Sadly, I have heard very little from politicians on issues concerning people with disabilities and the impact it will have on people with disabilities and their families. This affords an opportunity to have real discussion with people on issues that are important to them through a series of multisensory activities.

  1. Who doesn’t like a game of bingo? Download the bingo template, make as many copies as you wish and set up an activity playing Bingo. Once you call out a name. use it as an opportunity to have discussion i.e. How would you describe a conservative? When is the election held? Below, click on the template


Bingo.download

2. The second activity includes a week-long lesson plan on election and representative in office using a multisensory approach.  The first day is set up for making an apple smoothie and a trip preparation activities allowing individuals to work on their social and money management skills. I left the lesson plan editable so that you can move activities around as you wish.


election.dayhab

Materials Needed for the lesson plan activities

Mock Voter Registration

mock voter registration

Apple Smoothie Recipe

Apple Smoothie Recipe

Caramel Apple Smoothie

Patriotic Printable Paper Chain

Free patriotic printable chain

Patriotic paper chain with needed supplies

Oh, this is also a great activity to use a home or school for students at the high school level.

 

Teaching Strategies for Dyslexic Students

Dyslexia is the most common learning disability. It is defined as language-based learning disability. Research shows that 1 in 5 people are dyslexic. It is a myth that people with dyslexia see words backwards, rather, letters such as b-d are reversed due tp deficits interpreting left and right. The best way for children to learn to read is through a multi-sensory approach. The following links include tips, strategies and ways to accommodate a student with dyslexia.

12 tips to help kids with dyslexia learn sight words

A dyslexic child in the classroom

Accommodating students with dyslexia in a classroom setting

Dyslexia in the classroom: What every teacher needs to know

Helping your student with dyslexia learn to read

How teachers can accommodate the dyslexic student

Strategies for teachers

Teaching students with dyslexia: 4 effective lesson plans

ADHD Looks Different In Women. Here’s How — and Why.

Source: ADDitude

From job opportunities to personal income to marital relationships, there’s hardly an area in which American women haven’t made great strides in recent decades. But when it comes to getting diagnosed with and treated for ADHD, women still have a long way to go.

ADHD in Women

Women are as likely as men to have ADHD, and the latest research suggests that ADHD in women causes even greater emotional turmoil. Yet ADHD is still thought of as something that affects only men and boys. Consequently, women with ADHD are more likely than men to go undiagnosed (or misdiagnosed), and less likely to receive appropriate treatment. Click here to read the rest of the story.

15 Halloween Fine Motor Skill Activities

Candy is not the only great thing about Halloween. It is a chance to work on fine motor skills and eye-hand coordination while having fun at the same time. From ghosts to witches, there are a number of activities you child or student can do that will help increase fine motor skills. For some children and adults with disabilities, struggle with fine motor skills. These activities are a chance to improve the coordination between the brain and the muscles including dexterity and motor control. Click on the links below.

Easy Halloween fine motor activity

Eyeball sensory bag

Feed the spider

Frankenstein monster pumpkin

Halloween fine motor: Giant lacing spiderweb

Halloween fine motor activities for preschool

Halloween fine motor activities that promote cutting practice

Halloween mask to print and color

Halloween Necklaces

Halloween Play Dough

Halloween themed cutting tray

Scissor skill pumpkins

Spider web yarn

Witchy fingers

Yarn wrapped spider craft for halloween

Spina Bifida- Facts and Statistics

Click here to download PDF version

October is Spina Bifida Awareness Month. Spina Bifida is a birth defect that affects the spine and the spinal cord. The membranes surrounding the spinal cord do not close properly.

Facts and Statistics
  • Each year, about 1,500 babies are born with spina bifida.
  • There is no known cause
  • Accumulation of fluid in the brain affects 70% of children.
  • 40% of shunts fail or become in affected and need to be changed within a year.
  • It can happen anywhere along the spine if the neural tube does not close all the way.
  • Spina Bifida might cause physical and intellectual disabilities that range from mild to severe depending on the size and location of the opening in the spine.
  • Myelomeningocele is the most serious type of spina bifida.
  • Spina Bifida can be diagnosed during pregnancy or after the baby is born.
  • Some people with Spina Bifida may never experience symptoms
  • Spina Bifida occurs between the 3rd and 4th week of pregnancy.
  • Children with Spina Bifida may have difficulty with math, reading comprehension and learning.
  • Common challenges to learning include, fine and gross motor skills, spatial orientation, communication difficulties and attention and memory.
  • Some children with Spina Bifida also have attention deficit hyperactivity disorder (ADHD).
  • Hispanic women have the highest rate of having a child affected by spina bifida, when compared with non-Hispanic white and non-Hispanic black women. Data from 12 state-based birth defects tracking programs from 1997-2007 were used to estimate the total number of pregnancies affected by spina bifida compared to the total number of live births (also called the prevalence of spina bifida) for each racial/ethnic group:
    • Hispanic: 3.80 per 10,000 live births
    • Non-Hispanic black or African-American: 2.73 per 10,000 live births
    • Non-Hispanic white: 3.09 per 10,000 live births
Resources

March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
askus@marchofdimes.com
http://www.marchofdimes.com
Tel: 914-997-4488; 888-MODIMES (663-4637)
Fax: 914-428-8203

Spina Bifida Association
4590 MacArthur Blvd. NW
Suite 250
Washington, DC 20007-4266
sbaa@sbaa.org
http://www.spinabifidaassociation.org
Tel: 202-944-3285; 800-621-3141
Fax: 202-944-3295

References

Centers for Disease Control and Prevention

Children’s Hospital of Philadelphia 

Resources For Teaching Students with Down Syndrome

Down syndrome (Trisomy 21) is a chromosomal disorder due to 3 copies of chromosome 21, causing a number of developmental delays, medical and physical disabilities. Learning is one of the areas that is affected by the disorder. Children born with Down syndrome typically have delays in the area of gross and fine motor skills, thinking, short attention span, speech and language difficulties and sequencing. The following links and resources include information on tips and strategies for teaching children with Down syndrome for both parents and teachers.

5 tips for including students with Down syndrome in a general education classroom

10 things teachers should know about Down syndrome

Classroom strategies for Down syndrome students

Five instructional strategies for children with Down syndrome

Modifications for students with Down syndrome

Modifying your curriculum for individuals with Down syndrome

Quick tips for teaching students with Down syndrome in general education classes

Strategies for learning and teaching

Supporting the student with Down syndrome in your classroom

Teaching children with Down syndrome- 10 tips from a former teacher

Teaching children with Down syndrome to read

Teaching students with Down syndrome

Teaching tips: Special education children with Down syndrome

Tips for teaching students with Down syndrome

What students with Down syndrome want teachers to know

 

October is Down Syndrome Awareness Month

Teaching Children With Down Syndrome

 

10 things teachers should know about Down syndrome

Down syndrome-Classroom strategies

Five instructional strategies for children with Down syndrome

Homeschooling a child with Down syndrome

Including and accommodating students with Down syndrome

Inclusive education for individuals with Down syndrome

Quick tips for teaching students with Down syndrome

Strategies for Learning and Teaching

Supporting children with Down syndrome in primary school

Supporting the student with Down syndrome in your classroom

Teaching numbers to children with Down syndrome

Teaching students with Down syndrome

Tips for teaching students with Down syndrome

What students with Down syndrome want teachers to know

Dyslexia- Facts and Statistics

Click here to download PDF version
Dyslexia is a learning disorder which makes it difficult for children and adults to read and learn new words.
Facts and Statistics
  • It is estimated that 1 in 10 people have dyslexia
  • Over 40 million American Adults are dyslexic – and only 2 million know it
  • Dyslexia is not tied to IQ – Einstein was dyslexic and had an estimated IQ of 160
  • Dyslexia in not just about getting letters or numbers mixed up or out of order
  • 80% of people associate dyslexia with some form of retardation – this is not true
  • Dyslexia is a language-based learning disability or disorder that includes poor word reading, word decoding, oral reading fluency and spelling
  • Dyslexia occurs in people of all backgrounds and intellectual levels
  • Dyslexia has nothing to do with not working hard enough
  • 20% of school-aged children in the US are dyslexic
  • With appropriate teaching methods, dyslexia can learn successfully
  • Over 50% of NASA employees are dyslexic
  • Dyslexia runs in families; parents with dyslexia are very likely to have children with dyslexia
  • Dyslexics may struggle with organizational skills, planning and prioritizing, keeping time, concentrating with background noise.

Prevalence

About 15-20 percent of the U.S. population has a learning disability.

  • 70-80% of people with poor reading skills, are likely dyslexic.
  • One in five students, or 15-20% of the population, has a language based learning disability. Dyslexia is the most common of the language based learning disabilities.
  • Nearly the same percentage of males and females have dyslexia.
  • Nearly the same percentage of people from different ethnic and socioeconomic backgrounds have dyslexia.
  • Percentages of children at risk for reading failure are much higher in high poverty, language-minority populations who attend ineffective schools.
  • In minority and high poverty schools, 70-80% of children have inadequate reading skills.
  • According to the National Assessment of Educational Progress (NAEP), 38% of all fourth grade students are “below basic” reading skills. They are at or below the 40th percentile for their age group.
  • Nationwide 20% of the elementary school population is struggling with reading.
  • National Center for Education statistics, 5% of all adults are “non-literate”.
  • 20-25% of all adults can only read at the lowest level.
  • 62% of non readers dropped out of high school.
  • 80% of children with an IEP have reading difficulty and 85% of those are Dyslexic.
  • 30% of children with Dyslexia also have at least a mild form of AD/HD.

 

Reference

Austin Learning Solutions

Dyslexia Center of Utah

Encyclopedia of Children’s Health 

 

October is Dyslexia Awareness Month

ADHD- Facts and Statistics

Click here to download PDF version
Attention Deficit Hyperactivity Disorder (ADHD)  is a neurological disorder characterized by a pattern of inattention and/or hyperactivity-impulsivity that disrupts functioning in both children and adults
Facts and Statistics
  • ADHD is a condition characterized by inattentiveness, hyperactivity and impulsivity
  • It is one of the most common neurodevelopmental disorders of childhood
  • It is usually diagnosed in childhood and last into adulthood
  • People diagnosed with ADHD may have difficulty paying attention and or controlling impulsive behavior
  • 70% of people with ADHD in childhood will continue to have it in adolescence
  • 50% will continue into adulthood
  • ADHD is not caused by watching too much, parenting or having too much sugar
  • ADHD may be caused by genetics, brain injury or low birth weights
  • Is a highly genetic, brain-based syndrome that has to do with the brain regulation in executive functioning skills
Prevalence

UNITED STATES

Children & Adolescents

The 2016 National Survey of Children’s Health (NSCH) interviewed parents and reports the following ADHD prevalence data among children ages 2–17 (Danielson et al. 2018):

  • 6.1 million children (9.4 percent) have ever been diagnosed with ADHD. This includes:
    • About 388,000 young children ages 2-5 (or 2.4 percent in this age group)
    • 2.4 million school-age children ages 6-11 (or 9.6 percent in this age group)
    • 3.3 million adolescents ages 12-17 (or 13.6 percent in this age group)
  • 5.4 million children (8.4 percent) have a current diagnosis of ADHD. This includes:
    • About 335,000 young children ages 2-5 (or 2.1 percent in this age group)
    • 2.2 million school-age children ages 6-11 (or 8.9 percent in this age group)
    • 2.9 million adolescents ages 12-17 (or 11.9 percent in this age group)
  • Treatment used by children ages 2-7 with a current diagnosis of ADHD:
    • Two out three were taking medication (62 percent).
    • Less than half received behavioral treatment in the past year (46.7 percent).
    • Nearly one out of three received a combination of medication and behavioral treatment in the past year (31.7 percent).
    • Nearly one out of four had not received any treatment (23 percent).
  • Severity of ADHD among children ages 2-17:
    • 14.5 percent had severe ADHD
    • 43.7 percent had moderate ADHD
    • 41.8 percent had mild ADHD
  • Co-occuring conditions (children ages 2-17):
    • Two out of three children (63.8 percent) had at least one co-occuring condition.
    • Half of all children (51.5 percent) had behavioral or conduct problems.
    • One out of three children (32.7 percent) had anxiety problems.
    • One out of six children (16.8 percent) had depression.
    • About one out of seven children (13.7 percent) had autism spectrum disorder.
    • About one out of 80 children (1.2 percent) had Tourette syndrome.
    • One in a hundred adolescents (1 percent) had a substance abuse disorder.
  • By race or ethnicity (children ages 2-17):
    • 8.4 percent White
    • 10.7 percent Black
    • 6.6 percent Other
    • 6.0 percent Hispanic/Latino
    • 9.1 percent Non-Hispanic/Latino

Adults with ADHD

  • 4.4 percent of the adult US population has ADHD, but less than 20 percent of these individuals seek help for it.
  • 41.3% of adult ADHD cases are considered severe.
  • During their lifetimes, 12.9 percent of men will be diagnosed with ADHD, compared to 4.9 percent of women.
  • About 30 to 60 percent of patients diagnosed with ADHD in childhood continue to be affected into adulthood.
  • Adults with ADHD are 5 times more likely to speed
  • Adults with ADHD are nearly 50 percent more likely to be in a serious car crash.
  • Having ADHD makes you 3 times more likely to be dead by the age of 45
  • Anxiety disorders occur in 50 percent of adults with ADHD.
Reference

Additude Magazine

CHADD- National Resource Center on ADHD

 

 

October is Down Syndrome Awareness Month

October is Down Syndrome Awareness Month. Down syndrome is defined as a genetic disorder caused by an extra copy of chromosome 21. I have included articles that I have posted over the years to help educate others. Please feel free to share on other social media sites.

20 facts you should know about Down Syndrome

30 Resources for World Down Syndrome Day

Down Syndrome

Down Syndrome History Timeline

Down Syndrome Organizations

Facts about Down syndrome (Infographic)

Mosaic Down Syndrome Resources

Signs of Autism and Down Syndrome

Top books on Down syndrome for parents and professionals

 

October is ADHD Awareness Month

October is ADHD Awareness Month. A month designated to bring awareness and acceptance to understanding individuals diagnosed with Attention Deficit Hyperactivity Disorder (ADHD). The first studies on ADHD began to surface in 1902 when British Pediatrician, Sir George Still, described a group of children as disobedient and uninhibited. These behaviors were thought to be based on biology since many family members exhibited similar characteristics

The following are articles on ADHD:

47 hacks people with ADHD use to stay on track

10 things ADHD is- and 3 it isn’t.

Setting students with ADHD and Autism up for success

Children with ADHD and Autism are more likely to develop anxiety

Decoding the overlap between Autism and ADHD

ADHD coping strategies you haven’t tried

 

ADHD and math teaching resources

Great websites for women and girls with ADHD

Strategies in training employees with ADHD

30 must-know ADHD teaching resources

40 facts you should know about ADHD

ADHD Adult Resources

 

Down Syndrome- Facts and Statistics

Facts and Statistics

Down syndrome is a genetic disorder that develops when there is an abnormal cell division resulting in an extra copy of chromosome 21.

Facts
  • There are three types of Down syndrome: trisomy 21 (nondisjunction) accounts for 95% of cases, translocation accounts for about 4%, and mosaicism accounts for about 1%
  • Down syndrome is the most commonly occurring chromosomal condition. Approximately one in every 700 babies in the United States is born with Down syndrome – about 6,000 each year
  • Down syndrome occurs in people of all races and economic levels
  • The incidence of births of children with Down syndrome increases with the age of the mother. But due to higher fertility rates in younger women, 80% of children with Down syndrome are born to women under 35 years of age
  • People with Down syndrome have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, Alzheimer’s disease, childhood leukemia and thyroid conditions. Many of these conditions are now treatable, so most people with Down syndrome lead healthy lives
  • A few of the common physical traits of Down syndrome are: low muscle tone, small stature, an upward slant to the eyes, and a single deep crease across the center of the palm. Every person with Down syndrome is a unique individual and may possess these characteristics to different degrees or not at all
  • Life expectancy for people with Down syndrome has increased dramatically in recent decades – from 25 in 1983 to 60 today
  • People with Down syndrome attend school, work, participate in decisions that affect them, have meaningful relationships, vote and contribute to society in many wonderful ways
  • All people with Down syndrome experience cognitive delays, but the effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses
Prevalence
  • The incidence of Down syndrome is between I in 1000 to 1 in 1,100 live birth worldwide.
  • Each year, approximately 3,000 to 5,000 children are born with Down syndrome.
  • 60-80% of children with Down syndrome having hearing issues
  • 40-45% of children with Down syndrome have congenital heart disease
Life Expectancy
  • The life expectancy increased slowly from 1900 to 1960 (by 89%) but rapidly grew from 1960 to 2007 (456%)
Life Expectancy by Race
  • Whites with Down syndrome in the United States had a median death at the age of 50 in 1997 compared to 25 years for African Americans and 11 for people of other races

 

Reference

National Down Syndrome Society

World Health Organization

 

October is Down Syndrome Awareness Month

Teaching Self-Regulation and Autism Spectrum Disorder

Many children diagnosed with autism experience high levels of anxiety which leads to difficult coping skills. Self-regulation helps children on the autism spectrum learn how to mange stress and build resilience. It is through self-regulation that students learn ways to function and manage their own stress, the following links provide information on teaching children techniques on self-regulation. These techniques are also useful for children diagnosed with ADHD and anyone with emotional difficulties and impulses.

 

30 games and activities for self-regulation

Calm down kit for older children

Emotional dysregulation and the core features of autism spectrum disorder

Emotional regulations and autism spectrum disorder

How can we help kids with self-regulation?

How to teach self-regulation

Intervention teaches emotional regulation

Lion and lamb self-regulation activity

Self-regulation in the classroom

Self-regulation/Self-Control: Tips and strategies 

Strategies for teaching kids self-regulation

Strategy helps autistic kids rein in emotions

Teaching kids to self-regulate in the classroom

Teaching kids with autism about emotions and self-regulations

Tools for teaching self-regulation and relaxation

15 Visual Schedule Resources

Imagine during the course of the day you have no idea what is expected of you. Moving from one activity to the next depending on others to inform you of your daily plans. there are many benefits to using visual schedules especially for autistic children and adults. Studies show that many people diagnosed with autism experience high levels of anxiety often caused by unstructured activities.

Visual schedules are a way to communicate an activity through the use of images, symbols, photos, words, numbers and drawings that will help a child or adult follow rules and guidelines and understand what is expected during the course of the day.

Th following are resources containing information on creating visual schedules and free printables:

8 types of visual student schedules

Building a daily schedule

Daily visual schedule for kids free printable

Examples of classroom and individual schedule and activity cards

Free picture schedule

Free visual schedule printables to help kids with daily routines

Free visual school schedules

How to templates- visual schedules

How to use visuals purposefully and effectively

Time to eat visual schedules

Using visual schedules: A guide for parents

Visual schedule for toddlers

Visual schedule resources

Visual supports and autism spectrum disorders

What is visual scheduling?

Autism in adults often accompanied by depression

Source: Spectrum
Written by: Hannah Furfaro

Depression is more than three times as common among adults with autism as it is in the general population, according to new work1. And those with average or above intelligence are more likely to be depressed than those with low intellectual ability.

The study found that about 20 percent of autistic people have a diagnosis of depression, compared with 6 percent of the general population.

The findings are based on data from a large Swedish cohort, but they are likely to apply more broadly. A large 2015 study in the United States likewise reported that 26 percent of people with autism have a depression diagnosis, compared with 10 percent in the general population2. A smaller study that same year estimated that 43 percent of autistic people have depression3. Click here to read the rest of the story

Teaching Telling Time To Special Needs Children and Adults

Teaching children and adults with disabilities to tell time is one of the many steps towards independence. While neurotypical children tend to start learning how to tell around the first grade, for children with disabilities, it may take a little longer.

When teaching a child with a disability to learn how to read, teaching time telling skills requires more practice a most. each step should be broken Use multi-sensory activities as much as you can including practices that involve tactile, visual, touch, etc. Be aware if the child has a sensory processing disorder. Look for clues of a pending meltdown as the child may begin to feel overwhelmed. Allow the opportunity to calm down before returning to the activity.

The following resources below includes worksheets, templates and interactive games.

Busy Teacher. Provides beginner steps to teaching time

Education World. Lesson plans including a bingo card and additional resources on telling time

Scholastic. A lesson plan on teaching time using an analog clock model including information on pre-instructional planning and a clock template

Scholastic. Provides 10 ways to practice time skills

Teaching Time. Site includes worksheets, interactive games and templates.

The Mad House. Blog on how to make a paper plate clock- Great multisensory activity for learners

Third Space Learning. A blog article that provides a step by step technique on teaching time including ways to reduce cognitive overload.

We Are Teachers. 5 hands on ways to teach telling time. The webpage also includes a free blank watch for children to color.

Worksheet Generator

Home School Math.Net

Telling Time Quiz

Clock Wise

Games For Telling Time

Clock Games

Just In Time

Teaching Clock

What Time Is It?

Worksheets Printables

Common Core Worksheets

Education.com

Math.aids.com

Telling Time To The Hour

Why Children With ‘Severe Autism’ Are Overlooked by Science

Published by: Spectrum
Writtten by: Alisa Opar

 

It should have been a perfect day. Lauren Primmer was hosting an annual party at her home in New Hampshire for families that, like hers, have adopted children from Ethiopia. On the warm, sunny July afternoon, about 40 people gathered for a feast of hot dogs, hamburgers and homemade Ethiopian dishes. The adults sipped drinks and caught up while the children swam in the pool and played basketball. It was entirely pleasant — at least, until the cake was served. When Primmer told her 11-year-old son Asaminew that he couldn’t have a second piece, he threw a tantrum so violent it took three adults to hold him down on the grass.
The Primmers adopted Asaminew from an orphanage in Ethiopia in 2008, when he was 26 months old. They had already adopted another child from the same orphanage in Ethiopia, and they have four older biological children. From the beginning, Primmer says, “He would only go to me, not anyone else.” That tendency, she later learned, may have been a symptom of reactive detachment disorder, a condition seen in some children who didn’t establish healthy emotional attachments with their caregivers as infants.
About a year and a half later, the family adopted three more Ethiopian children — siblings about Asaminew’s age — and he became aggressive. “When they first came, Asaminew was very abusive,” Primmer recalls. “He’d bite and scratch them.” The Primmers had to install gates on all of the children’s bedroom doors for their safety. Soon after he entered preschool, Asaminew began lashing out at his classmates, too. His teachers suggested that he be evaluated for autism. Doctors at the Dartmouth Hitchcock Clinic in Manchester, New Hampshire, diagnosed him with the condition. In addition to his violent episodes, they took note of his obsession with lining up toy cars and flushing toilets, his habit of taking his clothes off in public and his tendency to not follow rules at home or school. Asaminew is intellectually disabled and speaks in short, simple sentences. Click here to read the rest of the story

8 Proven Stategies To Attract And Retain Job Candidates On The Autism Spectrum

Published by: ERE Recruiting Intelligence
Written by: Samatha Craft

Here are several strategies for attracting and retaining autistic job candidates, based on my experience working as a job recruiter and community manager for a U.S. technology company that provides employment for individuals on the autism spectrum.

Understand autism from different perspectives

Take time to read up on autism, including cultural and historical context by respected journalist. Examples of two well-received books are: NeuroTribes: The Legacy of Autism and the Future of Neurodiversity and In a Different Key: The Story of Autism. Consider professional accounts from well-known experts in the autism field, such as psychologist Tony Attwood and job coach Barbara Bissonnette. Click here to read the rest of the story.

10 Things ADHD Is– and 3 It isn’t

Published by: Self Magazine

Written by: Christiana Stiehl

Attention-Deficit/Hyperactivity Disorder, or ADHD, is one of those mental health conditions that has become cultural shorthand in a pretty inappropriate way. Ignoring the fact that “I’m so ADHD” isn’t even grammatically correct, throwing this acronym around to flippantly explain distraction or disinterest waters down the true meaning of this extremely nuanced disorder. Not only that, it can further isolate those who do have ADHD, since they’re often already misunderstood. To dispel some of the common myths surrounding ADHD, we’ve broken down what the disorder actually is—and a couple things it isn’t, too. Click here to read the rest of the story

What is Stimming?

Published by: Medical News Today

Written by: Lori Smith

Repetitive body movements or repetitive movement of objects is referred to as self-stimulatory behavior, abbreviated to stimming. Stimming can occur in people with autism and other developmental disabilities.

Some people will stim when nervous, employing behaviors such as pacing, biting their nails, hair twirling, or tapping their feet or fingers.

In this article, we will examine why stimming occurs and the different types that occur. We will also look at what can be done if someone’s stimming behaviors are causing them problems in day-to-day life. Click here to read the rest of the story

27 Things to Know About Fragile X Syndrome

Click here to download a PDF version

  1. It is a genetic condition
  2. Males are more affected than females
  3. Seizures occur in about 15% of males and 5% of females
  4. 1/3 individuals have similar characteristics of autism
  5. Features may include long and narrow face. large ears prominent jaw and flat feet
  6. Fragile X occurs in approximately 1 in 4,000 males and 1 in 8,000 females
  7. Symptoms oftn often include mild to moderate intellectual disability
  8. Child with Fragile X tend to have short attention span
  9. Self-talk is common using different tones and pitches
  10. In 1969, Herbert Lubs first discovered an unusual markers X chromosome in association with an intellectual disability.
  11. In 1970, Frederick Hecht coined the term Fragile site
  12. In 1985 Felix F. De La Cruz outlined physical. psychological, characteristics of those
  13. It is inherited
  14. Early signs may include developmental delays such as late developmental in sitting, walking, etc.
  15. In 1943, James, Purdon Martin and Julia Bell described a pedigree of the x-linked mental disability
  16. Fragile X is caused by a mutation in a single gene.
  17. Fragile X is also called Martin-Bell Syndrome
  18. Fragile X Syndrome has been found in all major ethnic groups and races
  19. Fragile x is the most common form of inherited developmental disability
  20. Fragile X is often mis-diagnosed
  21. It is formally named Martin-Bell
  22. It was first discovered  in 1943
  23. It is found in all races and socio-economic levels
  24. It varies from borderline to severe
  25. Diagnosis of Fragile X is due through DNA test and genetic counseling
  26. Fragile X changes can occur from one generation to the next
  27. Fragile X is inherited through the mother

 

What Does OCD Look Like In The Classroom?

 


Published by: Child Mind Institute
Written by: Dr. Jerry Bubrick

For children who have obsessive-compulsive disorder, functioning in school can be complicated and very difficult. And for a teacher, it can be easy to misread the symptoms of OCD as oppositional behavior on the child’s part, or as ADHD.

But if teachers can recognize the behaviors associated with OCD, especially when a child is embarrassed and trying to hide his anxiety, they can help save him to receive treatment or make adjustments to from unnecessary struggle, and clear the way for him to learn successfully. Click here to read the rest of the story.

Children With Autism and Breaks In Routine

Published by: Kid Companion
Written by: Lorna dEntremont

A child with autism spectrum disorders (ASD) may have greater difficulty in accepting changes of routine. This may be due to their greater need for predictability or difficulty when a pattern of routine is disrupted. Vacations, family visits, or field trips can be over-stimulating and distressing for the child with autism. If this is the case with your child, prepare BEFORE a scheduled change in routine occurs like before school breaks and for summer vacation. Click here for the rest of the story

Setting Students With ADHD Up for Success

Published by: Eutopia
Written by: Nina Parrish

Teachers often come to the classroom with an unclear understanding of attention-deficit/hyperactivity disorder, and they are rarely provided with strategies that detail how to work with students who have been diagnosed with ADHD, even though such students make up an increasingly large number of their students—11 percent and growing as of 2011, according to data gathered by the Centers for Disease Control and Prevention.

As a special education teacher and tutor who coaches struggling students (many with ADHD), I have found several classroom strategies to be effective. Click here for the rest of the story

Emergency Plans Need to Be in Effect for Students with Disabilities

Published by: Cerebral Palsy News Today

Written by: Jessica Grono

School violence, unfortunately, is on the minds of thousands of people. Protection of our children is extremely important, and it is imperative to find the right plan to keep everyone safe. As more schools implement drills and plans to protect children and staff, children with disabilities aren’t included in the planning. How can we, as a nation, fix this huge safety dilemma for students with disabilities? Click here to read the rest of the story

Autism and Post-Secondary Education

According to the U.S. census, over a half million autistic students will turn 18 over the next decade/ Further studies show that many students diagnosed with autism are not prepared for the transition. Some and their families are opting towards a college education. More colleges are offering support services to autistic students including social, academic, and life skills.

The following resources provide information and articles on autism and college preparation:

11 tips for students with autism who are going to college (KFM)

20 great scholarship for students on the autism spectrum

College Autism Network (CAN)

College planning for autistic students (USC Marshall)

College students with autism need support to succeed on campus (Spectrum)

Families: Learn how to find autism-friendly colleges (U.S. News)

Going to college with autism (Child Mind Institute)

Helping students with autism thrive: College life on the spectrum (Madison House Autism Foundation)

Neurodiversity and autism in college (Psychology Today)

The transition to college can be tough, even more so if you have autism (Washington Post)

Down Syndrome Timeline

PDF version of article

According to the CDC, Down Syndrome is the most common chromosomal disorder. Each year 6,000 babies are born with Down syndrome which is estimated to be about 1 in every 700 babies. Here is a timeline showing Down syndrome progression over the years:

Down Syndrome Timeline

1866- British Physician John Langdon Down, first described the genetic disorder as “Mongoloid” based on patients similar characteristics.

1876- An initial association between premature “senility” and Down syndrome is discovered.

1929- Life expectancy is approximately 9 years of age

1932- Abnormal distribution of chromosomes was first suggested as the cause of Down syndrome.

1946- Life expectancy is approximately 12 years of age.

1948- Evidence between Alzheimer’s and Down syndrome is first published.

1959- Dr. Jerome Lejeune discovered Down syndrome is the result of an abnormality in the chromosomes.

1959- The term Trisomy 21 is used on the medical community to describe Down syndrome.

1960- Researchers discover a type of trisomy called translocation

1961- Researchers discover a type pf trisomy called Mosaicism. 

1965- The World Health Organization (WHO) accepts the name Down syndrome as the standard name to use.

1970- Life expectancy is approximately 25 years of age.

1976- Amniocentesis comes into common use in the United States

1987- A gene associated with Alzheimer disease is discovered on Chromosome 21

1994- CDC announces he prevalence of Down syndrome from 1893-1990 was 1 in 1087.

1997- Life expectancy is approximately 49 years of age.

2006- Life expectancy is approximately 60 years of age

Reference

Centers for Disease Control and Prevention

Global Down Syndrome Foundation

27 Facts On Stimming You Should Know

Click here to download PDF version of article

  1. “Stimming” is short for self-stimulatory behavior. (or stereotypical).
  2. It is common among people with developmental disabilities such as intellectual disabilities and Fragile X Syndrome.
  3. It is also prevalent among people on the autism spectrum.
  4. In fact in many cases, it is part of the diagnosis due to the repetition of stimming.
  5. Stimming is often used as a means to self-regulate, self-calm and for self-expression.
  6. The movements are repetitive and are used to self-stimulate the 7 senses.
  7. It is often described as a repetitive motor behavior that can disrupt academic and social and other activities.
  8. One of the theories behind stimming is that beta-endorphrins are released in the brain casuing an euphoric feeling which is generally a response to pain.
  9. Stimming behavior. based for self-soothing and to help a child or an adult regain emotional balance.
  10. Sensory Overload. Too much sensory information can lead to stress, anxiety and eventually a meltdown.
  11. It is observed in 10% of non-autistic children.
  12. common forms of stimming include spinning, hand-flapping and body rocking
  13. Benefits of stimming include the increased ability to remain calm, reduce meltdowns, and increased focus and time management skills.
  14. Love ones and society may consider stimming socially inappropriate
  15. Autistic people should be allowed to stim as much as needed
  16. Autistic people may bebefit from stress balls, fidget toys, and chewy jewelry.
  17. Stimming helps to relieve anxiety.
  18. Most people in the autistic community oppose attempts to reduce or eliminate stimming
  19. This is due to understanding that stimming is an important tool for self-regulation.
  20. Stimming can help block out excess sensory input
  21. Stimming helps provide extra sensory when needed
  22. repeated banging of the head actually reduces the overall sensation of pain.
  23. Visual. Repetitive movements such as fluorescent lights which tend to flicker.
  24. Smell (Olfactory) Includes repetitive behavior in licking, tasting objects,
  25. Tactile. Skin-rubbing, hand movement, and repeatedly grind teeth
  26. Vestibular. Moving body, rocking back to front, spinning, jumping and pacing.
  27. Vigorous exercise reduces the need to stim.

Picture

 

Reference

Autism Asperger’s Digest

Child Mind Institute

Diagnostic and Statistical Manual of Mental Disorders, (2013). APA 5th Edition

Science Daily

How To Organize Clothing In A Residential Setting

Organizing clothes in a regular household can be challenging. Imagine striving to clean, organize and store clothes when it is 12 people living under one roof! This can often lead to clothing getting mixed up causing further confusion.

There are a number of steps you can take that will help to alleviate this often challenging task:

  1. Create an inventory list for each person. This list should include a tri-annual schedule when clothing are sorted. Choose a time in the spring, fall and winter when to sort out clothing. An inventory list should also list the types of clothing and the number of items for each. Below is an example of an inventory.  You will find a free template here: clothing_inventory
  2. Spend a day with each person and go through the closet taking everything out. Sort the clothing and throw out anything that is torn or broken. People may have a favorite item they might like to wear. Look to see if it can get either fixed or replaced
  3. Once clothing is organized, choose a day with the person and determine a laundry day. While it can be easier to try to do wash clothing for several people at a time, you risk the chance of mixing up clothing.
  4. Always make sure if possible, the person participates as much as they can in this household task. It encourages independence and individuality at the same time.

I like to hear tips you use for clothing organizing for multiple people.

 

 

What is Prader Willi Syndrome?

May is Prader Willi Syndrome Awareness Month

Click here to download PDF version

What Exactly is Prader Willi Syndrome?

Prader Will Syndrome is a genetic disorder resulting from an abnormality of chromosome 15 such as a loss of active genes. In most cases (70%) the paternal copy is missing and in some cases (25%), will exhibit two maternal copies of Chromosome 15. The genetic disorder was initially described by John Langdon Down and was named after Drs. Andrea Prader, Heimrich Willi and Alexis Labhart in 1956 and is found in 1 in 20,000 births affecting both sexes. It is also the most common recognized genetic form of obesity.

During childhood, individuals diagnosed with Prader-Willi Syndrome tend to eat constantly leading to obesity and for some, type 2 diabetes will develop. This complex disorder affects appetite,growth, metabolism, cognitive functioning and behavior.

Signs and Symptoms

People with Prader-Willi Syndrome (PWS) tend to never feel full (hyperphagia) which leads to constant eating. Signs in infants include, problems with strength, coordination and balance. Often there are feeding problems at birth, delayed speech and gross motor development. Children may be born with almond-shaped eyes and undeveloped sexual organs. Cognitive disabilities and developmental delays may also be present.

As children began to grow, constant craving for food often leads to behavior challenges including hoarding food, eating frozen food and food left in the garbage causing controlling or manipulative behavior.

Medical Issues

Medical concerns may include the following:

  • Sleep Apnea
  • Respiratory/Breathing
  • High pain tolerance
  • Severe stomach illness
  • Difficulty with vomiting reflex
  • Excessive appetite
  • Binge eating
  • Eye problems
  • Choking
  • Hypothermia
  • Leg Swelling
  • Consuming unsafe items
  • Negative reactions to medications
Teaching Strategies

Most people diagnosed with Prader Willi Syndrome fall between the moderate and mild levels of an intellectual disability meaning there may be challenges in the area of reasoning, problem-solving, planning, judgment, abstract thinking and learning.  A child or student functioning at the moderate level may lag behind their peers in the area of language and pre-academic skills. Adults may function at an elementary school level and will require support in both work and daily living skills. For children and students functioning at the mild level, there may be difficulties in the area of reading, writing, math and money management. as children grow into adults, there may be a need for support in abstract thinking, executive functioning (planning, prioritizing and flexibility) as well as short-term memory and money management.  Teaching strategies should focus on the following:

  • Aggression management
  • Anger management skills
  • Anxiety management
  • Emotional regulation
  • Personal safety
  • Social skills

Keep in mind that many children and adults diagnosed with Prader-Willi Syndrome may have additional challenges in learning due to medication. Some people take medication such as a growth hormone therapy which can cause fatigue.  The following teaching strategies may also be useful when teaching a student diagnosed with Prader Willi Syndrome:

  • Use a multi-sensory approach. This involves a teaching style that includes auditory, visual, tactile, spatial, and kinesthetic (hands on activities)
  • Break learning into small steps. Check for understanding by asking the student to repeat back to you.
  • Teach a skill at least 2-3 times a day. This will help the student retain information.
  • Managing perseveration. Set up a rule where the student can a question no more than 3 times. After the third answer. Ask the student to repeat the response back to you.
Adult Day Program/Residential Setting

Most people with Prader Willi Syndrome due to their cognitive level, will be provided services in either a day habilitation program or live in a community providing residential services. Once a person becomes an adult, it becomes a little bit more tricky on maintaining issues especially behavioral. For instance, while living at home, a parent has the right to lock the refrigerator which is often suggested by experts. However, this becomes a violations of a person’s rights once they reach adulthood. Typically, committees meet to help make the right decisions along with family members and the adult diagnosed with Prader Willi Syndrome. Here are some suggestions.

  • Allow the person to have control of what is important to them. Have discussions on nutrition and staying healthy. Check to see if this may be an appropriate topic the person may want to improve by adding to their person-centered plan. Hold discussion groups in both day programs as well as in residential to discuss various topics on health and nutrition including holding classes on mindfulness and meditation.
  • Trips to shopping malls can be very tricky. Try to avoid mall’s eatery and plan if it is a group trip to have people bring their own lunches.
  • When teaching, allow time before giving additional prompts
  • Give praise as much as you can when it is appropriate.
  • Use visuals as much as you can including graphics and pictures.
Staff Training

Staff training on Prader-Willi Syndrome should include the following topics:

  • Overview of Prader-Willi Syndrome including, causes, symptoms, characteristics, nutrition, and self-regulation.
  • Impact on the family including the stresses families experience.
  • Teaching techniques including problem-solving, forward shaping and role-modeling.
  • Individual rights
  • Managing behavior and crisis intervention
  • Community inclusion trips and activities
Resources

Foundation for Prader-Willi Research

Prader-Willi Syndrome Association (USA)

Prader-Willi Syndrome (Mayo Clinic)

Reference

Prader-Willi Syndrome Association

 

Global Developmental Delays

Global developmental delays describes when children do not meet their developmental milestones. Generally from the age of 2 months to 5 years old. Although each child is different in their development, milestones are established in order to determine functional skills on age specific tasks.

Delays can occur in the following area:

Gross motor- Involves the use of larges muscle groups such as walking, crawling and standing. May impact children diagnosed with cerebral palsy.

Fine Motor- Small movement in the fingers used for drawing, painting, buttoning, coloring, and shoe tying.

Speech and language delay- A delay in language may be due to motor-oral problems.

Cognitive- Delays can be caused by, infections, ,metabolic, toxic, trauma, and chromosomal abnormalities (Down syndrome, Turner syndrome, etc.)

Social/Emotional Skills- Shows signs of delay in responding and interacting with other people. Common cause may be autism spectrum disorder

The following articles provide information on understanding global developmental delays:

6 things I’d tell the parent who just heard the word ‘Global Developmental Delay’

Causes and symptoms of developmental delays

Developmental delays and disabilities

Global Developmental Delay

How a child develops

Recognizing developmental delays in your child

Types of developmental delay in children

Understanding developmental delays

What causes developmental delay?

What you need to know about developmental delays

Anxiety On The Spectrum

Anxiety is one of the co-occurring  disorders that affect autistic children. A study published by the Journal of Child and Family Studies found that autistic children had higher anxiety levels compared to neurotypical children. It is estimated that 40% of autistic teens display signs and symptoms of anxiety.

Why Autism and Anxiety?

There are many reasons anxiety affects autistic children in large numbers. Bill Nason, moderator of the Facebook page, Autism Discussion Page and psychologist, explains that daily experiences that impact their nervous system including sensory, cognitive, social, and emotional vulnerabilities leave autistic children and teens with daily high levels of stress. He explains what comes naturally for neurotypicals, is hard work for them placing their nervous system on high alert even during its resting state. High levels of anxiety make take the form of mood swings, rigid and inflexible thinking and obsessive compulsive behavior.

What are the signs of anxiety?
Physical Signs

Complains about feeling sick

Complains about headaches

Difficulty sleeping

Fidgets and spins

Worrying

Worries about making a mistake

Difficulty in performing in exams

Is afraid of being placed in a new situation

Social

Apprehensive of meeting new people

Displays difficulty in joining new groups

Avoids interacting with peers

Worried about being laughed at.

Types of Anxieties

Anxiety of uncertainty- fear of anything new and unfamiliar
Social anxiety- difficulty interacting with others during social events
Sensory overload- Becomes anxious in settings that present strong sensory stimulation
Generalized  anxiety- non-specific ongoing pervasive anxiety

Strategies for Reducing Anxiety
  1. Rest
  2. Exercise or physical activity
  3. Allow time to participate in a favorite activity
  4. Self-stimulation can be used for calming purpose
  5. Relaxation techniques such as mindfulness and meditation
  6. Build structure into daily routines
  7. Review the day including what is expected of them
Additional Resources

5 ways to help reduce anxiety in children with autism

10 tips to help calm anxiety in kids with autism

Adults with autism feel frequent, lingering anxiety

Anxiety in autistic adults

Classroom ideas to reduce anxiety

Managing anxiety in children with autism

Unmasking anxiety in autism

The essential guide to anxiety and autism

What anxiety treatment works for people with Autism?

What triggers anxiety for an individual with ASD?

 

Updated on October 13, 2018

 

 

Classroom Accommodations for Autistic Students


A few weeks ago, I had the opportunity to speak to a parent who voiced her frustration with her daughter’s school. Although her daughter is diagnosed with autism, she falls on the mild range of the spectrum meaning her deficits are ignored. This becomes challenging for a teacher who may not recognize the signs and symptoms of an autistic child.

Girls, in particular, often develop the ability to disappear in a large group. Imagine the amount of energy it takes to pretend you hold the same characteristics of others.  This leads to both depression and anxiety in children with autism. There are also sensory challenges a student with autism may face including auditory, visual and tactile.

Reading non-verbal cues forces a child and even some autistic adults to work harder everyday which causes exhaustion and can possibly lead to anxiety.

There are a number of ways to accommodate  a student with autism. If you are a teacher, read as much information as you can on autism. each child is different so it will help to get feedback from parents who can help provide the right accommodations.

The following articles provide great information on both modifications and accommodations  which can be put into the child’s IEP:

10 tips for making middle-school work for kids with autism

14 possible IEP accommodations for children with autism/ADHD

20 classroom modifications for students with autism

23 classroom accommodation suggestions for kids with autism and Asperger’s syndrome

Accommodations and supports for school-age students with autism

Asperger syndrome/HFA and the classroom

Common modifications and accommodations

IEP considerations for students with autism spectrum disorder

Recommendations for students with high-functioning autism

Supporting learning in the student with autism

Autism Timeline: A History of Autism

Click here to download the article

In the 110 years since Swiss psychiatrist Eugen Bleuer coined the term autism, much has changed over the years. The journey of understanding autism continues to grow and while the autism has changed over the years, there are still many more things to discover. Hopefully we are moving from awareness to getting to a place of simply accepting people who bring special gifts to the world.

1908- Swiss psychiatrist, Eugene Bleuer is the first to use the autism to describe individuals with schizophrenia who lost contact with reality.

1912- Dr. Bleuler publishes “Das Autistische Denken” in a journal of psychiatry and presents his thoughts on how a person with autism experiences the world.

1938- Dr. Hans Asperger presents a lecturer on child psychology. He adapts Bleuler’s term “autism” and uses the term “autistic psychopathy” to describe children showing social withdrawal and overly intense preoccupations.

1938- Beamon Triplett writes a thirty-three page account of his 4 year- old Donald’s unusual behavior and sends it to Leo Kanner.

1943- Dr. Leo Kanner describes a childhood disorder involving social and language impairments and the presence of restricted or repetitive behaviors. The account of 11 children leading to a distinct syndrome.

1944- Dr. Hans Asperger reports on 4 children with a pattern of behavior he terms autistic psychopathy- behaviors include reduce empathy, difficulties with forming friendships, impairments in the ability to maintain reciprocal conversations.

1952- The first edition of DSM (Diagnostic and Statistical Manual) is published.

1959- LSD is used as treatment for autistic schizophrenic children.

1962- The National Autistic Society was created- The first autism organization.

1965- National Society for Autistic Children was founded.

1966- South African psychologist, Victor Lotter publishes the first prevalence study on autism in England.

1966- 4.5 in 10,000 are diagnosed with autism in the United States.

1966- Childhood autism rating scale introduced.

1967- Bruno Bettlheim publishes infantile autism and the Birth of Self becomes bestseller; blames mothers for autism.

1969- Dr. Kanner exonerates parents of responsibility for their children.

1970- Lorna Wing uses the term autistic spectrum to describe a concept of complexity rather than a straight line from severe to mild.

1972- Dr. Eric Schopler founds Division TEACCH  at the University of North Carolina.

1977- National Society for Autistic Children added sensory processing as one of the definitions.

1979- Autism spectrum first used by Lorna Wing and Judith Gould

1980- The prevalence is estimated 4 in 10,000

1980- Autism added to DSM-III

1980- Autism is listed as a mental disorder for the first time in the DSM.

1986- Temple Gradin publishes Emergence: Labeled Autism

1988- The movie Rainman popularized and awareness of the disorder increases among the general public.

1991- Sally Ozonoff suggested executive functioning impairs individuals with autism.

1994- The American Psychiatric Association adds Asperger’s disorder to DSM.

1996- Australian sociologist, Judy Singer coins the term Neurodiversity

1998- Andrew Wakefield reports an association between autism and MMR and bowel disease.

2000- 1 in 50 children according to the CDC are diagnosed with autism

2006- Autistic Self-Advocacy Network founded. A non profit organization run by and for autistic people.

2009- 1 in 110, children according to the CDC are diagnosed with autism

2012- 1 in 88 children are diagnosed with autism.

2013- Asperger’s disorder is dropped from the DSM-5

2014-1 in 68 children in the U.S. have autism.

 

Children with ADHD and Autism Are More Likely To Develop Anxiety

Website: News Medical Life Sciences

The study, which compares comorbidities among patients with ASD and ADHD, and ASD alone, is one of the largest of its kind.

A team of researchers from the Kennedy Krieger Institute used the data from a cross-sectional survey of children aged between six to seventeen years old with ASD. The study included 3,319 children, 1,503 of which had ADHD and were monitored by the Interactive Autism Network between 2006 and 2013. Click here to read the rest of the story

25 Facts About Cerebral Palsy That You Did Not Know

Click here to download the article

How much do you really know about cerebral palsy? Here are 25 interesting facts about cerebral palsy:

Is a group of neurological disorders that affects body movement and muscle coordination.

Is caused by damage to the brain which controls movement and balance

Affects the motor area of the brain that directs muscle movement.

The symptoms of cerebral palsy differ in type and severity in each person.

Is the leading cause of childhood disabilities.

Cerebral Palsy is not progressive meaning it does not get worse overtime.

Cerebral Palsy prevalence is 3.3 children per 1000.

There is no cure for cerebral palsy

Cerebral Palsy is not contagious

Risk factors for cerebral palsy include pre-mature birth, infections during pregnancy, exposure to toxic substances and mothers with excess protein in the urine or a history of having seizures.

Cerebral Palsy can also be caused by complicated labor and delivery due to disruption of blood and oxygen to the brain(hypoxia) and babies in a breech position (feet first).Spastic cerebral palsy is the most common type affecting 80% of people with cerebral palsy.

Ataxic cerebral palsy affects balance and depth perception

There are more boys born with cerebral palsy than girls.

Stroke in a baby or child less than the age of 3 results in cerebral palsy.

One in nine with cerebral palsy have features of autism

One in three children with cerebral palsy cannot walk

One in four children with cerebral palsy cannot feed themselves

There are 17 million people with cerebral palsy worldwide.

58.2% of children with cerebral palsy can walk independently, 11.3 walk using a hand-held mobility device and 30.6% have limited or no walking ability

Speech and language disorders are common in people with cerebral palsy

Pain is common among children with cerebral palsy

Harry Jennings, an engineer built the first modern folding wheelchair

Sir William Osler wrote the first book on cerebral palsy

Dr. Sigmund Freud was the first to state that cerebral palsy might be caused by abnormal development before birth.

Cerebral palsy doesn’t necessary mean learning difficulties.

References

www.cdc.gov/ncbddd/cp

http://www.cerebralpalsy.org/

https://www.ninds.nih.gov/Disorders/

30 Resources for World Down Syndrome Day

Today is World Down Syndrome Day. A campaign designed to create a single voice for advocating for the rights, inclusion and well-being of people with Down Syndrome. Resources on this page include information on inspiring articles and facts on people with Down Syndrome.

Post From Special Needs Resource Blog:

20 Facts You Should Know About Down Syndrome

Down Syndrome Characteristics

Facts About Down Syndrome (Infographic)

Mosaic Down Syndrome Resources

Signs of Autism and Down Syndrome

Top Books On Down Syndrome For Parents and Professionals

Down Syndrome Organizations
Band of Angels: http://www.bandofangels.com/-

Established in 1994, Band of Angels provides support for individuals with Down Syndrome and their families. The website offers links on Down Syndrome support groups and a litany of topics including, adoption, autism and education.

Down Syndrome International https://www.ds-int.org/

A U.K. based international organization comprising a membership of individuals and organizations from all over the world. Disseminates information on Down Syndrome including prenatal diagnosis, early intervention, education, medical, health, employment, aging and human rights. Down Syndrome International also promoted World Down Syndrome Day (March 21) as a day dedicated to people with Down Syndrome.

Global Down Syndrome http://www.globaldownsyndrome.org/

Provides fundraising, education and governmental advocacy for the Linda Crnic Institute for Down Syndrome. Resources available on the website include, information on research, medical care and facts on Down Syndrome.

International Down Syndrome Coalition: http://theidsc.org/

Dedicated to helping and advocating for individuals with Down syndrome from conception and throughout life. Offers support to parents who are new to the Down syndrome diagnosis by connecting parents to each other.

National Association for Down Syndrome http://www.nads.org/

NADS is the oldest organization in the United States serving individuals with Down syndrome and their families. Also provides families with information and resources that will enable them to access appropriate services and educates the public about Down syndrome.

National Down Syndrome Congress http://www.ndsccenter.org/

The purpose of the NDSC is to promote the interests of people with Down syndrome and their families through advocacy, public awareness, and information. When we empower individuals and families from all demographic backgrounds, we reshape the way people understand and experience Down syndrome.

National Down Syndrome Society http://www.ndss.org/

NDSS provides resources to new and expectant parents and offers a toll-free helpline and email services. NDSS also focuses on transitions , wellness and education

 

The following are articles highlighting stories around the country on Down syndrome:

Clemson Student With Down Syndrome To Compete In Pageant

Couple with Down Syndrome Celebrate 22 Years of Marriage

Displaying The Myths of Down’s Syndrome

First Person With Down Syndrome Finishes Local Half-Marathon

Funny Down Syndrome Ad Will Change The Way You Feel about “Special Needs”

Gerber Baby 2018: Lucas Warren is the company’s first spokesbaby with Down Syndrome

Get To Know Madeline Stuart, The World’s First Supermodel With Down Syndrome

Swimmers with Down Syndrome Find Empowerment in the Pool

Walgreens Features Model With Down Syndrome

Woman With Down Syndrome Starts Her Own Bakery

Inspiring Video’s

Decoding The Overlap Between Autism and ADHD

Written by: Ricki Rusting

Published By: Spectrum

Every morning, Avigael Wodinsky sets a timer to keep her 12-year-old son, Naftali, on track while he gets dressed for school. “Otherwise,” she says, “he’ll find 57 other things to do on the way to the bathroom.”
Wodinsky says she knew something was different about Naftali from the time he was born, long before his autism diagnosis at 15 months. He lagged behind his twin sister in hitting developmental milestones, and he seemed distant. “When he was an infant and he was feeding, he wouldn’t cry if you took the bottle away from him,” she says. He often sat facing the corner, turning the pages of a picture book over and over again. Although he has above-average intelligence, he did not speak much until he was 4, and even then his speech was often ‘scripted:’ He would repeat phrases and sentences he had heard on television. Read the rest of the story here

Cerebral Palsy Organizations You Should Know About

Cerebral Palsy describes a group of permanent disorders of the development of movement and posture. The motor disorders of cerebral palsy are often accompanied by disturbances of sensation, perception, cognition, communication and behavior, epilepsy, and by secondary musculoskeletal problems.

According to the Centers for Disease Control and Prevention (CDC), cerebral palsy is the most common motor disability in childhood caused by damage to the developing brain that affects a person’s ability to control his or her muscles. CDC estimates that about 1 in 323 children are diagnosed with cerebral palsy annual.

The following organizations provide resources on their websites including fact sheets, resources and information:

Cerebral Palsy Foundation

Funds cerebral palsy research in the United States, (CPF) promotes the delivery of current research, best practices and technology to people with cerebral palsy and their support system. The mission includes transforming lives through research, innovation and collaboration.

Children’s Hemiplegia and Stroke Association

Helps children who have survived an early brain injury that results in hemiplegia (weakness on one side of the body).

Make LemonAide Foundation

The Make Lemon Aide Foundation is a non-profit organization designed to improve the lives of people with cerebral palsy by raising awareness, funding research and training therapist.

Reaching For The Stars

Founded in 2005, RFTS is the largest pediatric cerebral palsy non-profit foundation in the world led by parents with a focus on the prevention, treatment and cure of cerebral palsy

United Cerebral Palsy

UCP educates, advocates and provides support services to ensure a life without limits for people with a spectrum of disabilities. UCP provides services and support to more than 176,000 children and adults through its 68 affiliates around the country.

CP Daily Living

An educational resource website and Facebook page designed to give families and caregivers a central place for practical information and resources.

Cerebral Palsy Alliance

A non-profit organization based in Australia. Provides services to help children and adults living with neurological and physical disabilities.

National Institute of Neurological Disorders and Stroke

NIDS mission is to seek fundamental knowledge about the brain and nervous system and to use that knowledge to reduce the burden of neurological disorder. The website provides patient and caregiver education on cerebral palsy including an informational page.

100 Things To Know About Autism Spectrum Disorder in 2018

Guest Post: Action Behavior Centers

  1. Autism Spectrum Disorder (ASD) represents a group of developmental disorders: autistic disorder, Asperger’s syndrome, pervasive developmental disorder not otherwise specified (PDD-NOS), and childhood disintegrative disorder.
  2. According to the Centers for Disease Control and Prevention (CDC), 1 in 68 individuals are affected by ASD.
  3. Autism Spectrum Disorders can be diagnosed as early as 18 months to 2 years of age.
  4. Although reliable diagnoses can be given at 18 months to 2 years, the average child isn’t diagnosed with autism until 4 years of age.
  5. Scientists are discovering more innovative ways to diagnose autism. In 2017, a team of researchers were able to use brain scans and artificial intelligence to predict which 6-month old infants would go on to be diagnosed with ASD. Impressively, they performed at a 96 percent accuracy rate.
  6. No case of autism is exactly the same as another. Each person on the Spectrum is a unique individual.
  7. People of all races, ethnicities, and socioeconomic groups are affected by Autism Spectrum Disorder.
  8. Individuals on the Autism Spectrum range from having very mild symptoms to very severe developmental delays.
  9. Autism is about 4.5 more common in males – data shows that 1 in 42 boys have autism compared to 1 in 189 girls.
  10. New Jersey has the highest rate of autism in the U.S., with 1 in 28 boys being affected.
  11. In autism terminology, milder cases of the disorder are said to be in “high functioning” individuals while more severe cases are said to be in “low functioning” individuals.
  12. Autistic disorder typically describes those who are on the “low functioning” end of the Spectrum.
  13. Individuals with autistic disorder often struggle with severe deficits in speech, communication, social skills, motor functioning, and adaptive skills.
  14. Adaptive skills are the practical, day-to-day skills needed to live independently: bathing, getting dressed, brushing teeth, feeding oneself, and more.
  15. Asperger’s syndrome typically describes those who are on the “high functioning” end of the Spectrum.
  16. Children and adults with Asperger’s syndrome commonly struggle with social interactions or restricted interests, but don’t usually have difficulties with language or cognitive development.
  17. Sometimes referred to as ‘atypical autism,’ PDD-NOS is often thought of as being in between Asperger’s syndrome and autistic disorder. It’s common for those with PDD-NOS to struggle with communication, social behavior, and repetitive movements.
  18. Childhood disintegrative disorder, also known as disintegrative psychosis, is the rarest of the Spectrum disorders. It’s characterized by severe development deficits, often in children who were developing normally but then quickly regressed between ages two and four.
  19. These disorders were all placed under the umbrella term of Autism Spectrum Disorder in the DSM-5 (Diagnostic and Statistical Manual of Mental Disorders).
  20. Restrictive and repetitive behaviors are a common sign of ASD. These might include hand flapping, rocking back and forth, and fixations on certain objects.
  21. It’s common for individuals on the Spectrum to have difficulties with language or be completely nonverbal.
  22. Children with Autism Spectrum Disorder might show typical language development and then quickly lose their ability to speak in words or phrases. This is called regression.
  23. Many children who are nonverbal at the age of four go on to overcome their severe language delays, according to a large study of 535 nonverbal children with autism.
  24. Children with autism often struggle with transitions. A slight change in routine can lead to meltdowns or temper tantrums.
  25. Echolalia describes a behavior involving repetition of words or phrases. It’s a common sign of Autism Spectrum Disorder.
  26. Children on the Autism Spectrum often avoid eye contact.
  27. Some children with autism may engage in aggressive or self-injurious behaviors, like head banging against walls or floors when upset.
  28. Sensory sensitivities to lights, sounds, and textures are commonly seen among those with autism.
  29. Many people with autism are extremely gifted in certain areas, like mathematics, music, or art.
  30. Micah Miner, a young gymnast with autism, is a prime example of this. By the time he was nine years old, Micah competed in the gymnastics National Championship for the third time.
  31. Epilepsy is common among individuals with Autism Spectrum Disorder, seen in up to a third of the autism population.
  32. April is Autism Awareness Month.
  33. Back in 2007, the United Nations named April 2nd as international Autism Awareness Day.
  34. To help raise autism awareness, Autism Speaks launched the Light It Up Blue campaign.
  35. To show support for autism, landmarks like the White House, the Empire State Building, the Great Pyramid of Giza and more will light up blue on April 2nd.
  36. There’s no single cause of autism.
  37. Some of the high-risk factors for autism include genes and genetic mutations, chromosomal conditions, family factors, environmental influences, prenatal influences, and birth complications.
  38. There are treatments that can help ease the symptoms of ASD, but there is no cure for autism.
  39. Applied Behavior Analysis therapy is the leading treatment option for young children on the Spectrum.
  40. Applied Behavior Analysis (ABA) involves figuring out the motivation behind certain behaviors, and then applying this to reduce undesirable behaviors and increase positive ones.
  41. Decades worth of scientific research shows that ABA therapy is effective at helping children with autism make significant strides to overcome their developmental delays.
  42. One of the main techniques used in ABA is DTT (discrete trial training). Basically, DTT breaks down tasks into small components. Children build up skills by tackling each smaller component one-by-one.
  43. Another main technique used in ABA is NET (natural environment training). Children might work on many of the same goals as in DTT, but in a more natural play environment.
  44. Generalization is a common term used in ABA to describe a child’s ability to naturally implement behaviors and skillsets in a variety of settings.
  45. ABA therapy is endorsed by the U.S. Surgeon General, the American Academy of Pediatrics, the National Institute of Mental Health, and the Autism Society of America.
  46. The earlier ABA therapy is started, the better the outcome. Children who start receiving ABA therapy at 2 years old make more significant changes than those who start ABA at later ages, according to research.
  47. Ole Ivar Lovaas is known as the pioneer of Applied Behavior Analysis.
  48. ABA therapy used to be seen as controversial due to aversive therapy techniques. However, nowadays, there are no aversive procedures used in ABA.
  49. ABA therapy focuses largely on positive reinforcements. ABA therapists will reinforce desirable behaviors with a child’s favorite toys, snacks, and social praise.
  50. ABA therapy is an all-encompassing approach to overcoming the deficits associated with autism. Target areas of ABA therapy include speech, nonverbal communication, social skills, play skills, adaptive skills, toilet training, food therapy, and much more.
  51. Board Certified Behavior Analysts (BCBAs) are Master’s level health practitioners. They create the child-specific treatment plans implemented in ABA therapy centers.
  52. ABA therapists provide one-on-one therapy for children in ABA autism facilities.
  53. Registered Behavior Technicians (RBTs) are ABA therapists who have gone on to complete 40 hours of training and pass the RBT exam.
  54. Other autism therapies include speech therapy, occupational therapy, physical therapy, art therapy, and music therapy.
  55. There is currently no scientifically proven link between autism and vaccines.
  56. Individuals with autism are particularly vulnerable to being bullied. Studies have found that over 60 percent of children on the Spectrum have experienced bullying.
  57. Data shows that the most severe bullying tends to occur among children in 5th to 8th
  58. There are a number of tips recommended by autism experts to help a child on the Spectrum who is being bullied, including identifying emotions and creating bully-proofing plans. See them here.
  59. Unemployment rates are a big issue in the autism community. A report out of the A.J. Drexel Autism Institute found that a third of young adults with autism didn’t have a job or educational plans.
  60. Integrate Autism Employment Advisors is a program that helps adults on the Spectrum lock down jobs through job coaching boot camps and networking opportunities. The organization also reaches out to employers to encourage more hiring of autistic individuals.
  61. Rett’s Syndrome is often confused with Autism Spectrum Disorder. Rett’s Syndrome, a rare neurological disorder that mainly affects girls, is characterized by a rapid loss of speech, coordination, and use of the hands.
  62. Research has shown that parental interactions with babies can ease the signs of autism as the baby progresses to toddler age.
  63. Temple Grandin, one of the most prominent voices in the autism community, didn’t speak until she was three and a half years old.
  64. Temple Grandin went on to become an author and speaker on autism and animal behavior, as well as a professor of Animal Science at Colorado State University. Many people view her as showing the world the true potential of those on the Spectrum.
  65. Temple Grandin has inspired many with her well-known quote, “Different, Not Less.”
  66. Some other well-known people considered to be on the Spectrum include Susan Boyle, John Elder Robinson, Daryl Hannah, and Andy Warhol.
  67. Technology can be a huge help for individuals with autism who struggle with communication. There are a number of iPad apps designed to help nonverbal children communicate their wants and needs.
  68. There are also daily scheduling apps for iPads to help ease the anxiety associated with transitions.
  69. Some common autism assessments for an autism diagnosis include M-CHAT (Modified Checklist for Autism in Toddlers), CARS (Childhood Autism Rating Scale), ASQ (Ages and Stages Questionnaire), and ADOS-2 (Autism Diagnostic Observation Schedule – 2nd edition).
  70. The ADOS-2 is largely seen as the gold standard of diagnostic assessments for autism.
  71. Autism Spectrum Disorder can be diagnosed by developmental pediatricians, pediatricians, neurologists, and psychologists.
  72. Autism is becoming more included in pop culture, with shows like Atypical and The Good Doctor making their ways to Netflix and ABC.
  73. In April of 2017, Sesame Street debuted Julia: a new four-year-old character with autism. The goal was to familiarize children with the differences they might notice in their classmates who have autism – and to know that different is okay.
  74. Some people believe that autism is the result of bad parenting or child neglect. This is not the case.
  75. It’s common for children with ASD to only like eating two or three foods. Therapists can work through a slow process of introducing new textures and foods to build up to a more nutritious diet.
  76. The autism community has a strong online presence. Many parents, therapists, and individuals on the Spectrum run blogs to educate and connect with others. Check out some of the most outstanding autism blogs here.
  77. Weighted blankets can be an anxiety-reducer for some kiddos on the Spectrum. Weighted blankets provide a gentle pressure that eases the sensory issues associated with ASD.
  78. Sensory swings provide a number of benefits. They can encourage motor planning, balance, and core stability.
  79. The largest-ever study on twins and autism found that if one identical twin has autism, there is a 76 percent chance that the other identical twin will also have autism
  80. The same twins study found that same-sex fraternal twins have a 34 percent chance of both having an autism diagnosis, while opposite-sex fraternal twins share an 18 percent chance of Autism Spectrum Disorder.
  81. Autism was first described by Dr. Leo Kanner in 1943.
  82. Reporting on 11 children, Dr. Kanner’s initial observations on autism described the children as having “a powerful desire for aloneness” and “an obsessive insistence on persistent sameness.”
  83. Before Dr. Kanner’s work, autism was often confused with schizophrenia.
  84. Autism is the fastest-growing developmental disorder. The prevalence of ASD in children increased by 119.4 percent from 2000 to 2010.
  85. In 2014, researchers identified a whopping 60 genes with more than a 90 percent chance of increasing the risk for autism in a child. Previously, just 11 genes had been linked with Autism Spectrum Disorder.
  86. Just last year (2017), an analysis published in Nature Neuroscience identified 18 new genes linked with autism.
  87. In September 2018, the National Institutes of Health awarded nine research grants to the Autism Centers of Excellence (ACE) program. The grants totaled nearly $100 million.
  88. The nine research grants will delve into improving autism treatments, identifying the early signs of autism by studying social interaction, how autism differs between girls and boys, and more.
  89. The Autism Science Foundation (ASF) is a nonprofit organization with a mission to further scientific research on Autism Spectrum Disorder.
  90. ASF provides funding and other resources/assistance to organizations and scientists conducting autism research.
  91. Many top colleges and universities offer degree programs in Applied Behavior Analysis. Some of the best ABA programs can be seen in this list.
  92. There are a number of books on autism that have made the New York Times Best-Seller List, including Look Me in the Eyes by John Elder Robison and The Reason I Jump by Naoki Higashida.
  93. Jordan Keller, a 12-year-old on the Spectrum, published a book called Jumbled Pieces: Autism. His mission is to help others understand what it’s like to grow up with autism.
  94. Insurance oftentimes covers the majority of the cost for ABA therapy, speech therapy, and occupational therapy.
  95. Unfortunately, in some states, Medicaid provides no coverage for ABA therapy. This leaves many families in need of autism services with little to no options.
  96. Congress passed the ABLE (Achieving a Better Life Experience) act in 2014.
  97. Under the ABLE act, individuals with disabilities are given the opportunity to open tax-free savings accounts without risking eligibility for Social Security and other government programs.
  98. Many children sit on waitlists to see a developmental pediatrician for 9 months or more. This delays the start of therapy and can significantly hurt a child’s ability to overcome developmental deficits.
  99. Waitlists are also an issue at many ABA centers.
  100. People on the autism spectrum are extraordinary, gifted, and loving human beings!

10 Things You Should Know About Brain Injuries

Brain injury is called the ‘silent’ epidemic with 5.3 million Americans live with brain injury and occurs every 23 seconds. A brain injury is defined as a disruption in the normal function of the brain that can be caused by a bump, blow, or jolt to the head. The following are 10 facts that you should know about brain injuries.

No two brain injuries are exactly the same

The effects of a brain injury depends on the cause, location and severity

Depending on the severity of the brain injury, effects may include temporary loss of consciousness or coma, respiratory or damaged motor functions.

A concussion can be caused by direct blows to the head, gunshot wound, violent shaking of the head or force from a whiplash.

A contusion is a bruise (bleeding) on the brain caused by a force to the head

A traumatic brain injury (TBI) is a complex injury with a broad spectrum of symptoms and disabilities

TBI is a contributing factor to a third of all injury-related deaths in the United States

Almost half-a million emergency room visits for TBI are made annually by children aged 0 to 14

In every age group, TBI rates are higher for males than for females

TBI is a major cause of death and disability in the United States

References

http://www.cdc.com

http://www.biausa.org

http://www.traumaticbraininjury.com

 

What is a Developmental Disability?

March is Developmental Disabilities Awareness month! Although I blogged  the definition of developmental disabilities here, I wanted to give you more information besides the Federal regulation. Quite often, people are confused between the definition of an intellectual disability and a developmental disability.

A developmental disability is described as an assortment of chronic conditions that are due to mental or physical impairments or both. For example, you may have a child or an adult with an intellectual disability or perhaps a person diagnosed with cerebral palsy and an intellectual disability. It is also considered a severe and chronic disability that can occur up to the age of 22, hence the word developmental. A developmental disability can occur before birth such as genetic disorders (i.e. cri du chat, fragile x syndrome,) or chromosomes ( i.e. Down syndrome, Edwards syndrome); during birth (lack of oxygen) or after birth up to the age of 22 (i.e. head injuries, child abuse or accidents).

The disability is likely to occur indefinitely meaning the person will require some type of ongoing service throughout their lives. Finally, the person must show limitations in 3 or more of the following areas of major life activities:

  1. Self-care– brushing teeth, hand-washing and combing hair independently
  2. Receptive and expressive language-ability to understand someone talking and to also be understood
  3. Learning– ability to read and write with understanding
  4. Mobilityability to move around without any assistance
  5. Self-direction– time management, organization
  6. Capacity for independent living– requiring no supervision
  7. Economic self-sufficiency – having a job  and purchasing what one needs

Here are some examples of a developmental disability:

Does everyone with a disability also have a developmental disability?

The answer is no. there are people with disabilities such as epilepsy and cerebral palsy simply have a disability based on the criteria listed above. However, many people with developmental disabilities quite often have a combination of disabilities. For example a child with autism may also have seizures and an intellectual disability or an adult may have cerebral palsy, intellectual disability and epilepsy. In addition there are many people in the spectrum of autism who also have ADHD and so forth.

So what’s the difference between an intellectual disability and a developmental disability?

A person with an intellectual disability falls under the category of a developmental disability meaning you can have an intellectual disability and a developmental disability. check here for the definition of an intellectual disability, you will see they are quite similar. Below is an infographic created by Centers on Disease Control:

An Infographic on Developmental Disabilities.

 

 

ADHD and Math

Studies suggests that between 4-7% of students have experience difficulty in math compared to 26% of children with ADHD.

Click here to download a copy of the article

This may be the result of the working memory, problem solving skills and inattentive skills all characteristics of a student with ADHD

What is Dyscalculia?

Dyscalculia is defined as a learning disability specifically in math and numbers including the inability to understand the concept of numbers and applying math principles to solve problems. The following are signs and symptoms of dyscalculia:

  • Difficulty in counting backwards
  • Difficulty in recalling facts
  • Slow in performing calculations
  • Difficulty with subtractions
  • Difficulty using finger counting
  • Difficulty with the multiplication table
  • Poor mental math skills
  • Difficulty with understanding the concept of time
  • May show signs of anxiety when conducting math activities
  • May have a poor sense of direction (i.e. north, south, east, west)
Early signs of dyscalculia include:
  • Delays in learning how to count
  • Delays in recalling facts
  • Difficulty with time
  • Displays a poor memory
  • May lose track when counting
  • Difficulty sorting items by groups include color, shape, texture and size.

Accommodations

Students with diagnosed with ADHD qualify for accommodations in the classroom. Here are a few suggestions:

The ADHD magazine, ADDitude suggests the following accommodations to help students with ADHD and Dyscalculia:

  • Allow extra time on test
  • Provide frequent checks for accuracy during classroom activities
  • List clearly numbered steps/procedures for multi-step problems
  • Use individual dry-erase boards
  • Reduce the number of problems you assign

VeryWell suggests the following accommodations for students expressing difficulties in math:

  • Allow the student to use desk copies of math facts such as multiplication table factsheet
  • Allow the use of calculations in the classroom
  • Provide models of sample problems and allow the students to use these models as a reference
  • Decrease the number of math problems
  • Allow the students to use graph paper rather than notebook paper
  • Provide the student with review summaries to help prepare for tests
Updated 2/15/24

25 Must-Read Resources for Siblings of Children and Adults With Disabilities

This is an article that I have wanted to write for a long time as it is personal to me. I watch my youngest nephew growing up with the responsibility of caring for his older brother with a disability. From helping him get dressed in the morning to looking out for him while in school. As my nephew without disabilities grew, he would ask me why his brother was treated so special by others around him which is a difficult question to answer. Now an adult with a family of his own, he still is protective of his brother and continues to love him and look out for him.

Children who have siblings with disabilities often carry an added weight. They are protective of their siblings and from this added experience, it has taught them to be compassionate towards others. the following resources are useful for siblings, parents and providers looking for information to help families with disabilities.  Please email me at specialneedsresourceblog@gmail.com if you have additional information that you would like to share.

Sibling Organizations and Support Groups

Sibling LeadershipThe mission of the Sibling Leadership Network is to provide siblings of individuals with disabilities the information, support and tools to advocate with their brothers and sisters and to promote the issues important to them

Siblings of Autism-Siblings of Autism is dedicated to supporting the siblings of individuals on the autism spectrum through educational scholarships, respite funds and outreach programs.

The Sibling Support Project– National program dedicated to the life-long and ever-changing concerns of brother and sisters of people with special health, developmental, and mental health concerns

Sibling Resources– A growing network of adult siblings of people with intellectual disabilities and developmental disabilities. Provides up-to-date information, resources and training opportunities.

Sibling  Support Resources

I Am A Sibling- The ARC

Sibling Support- Family Drug Help

There with Care

SOCIAL MEDIA

Facebook Group

Sibling of Children with Disabilities

Instagram

Special_Needs_Siblings

Siblings of Autistic Kids

Sibling of Special Needs

Twitter

Sibs

Special Needs Siblings

Article Links

5 ways to support siblings in special needs families (Child Mind Institute)

8 things siblings of children with special needs struggle with (Washington Post)

10 great books if you have a sibling with special needs (Friendship Circle)

12 ways to support siblings (Brooks Publishing Company)

Caring for siblings of children with special needs (Kids Health)

Dear sibling to a child with special needs (The Mighty)

Emotional problems facing siblings of children with disabilities (Psychiatry Advisor)

Having an autistic sibling (National Autistic Society)

Helping siblings of children with autism spectrum disorder (Raising Children)

Siblings and Cerebral Palsy (Cerebral Palsy Guidance)

Sibling Issues (Center for Parent Information and Resources)

Sibling of children with disabilities (Psychology Today)

Supporting siblings of children with disabilities in the school setting (ERIC.ed)

Ways a child care providers can support siblings of children with special needs (Extension)

Autism and Learning: An Infographic

"What is autism and how does it affect a way a person learns? This infographic takes a look at autism and learning. It shows what obstacles people have when they're autistic and what ways they can facilitate their education." --visual.ly #Autism #Learning #Awareness

Technology Has Opened Doors For Those With Disabilities

Technology Has Opened Doors for Those with Disabilities
Written by: Jessica Grono
Published By: Cerebral Palsy News Today

No matter what type of cerebral palsy a person has, it limits their independence to a certain extent. Independence is amazing, especially when you have such a limited range of freedom. Technology has improved the quality life of thousands of people who have significant disabilities. I know that each time I can do an action for myself, the feeling is indescribable. This week online, I learned of two children who have experienced the unexpected, thanks to advances in technology. Click here to read the rest of the story

Early Intervention-Resources and Information

Early intervention services are provided through the IDEA Act-  a law that makes available a free appropriate public education to eligible children with disabilities throughout the nation and ensures special education and related services.

Early interventions are covered under the IDEA Act and is defined to meet the developmental needs of an infant or toddler with a disability and the needs of the family to assist appropriately in the infants or toddler’s development as identified by the IFSP team in any one or more of the following areas:

  1. Physical Development
  2. Cognitive Development
  3. Communication Development
  4. Social or Emotional Development
  5. Adaptive Development 

IDEA Part C regulations also include intervention services that fall  under the law including:

  1. Assistive technology
  2. Audiology service
  3. Family Training
  4. Health services
  5. Medical Services
  6. Nursing Services
  7. Nutritional
  8. Occupational Therapy
  9. Physical therapy
  10. Psychological Services
  11. Service Coordinator
  12. Sign Language
  13. Social Work
  14. Special Instructions
  15. Speech-language pathology
  16. Transportation and related costs
  17. Vision services

The Early Childhood Technical Assistance Center (ECTA) provides information on family rights, procedural safeguards and complaint resolution

For Military families with children with disabilities, click here to locate the Parent Training Information Center in Your state. There is also a Military Parent Technical Assistance Center

Additional Resources for Military Personnel

National Military Family Association

Resources Especially for Military Families

Resources for Military Families of Children with Disabilities

Locating Early Intervention Centers In Your Area

ECTA maintains a list of websites here.

For more information including resources, worksheets, and activities, please visit my Pinterest Board

Assistive Technology Switches for Children and Adults With Physical Disabilities

Assistive technology devices are identified in the IDEA 2004 as, any item, piece of equipment or product system, whether acquired commercially off the shelf, modified or customized, that is used to increase, maintain or improve the functional capabilities of children with disabilities.

Switches fall under this category which allows people with physical disabilities such as cerebral palsy to manipulate their environment by controlling various types of adaptive and assistive switches used for environmental control and communication devices.

The following are resources for assistive technology switches:

Ablenet- Helps people with disabilities through the creation of assistive technology. Ablenet provides switches for both children and adults.

Adaptive Tech Solutions– A therapist-owned and operated company which provides adaptive equipment for individuals with disabilities

eSpecial Needs– Provides adaptive switches to children and adults with physical disabilities which allows them to manipulate their environment.

Enabling Devices– Creates customized one-of-a-kind assistive technology devices for communication, education and playing.

Rehabmart– sells inclusive learning devices which help children with impairments including augmentative communication and adaptive toys

Assistive Technology Websites

Glenda Assistive Technology Information and More– A website containing information on various types of assistive technology including visual supports, AAC, switches and tablets

Teaching Learners With Multiple Special Needs- Created by Kate Ahern, an assistive technology specialist. This website serves as a resource for teachers or learners with severe, profound, or multiple special needs. There is a great article on 60 things to do with a single switch 

Articles 

Assistiveware- How to Support a Student Who Uses a Switch Device

Breezy Special Ed- How to use your iPAD as a switch device

Perkins School for the Blind: Favorite Cause and Affect Switch Apps

Understood- Checklist: What to consider when looking at assistive technology

For more ideas and resources, visit my Pinterest Site:  Assistive Technology

 

Free Lesson Plans That Teach Money Skills

Money skills teaches more than identifying coins and bills. Teaching children with disabilities also helps to strengthen fine motor skills, task initiation, and sequencing skills.

The following websites provide activities and lesson plans which are free to download on a variety of activities:

Education World- A money math match activity where students will learn that different combinations of coins can represent the same amount of money.

Money Instructor– Free lesson plans on basic money skills including counting money, money math, vocabulary, coloring, handwriting, tracing activities and money games.

Practical Money Skills– A website designed to teach money skills including special needs children and adults. Includes lesson plans on making decisions, shopping, banking services and understanding credit. The website includes a teacher’s guide, student activities and PowerPoint presentations.

The Teachers Corner– A generated money worksheet. The worksheets allow you to choose from different currencies.

United States Currency Education Program– Offers a wide range of free education and training resources including money coloring sheets and printable play money

United States Mint-Produces circulating coinage in the United States. This webpage includes lessons for grades K-12 with lessons on each of the coins which are free to download.

Autism and Sensory Overload

Even more challenging, it can be difficult for people with autism to “just ignore” sensory information as it comes in.So, unlike people with typical sensory systems, people on the spectrum may not be able to, for example, notice a car alarm going off and then decide not to listen to it. Some of the environmental challenges that can negatively impact people with autism include Click here to read the rest of the story

Strategies In Training Autistic Employees

Researchers estimate around 50,000 young people with autism turns 18 every year. Is your organization ready to train these new employees?

Click here to download copy of article

What is Autistic Spectrum Disorder?

Autism Spectrum Disorder is a neurological disorder that includes a wide range (spectrum) of skills, symptoms and levels of support. Although no two people are alike, characteristics may include ongoing challenges with social skills that include difficulty and interacting with others. For those on the higher end of the spectrum, characteristics may include:

  • ·         A normal to high intelligence and good verbal skills
  • ·         Trouble understanding what someone else is thinking or feeling
  • ·         Difficulty understanding non-verbal cues
  • ·         May suffer from anxiety or depression
  • ·         Strong long-term memory
  • ·         May have executive functioning difficulties 
  • ·         Being highly creative
  • ·         A high sense of justice and fairness

It is important to note that autistic employees vary in the workplace. Younger employees may have received a diagnose very early their childhood while those in their 30’s to 50’s were more than likely diagnosed as adults. Many in fact may not realize they are autistic due to lack of information during their formative years. This rings true especially for women who did not fit the typical stereotype of autism.

Challenges Training Autistic Employees

The use of idioms, sarcasm, irony, metaphors and figure of speech may be difficult since most are literal thinkers.

Due to sensory sensitivities, harsh lighting and certain smells may be intolerable.

May feel anxiety working with groups during an activity, which includes role-playing and case studies.

Discomfort with noise

Coping with the unpredictable

Strategies In Training Autistic Employees
  • ·         Structured breaks- give notice in advance
  • ·         Give visual instructions. Verbal instructions are difficult to remember
  • ·         Do not assume that the employee is not listening or paying attention
  • ·         When explaining, use explicit and concrete language
Accommodations

A diagnosis of autism also qualifies under the American Disability Act (ADA).  While some may not want to disclose their diagnosis, It’s always a good idea to make sure each person is comfortable in the training. The following are some suggestions:

  • ·         Provide advance notice of topics to be discussed if possible
  • ·         Allow employees to use items to hold such as hand-help squeeze balls 
  • ·         Allow use of a noise-cancellation headset
Tips to Remember

Some autistic employees have a history of being bullied, which for many have carried over into the workplace.  Set rules in the beginning of the training that all participants should be respected.

 

 

 

 

 

 

Hyperlexia: What You Need To Know

Hyperlexia is described as a syndrome where children have the precocious ability to read words and sentences far beyond their chronological age. Some children read as early as 15 months old. Although these children can read words at an early age, they are unable to comprehend its meaning and also lag in speech and social skills. Children with hyperlexia also have an obsession with letters and numbers including writing numbers and drawing shapes in letters.

Click here to download a printed copy

Dr. Darold A. Treffert, through his research identified three subtypes:

Hyperlexia Type1: is described as neurotypical children who learned to read early through words and pictures.

Hyperlexia Type 2: children who are able to memorize words in a book and may have what is referred to as splinter skills including the ability to display remarkable gifts in the area of art, music, calendar calculations, sensory and reading. Typically the child will also have a diagnosis of autism. Hyperlexia is not considered a disorder, rather it is part of the autistic diagnosis. While symptoms of hyperlexia in autistic children tend to disappear as they grow. Many autistic adults report still having hyperlexia.

Hyperlexia Type 3: children will show autistic-like characteristics including sensory processing disorder and communication which led to being misdiagnosed with autism. Although they have a fascination with words and numbers, challenges arise with language and social skills. Some may begin to regress after the age of 24 months.

Rebecca Williamson Brown, describes hyperlexia as having two types:

Type 1: children display excellent visual memory however often display expressive language challenges and tend to have a lower verbal IQ due to lack of meaning of words. These children tend to have a lower verbal IQ and tend to show similarities to autistic children.

Type 2: Language appears to be normal however, the child seems to have difficulty with expressive language and shows challenges with visual motor integration skills.

Symptoms Associated With Hyperlexia
  • Literal thinkers
  • Social skills deficits
  • Echolalia
  • The ability to memorize words without the ability of understanding its meaning
  • Learns to read early compared to peers
  • Strong memory skills
  • Challenged in using verbal language

Teaching Students with Hyperlexia

Children with hyperlexia learning language without understanding the meaning of words. According to Katz, (2003), children with hyperlexia typically:

  • Learn best visually
  • Seek patterns
  • Demonstrate significant difficulties processing what they hear
  • Have extraordinary verbal limitations
  • Learn expressive language by echoing or memorizing sentence structure
  • Have strong auditory and visual memory
  • Think in concrete, rigid and very literal terms
  • Demonstrate an intense need to keep routine
  • Have highly focused interest
  • Have difficulty with reciprocal interaction.

Teaching Strategies

The following strategies are helping when teaching children with hyperlexia:

  • Use rote learning
  • Use examples rather than explanations
  • Use visual list
  • Pair oral with visual instructions
  • Offer choices
  • Use repetition
  • Provide relaxation tools
  • Use high-interest activities
Adults with Hyperlexia

While little research exits on adults with hyperlexia. Most research indicate that children will outgrow hyperlexia which is not the case for all children self-reporting adults indicate mis-diagnosed with ADHD and often Asperger’s. In adulthood, adults still struggle with the “W” questions and continue to have social and sensory issues. As children, they had the ability to read words above what was expected at their age. Socializing is still a challenge  as well as thinking in concrete and literal terms. Many also expressed that they are echolalic and will repeat back a question asked of them.

Workplace

The following may be helpful for an adult with hyperlexia:

  • Harsh light may be difficult to work under. Provide a quiet workspace with soft lighting.
  • Do not force team activities and office events can cause anxiety for people with hyperlexia
  • Be specific in your request
  • Visual job aids are helpful
  • Write down instructions.
  • Allow time for processing verbal information

Resources

Katz, Karen (2003), Hyperlexia: Therapy that works: A guide for parents and teachers. The Center for Speech and Language Disorder

 

 

20 Task Box Resources To Use In Your Classroom or Home

Task boxes (also known as work boxes) are structured work systems created by Division TEACCH t the University of North Carolina Chapel Hill. This system allows the student to work independently on a task for a specific time in a supportive environment.  Task boxes are now used for students with a variety of disabilities including students required pervasive levels of support.

 

There are 3 types of task boxes: stacking- Helps with eye-hand coordination and fine motor skills; sorting- may break activities by size, color, texture, shape and flavor and fine motor- strengthens the smaller movement in the wrists, hands and fingers.

The following sites include information on how to set up a task box system in your classroom or in your home.

How I Set Up My Task Box System ( Delightfully Dedicated)

How to Set Up An Independent Workbox (Breezy Special Ed)

How to Start a Task Box System (Autism Adventures)

Task Box Set Up- (Autism Adventures)

Websites that will give you ideas on creating task boxes, and the material needed.

Autism Classroom Workbox System (Teaching Special Thinkers)

Fine Motor Morning Work Bins (Differentiated Kindergarten)

Assembly Work Task (Autism Classroom News and Resources)

Free Math Printable Task Box for Special Education ( My Creative Inclusion)

Higher Level Academics in Task Boxes (Mrs. P’s Specialties)

How I Use Workboxes in My Classroom (Creating and Teaching)

Pre-Vocational Work Boxes (SPED Adventures)

Quick and Easy Task Box Ideas (Little Miss Kim’s Class)

Task Boxes: A Hands On Approach to Life Skills (Therablog)

Task Boxes for Autistic Children (Love to Know)

Structured Work Boxes (University of Mary Washington)

Ways to Up the Ante in Your Work Task System (The Autism Vault)

Winter Task Boxes (You Aut-aKnow)

Work Boxes in Autism Classrooms (Noodle Nook)

Work Box Task Ideas (The Autism Helper)

Work Task (Breezy Special Ed)

 

Helpful Braille Resources You Should Know About

January is Braille Literacy Month.  Invented by Louis Braille, at the age of 15 years old while attending the National Institute for Blind Youth in Paris. Braille lost his sight during a childhood accident at the age of 4. Braille is not a language, rather it is a code that uses symbols formed within units of space that consists of six raised dots , 2 across and 3 down. Below are resources on braille information.

 

Braille Resources for Special Education Teachers

Path of Literacy Website for students who are blind and visually impaired. Includes teaching strategies on tactile production various braille designs.

Teaching Students with Visual Impairments Provides resources necessary to teach visual impaired students including teaching strategies and professional development opportunities.

Teaching Strategies

Beginning braille skills

Instructional strategies for teaching braille literacy

Teaching beginning braille reading- Some teaching strategies.

Teaching braille to young children

The following organizations focus on braille resources and information that serves children and adults with visual impairments including developing teaching materials.

Braille Authority of North America he purpose of BANA is to promote and to facilitate the uses, teaching, and production of braille. Pursuant to this purpose, BANA will promulgate rules, make interpretations, and render opinions pertaining to braille codes and guidelines for the provisions of literary and technical materials and related forms and formats of embossed materials now in existence or to be developed in the future for the use of blind persons in North America.

Braille Institute   Is a non-profit organization that offers a broad range of services serving thousands of students of all ages to empower themselves to live more enriching lives with blindness and vision loss.

National Braille Association National Braille Association, founded in 1945, is a non-profit organization dedicated to providing continuing education to those who prepare braille, and to providing braille materials to persons who are visually impaired.

The following laws and regulations authorize the provision of library services to people who are blind, visually impaired or have a physical disability:

Act of March 3, 1931 Authorization of the Library of Congress to provide books for the use of adult blind residents of the United States.

Public Law 89-522 Amends the Acts of March 3, 1981 and October 9, 1962 relating to the furnishing of books and other material to the blind.

U.S. Code Sec. 135a– Authorizes books and sound reproduction records for blind and others with physical disabilities.

Title 36, Code of federal Regulations, 701.10 Provides books in raised characters (braille) on sound reproduction recordings or in any form.

Workplace

The American Disability Act (ADA) requirements for effective communication in the workplace to provide accommodations for people with visual impairments are able to communicate with people effectively.

  • For people who are blind, have vision loss, or are deaf-blind, this includes providing a qualified reader; information in large print, Braille, or electronically for use with a computer screen-reading program; or an audio recording of printed information. A “qualified” reader means someone who is able to read effectively, accurately, and impartially, using any necessary specialized vocabulary.
  • For people who are deaf, have hearing loss, or are deaf-blind, this includes providing a qualified note taker; a qualified sign language interpreter, oral interpreter, cued-speech interpreter, or tactile interpreter; real-time captioning; written materials; or a printed script of a stock speech (such as given on a museum or historic house tour). A “qualified” interpreter means someone who is able to interpret effectively, accurately, and impartially, both receptively (i.e., understanding what the person with the disability is saying) and expressively (i.e., having the skill needed to convey information back to that person) using any necessary specialized vocabulary.
  • For people who have speech disabilities, this may include providing a qualified speech-to-speech translator (a person trained to recognize unclear speech and repeat it clearly) , especially if the person will be speaking at length, such as giving testimony in court, or just taking more time to communicate with someone who uses a communication board. In some situations, keeping paper and pencil on hand so the person can write out words that staff cannot understand or simply allowing more time to communicate with someone who uses a communication board or device may provide effective communication. Staff should always listen attentively and not be afraid or embarrassed to ask the person to repeat a word or phrase they do not understand.

In addition, aids and services include a wide variety of technologies including 1) assistive listening systems and devices; 2) open captioning, closed captioning, real-time captioning, and closed caption decoders and devices; 3) telephone handset amplifiers, hearing-aid compatible telephones, text telephones (TTYs) , videophones, captioned telephones, and other voice, text, and video-based telecommunications products; 4) videotext displays; 5) screen reader software, magnification software, and optical readers; 6) video description and secondary auditory programming (SAP) devices that pick up video-described audio feeds for television programs; 7) accessibility features in electronic documents and other electronic and information technology that is accessible (either independently or through assistive technology such as screen readers) .

2018 Disability Awareness Month and Observances

Annual awareness observances are sponsored by federal, health and non-profit organizations. Awareness campaigns serve the purpose of informing and educating people on a certain causes. Each year, the number of special needs organizations bringing awareness to specific disabilities and disorders seem to grow. Awareness activities range from one day to a month.
Here is a calendar of major special needs awareness months, weeks, and days. Most websites include awareness toolkits, promotional materials and fact sheets. Since it is still early in the year, some of the campaigns still have 2017 campaigns on their websites. I will add new information once the changes are up on the websites.

January

National Birth  Defects Month

January 4- World Braille Day

January 24- Moebius Syndrome Awareness Day

February

February 15- International Angelman Day

February 28- Rare Disease Day

March

Cerebral Palsy Awareness Month

Developmental Disabilities Awareness Month

Multiple Sclerosis Month

Social Work Awareness Month

Trisomy Awareness Month

March 1- Self-Injury Day

March 1- International Wheelchair Day

March 20- Brain Injury Awareness Day

March 21- World Down Syndrome Day

March 26- Purple Day for Epilepsy

April

April 2- World Autism Awareness Day 

May

Better Hearing and Speech Month

Mental Health Awareness Month

National Asthma and Allergy Awareness Month

Prader Willi Awareness Month

Williams Syndrome Awareness Month

May 1- Global Developmental Delay Day

May 15- Tuberous Sclerosis Global Awareness Day

May 5-12- Cri du Chat Awareness Week

May 8-14- Brain Injury Awareness Week

June

June 17- CDKL5 Awareness Day 

June 23- Dravet Syndrome Awareness Day (Canada)

Tourette Syndrome Awareness Month

July

July 15- Disability Pride Parade (NY)

July 15- Disability Awareness Day (UK)

July 22- National Fragile X Awareness Day

September

Craniofacial Acceptance Month

Duchenne Muscular Dystrophy Awareness

Fetal Alcohol Spectrum Syndrome Awareness Month

Hydrocephalus Awareness Month

National Spinal Cord Awareness Month

Sickle Cell Awareness Month

September 7- World Duchenne Awareness Day

September 9- Fetal Alcohol Awareness Day

October

ADHD Awareness Month

Down Syndrome Awareness Month

National Disability Employment Awareness Month

National Dyslexia Awareness Month

Occupational Therapy Awareness Month

October 6- World Cerebral Palsy Day

October 14-20 Invisible Disabilities Week

OCD Awareness Week

National Physical Therapy Month

Rett Syndrome Awareness Month

Special Needs Law Month

Spinal Bifida Awareness Month

November

22q Awareness Month

Epilepsy Awareness Month

November 1- LGS Awareness Day

November 7- National Stress Awareness Day

November 15- World Ohtahara Syndrome Awareness Day

December

December 3- International Day of Persons with Disabilities

 

 

 

Helping Children Understand Person First Language


Pubished by: ASD
Written By: Nicole Dezarn

Person first language is an important ethical matter often discussed in the field of special education and disability advocacy. The idea that the important descriptor for a person is not their disability but that the disability is something that the person has is fundamental in framing the mindset that having a disability doesn’t mean that a person is less or incapable of success. It can be challenging enough to broach this subject with adults but how do we help children to understand what person first language means and why it is so important? I felt it might be helpful to share an approach with which I have had success. Click here to read the rest of the story

Disability Integration Act

 

The Disability Integration Act (DIA) of 2017 is a bill introduced by Charles “Chuck” Schumer (D-NY) in the health, Education, Labor and Pensions Committee. The purpose of the bill is to prohibit states or local government that provide institutional placements for people with disabilities who require long term assistance prohibits insurance services from denying community-based services which would allow people to live independently in the community.

Community-based services must be offered to individuals prior to placement in institutions. People that are living in institutions must be notified regularly of community-based alternatives.

This bill was introduced May 16, 2017.

Study of Nonverbal Autism Must Go Beyond Words, Says Expert


Source: Spectrum
Author: Sarah Deweedt

Roughly 25 percent of people with autism speak few or no words. A generation ago, that figure was closer to 50 percent. Most researchers agree that the decline is due to the recognition of more people with milder forms of autism, as well as to the advent of early intervention programs  that have helped more children. Click here for the rest of the story.

12 Tips for Teaching Tactile Skills to Struggling Braille Readers

Collage of 12 tips for teaching tactile skills to struggling braille readers
Source: Paths to Literacy

Struggling braille readers may easily become frustrated or discouraged, so it’s critical to find ways to ensure success whenever possible.  Here are some strategies to promote tactile skills with struggling braille readers:

  1. Implement a variety of tactile activities throughout the daily schedule. Students need practice not just reading braille, but also using tactile information.
    • Put an article in a bag and have the student remove it and describe it – NOT tell you what it is. Ask them to think about questions, such as how much does it weigh, how long, what shape, what else might be like this, what is the purpose of the item, how is it different from yesterday’s item, etc. This is a good starter for lessons, introducing seasons of the year, special events, common knowledge, etc.
    • I recall putting a boat in the bag when the movie Titanic was showing.
    • Another example would be a stapler, and then to teach students how to use it. By third grade kids need to use one daily to help their teacher pair braille and print pages.
    • A pen and pencil can help to teach likenesses and differences.
    • Every fruit imaginable showed up in the bag and then we had tasting parties one year.
    • Toys like a yo-yo, or other toys of the day can be put in the bag.
    • Students must answer in complete sentences (no one word answers). In fact students should be taught to respond to all questions in complete sentences.
    • All this ties into improving sentence structure, writing, common knowledge, and even social skills.

Click here to read the rest of the story

Autism Sensory Difficulties and How to Address Them

Autism Sensory Difficulties and How to Address Them

 

 

 

 

 

Source: Durham Region Autism Services

People with Autism Spectrum Disorder (ASD) typically have difficulty processing sensory information such as sounds, sights, and smells. This is usually referred to as having issues with “sensory integration”, or having sensory sensitivity, and is caused by differences in how the brain of a person with ASD understands and prioritizes the sensory information picked up by the body’s many sensory receptors. When this breakdown in communication becomes too intense, the person with ASD may become overwhelmed, anxious, or even feel physical pain. When this occurs, some with ASD may act out. Click here to read the rest of the story.

Troubleshooting Common Problem Areas in Children with Autism

Troubleshooting Common Problem Areas in Children With Autism
Source: Durham Region Autism Services

When dealing with a child on spectrum, the presence of sudden or chronic behaviours that are aggressive, odd, or socially inappropriate can present challenges one may feel ill-equipped to understand and deal with. Being prepared ahead of time can help a great deal in managing these issues in the calm, logical way. The following questions and answers cover some of the most common problems that arise with the behaviour of children (and some adults) who have Autism Spectrum Disorder (ASD). Click here for the rest of the story.

What is Childhood Obsessive-Compulsive Disorder?

OCD is a neurobiological condition. It is estimated that 1% to 3% of children and adolescents are affected by obsession- compulsive disorder (OCD).The DSM-IV defines OCD as persistent thoughts, impulses, or images that are experienced as inappropriate and the cause of anxiety and distress. These thoughts cause obsession as a way to ease their anxiety. Your child may perform repetitive actions such as chewing food a certain number of times, refusing to eat certain foods, separation anxiety or a need for order and perfection

Obsessive Compulsive Disorder (OCD) Infographic

 

 

 

Epilepsy Driving and State Regulations

Click here for printed copy of article

Driving can be challenging for people who have a seizure disorder. Accidents may occur due to a seizure disorder which puts the person at risk. In the United States, each State has specific guidelines and laws on the requirement for driving once the person is seizure-free.

Most people are able to drive again once their seizures are under control. In some States, a letter from the doctor is required. Below are regulations for each State:

State Regulations

Alabama- 6 Months with exceptions

Alaska- 6 Months

Arizona- 3 Months with exceptions

Arkansas- 1 year

California- 3, 6 moths with exception

Colorado- No set seizure- free period

Connecticut- Not set seizure- free period

Delaware- Not set seizure- free period

District of Columbia- 1 year

Florida- Upon Doctor’s recommendation

Georgia- 6 Months

Hawaii- 6 months with exception

Idaho- 6 months with strong recommendation from doctor

Illinois- No set seizure- free period

Iowa- 6 months less if seizure nocturnal

Kansas- 6 months less if seizure nocturnal

Kentucky- 90 days

Louisiana- 6 months with doctor statement

Maine- 3 months or longer

Maryland- No set seizure- free period

Massachusetts- 6 months- less with doctor statement

Michigan- 6 months- less at discretion of department

Minnesota- 6 months with exception

Mississippi- 1 year

Missouri- 6 months with doctor recommendation

Montana- No set seizure- free period, doctor recommendation

Nebraska- 3 months

Nevada- 3 months with exception

New Hampshire- 1 year/ less- discretion of the department

New Jersey- 1 year: less on recommendation of committee

New Mexico- 1 year, less on recommendation of advisory board

New York- 1 year with exception

North Carolina- 6-12, with exception

North Dakota- 6 months, restricted license possible after 3 months

Ohio- No set seizure free period

Oklahoma- 6 months

Oregon- 6 months with exception

Pennsylvania-  6 months with exception

Puerto Rico- No set seizure- free period

Rhode Island- 18 months. Less with doctor recommendation

South Carolina- 6 months

South Dakota- 6-12 months less with doctor recommendation

Tennessee- 6 months with acceptable medical form

Texas- 6 months with doctor recommendation

Utah- 3 months

Vermont- No set seizure – free period

Virginia – 6 months with exception

Washington- 6 months with exception

West Virginia- 1 year with exception

Wisconsin- 3 months, with acceptable medical form

Wyoming- 3 months

 

 

Choking Prevention for People with Developmental Disabilities

Children and adults with developmental disabilities have a higher risk of choking compared to the general population.

Risk Factors Include:

Some medical conditions that increase a person’s risk of choking are:

  • Cerebral Palsy
  • Seizure disorders
  • Neurological and muscular disorders
  • Down Syndrome
  • Brain Injury
  • Muscular Dystrophy
  • Inability to swallow certain food textures and liquids
  • Medication side effects which decrease voluntary muscles
  • Dysphasia (difficulty swallowing)

Other contributing factors include:

Eat or drink too fast

Have poor posture when eating

Swallow non-edible objects (PICA)

The following foods put people at greater risk:

  • Hotdogs served whole
  • Hard candy
  • Popcorn
  • Sandwiches
  • Broccoli
  • Raw carrots
  • Nuts

Teaching Material on Choking

Arizona Department of Economic Security

Eunice Kennedy Shriver-Dysphasia, Aspiration and Choking

Ohio Department of Developmental Disabilities

New York State Choking Prevention Resources

Washington State Department of Social and Health Services

State Agencies Choking Alerts

Georgia Department of Behavioral Health and Developmental Disabilities

Minnesota Mental Health and Developmental Disabilities 

New Jersey Health and Safety Alert Choking

Great Websites for Women and Girls With ADHD

According to the Centers for Disease Control and Prevention (CDC), boys are more likely to receive a diagnosis of ADHD due to the symptoms in girls are more subtle and typically do not fit the stereotype. Girls are more likely to daydream, fidget, chatty, overly emotional, and appear “less difficult or “less difficult” than boys.

Women with ADHD are more likely to eating disorders, obesity, low-self-esteem, depression and anxiety.The following websites provide helpful information on ADHD for women and girls.

Signs and Symptoms

  • The following sites includes information on identifying the signs and symptoms of ADHD in both women and girls.

ADHD affects women differently: What to look for, how to fix it (Health)

ADHD in girls: Symptoms, treatment and more (Healthline)

Gender differences in ADHD (Psych Central)

Common ADHD symptoms in women totally ADD ( Totally ADD)

Common symptoms of ADD and ADHD in women (Health Central)

Girls and ADHD: Are you missing the signs? (Teacher)

How ADHD is different for girls (WebMD)

It’s different for girls with ADHD (The Atlantic)

Understanding ADHD in Women (U.S. News)

Understanding the signs of ADHD in girls (Very Well)

Women and Girls– by National Resources on ADHD (CHADD)

Parenting

  • Managing a child diagnosed with ADHD can be challenging. The following articles share tips on raising a child with ADHD. Additional information includes strategies for both children and teens with ADHD.

8 secret tips for parents of children with ADHD (Empowering Parents)

8 things I wish people knew about parenting a child with ADHD (Understood)

12 rules for parenting a child with ADHD (ADDitude)

ADHD parenting tips (Help Guide)

Does your parenting style work for ADHD (Impact ADHD)

Parenting kids with ADHD: 16 tips to tackle common challenges (Psych Center)

Parenting strategies for helping kids with ADHD (MSU)

Parenting teenagers with ADHD (Healthy Children)

Your ADHD child: Easy parenting techniques (Child Development Institute)

Tips for parents with ADHD raising kids with ADHD (Parenting)

Resource Articles- Girls

  • The following links includes articles specifically on girls with ADHD including parenting a child with ADHD and unique challenges girls face.

Advice for parenting girls with ADHD (Lifescript)

Girls with ADHD face unique challenges (Smart Kids)

How girls with ADHD are different (Child Mind Institute)

Understanding girls with ADHD symptoms and strategies (Great Schools)

Resource Articles

  • Below includes a listing of resources on a variety of articles specifically for women with ADHD. Women face a number of challenges including managing and organizing the home and workplace. Additional challenges may include raising a child also diagnosed with ADHD. (ADHD is often inherited).

6 ways to manage clutter with ADHD (Health Center)

ADHD: A women’s issue (American Psychological Association)

ADHD is different for women (The Atlantic)

Adult women are the new face of ADHD (The Daily Beast)

Against the wind: How it feels to be a woman with ADHD (ADD Free Sources)

Decades of failing to recognize ADHD in girls has created a lost generation of women (Quartz)

I’m a woman with ADHD and here’s why I didn’t know until I was 28 (Bustle)

Is ADHD different for women and girls (Scientific American)

Suffering in Silence: Women with adult ADHD (Medicine. Net)

The hidden struggle for women with ADHD (Broadly)

The new ADHD debate every woman should know about (HuffPost)

“That explains everything!” Discovering my ADHD in Adulthood (ADDitude)

This is how ADHD impacts women and why support communities (Mind)

What it’s like to have ADHD as a grown woman (The Cut)

Websites

  • There are a number of websites that are geared towards women with ADHD. I like the websites described below. These sites are written by women with ADHD which includes personal stories and helpful information.

ADHD Roller Coaster– Author, Gena Pera’s website provides news and essays on adult ADHD

Kaleidoscope Society– A website for and by women with ADHD

Smart Girls with ADHD– A website written by women with ADHD includes resources and personal stories.

Testing

  • The following sites includes a checklist and testing if you believe you have diagnose of ADHD.

A symptom checklist for ADHD in Women

The ADHD test for girls

The ultimate ADHD test for teen girls

Autism and Wandering Resources (update)

Studies show that nearly half of children with autism attempt to wander off or bolt from a safe supervised place (Autism Speaks). Children with Angleman Syndrome also tend to have an obsession with water and will tend to wander if water is nearby. The following resources includes wandering kits, articles and additional resources on the topic of wandering.

Click here to download a printed version of this article

What is Wandering?

When a person, who requires some level of supervision to be safe, leaves a supervised, safe space and/or the care of a responsible person and is expected to potential dangers such as traffic, open water (drowning), falling from a high place , hypothermia, heatstroke, dehydration.

Types of Wandering

  • Goal-Directed Wandering- wandering with the purpose of getting to something ( a place of obsession, water, etc.).
  • Non goal-directed wandering- Wandering with no purpose, random from one place to another.
  • Confusion Wandering-Wandering due to disorientation or confusion.
  • Bolting/fleeing- The act of suddenly running or bolding, usually to quickly get away from something, or in negative reaction to an event, anxiety or stress.
 Facts and Statistics
  • Roughly half, or 49%, of children with an ASD attempt to elope from a safe environment, a rate nearly four times higher than their unaffected siblings.
  • In 2009, 2010, and 2011, accidental drowning accounted for 91% total U.S. deaths reported in children with an ASD ages 14 and younger subsequent to wandering/elopement.
  • More than one third of ASD children who wander/elope are never or rarely able to communicate their name, address, or phone number.
  • 32% of parents reported a “close call” with a possible drowning.
  • 40% of parents had suffered sleep disruption due to fear of elopement.
  • half of families with elopers report they never received advice or guidance about elopement from a professional.
Source: Interactive Autism Network research report: Elopement and wandering (2011)
Source: National Autism Association, Lethal Outcomes in ASD Wandering (2012)

Caregivers Information

Autism elopement and wandering kit for families (Parenting Chaos)

Big Red Safety Toolkit (National Autism Association)

28 page toolkit that provides information on preventing wandering. The toolkit includes the following information:

  • Caregiver checklist
  • Family wandering emergency plan
  • swimming lessons tool
  • Root-causes scenario and strategies tool
  • Caregivers log
  • How to get tracking technology in your town.

First Responder Resources

First Responder Checklist– A checklist for first responders developed by the National Autism Association

First Responder Notification Form

First Responder Tips

GPS Tracking Technology

The AngleSense Guardian Kit

  • Comes with a GPS device, embedded SIM card, customized wearables and a magnet key for parents $39.00 monthly service plan.

7 tracking devices to find a lost child with autism (Friendship Circle)

Articles

5 simple ways to prevent wandering in children with autism (Autism Parenting Magazine)

Autism and Wandering (SFGate)

Autism and Wandering: How ABA can help keep kids safe. (HuffPost Parents)

Teaching safety skills to children with autism (Our Crazy Adventures in Autismland)

The autism epidemic that can no longer be ignored (HuffPost Parents)

Wandering: A hazard for more than a third of kids with autism (U.S. News)

Wandering & Autism: Elopement within the classroom (Autism Classroom Blog)

Wandering & Autism: Students who flee, bolt, run and elope (Autism Classroom Blog)

Resources on Teaching Scissor Skills

One of the ways to improve fine motor skills is helping children and adults develop cutting skills also help with pre-writing skills and pencil control. Below are resources that will help in developing and teaching scissor skills.

Cutting Skill Development

2 years- snips with scissors

2.5 years- Cuts across a 6-inch piece of paper

3.5 years- Cuts along a 6-inch line

4.5 years- Cuts out a circle

6-7 years- Cuts a variety of shapes and pictures.

Resources on Teaching Scissor Skills

5 easy ways to introduce scissor skills

How to teach a child to use scissors

How to use scissors

Scissor cutting skills: Why they are important

Teaching kids how to use scissors

Teaching preschoolers to use scissors

The importance of teaching your child how to use scissors

Tips for teaching scissor cutting skills

Practice Scissor Skills- The following links below include practicing cutting straight lines, curved lines and circles, zig-zag lines and mixed lines.

10-page scissor skills packet (Mama’s Learning Corner)- geared towards preschoolers and kindergartners.

12 free shapes and cutting page (www.mpmideas.com)- geared towards preschool aged children

Construction truck scissor cutting practice sheets (MO & MH)- Kids will practice cutting lines.

Cut, copy and glue for spring (Your Therapy Source)- Free 3-page packet in black and white. Includes a butterfly, ice cream cone and a snail.

Free cutting and coloring pack (Tot Schooling)- Cutting pack features straight, diagonal, curved and zig zag lines.

House scissor practice (Teaching Station)- Download free worksheets. Includes shapes of circles, squares, triangles, and rectangulars.

Printable preschool cutting busy box (Fun with Mama)- post includes ways to teach kids how to use scissors and develop cutting skills

Rocket scissor practice (Teaching Station)- Kids will practice cutting and pasting shapes to make a rocket.

Snake spiral worksheet (www.education.com)- Kids can both color and cut out the spiral design.

Trolls, hair-cutting (Tot Schooling Net)- Several different levels of difficulties.

When an Employee Has a Seizure

According to the National Epilepsy Foundation, 1 in 26 people will develop epilepsy in their lifetime. Epilepsy is a neurological disorder caused by abnormal nerve cell activity in the brain. Epilepsy involves recurring seizures.

Click here to download a printed copy

More than 30% of people with epilepsy will experience generalized seizures.  It would not be unusual for a person to experience having a seizure in the workplace.When providing first aid for seizures, try to keep calm and make sure the person having the seizure is comfortable and safe from harm. A seizure can last from a second or several minutes.

Call 911 if:
  • The person has never had a seizure before.
  • the person has difficulty breathing or waking after the seizure.
  • The seizure lasts longer than 5 minutes.
  • The person has a seizure back-to back.
  • The person is injured during the seizure.
  • The person has an additional condition like diabetes, or heart disease.
Steps
  • Ease the person to the floor.
  • Turn the person gently onto the side (this will help the person breathe).
  • Clear the area around the person of anything hard or sharp
  • Put something soft and flat, like a folded jacket, under his or her head.
  • Loosen ties or anything around the neck including button on a shirt.
  • Time the seizure.
Familiarize Yourself With The Warning Signs 

Each person is different. Typically warning signs of a seizure may include:

  • Loss of consciousness
  • Stiffening of the body
  • Jerking of limbs
  • Slight twitching
  • A loss of awareness
Do Not:
  • Do not hold the person down or try to stop his or her movements.
  • Do not put anything in the person’s mouth. This can injure teeth or the jaw. A person having a seizure cannot swallow his or her tongue.
  • Do not try to give mouth-to-mouth breaths (CPR). People usually start breathing again on their own after a seizure.
  • Do not offer the person water or food until he or she is fully alert.

After the seizure:

After the seizure ends, the person will probably be groggy and tired. He or she also may have a headache and be confused or embarrassed. Try to help the person find a place to rest. If necessary, offer to call a taxi, a friend, or a relative to help the person get home safely.

Don’t try to stop the person from wandering unless he or she is in danger.

Don’t shake the person or shout.

Stay with the person until he or she is completely alert.

Source: Centers for Disease Control and Prevention

Source: National Institute of Neurological Disorders and Stroke

Shopping Center Teaching Activities For Children and Adults With Special Needs

Shopping Centers (or malls as we call them in North America) provide a great way for customers to walk from one store to another without the hassles of having to leave one store in order to go into another. Through the years, Shopping centers  have added on movie theatres, arcades, and food eateries. This has led to a variety of ways of teaching children and adults with disabilities a number of skills.

 

Money Management.

Increasing money skills can be used in almost all areas of a shopping mall. Opportunities include stores such as banking, clothing , restaurants, etc. examples of items to teach include:

  • Will identify coins
  • Will identify money
  • Will count change
  • Will create a budget
  • will fill out deposit slip
  • Will fill out a withdrawal slip
  • Will use an ATM
Sensory

A shopping center provides a low-cost and effective way of arousing more of  more of the five senses (hearing, sight, smell, taste and touch). Yankee Candle offers candles with a variety of fragrances including apple pumpkin, apple spice, beachwood, black cherry, etc.  Bath and Body Works also provides samples for both olfactory (smell) and touch. Samples of fragrances include lotions, cream, massage oils and fragrance mist. Window shopping is an additional opportunity to enhance visual cues with teaching a number of basic skills.  Other places include day spas, massage chairs and nail salons. Examples of sensory teaching activities include:

Window Shopping (Visual)
  • Will describe the color of the outfits
  • Will identify which items cost the most
  • Will describe how many of the outfits are the same, different
  • Will describe the various shapes (circle, square, triangle, rectangular)
  • Will count the number of items in the window
Olfactory (Smell)
  • Will identify a good smell
  • Will identify a bad smell
  • Will identify the smell (i.e. smells like apples)
Tactile (Touch)
  • Will identify the object
  • Will tolerate hand massage
  • Will touch the object
  • Will describe the shape of the object

***  Be mindful some children and adults may have sensory processing issues and can be oversensitive to sights, textures, flavors and smells.

Social Skills

Teaching social skills involves communication, decision-making, self-management and relationship building. Locations in a shopping center to develop these skills includes, eatery and restaurants, banks, department stores and movie theatres. Samples of teaching social skills includes:

  • Will greet the store associate
  • Will say thank you
  • When promoted, will ask for help
  • Will wait patiently
  • Will make eye contact
  • Will use appropriately voice tone
Teaching Prompts

A few guidelines in teaching new skills:

  • Teach a new skill at least 2-3 times. The shopping center allows multiple opportunities to work on a number of skills including money management, and social skills.
  • Allow the person to think for themselves use prompt levels to help navigate levels of independence: Independent, verbal, gestural and physical.
  • Allow for real choice-making. Choice is more realistic when it involves at least 3 items or more. Choosing a new outfit or an item from a menu are perfect examples.
  • Always remember to praise!

 

 

4 Tips On Task Initiation For Children and Adults

Task Initiation is often a challenge for children and adults with an executive functioning disorder. For a child, it may be lack of initiative in doing homework while for an adult, it may include forgetting or putting off paying bills. Children and adults with task initiation issues generally have a diagnosis of autism, ADHD, Intellectual disability or a learning disorder.

Click here to download a printed version of the article

Signs of a task initiation impaired executive functioning skill would be someone having difficulty in getting started on a task and keeping the effort needed in order to complete the task. A child or an adult require external cues in order to complete the task. Also, it will require understanding what is expected and understanding the task. Here are a few strategies:

  1. Limit Distractions. In the classroom any type of added sensory input can defer the student from getting started in their school work.
  2. Create a List. Visual support will help to increase getting the work done for a school-age child, you may want to create a to-do list which the steps are broken down into smaller steps. When a person with an executive function is given a task, it may be overwhelming, making it more difficult to get started.
  3. Use Cues. A clock or a timer will help the child or adult stay on time and understanding the amount of time it will take to complete a task
  4. Break task down. Create where the work is done in chunks so that the work will not be as overwhelming for the student.

Strategies In Training Employees with ADHD

Have you ever conducted a training with employees where you experienced a participant interrupting you while you were talking, blurting out answers before you complete your sentence or appearing not to pay attention? Chances are you may have an employee diagnosed with ADHD.

Click here to download a printed version

Most people think of children when they hear the word ADHD, but the fact is that ADHD can continue into adulthood and as a life-long challenge. Currently, 4.4% of the U.s adult population is diagnosed with ADHD. Of these adults, 38% are women and 62% are men.

What is ADHD?

Attention deficit/hyperactivity disorder (ADHD) is one of the most common neurodevelopmental disorders which is often characterized by a pattern of inattention/or hyperactivity/impulsivity that can impact workplace learning through making careless mistakes,the inability to complete a task, staying organized and excessive talking throughout the training.

Typically, a person with ADHD, the difficulties lies in the part of the brain that allows people to perform higher level task known as the executive function. 90% of people with ADHD also have an executive function disorder. This is the part of the brain that engages in goal-direction and self-regulations.

Two Types of ADHD:

Types of ADHD

Type 1: Inattention Without Hyperactivity

  • Trouble paying attention
  • Trouble following direction
  • Trouble following through with task
  • Easily distracted
  • Seems disorganized or careless
  • Slow to process information

Type 2: Hyperactivity Without Inattention

  • Trouble paying attention
  • Restlessness
  • Impulsive speech and action
  • Excessive talking
  • Difficulty waiting turns
  • May have a quick temper
  • Overactive
Challenges Training Employees with ADHD

Workplace learning in most cases for the participant means learning new information, participating in training activities, sitting for a period of time and given direction.

  • A participant with ADHD may have difficulty in sustaining attention and remaining focused during lectures.
  • May need questions repeated
  • May have difficulty in grasping main ideas or details during the lecture.
  • Become easily distracted by both internal (day dreaming) or external (noises) stimuli.
  • May blurt out an answer before a question has been completed.
  • May have difficulty in listening in environments with noise distractions.
  • Difficulty in following through with instructions
  • May talk excessively
  • Difficulty in taking turn in a conversation.

The upside is that often when a person with ADHD is interested in a topic, they may hyperfocus, meaning they will fully participant in group discussion, and show great enthusiasm for the subject matter.

Strategies that help in training employees with ADHD include:

Telling participants what they will learn

Vary instructions- auditory alone will not be effective, participants with ADHD will need visual aids as well.

Allow for frequent breaks.

Summarize key points of the training as a way to reinforce the lesson

Create a leadership role such as assisting in setting up any training equipment and giving out training material.

When possible, alternate between physical and mental activities.

Stick to the expectation of the time. It will be difficult for the participant to sustain focus once a time of dismissal is given.

Conduct a stretching activity for the group when possible, I would sometimes include a game of “would you rather.” This works great but should tie into the theme of the training.

Tips to remember:

A diagnosis of ADHD also qualifies under the American Disabilities Act regarding workplace accommodations.

 

 

 

Book Review: My Belly Has Two Buttons: A Tubie Story


Book Review: My Belly has Two Buttons: A Tubie Buttons

Author: Meikele Lee
Illustrator: Rebecca Robertson
Pages: 20

Did you know that according to the Feeding Tube Awareness Foundation, there are over 300 conditions that require children to receive a nutritional support through tube-feeding which is expected to continue to rise?  The decision to use a feeding tube can be frightening for parents, children and siblings alike. Meikele Lee, author, mom and pediatric feeding disorder advocate, wrote this book  through the eyes  of 2-year-old Nico who takes the reader through his own journey of using a G-tube describes the meaning of NPO (nothing by mouth) and his MIC-KEY. A MIC-KEY button is used to conceal the tube as well as decrease the risk of snagging and removing the G-Tube. Nico explains his day of using a feeding bag. I enjoyed reading this book. The book does a great job in describing the purpose of a  g-tube and would be an appropriate book for children new to using a feeding tube, family members including siblings, extended family member and teachers interested in expanding disability educational programs in the school.

Additional Information

Facebook

Twitter

 

Free Asthma and Allergy Training Modules

Before Asthma and Allergy Awareness Month ends, I wanted to post links to free training modules on asthma and allergy. Below you will find a few that are all self-study which you can review on your own time. I included one for teachers and parents that focus on created a lesson plan for children which would be great for child with and without asthma and allergy issues.

Asthma and Nutrition Training Module– Developed by the University of Florida Pediatric Pulmonary Center, this course provides participants information on asthma and nutrition that may be used in assessing and counseling clients. This is a self-study module in a PowerPoint format with audio capture.

Asthma on Wheels Teacher Training Module– Created through the Mecklenburg County Health Department Asthma Education Program. This teacher training module provides a lesson plan to students with discussions of asthma and learning activities and list ways to educate students about asthma being a controllable condition in which students can live actively healthy lives.

Asthma Program- Indiana State Department of Health– Website includes information and resources for healthcare providers including a printable asthma medication poster and an asthma guideline implementation steps and tools.

Continuing Education for Healthcare Professionals– A free online course presented by Cross County University. This course focuses on information on assessment and monitoring, control of environmental factors, medicine management and patient education.

Food Allergy School Staff Training Module– A 30 minute module is designed to assist the school nurse in staff training and increase food allergy awareness for all staff including teachers, administration, aides, specialist and coaches.

Autism and Managing Multi-Tasking and Memory


Source: (Huffington Post)
Writer: Mary Bailey

There are studies and articles that explore the mysteries of multi-tasking and memory in the life of individuals with autism, but there are still huge question marks which have yet to be answered. In my own search for the keys to Chase’s brain, I learned that researchers have discovered that the brains of children with autism are inflexible at rest-to-task performance. This basically means that specific brain connections do not change or function as they should, when switching from a resting-state to a task-state. There can also be impairments in the parts of the brain responsible for prospective memory (remembering things that need to be done in the future) and retrospective memory (remembering things that occurred in the past). Click here to read the rest of the story

National Association of Councils on Developmental Disabilities

Click to download a printed version

Through the Developmental Disabilities Assistance and Bill of Rights Act of 2000, created the State Councils on Developmental Disabilities which serves to coordinate and provide services for individuals with developmental disabilities. In the United States, there are 56 councils focusing on advocacy, systems change, and capacity building.

Alabama
Executive Director: Elmyra Jones-Banks
Phone: 334-242-3973
www.acdd.org

Alaska
Executive Director: Patrick Reinhart
Phone: 907-269-8990
www.dhss.alaska.gov

American Samoa
Executive Director: Norma Smith
Phone: 684-633-2696

Arizona
Executive Director: Erica McFadden
Phone: 602-542-8977
www.azdes.gov/addpc

Arkansas
Executive Director: Eric Munson
Phone/TDD: 501-682-2897
www.ddcouncil.org 

California
Executive Director: Aaron Carruthers
Phone: 916-322-8481
www.scdd.ca.gov

Colorado
Executive Director: Marcia Tewell
Phone/TDD: 720-941-0176
www.coddc.org

Commonwealth of the
Northern Mariana Islands
Executive Director: Pamela Sablan
Phone: 670-664-7000/1
www.cnmicdd.org

Connecticut
Executive Director: Melissa Marshall
Phone: 860-418-6160
www.ct.gov/ctcdd

Delaware
Executive Director: Pat Maichle
Phone: 302-739-3333
www.ddc.delaware.gov

District of Columbia
Executive Director: Mat McCollough
Phone: 202-724-8612
http://ddc.dc.gov

Florida
Executive Director:Valerie Breen
Phone: 850-488-4180
www.fddc.org

Georgia
Executive Director: Eric Jacobson
Phone: 888-275-4233
www.gcdd.org

Guam
Executive Director: Roseanna Ada
Phone: 671-735-9127
www.gddc.guam.gov

Hawaii
Executive Director: Waynette Cabral
Phone: 808-586-8100
www.hiddc.org

Idaho
Executive Director: Christine Pisani
Phone: 208-334-2178 or
1-800-544-2433
www.icdd.idaho.gov

Illinois
Executive Director: Kim Mercer
Phone: 312-814-2080
www.state.il.us/agency/icdd

Indiana
Executive Director: Christine Dahlberg
Phone: 317-232-7770
www.in.gov/gpcpd

Iowa
Executive Director: Becky Harker
Phone: 800-452-1936
http://iddcouncil.idaction.org

Kansas
Executive Director: Steve Gieber
Phone: 785-296-2608
www.kcdd.org

Kentucky
Executive Director: MaryLee Underwood
Phone: 502-564-7841
www.kyccdd.com

Louisiana
Executive Director: Sandee Winchell
Phone: 225-342-6804
www.laddc.org

Maine
Executive Director: Nancy Cronin
Phone: 207-287-4213
www.maineddc.org

Maryland
Executive Director: Brian Cox
Phone: 410-767-3670
www.md-council.org

Massachusetts
Executive Director: Dan Shannon
Phone: 617-770-7676
www.mass.gov/mddc

Michigan
Executive Director: Vendella Collins
Phone: 517-335-3158
www.michigan.gov/mdch

Minnesota
Executive Director: Colleen Wieck
Phone: 651-296-4018
www.mncdd.org

Mississippi
Executive Director: Charles Hughes
Phone: 601-359-6238
www.mscdd.org

Missouri
Executive Director: Vicky Davidson
Phone: 573-751-8611
www.moddcouncil.org

Montana
Executive Director: Deborah Swingley
Phone: 406-443-4332
Fax: 406-443-4192
www.mtcdd.org

Nebraska
Executive Director: Kristen Larson
Phone: 402-471-2330
www.dhhs.ne.gov/ddplanning

Nevada
Executive Director: Sherry Manning
Phone: 775-684-8619
www.nevadaddcouncil.org

New Hampshire
Executive Director: Isadora Rodriguez-Legendre
Phone: 603-271-3236
www.nhddc.org

New Jersey
Executive Director: Kevin Casey
Phone: 609-292-3745
www.njcdd.org

New Mexico
Executive Director: John Block III
Phone: 505-841-4519
www.nmddpc.com

New York
Executive Director: Sheila Carey
Phone: 518-486-7505
www.ddpc.ny.gov

North Carolina
Executive Director: Chris Egan
Phone/TDD: 919-850-2901
www.nccdd.org

North Dakota
Executive Director: Julie Horntvedt
Phone: 701-328-4847
www.ndscdd.org

Ohio
Executive Director: Carolyn Knight
Phone: 614-466-5205
www.ddc.ohio.gov

Oklahoma
Executive Director: Ann Trudgeon
Phone:  405-521-4984
www.okddc.ok.gov

Oregon
Executive Director: Jaime Daignault
Phone: 503-945-9941
www.ocdd.org

Pennsylvania
Executive Director: Graham Mulholland
Phone: 717-787-6057
www.paddc.org

Puerto Rico
Executive Director: Myrainne Roa
Phone: 787-722-0590
www.cedd.pr.gov/cedd

Rhode Island
Executive Director: Kevin Nerney
Phone: 401-737-1238
www.riddc.org

South Carolina
Executive Director: Valarie Bishop
Phone: 803-734-0465
www.scddc.state.sc.us

South Dakota
Executive Director: Arlene Poncelet
Phone: 605-773-6369
www.dhs.sd.gov/ddc

Tennessee
Executive Director: Wanda Willis
Phone: 615-532-6615
www.tn.gov/cdd

Texas
Executive Director: Beth Stalvey
Phone: 512-437-5432
www.tcdd.texas.gov

Utah
Executive Director: Claire Mantonya
Phone/TDD: 801-533-3965
www.utahddcouncil.org

Vermont
Executive Director: Kirsten Murphy
Phone: 802-828-1310
www.ddc.vermont.gov

Virgin Islands
Executive Director: Yvonne Peterson
Phone: 340-773-2323 Ext. 2137
www.dhs.gov.vi/disabilities

Virginia
Executive Director: Heidi Lawyer
Phone: 804-786-0016
www.vaboard.org

Washington
Executive Director: Ed Holen
Phone: 360-586-3560
www.ddc.wa.gov

West Virginia
Executive Director: Steve Wiseman
Phone: 304-558-0416
www.ddc.wv.gov

Wisconsin
Executive Director: Beth Swedeen
Phone: 608-266-7826
www.wi-bpdd.org

Wyoming
Executive Director: Shannon Buller
Phone: 307-777-7230
www.wgcdd.wyo.gov

 

What’s the Difference Between High and Low Functioning Autism?

Teacher helping student in classroom
Source: (Very Well)
Author: Lisa Jo Rudy

People with autism are often described as being “high functioning”  or ” low functioning” But there are no such diagnoses in the diagnostic manual.

In 2013, new diagnostic criteria for autism were created to describe three levels of autism. These levels are supposed to describe the level of support each individual requires.  But there is nothing in the criteria that describes which strengths or challenges would slot an individual into a particular level.

And of course the level of support required by any individual varies based on the situation and setting.

So what is meant by these terms? The answer isn’t obvious. Click here to read the rest of the story.

30 Must-Know ADHD Teaching Resources

Studies show that in the United States, 6.4 million children between the ages of 4-17 have been diagnosed with ADHD. The average age of ADHD diagnosis is 7. Males are almost three times to be diagnosed with ADHD than females.

30-adhd-teaching

The DSM-V defines ADHD as a persistent pattern of attention and or hyperactivity-impulsivity that interferes with functioning of development. Inattention symptoms include the following:

  1. often fails to give close attention to details
  2. often has difficulty sustaining attention in task or play activities
  3. often does not listen when spoken to directly
  4. Often does not follow through on instructions
  5. Often has difficulty organizing task and activities often avoids, dislikes or is reluctant to engage in task that requires sustained mental effort.

Hyperactive symptoms include:

  1. trouble paying attention
  2. restlessness
  3. excessive talking
  4. loud interaction with others
  5. frequent interventions
  6. may have a quick temper

The following links provide tools, resources and information for parents and special education educators on providing support to children diagnosed with ADHD.

Accommodations

Information on classroom accommodations including teaching techniques, learning style, schedule, environment, material, assistance and behavior management.

8 easy classroom accommodations for students with ADHD( Blue Mango)

10 ways to support students with hyperactivity and attention needs  (The Starr Spangled Planner)

Accommodations for ADHD students (ADDCoach4U)

Classroom accommodations for ADHD(Understood)

Every 504 plan should include these ADHD accommodations (ADDitude)

Top 20 ADHD accommodations and modifications that work (Promoting Success Blog)

Classroom Tips and Strategies

The following links are tips and strategies that are specific to teaching techniques and helpful information on behavior approaches, rewards, eliminating distractions and seating arrangements

15 strategies to help students with ADHD (Student Savvy)

30 ideas for teaching children with ADHD (Kelly Bear)

50 practical strategies for teaching ADHD without drugs (ASCD Edge)

ADHD and piano lesson teaching strategies (Teach Piano Today)

ADD/ADHD in the classroom: Tips for teachers and parents (hsana.org)

ADHD Teaching Strategies for the Classroom( Promoting Success Blog)

Classroom interventions for ADHD (pdf)

Classroom rules that keep student’s attention on learning (Additude)

Helping the student with ADHD in the classroom (LDonline)

How can teachers help students with ADHD (Education World)

Ideas and strategies for kids with ADD and learning disabilities (Child Development Institute)

Setting up the classroom (ADD in Schools)

Supporting students with ADHD (Free Spirit Publishing)

Teaching students with ADHD: Instructional strategies and practice (U.S. Department of Education)

Tips for teaching students with ADHD(ADHD Kids Rock)

Concentration

Tips and information from websites on helping students concentrate in the classroom.

5 simple concentration building techniques for kids with ADHD (Empowering Parents)

5 ways to improve your child’s focus (Understood)

17 ways to help students with ADHD concentrate (Edutopia)

Ways to improve concentration in kids with ADHD (Brain Balance)

Executive Functioning

Executive functioning helps students analyze a task, planning, organization, time management and finishing a task. The following links provide articles on understand executive functioning and its relationship to ADHD.

Classroom strategies for executive functioning (Understood)

Executive functioning explained and 20 strategies for success (Minds in Bloom)

Executive function skills (CHADD)

Executive Functioning Issues (Understood)

Handwriting for kids with ADHD (Look! We’re Learning)

Duchenne Muscular Dystrophy

Image result for duchenne muscular dystrophy awareness month

Click here to download a printed version

February 13th is the first day of Duchenne Muscular Dystrophy Awareness Week. Here are some facts on Duchenne Muscular Dystrophy:

  • It is one of the nine types of muscular dystrophies
  • Duchenne muscular dystrophy was first described by French neurologist, Guillaune Benjamin Amand Duchenne in the 1860’s.
  • It is an inherited disorder
  • It is caused by an absence of dystrophin, a protein that bonds the muscle cell
  • It is characterized by progressive muscle degeneration
  • It occurs in about 1 out of every 3,600 male infants
  • Risks include a family history of Duchenne muscular dystrophy
  • Symptoms start appearing between the ages of 3-5.
  • By the age of 12, most males affected may lose their ability to walk
  • Breathing difficulties and heart disease usually start by the age of 20
  • Very rare are females affected by the disease.
  • Early symptoms include muscle weakness in the hips, pelvic area, thighs and shoulders.
  • By teen years, the heart and respiratory muscles are affected.
  • Duchenne muscular dystrophy carriers are females with one normal dystrophin gene on one x chromosome and an abnormal dystrophin gene on the other x chromosome
  • Most carriers do not show any signs or symptoms.
  • Affected children may have delayed motor skills including sitting, standing and walking.
  • Survival into the early 30’s is becoming more common due to advances in cardia and respiratory care.
  • Duchenne is associated with a heart disease that weakens the cardiac muscle
  • Between 400 and 600 boys in the United States are born with these conditions each year.
  • there are a few cases which results from new mutations in affected males
  • steroid drugs can slow the loss of muscular strength
  • There is no known cure for Duchenne muscular dystrophy

Braille Teaching Resources

 

January is Braille Literacy Month.  Invented by Louis Braille, at the age of 15 years old while attending the National Institute for Blind Youth in Paris. Braille lost his sight during a childhood accident at the age of 4. Braille is not a language, rather it is a code that uses symbols formed within units of space that consists of six raised dots , 2 across and 3 down.

The following sites describe Braille:

Braille: Deciphering the code

Braille: What is it?

What is Braille

Louis Braille

The following links below include resources on teaching braille:

 

braille-teaching-resources

 

Braille Teaching Resources

  1. A kitchen curriculum for the parents of visually impaired children. A functional skills curriculum for visual impaired children from infants to 12 on up.
  2. 3 tips for teaching young children with a visual impairment how to become strong readers. Kristen Smith describes ways to prepare young children for reading including creating story boxes, and using all the senses.
  3. 5 ways to teach your blind child how to use an iPad. This article includes a few demonstration via videos and an infographic.
  4. 10 strategies for teaching math to children with visual impairments. Hillary Kleck shares ten strategies for teaching math to children who are blind or visually impaired.
  5. Creating a theme for your braille classroom. Liz Eagan shares tips and suggestions on creating a braille station in the classroom.
  6. Fun ways to teach braille to partially sighted students. Game activities for students that are partially sighted braille readers.
  7. Tips for promoting braille in the classroom. A number of suggestions that give students the opportunity to explore and understand braille
  8. Ten tips to help you teach yourself braille. Wonder Baby’s article includes a braille cheat sheet and a downloadable Braille alphabet and numbers sheet.
  9. Teaching Braille Writing. Tracy Fitch outlines 5 ways to help new learners on using a braille writer.
  10. Tracking activities for pre-braille learners. Resources including a variety of tactile material that can be glued to index cards or braille paper

2017 Disability Awareness Month and Observances

Our 2018 disability awareness month article blog is here

Awareness campaigns serve the purpose of informing and educating people on a certain causes. Each year, the number of special needs organizations bringing awareness to specific disabilities and disorders seems to grow. Awareness activities range from one day to a month.

Here is a calendar of major special needs awareness months, weeks, and days. Most websites include awareness toolkits, promotional materials and fact sheets.

awareness-header

January

January 4- World Braille Day

National Birth Defects National Month

February

February 15- International Angelman Day

Duchenne Muscular Dystrophy Awareness Week February 13-19

March

Down Syndrome Awareness Week March 18- 24 (United Kingdom)

Brain Injury Awareness Month

Cerebral Palsy Awareness Month

Developmental Disabilities Awareness Month

Multiple Sclerosis Month

National Tuberculosis Awareness Month

Social Work Month

Trisomy Awareness Month

April

Auditory Processing Awareness Month

Autism Awareness Month

Occupational Therapy Month

May

May 5- Cri Du Chat International Day

International Cri Du Chat Awareness Week May 1-7

Asthma and Allergy Awareness Month

Apraxia Awareness Month

Better Speech and Hearing Month

Cystic Fibrosis Awareness Month

Mental Health Awareness Month

Prader Willi Awareness Month

Williams Syndrome Awareness Month

June

Helen Keller Deaf-Blind Awareness Week June 24-30

Dravet Syndrome Awareness Month

Tourette Syndrome Awareness Month

July

National Fragile X Awareness Month

August

Aicardi Syndrome Awareness Month

September

Craniofacial Acceptance Month

Hydrocephalus Awareness Month

National Spinal Cord Injury Month Awareness

Sickle Cell Anemia Awareness Month

October

October 6- World Cerebral Palsy Day

OCD Awareness Week- October 8-14

ADHD Awareness Month

Down Syndrome Awareness Month

National Disability Awareness Month

National Dyslexia Awareness Month

National Physical Therapy Month

Rett Syndrome Awareness Month

Sensory Processing Awareness Month

Special Needs Law Month

Spinal Bifida Awareness Month

November

November 4- National Stress Awareness Month

22q Awareness Month

Epilepsy Awareness Month

December

December 3- International Day of Persons With Disabilities

 

 

 

 

 

 

Why “High Functioning” Autism Is So Challenging

Man with head in the clouds
Source:(Very Well)
Author: Lisa Jo Rudy

The autism spectrum is very large.  If you think of it as a rainbow (or a bell curve), you’ll note that there’s an awful lot of the spectrum that is at neither one end nor the other — but somewhere in the middle.

At this point in history, we don’t have good information to tell us whether MOST people on the autism spectrum are “somewhere in the middle,” but it is clear that the lion’s share of media attention goes to folks at the high and the low ends of the spectrum — that is, the profoundly disabled and the very high functioning. Please click here to read the rest of the story.